#174 - Dating in Down Syndrome (with Terri Couwenhoven)

Dr. Joaquin Espinosa is the Executive Director of the Linda Crnic Institute for Down Syndrome at the University of Colorado.  He joins the podcast today to discuss his research on inflammation in Down syndrome and how modifications in the immune system can potentially be used in treatment of common disease conditions seen in people with Down syndrome.

To learn more about the Human Trisome Project, visit:
https://www.trisome.org

To learn more about research trials in Down syndrome, visit:
https://www.clinicaltrials.gov

If you would like to suggest a topic for us to cover on the podcast, please send an e-mail to DownSyndromeCenter@chp.edu.

If you would like to partner with the Down Syndrome Center, including this podcast, please visit https://givetochildrens.org/downsyndromecenter.

Terri Couwenhoven is known internationally for her work as a sex educator specializing in creating programs and resources for people who have intellectual disabilities, their famlies, and the professionals who support them.  She rejoined the podcast this week to talk about dating and Down syndrome.  

For more information on Terri, her amazing resources, book her as a speaker for your group, go to:  https://www.terricouwenhoven.com/

Resources discussed on the podcast:

Dating in Down Syndrome Books by Terri
https://www.terricouwenhoven.com/work

Adult Down Syndrome Center (Advocate Medical Group)
https://adscresources.advocatehealth.com/search/?keyword=dating&category=Sexual%20Health%20and%20Relationships

National Council on Independent Living
https://ncil.org/resources/sex-ed-for-individuals-with-i-dd/

If you would like to suggest a topic for us to cover on the podcast, please send an e-mail to DownSyndromeCenter@chp.edu.

If you would like to partner with the Down Syndrome Center, including this podcast, please visit https://givetochildrens.org/downsyndromecenter.

Thank you to “Caring for Kids” The Carrie Martin Fund for its support of the Down Syndrome Center Podcast. 

Terri Couwenhoven is known internationally for her work as a sex educator specializing in creating programs and resources for people who have intellectual disabilities, their famlies, and the professionals who support them.  She has been on the podcast before but joins us again to today for updates on the topic of sexuality and Down syndrome.  

For more information on Terri, her amazing resources, book her as a speaker for your group, go to:  https://www.terricouwenhoven.com/

Resources discussed on the podcast:
https://www.nytimes.com/2022/01/20/well/sustainable-period-products.html

Terri's books!
https://www.terricouwenhoven.com/work

The Healthy Bodies Toolkit
https://vkc.vumc.org/HealthyBodies/index.html

Planet Puberty
https://www.planetpuberty.org.au

Amaze
https://amaze.org

If you would like to suggest a topic for us to cover on the podcast, please send an e-mail to DownSyndromeCenter@chp.edu.

If you would like to partner with the Down Syndrome Center, including this podcast, please visit https://givetochildrens.org/downsyndromecenter.

Thank you to “Caring for Kids” The Carrie Martin Fund for its support of the Down Syndrome Center Podcast. 

Dr. Heather Porter from Boys Town Research Hospital joined the podcast to discuss hearing health in Down syndrome.  This is part 2 of the 2 part podcast.

https://www.boystownhospital.org/services/ear-nose-throat/pediatric-hearing-clinic

If you would like to suggest a topic for us to cover on the podcast, please send an e-mail to DownSyndromeCenter@chp.edu.

If you would like to partner with the Down Syndrome Center, including this podcast, please visit https://givetochildrens.org/downsyndromecenter.

Thank you to “Caring for Kids” The Carrie Martin Fund for its support of the Down Syndrome Center Podcast. 

Dr. Heather Porter from Boys Town Research Hospital joined the podcast to discuss hearing health in Down syndrome.  This is part 1 of a 2 part series.

https://www.boystownhospital.org/services/ear-nose-throat/pediatric-hearing-clinic

If you would like to suggest a topic for us to cover on the podcast, please send an e-mail to DownSyndromeCenter@chp.edu.

If you would like to partner with the Down Syndrome Center, including this podcast, please visit https://givetochildrens.org/downsyndromecenter.

Thank you to “Caring for Kids” The Carrie Martin Fund for its support of the Down Syndrome Center Podcast. 

Dr. Seth Keller concludes our discussion on dementia in Down syndrome with part 2 of this podcast.

If you would like to suggest a topic for us to cover on the podcast, please send an e-mail to DownSyndromeCenter@chp.edu.

If you would like to partner with the Down Syndrome Center, including this podcast, please visit https://givetochildrens.org/downsyndromecenter.

Thank you to “Caring for Kids” The Carrie Martin Fund for its support of the Down Syndrome Center Podcast. 

Dr. Seth Keller joined the podcast to share his insights into dementia and Down syndrome.  This is part 1 of a 2 part podcast.

If you would like to suggest a topic for us to cover on the podcast, please send an e-mail to DownSyndromeCenter@chp.edu.

If you would like to partner with the Down Syndrome Center, including this podcast, please visit https://givetochildrens.org/downsyndromecenter.

Thank you to “Caring for Kids” The Carrie Martin Fund for its support of the Down Syndrome Center Podcast. 

Listen as Dr. Vellody reflects on the history of this podcast, the history of the Down Syndrome Center, and looks towards the future for both!  To learn more about the Down Syndrome Center, you can visit https://www.chp.edu/our-services/down-syndrome.  

If you would like to suggest a topic for us to cover on the podcast, please send an e-mail to DownSyndromeCenter@chp.edu.

If you would like to partner with the Down Syndrome Center, including this podcast, please visit https://givetochildrens.org/downsyndromecenter.

Thank you to “Caring for Kids” The Carrie Martin Fund for its support of the Down Syndrome Center Podcast. 

Speech language pathologist Heather Vukelich joined the podcast today to inform us about TalkTools and techniques to address feeding and speech clarity in people with Down syndrome.  

Websites/Resources
www.talktools.com
www.happykidstherapy.com  
www.happykidstherapy.com/feeding-class 
https://www.instagram.com/happykidstherapy/

Nancy Gianni, Founder and Chief Belief Officer of Gigi's Playhouse, joined the podcast as part of our "Meet The Nationals" series.  Gigi's Playhouse provides free educational, therapeutic-based, and career development programs for individuals with Down syndrome, their families, and the community, through a replicable playhouse model.  Their mission and purpose is to change the way the world views Down syndrome and to send a global message of acceptance for all.

For more information on Gigi's Playhouse:
https://gigisplayhouse.org

Nancy Gianni's book:
https://shopgigisplayhouse.org/shop/generationg-a-true-story-of-miracles-hope-and-unconditional-acceptance/

If you would like to suggest a topic for us to cover on the podcast, please send an e-mail to DownSyndromeCenter@chp.edu.

If you would like to partner with the Down Syndrome Center, including this podcast, please visit https://givetochildrens.org/downsyndromecenter.

Thank you to “Caring for Kids” The Carrie Martin Fund for its support of the Down Syndrome Center Podcast.