65. Importance of Patient Organizations

Join us this week for an insightful and encouraging discussion with Drs. Mandal and Grant, the founders of The Rheumatology Access Expansion Initiative (RAE). RAE is a project designed to support the Navajo Nation, an underserved community with respect to rheumatic disease. Our guests explain how leveraging the established educational model, Extension for Community Healthcare Outcomes (ECHO), was used to remotely train PCPs among the Navajo in the diagnosis and evidence-based treatment of rheumatoid arthritis (RA). 

Kicking off a new series in conjunction with ARP, we’re spending time with professionals in the field of rheumatology that can, and do, much for our patients. Today, our focus centers on The Occupational Therapist. But how much do we know of our colleagues and their contributions toward our patients? What does an occupational therapist do, with our referrals in hand? We caught up with the founder of Arthritis Life and host of the Arthritis Life Podcast, Cheryl Crow, to answer that question and much more. Cheryl explains to us what happens at an OT visit, what sorts of patients should see an OT, how to manage pain from exercise as well as sharing with us her favorite life hacks and her own personal journey from patient to advocate. 

If there was ever any evidence for the depth of complexity within our own brains, look no further than the placebos and their effects. Both a help and hinderance to the medical community, rheumatology clinicians and researchers can agree that when testing new treatments, the placebo effect is as powerful as it is disruptive. But what is it exactly? How does it work and for which symptoms? Are there symptoms to which this effect is ineffective? How can you diminish the effect? What is the “Nocebo Effect” and what ethics are involved when dealing with placebos? To answer these questions, we’ve invited Professor Ted Kaptchuk, director of the Harvard-wide Program in Placebo Studies and the Therapeutic Encounter (PiPS) at Beth Israel Deaconess Medical Center in Boston, Massachusetts to be our guest today and tell us all about placebos, their effects and why they work. 

Join us this week for an in-depth discussion on IgG4-Related Disease with one of the premiere researchers in the field, Dr. John Stone. On this episode, Dr. Stone reviews the disease clinical presentation as well as its symptoms, how to make the diagnosis, treatment options, the role of IgG4 and what happens inside the body. Later, we discuss Dr. Stone’s research along with his personal journey in the field. 

As the year winds down and a new year is about to begin, looking back sometimes forces us to look ahead. Last month’s Convergence 2023 offered an opportunity to do just that: Look Ahead! We’ve invited the two speakers from the “The Clinical Year in Preview” session, Joan Bathon, MD and Jill Buyon, MD to discuss with us the latest abstracts that are expected to make the biggest waves in the coming year, as they relate to Rheumatoid Arthritis (RA) and Systemic Lupus Erythematosus (SLE). We discuss a variety of abstracts that include the use of AI, steroid use, hydroxychloroquine dosing, preventing the development of RA in lupus, pregnancy in lupus dosing for methotrexate and much, much more. 

Dr. Hausmann interviews the first author of the 2022 American College of Rheumatology Guideline for the Prevention and Treatment of Glucocorticoid-Induced Osteoporosis Guideline Summary , Mary Beth Humphrey, MD, PhD this week. We discuss what glucocorticoid-induced osteoporosis (GIOP) is and why it's important for people with rheumatic diseases, the need for an updated guideline, how adult and pediatric patients should be screened, risk categorization and much, much more 

We are LIVE from the San Diego Convention Center with Dr. Snow, Dr. Bulbin, and Dr. Phillips, fresh from their presentation at Convergence 2023 regarding the recruitment and retention of our rheumatology workforce!  

Dr. Hausmann, MD interviews our Convergence attendees on the floor of the San Diego Convention Center! Here's your Daily Round Up for Sunday, November 13th 2023

Dr. Hausmann, MD interviews our Convergence attendees on the floor of the San Diego Convention Center! Here's your Daily Round Up for Sunday, November 13th 2023

Award-winning researcher, Dr. Doruk Erkan joins us today with newly published classification criteria for Antiphospholipid Syndrome (APS). Dr. Erkan joins us today with those criteria and why he believes there is sufficient evidence to “Rethink APS”.