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    BONUS: Parky Politics (Not) in the Pub – Victoria Atkins

    enJune 26, 2024

    Podcast Summary

    • Parkinson's Awareness and ServicesThe Secretary of State for Health and Social Care, Victoria Atkins, emphasized the importance of understanding Parkinson's disease and improving services for those affected. She shared her personal motivation and commitment to addressing historical stigmas and increasing awareness.

      Victoria Atkins, the Secretary of State for Health and Social Care, emphasized the importance of understanding Parkinson's disease and improving the services for those affected. She shared her personal experience as a person with type 1 diabetes and her motivation to enter politics to help improve the NHS and address its challenges. Atkins acknowledged the need for more awareness and knowledge about Parkinson's, as well as addressing historical stigmas surrounding the condition. She expressed her commitment to addressing these issues and even included Parkinson's in the Conservative Party manifesto. The discussion also touched on the impressive work of organizations like Movers and Shakers in advocating for better services and support for people with Parkinson's.

    • UK govt commitment to neurologyThe UK govt aims to attract more trainees to neurology, provide nimble regulation, support research, and secure commercial clinical trials to enhance the sector, despite a current shortage of neurologists.

      The UK government is committed to enhancing the life sciences sector, particularly in neurology, to address the current issues of long wait times for specialists and attract more trainees. The government aims to provide nimble and agile regulation, support research into new treatments, and secure more commercial clinical trials. However, concerns have been raised about the low number of neurologists in the UK, which currently stands at 44 out of 45 in Europe. The Secretary of State plans to investigate why neurology is not attracting as many trainees and commission work on neurology specialist nurses to address the issue. The latest figures show that 94% of neurology trainee places were filled last year, which indicates a promising future for the field if these trainees continue in their path. The government recognizes the importance of neurology specialists and is taking steps to make it more attractive and ensure adequate staffing in the future.

    • NHS workforce expansion and patient informationThe UK government aims to train 92,000 more nurses and 28,000 more doctors by 2030, expanding medical schools and specialties. Instant patient information provision is also a priority, with initiatives like 'Bob's Brainwaves' providing practical assistance for families dealing with dementia diagnoses.

      The government, in collaboration with NHS England, has a well-thought-out plan to train 92,000 more nurses and 28,000 more doctors by 2030. This includes expanding medical schools and specialties to address the needs of various healthcare areas. However, it's important to distinguish between appointments and procedures when evaluating promises, as there is a difference in terms of waiting lists. Instant information provision is another priority, which involves providing written information to patients during appointments to help them better understand and cope with their diagnoses. An example of this is the work of Chris, who set up "Bob's Brainwaves" to assist families dealing with dementia diagnoses by providing them with necessary practical information.

    • Devolving Parkinson's disease reviews to GPsGovernment is considering devolving periodic reviews of Parkinson's disease to GPs under the Quality and Outcomes Framework to reduce backlog and improve access to care

      There is a significant backlog in diagnoses and reviews for people with Parkinson's disease, leading to long wait times. A potential solution suggested is devolving the process of periodic reviews to GPs under the Quality and Outcomes Framework (QOF), similar to how it is handled for other chronic conditions. This framework incentivizes GPs to conduct periodic checks, which could help reduce the backlog and allow for timely reviews for Parkinson's patients. The government is currently considering reforms to COAF to better meet the needs of patients in primary care, and initiatives like "pharmacy first" are being implemented to free up GP time and resources. This idea of devolving periodic reviews to GPs is an interesting one, as it could potentially help address the backlog and improve access to care for those with Parkinson's disease.

    • Holistic care in NHSThe NHS is focusing on providing more holistic care, treating patients as individuals rather than just their conditions, to address the challenges of an aging population and increasing healthcare needs.

      The NHS is facing increasing demands due to an aging population and more people living with multiple conditions. To address this challenge, the NHS is focusing on providing more holistic care, treating each patient as a whole. This approach is not limited to specific conditions like cancer but should be applied across the board. The government aims to publish a major condition strategy to tackle the six or seven most common conditions, including Parkinson's, in a more comprehensive and integrated manner. The CMA shares this vision, and the NHS is working to make the healthcare system faster, simpler, and fairer by focusing on treating patients as individuals rather than just their conditions. The increase in volume and complexity of healthcare needs is a significant challenge. However, the government is committed to improving the PIP assessment process to provide more objective considerations for Parkinson's patients, enabling them to function independently.

    • Government policy on Parkinson's and workThe gov't policy focuses on managing health claims, not limiting work opportunities for those with Parkinson's. £375M invested in neurodegenerative research, incl. Parkinson's, over 5 years.

      The government's policy regarding people with Parkinson's and their ability to work is not about limiting their opportunities, but rather about addressing the rising number of claims for ill health, including mild forms of mental ill health. The policy is not intended to target those with Parkinson's specifically, and the government acknowledges that some individuals with the condition continue to work and thrive. Regarding funding for a cure, the government has committed to investing £375 million in neurodegenerative disease research over the next five years, with Parkinson's being a significant part of that investment. The National Institute of Research does not usually ring-fence funds, but invites researchers with promising ideas to apply for the funding. The UK, with its large life sciences industry, is believed to be a prime location for discovering a cure for neurodegenerative diseases.

    Recent Episodes from Movers and Shakers: a podcast about life with Parkinson's

    Parky Profiles: Paul Sinha

    Parky Profiles: Paul Sinha

    In the pub this week, for the latest instalment of our Parky Profiles series, is none other than Paul Sinha: qualified doctor, award-winning comedian, professional Chaser. Paul's journey through Parkinson's hasn't been without its difficulties – to compound things, he had a heart attack at the Edinburgh festival – but over a Diet Coke in the Notting Hill pub, Paul shares his wit and wisdom on living, and thriving, with Parkinson's.


    Presented by Rory Cellan-Jones, Gillian Lacey-Solymar, Mark Mardell, Paul Mayhew-Archer, Sir Nicholas Mostyn and Jeremy Paxman.

    Produced and edited by Nick Hilton for Podot.

    Additional production by Ewan Cameron.

    Music by Alex Stobbs.

    Artwork by Till Lukat.

    PR by Sally Jones.


    For more additional information about the show, as well as extra resources and exclusive content, please visit MOVERSANDSHAKERSPODCAST.COM



    Hosted on Acast. See acast.com/privacy for more information.


    BONUS: Parky Politics (Not) in the Pub – Victoria Atkins

    BONUS: Parky Politics (Not) in the Pub – Victoria Atkins

    On this bonus election episode of the podcast (don't worry, the politics is over and our Parky Profile series will resume on Saturday!) we're speaking to Victoria Atkins, the current Secretary of State for Health and Social Care. We discuss the impact that the Conservatives are having on the backlog in the health service, the future for neurological provision, and what she can – and can't – promise when it comes to the Parky Charter.


    Presented by Rory Cellan-Jones, Gillian Lacey-Solymar, Mark Mardell, Paul Mayhew-Archer, Sir Nicholas Mostyn and Jeremy Paxman.

    Produced and edited by Nick Hilton for Podot.

    Additional production by Ewan Cameron.

    Music by Alex Stobbs.

    Artwork by Till Lukat.

    PR by Sally Jones.


    For more additional information about the show, as well as extra resources and exclusive content, please visit MOVERSANDSHAKERSPODCAST.COM



    Hosted on Acast. See acast.com/privacy for more information.


    Parky Politics in the Pub – with Wes Streeting

    Parky Politics in the Pub – with Wes Streeting

    In just a couple of weeks, Wes Streeting may find himself the Secretary of State for Health and Social Care. If that wasn't a sufficiently daunting proposition, this week he finds himself at the Notting Hill pub surrounded by our group of militant Parkies! What does Streeting make of the Parky Charter? Will he promise an influx of new neurologists? And how will he prevent the NHS succumbing to sclerosis? On this special election edition of Movers and Shakers, the gang put the prospective Health Secretary through his paces!


    Presented by Rory Cellan-Jones, Gillian Lacey-Solymar, Mark Mardell, Paul Mayhew-Archer, Sir Nicholas Mostyn and Jeremy Paxman.

    Produced and edited by Nick Hilton for Podot.

    Additional production by Ewan Cameron.

    Music by Alex Stobbs.

    Artwork by Till Lukat.

    PR by Sally Jones.


    For more additional information about the show, as well as extra resources and exclusive content, please visit MOVERSANDSHAKERSPODCAST.COM



    Hosted on Acast. See acast.com/privacy for more information.


    Parky Profiles: Susie Sainsbury

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    For the second instalment of our summer series profiling extraordinary people with Parkinson's, the gang are joined in the Notting Hill pub by Dame Susie Sainsbury. A note philanthropist and patron of the arts, Susie has spent decades living with PD. But what caused her to spend 3 years keeping the diagnosis totally secret, even from her husband, former Science Minister David Sainsbury? And how does she now find herself involved with an experimental programme building bridges between the Netherlands and, er, Bristol?


    Presented by Rory Cellan-Jones, Gillian Lacey-Solymar, Mark Mardell, Paul Mayhew-Archer, Sir Nicholas Mostyn and Jeremy Paxman.

    Produced and edited by Nick Hilton for Podot.

    Additional production by Ewan Cameron.

    Music by Alex Stobbs.

    Artwork by Till Lukat.

    PR by Sally Jones.


    For more additional information about the show, as well as extra resources and exclusive content, please visit MOVERSANDSHAKERSPODCAST.COM



    Hosted on Acast. See acast.com/privacy for more information.


    Parky Profiles: Guy Deacon

    Parky Profiles: Guy Deacon

    This week, we're kicking off our summer mini-series, profiling top Parkies who are leading extraordinary lives despite – or because of – the condition. First up: Guy Deacon. Guy has driven from Morocco to South Africa in a VW Camper Van since his diagnoses, which makes him a perfect person to pontificate on how to take big, adventurous risks when living with the illness.


    Presented by Rory Cellan-Jones, Gillian Lacey-Solymar, Mark Mardell, Paul Mayhew-Archer, Sir Nicholas Mostyn and Jeremy Paxman.

    Produced and edited by Nick Hilton for Podot.

    Additional production by Ewan Cameron.

    Music by Alex Stobbs.

    Artwork by Till Lukat.

    PR by Sally Jones.


    For more additional information about the show, as well as extra resources and exclusive content, please visit MOVERSANDSHAKERSPODCAST.COM



    Hosted on Acast. See acast.com/privacy for more information.


    Mailbag #3

    Mailbag #3

    It's the season finale of Movers and Shakers, which means that it's time to answer some of your letters. From discussion about the Charter to playing walking football at the Emirates, this is a diverse mailbag that captures the wit and wisdom of the Movers and Shakers community. And then, at the end of the episode, we have a little treat: music extracted from Parky tremors!


    Presented by Rory Cellan-Jones, Gillian Lacey-Solymar, Mark Mardell, Paul Mayhew-Archer, Sir Nicholas Mostyn and Jeremy Paxman.

    Produced and edited by Nick Hilton for Podot.

    Additional production by Ewan Cameron.

    Music by Alex Stobbs.

    Artwork by Till Lukat.

    PR by Sally Jones.


    For more additional information about the show, as well as extra resources and exclusive content, please visit MOVERSANDSHAKERSPODCAST.COM



    Hosted on Acast. See acast.com/privacy for more information.


    Cell Therapy

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    Presented by Rory Cellan-Jones, Gillian Lacey-Solymar, Mark Mardell, Paul Mayhew-Archer, Sir Nicholas Mostyn and Jeremy Paxman.

    Produced and edited by Nick Hilton for Podot.

    Additional production by Ewan Cameron.

    Music by Alex Stobbs.

    Artwork by Till Lukat.

    PR by Sally Jones.


    For more additional information about the show, as well as extra resources and exclusive content, please visit MOVERSANDSHAKERSPODCAST.COM



    Hosted on Acast. See acast.com/privacy for more information.


    What Causes Parkinson's?

    What Causes Parkinson's?

    What causes Parkinson's? This is one of the trickiest questions facing researchers and doctors – not to mention patients – and it's the topic being tackled by the Movers and Shakers as they take to the Notting Hill pub today. Is there something atmospheric? Or does the club lie in our DNA? Our guide through this topic is Professor Matt Farrer, one of the leading lights of this research area.


    Presented by Rory Cellan-Jones, Gillian Lacey-Solymar, Mark Mardell, Paul Mayhew-Archer, Sir Nicholas Mostyn and Jeremy Paxman.

    Produced and edited by Nick Hilton for Podot.

    Additional production by Ewan Cameron.

    Music by Alex Stobbs.

    Artwork by Till Lukat.

    PR by Sally Jones.


    For more additional information about the show, as well as extra resources and exclusive content, please visit MOVERSANDSHAKERSPODCAST.COM



    Hosted on Acast. See acast.com/privacy for more information.


    The Movers & Shakers Take Downing Street!

    The Movers & Shakers Take Downing Street!

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    Presented by Rory Cellan-Jones, Gillian Lacey-Solymar, Mark Mardell, Paul Mayhew-Archer, Sir Nicholas Mostyn and Jeremy Paxman.

    Produced and edited by Nick Hilton for Podot.

    Additional production by Ewan Cameron.

    Music by Alex Stobbs.

    Artwork by Till Lukat.

    PR by Sally Jones.


    For more additional information about the show, as well as extra resources and exclusive content, please visit MOVERSANDSHAKERSPODCAST.COM



    Hosted on Acast. See acast.com/privacy for more information.


    Parkinson's on the Screen

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    Presented by Rory Cellan-Jones, Gillian Lacey-Solymar, Mark Mardell, Paul Mayhew-Archer, Sir Nicholas Mostyn and Jeremy Paxman.

    Produced and edited by Nick Hilton for Podot.

    Additional production by Ewan Cameron.

    Music by Alex Stobbs.

    Artwork by Till Lukat.

    PR by Sally Jones.


    For more additional information about the show, as well as extra resources and exclusive content, please visit MOVERSANDSHAKERSPODCAST.COM



    Hosted on Acast. See acast.com/privacy for more information.