Logo

    Sickle Cell Disease: The Patient Perspective featuring Alyssa Johns, RN

    en-usJuly 25, 2023
    What was the main topic of the podcast episode?
    Summarise the key points discussed in the episode?
    Were there any notable quotes or insights from the speakers?
    Which popular books were mentioned in this episode?
    Were there any points particularly controversial or thought-provoking discussed in the episode?
    Were any current events or trending topics addressed in the episode?

    About this Episode

    Welcome everyone to the Melanin Initiative!  “In healthcare, there is often too much information and not enough time. Here at The Melanin Initiative, we avoid TMI by breaking things down into language you can understand, we create a safe space to ask your questions, and share our nursing perspective without taking too much of your time.

    Today we’ll be talking about sickle cell disease from the patient perspective and what it means to live with chronic pain, with emphasis on disparities in pain management.

    By the end of the show, we hope you’ll be able to:
    -Talk about what is sickle cell disease
    -Name risk factors for getting sickle cell (genetics)
    -Discuss diagnosis and treatment options
    -Understand what it’s like to live with chronic pain
    - Disparities in pain and what clinicians can do to improve

    Resources:
    -Sickle cell disease: What you need to know https://www.youtube.com/watch?v=qK5H9fPkltc
    -Sickle cell disease: diagnosis, treatment, pregnancy, and what it's like ot live with SCD per the National Institutes of Health https://www.nhlbi.nih.gov/health/sickle-cell-disease
    -Sickle Cell Disease Foundation https://www.scdfc.org/community-education
    - American Nurses Association Continuing Education: Caring for Individuals with Sickle Cell Disease (1.5 contact hours. Course & CNE Credit Expiration: 06/01/2024) https://www.nursingworld.org/continuing-education/caring-for-individuals-with-sickle-cell-disease/
    - For Nurse Practitioners: Sickle cell anemia Continuing Education (expires Dec 31, 2024) https://www.statpearls.com/nursepractitioner/ce/activity/684944
    - For clinicians: Sickle Cell Disease Coalition, training and professional education http://www.scdcoalition.org/priorities/training.html



    Stay in touch!

    Email: tmi.melanin@gmail.com  

    Listen to the podcast: https://www.buzzsprout.com/2186156 

    Subscribe to our YouTube channel: The Melanin Initiative https://www.youtube.com/@themelanininitiative  

    Follow us on Instagram: @tmi.melanin https://www.instagram.com/tmi.melanin/  

    Follow us on TikTok: The Melanin Initiative  https://www.tiktok.com/@themelanininitiat?_t=8dAhVy7KLgQ&_r=1 

    Follow us on Facebook https://www.facebook.com/people/The-Melanin-Initiative/100093548520316/ 




    Disclaimer
    *This show is for educational purposes only. The opinions expressed are our opinions alone, they are not a representation of any of our affiliations. If you are experiencing a medical emergency, you should seek medical attention and medical guidance from your healthcare provider.

    Recent Episodes from The Melanin Initiative's Podcast

    Becoming: Doctor of Nursing Practice

    Becoming: Doctor of Nursing Practice

    Welcome everyone to the Melanin Initiative!

    Today we're talking to special guest, Demetrius Kirk, DNPc, about his journey to pursuing graduate education as we begin a new series called: Becoming: Doctor of Nursing Practice. We're going to follow his journey to becoming a doctorally prepared nurse leader. Each semester he will return to share his experience as we watch his career, vision, and practice evolve.

    The changing demands of the nation's complex healthcare environment require that nurses serving in specialty positions have the highest level of scientific knowledge and practice expertise possible. Some of the many factors which are accelerating momentum for change in nursing education at the graduate level include: the rapid expansion of knowledge underlying practice; increased complexity of patient care; national concerns about the quality of care and patient safety; shortages of nursing personnel which demands a higher level of preparation for leaders who can design and assess care; shortages of doctorally prepared nursing faculty, and increasing educational expectations for the preparation of other health professionals.
     
    The National Academy of Medicine (Institute of Medicine), Joint Commission, National Advisory Council on Nurse Education and Practice, and other authorities have called for reconceptualizing health professions education to meet the needs of the healthcare delivery system. Nursing is answering that call by moving to prepare APRNs for evolving practice.

    DNP curricula expands learning essential to preparing expert clinicians and nurse leaders, including coursework focused on evidence-based practice, quality improvement, leadership, policy advocacy, informatics, and systems thinking. The transition to the DNP will better prepare APRNs for their current roles given the calls for new models of care delivery and the growing complexity of health care.
     
    The DNP is designed for nurses seeking a terminal degree and offers an alternative to research-focused doctoral programs. DNP-prepared nurses are well-equipped to fully implement the science developed by nurse researchers prepared in PhD and other research-focused nursing doctorates.
     
    The title of Doctor is common to many disciplines and is not the domain of any one health profession. Many APRNs currently hold doctoral degrees and are addressed as doctors, which is similar to how clinical psychologists, dentists, podiatrists, and other experts are addressed. Like other providers, DNPs are expected to display their credentials to ensure that patients understand their preparation as nursing providers.
     
    Nursing and medicine are distinct health disciplines that prepare clinicians to assume different roles and meet different practice expectations. DNP programs will prepare nurses for the highest level of nursing practice. 
    https://www.aacnnursing.org/our-initiatives/education-practice/doctor-of-nursing-practice/about-the-dnp
    ---------------------------------------------------
    Connect with Demetrius Kirk, DNPc, MBA,MSN, RN, LNHA, LSSGB, PAC-NE, QCP
    Email: Nursedkirk@gmail.com
    LinkedIn: https://www.linkedin.com/in/aservantleader/ 

    Resource mention in the show:
    -DNPs of Color https://www.dnpsofcolor.org/ 

    Stay in touch!
    -Email: tmi.melanin@gmail.com  
    -Listen to the podcast: https://www.buzzsprout.com/2186156 
    -Subscribe to our YouTube channel: The Melanin Initiative https://www.youtube.com/@themelanininitiative  
    -Follow us on Instagram: @tmi.melanin https://www.instagram.com/tmi.melanin/  
    -Follow us on TikTok: The Melanin Initiative  https://www.tiktok.com/@themelanininitiat?_t=8dAhVy7KLgQ&_r=1 
    -Follow us on Facebook https://www.facebook.com/people/The-Melanin--Initiative/100093548520316/
    -Let’s Connect on LinkedIn https://www.linkedin.com/in/the-melanin-initiative-4012092b1/

    Becoming a Nurse | Black History in the Making with Demetrius Kirk, DNPc

    Becoming a Nurse | Black History in the Making with Demetrius Kirk, DNPc

    Welcome everyone to the Melanin Initiative!

    “In healthcare, there is often too much information and not enough time. Here at The Melanin Initiative, we avoid TMI by breaking things down into language you can understand, we create a safe space to ask your questions, and share our nursing perspective without taking too much of your time."

    Today we're talking to special guest, Demetrius Kirk, DNPc, as we begin a new series called: Becoming: Doctor of Nursing Practice. We're going to follow his journey to becoming a doctorally prepared nurse leader. Each semester he will return to share his experience as we watch his career, vision, and practice evolve. 

    In episode 1, we discuss:
    -His journey to becoming a nurse

    -Mentors and peers who helped him along the way

    -How he selected his school and program 

    -His vision for the future 

    -His perspective of the current state of healthcare and where he sees it going in the next ten years

    -What he has learned that he didn't know prior to nursing school

    -What he wished he would have known prior to becoming a nurse



    Connect with Demetrius Kirk, DNPc, MBA,MSN, RN, LNHA, LSSGB, PAC-NE, QCP
    Email: Nursedkirk@gmail.com
    LinkedIn: https://www.linkedin.com/in/aservantleader/ 


    Stay in touch!
    Email: tmi.melanin@gmail.com  

    Listen to the podcast: https://www.buzzsprout.com/2186156 

    Subscribe to our YouTube channel: The Melanin Initiative https://www.youtube.com/@themelanininitiative  

    Follow us on Instagram: @tmi.melanin https://www.instagram.com/tmi.melanin/  

    Follow us on TikTok: The Melanin Initiative  https://www.tiktok.com/@themelanininitiat?_t=8dAhVy7KLgQ&_r=1 

    Follow us on Facebook https://www.facebook.com/people/The-Melanin-Initiative/100093548520316/

    Black Maternal Health Virtual Conference | National Black Nurses' Association

    Black Maternal Health Virtual Conference | National Black Nurses' Association

    Welcome everyone to the Melanin Initiative! 

    “In healthcare, there is often too much information and not enough time. Here at The Melanin Initiative, we avoid TMI by breaking things down into language you can understand, we create a safe space to ask your questions, and share our nursing perspective without taking too much of your time."

    Today we're talking to special guest, Dr. Kamila Barnes, DNP, FNP-C, about the National Black Nurses’ Association’s Black Maternal Health Virtual Conference on Friday February 23 to Saturday February 24, 2024. In this episode we discuss:

    1. The history of the National Black Nurses Association
    2. Their Mission and vision 
    3. The purpose of the upcoming Black Maternal Health Virtual Conference
    4. The state of maternal health in Black and Brown communities
    5. How nurses help to improve awareness, patient outcomes, and the patient experience when it comes to Black maternal health
    6. What attendees can expect during the conference
    7. How you can learn more about and get involved with the NBNA
    8. How you can register for the conference



    Connect with Dr. Kamila Barnes, DNP, FNP-C
    Instagram  https://www.instagram.com/bha_llc/?hl=en
    LinkedIn  https://www.linkedin.com/in/dr-kamila-barnes-dnp-fnp-c-1111bb57/


    Resources mention in the show:
    -Register for the Black Maternal Health Virtual Conference: 
    -Become a member of the National Black Nurses's Association: https://www.nbna.org/member
    -Join a local chapter of the NBNA (Chapter Directory): https://www.nbna.org/chapdirect

    Stay in touch!
    Email: tmi.melanin@gmail.com  

    Listen to the podcast: https://www.buzzsprout.com/2186156 

    Subscribe to our YouTube channel: The Melanin Initiative https://www.youtube.com/@themelanininitiative  

    Follow us on Instagram: @tmi.melanin https://www.instagram.com/tmi.melanin/  

    Follow us on TikTok: The Melanin Initiative  https://www.tiktok.com/@themelanininitiat?_t=8dAhVy7KLgQ&_r=1 

    Follow us on Facebook https://www.facebook.com/people/The-Melanin-Initiative/100093548520316/

    Let’s Connect on LinkedIn https://www.linkedin.com/in/the-melanin-initiative-4012092b1/

    Becoming a Physician

    Becoming a Physician

    Welcome everyone to the Melanin Initiative!

    “In healthcare, there is often too much information and not enough time. Here at The Melanin Initiative, we avoid TMI by breaking things down into language you can understand, we create a safe space to ask your questions, and share our nursing perspective without taking too much of your time."

    Today we're talking to special guest, Clarence Sams, as we begin a new series called: Becoming a Physician. We're going to follow his journey to becoming a physician. Each semester he will return to share his experience as we watch his career, vision, and practice evolve.

    In episode 2, we discuss: 

    • The role and responsibilities of a medical student
    • Medical school curriculum and how he will spend each semester leading up to becoming a physician
    • His involvement in organizations, research, interns, and externs during medical school
    • What his support system looks like and what type of support do he needs
    • His mental health during medical school
    • What he wants the general public to know about being a medical student
    • What he's looking most forward to during his journey

    Connect with Clarence Sams:
    Instagram: 

    • @samsiimed
    • https://www.instagram.com/samsiimed/ 

    TikTok: 

    • @samsiimed
    • https://www.tiktok.com/@samsiimed


    Resource:
    Charles R. Drew University of Medicine and Science 

    • Instagram: https://www.instagram.com/charlesrdrewu/?img_index=1
    • Website: https://www.cdrewu.edu/



    Stay in touch!
    Email: tmi.melanin@gmail.com  

    Listen to the podcast: https://www.buzzsprout.com/2186156 

    Subscribe to our YouTube channel: The Melanin Initiative https://www.youtube.com/@themelanininitiative  

    Follow us on Instagram: @tmi.melanin https://www.instagram.com/tmi.melanin/  

    Follow us on TikTok: The Melanin Initiative  https://www.tiktok.com/@themelanininitiat?_t=8dAhVy7KLgQ&_r=1 

    Follow us on Facebook https://www.facebook.com/people/The-Melanin-Initiative/100093548520316/

    Becoming a Medical Student

    Becoming a Medical Student

    Welcome everyone to the Melanin Initiative!

    “In healthcare, there is often too much information and not enough time. Here at The Melanin Initiative, we avoid TMI by breaking things down into language you can understand, we create a safe space to ask your questions, and share our nursing perspective without taking too much of your time."

    Today we're talking to special guest, Clarence Sams, as we begin a new series called: Becoming a Physician. We're going to follow his journey to becoming a physician. Each semester he will return to share his experience as we watch his career, vision, and practice evolve. 

    In episode 1, we discuss:

    •  His journey to becoming a medical student
    • Mentors and peers who helped him along the way
    • How he selected his medical school 
    • His vision for the future 
    • His perspective of the current state of healthcare and where he sees it going in the next ten years
    • What he learned that he didn't know prior to medical school
    • What he wished he would have known prior to starting medical school




    Connect with Clarence Sams:
    Instagram: 

    • @samsiimed
    • https://www.instagram.com/samsiimed/ 

    TikTok: 

    • @samsiimed
    • https://www.tiktok.com/@samsiimed


    Resource:
    Charles R. Drew University of Medicine and Science 

    • Instagram: https://www.instagram.com/charlesrdrewu/?img_index=1
    • Website: https://www.cdrewu.edu/



    Stay in touch!
    Email: tmi.melanin@gmail.com  

    Listen to the podcast: https://www.buzzsprout.com/2186156 

    Subscribe to our YouTube channel: The Melanin Initiative https://www.youtube.com/@themelanininitiative  

    Follow us on Instagram: @tmi.melanin https://www.instagram.com/tmi.melanin/  

    Follow us on TikTok: The Melanin Initiative  https://www.tiktok.com/@themelanininitiat?_t=8dAhVy7KLgQ&_r=1 

    Follow us on Facebook https://www.facebook.com/people/The-Melanin-Initiative/100093548520316/

    Healthcare and Life Insurance

    Healthcare and Life Insurance

    Welcome everyone to the Melanin Initiative!

    “In healthcare, there is often too much information and not enough time. Here at The Melanin Initiative, we avoid TMI by breaking things down into language you can understand, we create a safe space to ask your questions, and share our nursing perspective without taking too much of your time."

    Today we're talking about the relationship between healthcare and life insurance with our special guest, Glacia Cooper.
    By the end of the episode, our goal is that you’ll be able to discuss:

    -The relationship between life insurance and healthcare 

    -The relationship between life insurance and retirement 

    -When you should start thinking about working with a retirement specialist 

    -How you can prepare for your first meeting with a retirement specialist 

    -Where you can start and credible resources to begin retirement planning


    Connect with Glacia Cooper:
    -LinkedIn https://www.linkedin.com/in/glacia-cooper-62a6b9121 
    -Facebook https://www.facebook.com/glacia.cooper/?paipv=0&eav=AfYpYJ5KkP7rQ6wsS3fC02AN3aq9TDFm9Yrt22E2jo9bnPk9rXC9xiHi6P9mFITT-E8&_rdr 


    Resources:
    -Life insurance: What it is, how it works, and how to buy a policy https://www.investopedia.com/terms/l/lifeinsurance.asp
    -Is life insurance worth it? https://www.investopedia.com/articles/active-trading/120814/life-insurance-smart-investment.asp
    -Term life insurance https://www.investopedia.com/terms/t/termlife.asp
    -Whole life insurance https://www.investopedia.com/terms/w/wholelife.asp
    -Review of life insurance companies https://www.investopedia.com/best-life-insurance-companies-4845858
    -Medical Information Bureau https://www.mib.com/




    Stay in touch!

    Email: tmi.melanin@gmail.com  

    Listen to the podcast: https://www.buzzsprout.com/2186156 

    Subscribe to our YouTube channel: The Melanin Initiative https://www.youtube.com/@themelanininitiative  

    Follow us on Instagram: @tmi.melanin https://www.instagram.com/tmi.melanin/  

    Follow us on TikTok: The Melanin Initiative  https://www.tiktok.com/@themelanininitiat?_t=8dAhVy7KLgQ&_r=1 

    Follow us on Facebook https://www.facebook.com/people/The-Melanin-Initiative/100093548520316/ 

    Life Insurance

    Life Insurance

    Welcome everyone to the Melanin Initiative!

    “In healthcare, there is often too much information and not enough time. Here at The Melanin Initiative, we avoid TMI by breaking things down into language you can understand, we create a safe space to ask your questions, and share our nursing perspective without taking too much of your time."

    Today we're talking about life insurance with our special guest, Glacia Cooper, RN.
    We're discussing:

     -Her journey from from nursing to life insurance
    -What is financial literacy 
    -What is life insurance and why it’s important 
    -Common questions about life insurance 
    -Gaps in awareness about life insurance when it comes to Black & Brown communities 
    -Where you can start if you want to learn more? 


    Connect with Glacia Cooper:
    -LinkedIn https://www.linkedin.com/in/glacia-cooper-62a6b9121 
    -Facebook https://www.facebook.com/glacia.cooper/?paipv=0&eav=AfYpYJ5KkP7rQ6wsS3fC02AN3aq9TDFm9Yrt22E2jo9bnPk9rXC9xiHi6P9mFITT-E8&_rdr 


    Resources:
    -Life insurance: What it is, how it works, and how to buy a policy https://www.investopedia.com/terms/l/lifeinsurance.asp
    -Is life insurance worth it? https://www.investopedia.com/articles/active-trading/120814/life-insurance-smart-investment.asp
    -Term life insurance https://www.investopedia.com/terms/t/termlife.asp
    -Whole life insurance https://www.investopedia.com/terms/w/wholelife.asp
    -Review of life insurance companies https://www.investopedia.com/best-life-insurance-companies-4845858




    Stay in touch!

    Email: tmi.melanin@gmail.com  

    Listen to the podcast: https://www.buzzsprout.com/2186156 

    Subscribe to our YouTube channel: The Melanin Initiative https://www.youtube.com/@themelanininitiative  

    Follow us on Instagram: @tmi.melanin https://www.instagram.com/tmi.melanin/  

    Follow us on TikTok: The Melanin Initiative  https://www.tiktok.com/@themelanininitiat?_t=8dAhVy7KLgQ&_r=1 

    Follow us on Facebook https://www.facebook.com/people/The-Melanin-Initiative/100093548520316/ 

    Blood Thinners

    Blood Thinners

    Welcome everyone to the Melanin Initiative!

    “In healthcare, there is often too much information and not enough time. Here at The Melanin Initiative, we avoid TMI by breaking things down into language you can understand, we create a safe space to ask your questions, and share our nursing perspective without taking too much of your time."

    Today we're talking about anticoagulants or blood thinners.
    By the end of the episode, our goal is that you’ll be able to discuss:

    • What blood thinners do and why they’re prescribed
    • Lifestyle changes for those taking blood thinners
    • Popular blood thinners and what to know about them
    • Safety considerations
      • Dietary choices
      • Herbal supplements
      • Falls 


    Resources:
    -Blood thinner pills: Your guide to using them safely https://www.ahrq.gov/patients-consumers/diagnosis-treatment/treatments/btpills/btpills.html
    -What are anticoagulants? https://my.clevelandclinic.org/health/treatments/22288-anticoagulants
    -The difference between compression stockings and T.E.D. hose: https://www.yourveincarecenter.com/difference-between-compression-stockings-and-ted-hose/
    -Why you should wear T.E.D hose or compression socks: https://hillcrestsouth.com/news/when-should-you-wear-ted-hose-or-compression-socks
    -How to put on T.E.D hose: https://www.youtube.com/watch?v=183QoZ4uWAY




    Stay in touch!

    Email: tmi.melanin@gmail.com  

    Listen to the podcast: https://www.buzzsprout.com/2186156 

    Subscribe to our YouTube channel: The Melanin Initiative https://www.youtube.com/@themelanininitiative  

    Follow us on Instagram: @tmi.melanin https://www.instagram.com/tmi.melanin/  

    Follow us on TikTok: The Melanin Initiative  https://www.tiktok.com/@themelanininitiat?_t=8dAhVy7KLgQ&_r=1 

    Follow us on Facebook https://www.facebook.com/people/The-Melanin-Initiative/100093548520316/ 

    Sleep Apnea

    Sleep Apnea

    Welcome everyone to the Melanin Initiative!

    “In healthcare, there is often too much information and not enough time. Here at The Melanin Initiative, we avoid TMI by breaking things down into language you can understand, we create a safe space to ask your questions, and share our nursing perspective without taking too much of your time."

    Today we're talking about sleep apnea.
    By the end of the episode, our goal is that you’ll be able to:

    -Discuss what causes sleep apnea and the different types
    -List the risk factors for developing sleep apnea
    -Name the short and long-term safety concerns
    -Discuss the steps to getting diagnosed
    -Name the most common treatment options


    Resources:
    -What is sleep apnea: https://www.nhlbi.nih.gov/health/sleep-apnea
    -What is CPAP? https://www.nhlbi.nih.gov/health/cpap
    -What is a sleep study? https://www.hopkinsmedicine.org/health/treatment-tests-and-therapies/sleep-study
    -What happens during a sleep study? https://www.hopkinsmedicine.org/health/wellness-and-prevention/what-happens-in-a-sleep-study
    -National Sleep Foundation: https://www.thensf.org/


    Stay in touch!

    Email: tmi.melanin@gmail.com  

    Listen to the podcast: https://www.buzzsprout.com/2186156 

    Subscribe to our YouTube channel: The Melanin Initiative https://www.youtube.com/@themelanininitiative  

    Follow us on Instagram: @tmi.melanin https://www.instagram.com/tmi.melanin/  

    Follow us on TikTok: The Melanin Initiative  https://www.tiktok.com/@themelanininitiat?_t=8dAhVy7KLgQ&_r=1 

    Follow us on Facebook https://www.facebook.com/people/The-Melanin-Initiative/100093548520316/ 


    Maternal Health: Doulas

    Maternal Health: Doulas

    Welcome everyone to the Melanin Initiative! 

    “In healthcare, there is often too much information and not enough time. Here at The Melanin Initiative, we avoid TMI by breaking things down into language you can understand, we create a safe space to ask your questions, and share our nursing perspective without taking too much of your time."

    Today's episode is part of our Maternal Health series. We're joined by Doula Alexandria Vaughn-Powe of Metro Detroit to talk about Doulas.

    By the end of the episode, it’s our goal you’ll be able to discuss:

    -The history and definition of doulas
    -The mission of the Black Doulas Association
    -The education and training doulas receive
    -The importance of doulas before, during, and after pregnancy
    -The services you can expect as a client
    -The challenges to providing care or misconceptions people have about doulas


    Connect with Alexandria:

    Email: thebirthalchemis@outlook.com
    Instagram: @thebirthalchemist
    Etsy: https://www.etsy.com/shop/thebirthalchemist/?etsrc=sdt 
    Black Doula Association: https://www.blackdoulas.org/

    Resources:
    -National Black Doulas Association https://www.blackdoulas.org/
    -DONA International https://www.dona.org/
    -Still Birthday: A pregnancy loss is still a birthday https://stillbirthday.com/
    -Mid-Atlantic Mothers' Milk Bank: https://midatlanticmilkbank.org/
    -Impact of Doulas on Healthy Birth Outcomes https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3647727/
    -I'm an Ob-Gyn. Here's why I had a Doula help with my delivery by Dr. Denise De Los Santos https://www.acog.org/womens-health/experts-and-stories/the-latest/im-an-ob-gyn-heres-why-i-had-a-doula-help-with-my-delivery
    -Placenta-worth trying? Human maternal placentophagy: Possible benefit and potential risks https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6138470/


    Stay in touch!

    Email: tmi.melanin@gmail.com  

    Listen to the podcast: https://www.buzzsprout.com/2186156 

    Subscribe to our YouTube channel: The Melanin Initiative https://www.youtube.com/@themelanininitiative  

    Follow us on Instagram: @tmi.melanin https://www.instagram.com/tmi.melanin/  

    Follow us on TikTok: The Melanin Initiative  https://www.tiktok.com/@themelanininitiat?_t=8dAhVy7KLgQ&_r=1 

    Follow us on Facebook https://www.facebook.com/people/The-Melanin-Initiative/100093548520316/ 



    Logo

    © 2024 Podcastworld. All rights reserved

    Stay up to date

    For any inquiries, please email us at hello@podcastworld.io