My Son Has IPEX Syndrome and Needs a Lifesaving Transplant | Twin Mom Allison Creech

enOctober 13, 2021

Twiniversity Podcast with Natalie Diaz

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What was the main topic of the podcast episode?

Summarise the key points discussed in the episode?

Were there any notable quotes or insights from the speakers?

Which popular books were mentioned in this episode?

Were there any points particularly controversial or thought-provoking discussed in the episode?

Were any current events or trending topics addressed in the episode?

About this Episode

Nat chats with Allison Creech, mom of twin boys plus an older singleton boy, who is dealing with her son Micah's terminal diagnosis of IPEX Syndrome which will require a bone marrow transplant. Allison shares her feelings around this diagnosis, how she is managing her three boys, and how her faith is helping to get her through this time.

IPEX is a genetic disease of immune dysregulation in which patients can present early in life with diarrhea, diabetes, and eczema. It is extremely rare, affecting 1 in every 1.6 million people. Patients with IPEX have abnormalities in the FOXP3 gene, which controls the production of regulatory T cells, a type of immune cell. Without a normal FOXP3 gene, other immune cells attack the body’s healthy tissues.

You can follow Micah's story here on Facebook.

Visit BeTheMatch.org to join the bone marrow registry.

For more information on IPEX, click here.

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