Climbing the Mountain of Chronic Pain: Dr Furlan on Pain

Episode Summary

****Please see the episode trigger warning below. On episode 119 of the Arthritis Life Podcast, Christine Troyano shares her journey of living, traveling the world and dancing with rheumatoid arthritis.  She also opens up about pressures she experienced as a young person to treat her arthritis without medication, and then shares her experiences navigating different treatments to manage her RA over the past 32 years. 

Christine shares stories of her travels through South Korea and Indonesia, and her passion for dancing. She shares how she developed resilience during challenging situations, from insurance barriers and navigating healthcare disparities between countries, to adversity in relationships. 

Christine explains how dance became a transformative force in her life, where she found a space for self-expression and physical release. Christine and Cheryl emphasize the importance of self-advocacy in managing chronic illness, building a supportive community, and finding joy through the challenges.

*Trigger warning for this episode*: Between minute 29:00-34:00 there is a discussion of emotional abuse, sexual assault, rape, and abortion.

Medical disclaimer:

All content found on Arthritis Life public channels was created for generalized informational purposes only. The content is not intended to be a substitute for professional medical advice, diagnosis, or treatment.

Episode Sponsors

Rheum to THRIVE, an online empowerment program Cheryl created to help people with rheumatic disease go from overwhelmed, confused and alone to confident, supported and connected.  See all the details and join the program or waitlist now!

For full episode details including a video & transcript:

See the episode page on the Arthritis Life Website.

Rosemary also shares her experience with a mystery skin rash that ended up being a rare psoriatic arthritis medication side effect: leukocytoclastic vasculitis triggered by drug-induced lupus, and an eventual diagnosis of Palisaded Neutrophilic and Granulomatous Dermatitis. 

Throughout the episode, Rosemary and Cheryl discuss the importance of coping skills for difficult medical experiences. They also emphasize the importance of finding the right medications, lifestyle strategies, and the role of psychosocial support. Uncertainty and setbacks can be overwhelming, but self-compassion, support systems, acceptance, and perseverance can help you pursue a fulfilling life despite health challenges.

Episode at a glance:

• Chronic Illness Journey: The interview delves into Emily's journey of living with chronic illnesses, from psoriatic arthritis, to developing drug-induced lupus which triggered leukocytoclastic vasculitis, and eventually being diagnosed with Palisaded Neutrophilic and Granulomatous Dermatitis (PNGD).
• Medication Management: Rosemary shares her experiences with various medications, including Enbrel, Humira, and Plaquenil, discussing their effectiveness in managing her symptoms and the decision-making process involved in discontinuing certain medications. They discuss the importance in recognizing adverse effects, while balancing this understanding with the benefits that medications do provide.
• Lifestyle strategies: Rosemary emphasizes the importance of physical activity and wellness in her life, despite her health challenges.
• Emotional Resilience: Navigating the emotional highs and lows with chronic illness can be overwhelming, from the initial relief of finding treatments to the grief and uncertainty of adjusting plans. Cheryl and Rosemary discuss self-advocacy, and pursuing fulfilling lives despite obstacles .
• Adapting to Change: Rosemary and Cheryl discuss how to adapt to change, both in terms of treatment plans and mindset towards living with chronic illness, including exploring alternative treatments and embracing new perspectives.
• Support: Rosemary reflects on the role of support from healthcare providers, online support groups, and in personal relationships - underscoring the importance of having a strong network when facing chronic illness.
• Advice to Newly Diagnosed Patients: “You don't have control of the fact that that happened to you, and you didn't do anything wrong. All you can do now is choose how to react to it. Do the next right thing. Little by little by little, it'll start coming together. And you're going to be okay.”

Medical disclaimer: 

All content found on Arthritis Life public channels was created for generalized informational purposes only. The content is not intended to be a substitute for professional medical advice, diagnosis, or treatment.

Episode Sponsors

Rheum to THRIVE, an online course and support program Cheryl created to help people with rheumatic disease go from overwhelmed, confused and alone to confident, supported and connected. See all the details and join the program or waitlist now! 

For full episode details including a transcript

Go to the episode page on the Arthritis Life Website (transcript coming soon!).

Cheryl and Dr. Kimberly discuss the importance of pain science education to help patients better understand and manage their pain perception. The also explore the importance of building a network of health professionals and support groups to empower patients to advocate for themselves and navigate their treatment journey effectively. They conclude by discussing how to accept limitations while finding joy and adapting to new activities.

Episode at a glance:

• Building Support Networks: Cheryl and Dr. Kimberly discuss the significance of building support networks, including health professionals, support groups, and reliable online resources to empower patients to advocate for themselves and navigate their treatment journey effectively.
• Pain Perception: They explore the complexities of interpreting pain signals, and discuss strategies for managing pain perception through education and awareness.
• Practical tips for Exercise for rheumatic disease: They share exercise tips,  including to start slow, give yourself time to adjust, consider the pillars of physical activity, and try to be consistent. Some types of exercise to consider are aquatic exercise, hand exercise, or individually prescribed exercise from a physical therapist who understands your specific needs.
• Which lifestyle interventions have the most scientific evidence: They discuss the 2022 ACR Integrative Guidelines for RA and how lifestyle interventions such as physical activity, nutrition, sleep, and stress management can help reduce arthritis pain and fatigue.
• Acceptance and Adaptation: They address the importance of accepting limitations while finding joy and fulfillment in adapting to new activities and experiences, encouraging patients to focus on what is still possible despite challenges.
• Individual needs: They highlight the need for patients to understand their own bodies' rhythms and balancing interventions based on their unique needs.

Medical disclaimer: 

All content found on Arthritis Life public channels was created for generalized informational purposes only. The content is not intended to be a substitute for professional medical advice, diagnosis, or treatment.

Episode Sponsors

Rheum to THRIVE, an online course and support program Cheryl created to help people with rheumatic disease go from overwhelmed, confused and alone to confident, supported and connected. See all the details and join the program or waitlist now! 

For full episode show notes including a transcript:

Go to the episode page on the Arthritis Life Website.

In episode 116 of the Arthritis Life Podcast, Lauren Huffman shares her journey with Ankylosing Spondylitis, and how her passion for occupational therapy and dogs has brought her meaning even through challenges.

She and Cheryl give insight into the “behind the scenes” of Arthritis Life, and what resources are available. They discuss the importance of support in navigating rheumatic disease, and how the comprehensive approach of Rheum to THRIVE fills gaps in the healthcare system. 

Episode at a glance:

• Diagnosis Story: Lauren recounts her journey with ankylosing spondylitis, and how the diagnosis was both a relief and overwhelming. She and Cheryl discuss tools and strategies for managing symptoms, including medication management and communication with healthcare providers.
• Occupational Therapy: Lauren, OT student and Cheryl, OT talk about what occupational therapy is, and how it’s holistic approach relates to management of rheumatic disease
• Arthritis Life: Lauren and Cheryl discuss the “behind the scenes” of Arthritis Life and Rheum to THRIVE,
• Dogs: Lauren reflects on her background in dog training, and how this passion has brought her joy despite challenges. She shares her experience with dog sports and raising service dogs in training, and how this has given her insight into adapting to make life with a furry friend possible and meaningful.
• Mental Health and Identity: Sometimes the unpredictability and dynamic nature of chronic illness can rob your enthusiasm, but it’s possible to thrive through acceptance, adaptations, and management strategies. Lauren shares words of wisdom to show up for yourself on good days and bad days, and to take care of yourself in a way that helps you to be resilient.
• Advice for Newly Diagnosed Patients: Lauren shares her perspective on Rheum to THRIVE, expressing the value of the comprehensive approach, connection to resources, and support from people who “get it”.

Medical disclaimer:

All content found on Arthritis Life public channels was created for generalized informational purposes only. The content is not intended to be a substitute for professional medical advice, diagnosis, or treatment.

Episode Sponsors

Rheum to THRIVE, an online course and support program Cheryl created to help people with rheumatic disease go from overwhelmed, confused and alone to confident, supported and connected. See all the details and join the program or waitlist now! 

For full episode details plus a transcript

Go to the show page on the Arthritis Life Website.

In this episode, Kate shares her journey getting diagnosed with psoriatic arthritis while working as a chef in London. She opens up about her post-diagnosis emotional roller coaster and shares how joining Cheryl’s Rheum to THRIVE online support and education program helped her feel more confident, empowered and supported.

 She also details other programs that helped her including a mindfulness course and CBT therapy.  The episode ends with Kate sharing what it means to her to live a “good life” with rheumatic disease.

This conversation was first recorded and released as episode 79 in 2022. 

Episode at a glance:

• Kate’s psoriatic arthritis Diagnosis journey: being unable to hold a fork; MRI of her hands showed erosions and inflammatory arthritis
• Emotional Aftermath of Kate’s diagnosis
• Finding community & support: after feeling isolated and not being able to find good answers on her own, Kate joined Rheum to THRIVE and felt more comforted, empowered and supported 
• Two other things that helped kate: Mindfulness course and CBT therapy
• How Kate learned to advocate for her needs with her rheumatologists
• Kate’s favorite life hacks for being a chef with arthritis, including a discussion about what dietary interventions have helped her 

Medical disclaimer: 

All content found on Arthritis Life public channels was created for generalized informational purposes only. The content is not intended to be a substitute for professional medical advice, diagnosis, or treatment.

Episode Sponsors

Rheum to THRIVE, an online course and support program Cheryl created to help people with rheumatic disease go from overwhelmed, confused and alone to confident, supported and connected. See all the details and join the program or waitlist now! 

For full episode show notes including a transcript:

Go to the episode page on the Arthritis Life website. 

Episode at a glance:

For full episode show notes go to the episode page here.

• Diagnosis story: Julia went from having a very active lifestyle, to becoming waking up with pain, fatigue, fever, and other symptoms. After initially thinking her symptoms were from a virus or pushing herself too hard in dance, she received a diagnosis of rheumatoid arthritis.
• Creative Pursuits: Julia expresses joy in dancing, theater, and writing - She shares coping strategies such as planning ahead, giving herself permission to rest and take breaks, social support, and finding positivity through her passions. In addition to her published writing, she is currently working on a novel.
• Resilience and Adaptability: The conversation delves into Julia's experiences as an actress, emphasizing the resilience and the ability to adapt to challenges in artistic pursuits.
• Self-Awareness: Julia encourages listeners to take some time to know themselves and advocate for their feelings. She shares “don’t be afraid to say no”, and honor what you’re feeling each day.
• Living in the Moment: Thriving with rheumatic disease includes being mindful of the present moment, honoring oneself, and finding joy despite the challenges.
• Advice to newly diagnosed patients: Be patient with yourself. Understand how your condition works in your body, and be kind to yourself.

Medical disclaimer:

All content found on Arthritis Life public channels was created for generalized informational purposes only. The content is not intended to be a substitute for professional medical advice, diagnosis, or treatment.

Episode Sponsors

Rheum to THRIVE, an online course and support program Cheryl created to help people with rheumatic disease go from overwhelmed, confused and alone to confident, supported and connected. See all the details and join the program or waitlist now!

For Full Episode Show Notes + Transcript

Go to the episode page here.

In this episode, Cheryl discusses the major themes in Taylor Swift’s music that relate to the chronic illness experience, from the “Haunting” experience of a medication not working anymore to my own “Anti Heroic” immune system to the constant question of “Are We Out of the Woods yet?” when in a flare up.  

After weaving in and out her own experience with rheumatoid arthritis and anxiety with listener contributions, Cheryl concludes by exploring the the “State of Grace” we experience when we connect with the chronic illness community. Throughout, she shares how she’s learned to accept what’s out of her control and the empowerment of acknowledging that while my journey might have been rocky, “Long Story Short: I Survived.”  

Medical disclaimer: 

All content found on Arthritis Life public channels was created for generalized informational purposes only. The content is not intended to be a substitute for professional medical advice, diagnosis, or treatment.

Episode Sponsors

Rheum to THRIVE, an online course and support program Cheryl created to help people with rheumatic disease go from overwhelmed, confused and alone to confident, supported and connected. See all the details and join the program or waitlist now! 

For full episode details including a transcript and video:

Go to the episode page on the Arthritis Life Website! 

Cheryl and Dr. Hosey delve into the importance of accepting the unpredictability of life with chronic illness and redefining what constitutes a "normal" life. This includes a discussion about resilience, mindfulness, and the potential for personal growth in the face of chronic health struggles.

Dr. Hosey's shares how she turned her pain into purpose, referencing her upcoming book, 'Girl on a Gurney: Trading my White Coat for a Hospital Gown’. She also provides tangible solutions for medical gaslighting, including medical student education in this phenomenon.

** Medical disclaimer:

All content found on Arthritis Life public channels was created for generalized informational purposes only. The content is not intended to be a substitute for professional medical advice, diagnosis, or treatment.
Episode Sponsors

** Episode Sponsor
Rheum to THRIVE, an online course and support program Cheryl created to help people with rheumatic disease go from overwhelmed, confused and alone to confident, supported and connected. See all the details and join the program or waitlist now!

*For full episode show notes, go to the show page on the Arthritis Life website at: https://arthritis.theenthusiasticlife.com/2024/01/05/from-medical-gaslighting-to-a-sjogrens-diagnosis-dr-rebecca-hoseys-story/

After discovering that episode 14 is the most downloaded of all my Arthritis Life Podcast episodes, I decided to release it with some additional insights from my perspective now. I also provide some updates after facilitating support groups for over 250 people in the last three years.

This episode includes a deep dive into how rheumatoid arthritis affects more than just joints – it affects people’s whole bodies, and whole lives.  I reflect on the five things I wish I had known when I was first diagnosed, way back in 2003. I hope that these reflections help you feel less alone and more grounded as you try to manage the best life possible with inflammatory arthritis!

Episode at a glance:

• #1 – Rheumatoid Arthritis affects more than just joints.
• #2 – RA affects your social life in difficult ways (such as misconceptions) and positive ways (such as connections with a chronic illness community)
• Tips for using websites and social in productive ways
• #3 – Gray areas are the norm for autoimmune disease
• #4 – Living with chronic illness will affect your mental health.
• Cheryl’s experience with allowing herself to grieve her health
• Medical gaslighting.
• #5 –  Managing RA is a job but you can learn how to do it!

Medical disclaimer: 

All content found on Arthritis Life public channels was created for generalized informational purposes only. The content is not intended to be a substitute for professional medical advice, diagnosis, or treatment.

Episode Sponsors

Rheum to THRIVE, an online course and support program Cheryl created to help people with rheumatic disease go from overwhelmed, confused and alone to confident, supported and connected. See all the details and join the program or waitlist now! 

For full episode details including a transcript:

Go to the episode page on the Arthritis Life website.

This is a follow up to episode 45: “What’s it like to be on Methotrexate for Rheumatoid Arthritis or Psoriatic Arthritis?”  Paulina, Jenny, Ali, and Ananthi share what’s changed and what has stayed the same with their medications, including whether they’re still on methotrexate. They also  reflect on how they’ve navigated the ups and downs of chronic illness life and share how grief and joy can co-exist. They also highlight the importance of  finding a supportive community with shared experiences. They also discuss their choices around how much to share on social media about their experiences.

Paulina, Jenny, Ali, and Ananthi each share wisdom that has guided them along this nonlinear journey; encouraging self-care, advocating, celebrating small victories, and approaching life one day at a time. They conclude with a discussion about how to balance acceptance and adapting with a “fixing” mindset.

Medical disclaimer: 

All content found on Arthritis Life public channels was created for generalized informational purposes only. The content is not intended to be a substitute for professional medical advice, diagnosis, or treatment.

Episode Sponsors

Rheum to THRIVE, an online course and support program Cheryl created to help people with rheumatic disease go from overwhelmed, confused and alone to confident, supported and connected. See all the details and join the program or waitlist now! 

For full episode details including a transcript and video:

Go to the episode page on the Arthritis Life website.