On Going Flat After A Double Mastectomy For Breast Cancer

Paralyzed by Guillain-Barré syndrome (GBS) as a new mom, Holly shares with us the heartbreak she felt when physical bonding with her baby would suddenly change as well as the beautiful ways she and her daughter were able to find paths to communicate and bond, despite her paralysis.

Please note that this discussion has been extracted from video recordings that can be found on www.chroniclove.org/videos or on our YouTube channel, where we welcome you to show some love by staying tuned at https://www.youtube.com/@chroniclove?sub_confirmation=1

DISCLAIMER: 

Chronic Love, Inc. content relates to wellness topics with a particular focus on living with and thriving through chronic illnesses.  By listening to our content, you acknowledge and agree that the following warnings and disclaimers apply to all of our content, and that you are listening to the content voluntarily and at your own risk. Chronic Love, Inc., Robin Herbst-Paparne, Psy.D. (hereinafter collectively, “Chronic Love”), and any other individual who may participate in the production or distribution of Chronic Love content do not hold themselves out to be your medical or mental health care provider.  Our content is provided for informational and educational purposes only and is not to be perceived or relied upon as medical or mental health care advice, diagnosis or treatment.  Always seek the advice of your qualified medical and/or mental health care provider with any questions you may have regarding a medical and/or mental health condition.  In case of an emergency, call 911.

Chronic Love is not liable for any advice or information provided in our content by Robin Herbst-Paparne, Psy.D. or any other participant, all of which is provided on an “as-is” basis, without any expressed or implied warranties. All participants are voluntarily sharing their experiences with chronic illness with full knowledge that these recordings are to be used for this public content, and their opinions and statements are theirs alone. Guest participants are not clients of Robin Herbst-Paparne, Psy.D.  Chronic Love does not endorse any specific care providers, treatments or other information discussed in our content.  By viewing our content, you agree to indemnify and hold harmless any individual involved with the production or publication of Chronic Love content in any way for any and all losses, injuries, and damages resulting from any and all claims related to your use or misuse of the content. While Chronic Love is intended as a safe and supportive space, some of the topics discussed may be explicit or otherwise “triggering.”

Justin shares the advice he would offer his younger self on overcoming the most emotionally challenging moments of a cancer diagnosis and treatment, now more than ten years in remission from stage III Hodgkin lymphoma. In this episode, Justin offers powerful and insightful advice on connecting with the present moment, on the impermanence of emotions, and on what we can learn when we give space to the feelings that arise. 

Please note that this discussion has been extracted from video recordings that can be found on www.chroniclove.org/videos or on our YouTube channel, where we welcome you to show some love by staying tuned at https://www.youtube.com/@chroniclove?sub_confirmation=1

DISCLAIMER: 

Chronic Love, Inc. content relates to wellness topics with a particular focus on living with and thriving through chronic illnesses.  By listening to our content, you acknowledge and agree that the following warnings and disclaimers apply to all of our content, and that you are listening to the content voluntarily and at your own risk. Chronic Love, Inc., Robin Herbst-Paparne, Psy.D. (hereinafter collectively, “Chronic Love”), and any other individual who may participate in the production or distribution of Chronic Love content do not hold themselves out to be your medical or mental health care provider.  Our content is provided for informational and educational purposes only and is not to be perceived or relied upon as medical or mental health care advice, diagnosis or treatment.  Always seek the advice of your qualified medical and/or mental health care provider with any questions you may have regarding a medical and/or mental health condition.  In case of an emergency, call 911.

Chronic Love is not liable for any advice or information provided in our content by Robin Herbst-Paparne, Psy.D. or any other participant, all of which is provided on an “as-is” basis, without any expressed or implied warranties. All participants are voluntarily sharing their experiences with chronic illness with full knowledge that these recordings are to be used for this public content, and their opinions and statements are theirs alone. Guest participants are not clients of Robin Herbst-Paparne, Psy.D.  Chronic Love does not endorse any specific care providers, treatments or other information discussed in our content.  By viewing our content, you agree to indemnify and hold harmless any individual involved with the production or publication of Chronic Love content in any way for any and all losses, injuries, and damages resulting from any and all claims related to your use or misuse of the content. While Chronic Love is intended as a safe and supportive space, some of the topics discussed may be explicit or otherwise “triggering.”

Justin shares with us his experience of chatting, meeting, and falling in love with his partner over the same span of time when he was receiving his diagnosis and undergoing treatment for Hodgkin lymphoma. Join us for this discussion which touches on the complexities of dating, relationships, and finding love during cancer and in which Justin shares how his experience of cancer influenced a life-changing choice to lean in. 

Please note that this discussion has been extracted from video recordings that can be found on www.chroniclove.org/videos or on our YouTube channel, where we welcome you to show some love by staying tuned at https://www.youtube.com/@chroniclove?sub_confirmation=1.

DISCLAIMER: 

Chronic Love, Inc. content relates to wellness topics with a particular focus on living with and thriving through chronic illnesses.  By listening to our content, you acknowledge and agree that the following warnings and disclaimers apply to all of our content, and that you are listening to the content voluntarily and at your own risk. Chronic Love, Inc., Robin Herbst-Paparne, Psy.D. (hereinafter collectively, “Chronic Love”), and any other individual who may participate in the production or distribution of Chronic Love content do not hold themselves out to be your medical or mental health care provider.  Our content is provided for informational and educational purposes only and is not to be perceived or relied upon as medical or mental health care advice, diagnosis or treatment.  Always seek the advice of your qualified medical and/or mental health care provider with any questions you may have regarding a medical and/or mental health condition.  In case of an emergency, call 911.

Chronic Love is not liable for any advice or information provided in our content by Robin Herbst-Paparne, Psy.D. or any other participant, all of which is provided on an “as-is” basis, without any expressed or implied warranties. All participants are voluntarily sharing their experiences with chronic illness with full knowledge that these recordings are to be used for this public content, and their opinions and statements are theirs alone. Guest participants are not clients of Robin Herbst-Paparne, Psy.D.  Chronic Love does not endorse any specific care providers, treatments or other information discussed in our content.  By viewing our content, you agree to indemnify and hold harmless any individual involved with the production or publication of Chronic Love content in any way for any and all losses, injuries, and damages resulting from any and all claims related to your use or misuse of the content. While Chronic Love is intended as a safe and supportive space, some of the topics discussed may be explicit or otherwise “triggering.”

Justin was on the precipice of reclaiming his innocence after coming out, becoming sober from alcohol after college, and then building anew when he would face the untimely life disruption of a cancer diagnosis. Follow along as Justin, now beyond a decade out from his Hodgkin lymphoma diagnosis, lets us into his world. Stay tuned as he lends us perspective that can inspire courage and resilience in us all.

Please note that this discussion has been extracted from video recordings that can be found on www.chroniclove.org/videos or on our YouTube channel at https://www.youtube.com/@chroniclove. Stay tuned @ https://www.youtube.com/@chroniclove?sub_confirmation=1 

DISCLAIMER: 

Chronic Love, Inc. content relates to wellness topics with a particular focus on living with and thriving through cancer and other chronic illnesses.  By listening to our content, you acknowledge and agree that the following warnings and disclaimers apply to all of our content, and that you are listening to the content voluntarily and at your own risk. Chronic Love, Inc., Robin Herbst-Paparne, Psy.D. (hereinafter collectively, “Chronic Love”), and any other individual who may participate in the production or distribution of Chronic Love content do not hold themselves out to be your medical or mental health care provider.  Our content is provided for informational and educational purposes only and is not to be perceived or relied upon as medical or mental health care advice, diagnosis or treatment.  Always seek the advice of your qualified medical and/or mental health care provider with any questions you may have regarding a medical and/or mental health condition.  In case of an emergency, call 911.

Chronic Love is not liable for any advice or information provided in our content by Robin Herbst-Paparne, Psy.D. or any other participant, all of which is provided on an “as-is” basis, without any expressed or implied warranties. All participants are voluntarily sharing their experiences with chronic illness with full knowledge that these recordings are to be used for this public content, and their opinions and statements are theirs alone. Guest participants are not clients of Robin Herbst-Paparne, Psy.D.  Chronic Love does not endorse any specific care providers, treatments or other information discussed in our content.  By viewing our content, you agree to indemnify and hold harmless any individual involved with the production or publication of Chronic Love content in any way for any and all losses, injuries, and damages resulting from any and all claims related to your use or misuse of the content. While Chronic Love is intended as a safe and supportive space, some of the topics discussed may be explicit or otherwise “triggering.”

Seventy-two hours after noticing a burning sensation in her finger, Holly was paralyzed from the neck down, in ICU, and on life support. Holly, now beyond a decade out from her Guillain-Barré syndrome diagnosis, shares some of her earliest experiences leading up to her diagnosis and treatment.

Please note that this discussion has been extracted from video recordings that can be found on www.chroniclove.org/videos or on our YouTube channel, where we welcome you to show some love by staying tuned at https://www.youtube.com/@chroniclove?sub_confirmation=1

DISCLAIMER: 

Chronic Love, Inc. content relates to wellness topics with a particular focus on living with and thriving through cancer and other chronic illnesses.  By listening to our content, you acknowledge and agree that the following warnings and disclaimers apply to all of our content, and that you are listening to the content voluntarily and at your own risk. Chronic Love, Inc., Robin Herbst-Paparne, Psy.D. (hereinafter collectively, “Chronic Love”), and any other individual who may participate in the production or distribution of Chronic Love content do not hold themselves out to be your medical or mental health care provider.  Our content is provided for informational and educational purposes only and is not to be perceived or relied upon as medical or mental health care advice, diagnosis or treatment.  Always seek the advice of your qualified medical and/or mental health care provider with any questions you may have regarding a medical and/or mental health condition.  In case of an emergency, call 911.

Chronic Love is not liable for any advice or information provided in our content by Robin Herbst-Paparne, Psy.D. or any other participant, all of which is provided on an “as-is” basis, without any expressed or implied warranties. All participants are voluntarily sharing their experiences with chronic illness with full knowledge that these recordings are to be used for this public content, and their opinions and statements are theirs alone. Guest participants are not clients of Robin Herbst-Paparne, Psy.D.  Chronic Love does not endorse any specific care providers, treatments or other information discussed in our content.  By viewing our content, you agree to indemnify and hold harmless any individual involved with the production or publication of Chronic Love content in any way for any and all losses, injuries, and damages resulting from any and all claims related to your use or misuse of the content. While Chronic Love is intended as a safe and supportive space, some of the topics discussed may be explicit or otherwise “triggering.”

Justin, now beyond a decade out from his Hodgkin lymphoma diagnosis, shares some of his earliest experiences leading up to his diagnosis and treatment, including his early symptoms, a terrifying initial diagnosis, a life-saving procedure, and the miracle treatment that was not supposed to work, but which opened the door to save his life.

Please note that this discussion has been extracted from video recordings that can be found on www.chroniclove.org/videos or on our YouTube channel, where we welcome you to show some love by staying tuned at https://www.youtube.com/@chroniclove?sub_confirmation=1.

DISCLAIMER: 

Chronic Love, Inc. content relates to wellness topics with a particular focus on living with and thriving through cancer and other chronic illnesses.  By listening to our content, you acknowledge and agree that the following warnings and disclaimers apply to all of our content, and that you are listening to the content voluntarily and at your own risk. Chronic Love, Inc., Robin Herbst-Paparne, Psy.D. (hereinafter collectively, “Chronic Love”), and any other individual who may participate in the production or distribution of Chronic Love content do not hold themselves out to be your medical or mental health care provider.  Our content is provided for informational and educational purposes only and is not to be perceived or relied upon as medical or mental health care advice, diagnosis or treatment.  Always seek the advice of your qualified medical and/or mental health care provider with any questions you may have regarding a medical and/or mental health condition.  In case of an emergency, call 911.

Chronic Love is not liable for any advice or information provided in our content by Robin Herbst-Paparne, Psy.D. or any other participant, all of which is provided on an “as-is” basis, without any expressed or implied warranties. All participants are voluntarily sharing their experiences with chronic illness with full knowledge that these recordings are to be used for this public content, and their opinions and statements are theirs alone. Guest participants are not clients of Robin Herbst-Paparne, Psy.D.  Chronic Love does not endorse any specific care providers, treatments or other information discussed in our content.  By viewing our content, you agree to indemnify and hold harmless any individual involved with the production or publication of Chronic Love content in any way for any and all losses, injuries, and damages resulting from any and all claims related to your use or misuse of the content. While Chronic Love is intended as a safe and supportive space, some of the topics discussed may be explicit or otherwise “triggering.”

Jaymie shares life-saving pointers on how to really be seen and attended to by our doctors, on how to receive the healthcare we all deserve but which we sometimes have to fight for, and on how we can use “aggressive curiosity” to overcome the cards stacked against us, all of which she was forced to figure out for herself as a young Black woman battling stage IV lung cancer. If you ever need to seek treatment for any reason, Jaymie’s advice in this episode can seriously ease your path and perhaps even save your life. 

Please note that this discussion has been extracted from video recordings that can be found on www.chroniclove.org/videos or on our YouTube channel, where we welcome you to show some love by staying tuned at https://www.youtube.com/@chroniclove?sub_confirmation=1

DISCLAIMER: 

Chronic Love, Inc. content relates to wellness topics with a particular focus on living with and thriving through cancer and other chronic illnesses.  By listening to our content, you acknowledge and agree that the following warnings and disclaimers apply to all of our content, and that you are listening to the content voluntarily and at your own risk. Chronic Love, Inc., Robin Herbst-Paparne, Psy.D. (hereinafter collectively, “Chronic Love”), and any other individual who may participate in the production or distribution of Chronic Love content do not hold themselves out to be your medical or mental health care provider.  Our content is provided for informational and educational purposes only and is not to be perceived or relied upon as medical or mental health care advice, diagnosis or treatment.  Always seek the advice of your qualified medical and/or mental health care provider with any questions you may have regarding a medical and/or mental health condition.  In case of an emergency, call 911.

Chronic Love is not liable for any advice or information provided in our content by Robin Herbst-Paparne, Psy.D. or any other participant, all of which is provided on an “as-is” basis, without any expressed or implied warranties. All participants are voluntarily sharing their experiences with chronic illness with full knowledge that these recordings are to be used for this public content, and their opinions and statements are theirs alone. Guest participants are not clients of Robin Herbst-Paparne, Psy.D.  Chronic Love does not endorse any specific care providers, treatments or other information discussed in our content.  By viewing our content, you agree to indemnify and hold harmless any individual involved with the production or publication of Chronic Love content in any way for any and all losses, injuries, and damages resulting from any and all claims related to your use or misuse of the content. While Chronic Love is intended as a safe and supportive space, some of the topics discussed may be explicit or otherwise “triggering.”

Eva, Laura, and Robin discuss the need to shift priorities, to give energy to the things that matter most in life when faced with a life-threatening illness. Laura shares relationship challenges associated with mismatched expectations for where waning energy should be spent.

Please note that this discussion has been extracted from video recordings that can be found on www.chroniclove.org/videos or on our YouTube channel, where we welcome you to show some love by staying tuned at https://www.youtube.com/@chroniclove?sub_confirmation=1.

DISCLAIMER: 

Chronic Love, Inc. content relates to wellness topics with a particular focus on living with and thriving through cancer and other chronic illnesses.  By listening to our content, you acknowledge and agree that the following warnings and disclaimers apply to all of our content, and that you are listening to the content voluntarily and at your own risk. Chronic Love, Inc., Robin Herbst-Paparne, Psy.D. (hereinafter collectively, “Chronic Love”), and any other individual who may participate in the production or distribution of Chronic Love content do not hold themselves out to be your medical or mental health care provider.  Our content is provided for informational and educational purposes only and is not to be perceived or relied upon as medical or mental health care advice, diagnosis or treatment.  Always seek the advice of your qualified medical and/or mental health care provider with any questions you may have regarding a medical and/or mental health condition.  In case of an emergency, call 911.

Chronic Love is not liable for any advice or information provided in our content by Robin Herbst-Paparne, Psy.D. or any other participant, all of which is provided on an “as-is” basis, without any expressed or implied warranties. All participants are voluntarily sharing their experiences with chronic illness with full knowledge that these recordings are to be used for this public content, and their opinions and statements are theirs alone. Guest participants are not clients of Robin Herbst-Paparne, Psy.D.  Chronic Love does not endorse any specific care providers, treatments or other information discussed in our content.  By viewing our content, you agree to indemnify and hold harmless any individual involved with the production or publication of Chronic Love content in any way for any and all losses, injuries, and damages resulting from any and all claims related to your use or misuse of the content. While Chronic Love is intended as a safe and supportive space, some of the topics discussed may be explicit or otherwise “triggering.”

Jaymie discusses the importance of self-advocacy. She reflects on frustrations with prior medical care which led her to routinely drive two hours out of state to a different healthcare system in order to receive healthcare that meets her needs, healthcare that she deserves.  

Please note that this discussion has been extracted from video recordings that can be found on www.chroniclove.org/videos or on our YouTube channel, where we welcome you to show some love by staying tuned at https://www.youtube.com/@chroniclove?sub_confirmation=1.
 

DISCLAIMER: 

Chronic Love, Inc. content relates to wellness topics with a particular focus on living with and thriving through cancer and other chronic illnesses.  By listening to our content, you acknowledge and agree that the following warnings and disclaimers apply to all of our content, and that you are listening to the content voluntarily and at your own risk. Chronic Love, Inc., Robin Herbst-Paparne, Psy.D. (hereinafter collectively, “Chronic Love”), and any other individual who may participate in the production or distribution of Chronic Love content do not hold themselves out to be your medical or mental health care provider.  Our content is provided for informational and educational purposes only and is not to be perceived or relied upon as medical or mental health care advice, diagnosis or treatment.  Always seek the advice of your qualified medical and/or mental health care provider with any questions you may have regarding a medical and/or mental health condition.  In case of an emergency, call 911.

Chronic Love is not liable for any advice or information provided in our content by Robin Herbst-Paparne, Psy.D. or any other participant, all of which is provided on an “as-is” basis, without any expressed or implied warranties. All participants are voluntarily sharing their experiences with chronic illness with full knowledge that these recordings are to be used for this public content, and their opinions and statements are theirs alone. Guest participants are not clients of Robin Herbst-Paparne, Psy.D.  Chronic Love does not endorse any specific care providers, treatments or other information discussed in our content.  By viewing our content, you agree to indemnify and hold harmless any individual involved with the production or publication of Chronic Love content in any way for any and all losses, injuries, and damages resulting from any and all claims related to your use or misuse of the content. While Chronic Love is intended as a safe and supportive space, some of the topics discussed may be explicit or otherwise “triggering.”

Jaymie discusses what it’s like to remove liters of fluid from her lungs (PleurX catheter, lung drains to treat pleural effusion) while waiting for her lung cancer treatment to begin working.

Please note that this discussion has been extracted from video recordings that can be found on www.chroniclove.org/videos or on our YouTube channel, where we welcome you to show some love by staying tuned at https://www.youtube.com/@chroniclove?sub_confirmation=1.
 

DISCLAIMER: 

Chronic Love, Inc. content relates to wellness topics with a particular focus on living with and thriving through cancer and other chronic illnesses.  By listening to our content, you acknowledge and agree that the following warnings and disclaimers apply to all of our content, and that you are listening to the content voluntarily and at your own risk. Chronic Love, Inc., Robin Herbst-Paparne, Psy.D. (hereinafter collectively, “Chronic Love”), and any other individual who may participate in the production or distribution of Chronic Love content do not hold themselves out to be your medical or mental health care provider.  Our content is provided for informational and educational purposes only and is not to be perceived or relied upon as medical or mental health care advice, diagnosis or treatment.  Always seek the advice of your qualified medical and/or mental health care provider with any questions you may have regarding a medical and/or mental health condition.  In case of an emergency, call 911.

Chronic Love is not liable for any advice or information provided in our content by Robin Herbst-Paparne, Psy.D. or any other participant, all of which is provided on an “as-is” basis, without any expressed or implied warranties. All participants are voluntarily sharing their experiences with chronic illness with full knowledge that these recordings are to be used for this public content, and their opinions and statements are theirs alone. Guest participants are not clients of Robin Herbst-Paparne, Psy.D.  Chronic Love does not endorse any specific care providers, treatments or other information discussed in our content.  By viewing our content, you agree to indemnify and hold harmless any individual involved with the production or publication of Chronic Love content in any way for any and all losses, injuries, and damages resulting from any and all claims related to your use or misuse of the content. While Chronic Love is intended as a safe and supportive space, some of the topics discussed may be explicit or otherwise “triggering.”