Logo
    Home > Episode > The Caregivers Hangout | Advan
    carer
    fnd
    functional neurological disorder
    the fnd podcast with detty
    fnd warrior

    The Caregivers Hangout | Advance directives & being sick

    enJuly 20, 2021
    The FND Podcast
    What was the main topic of the podcast episode?
    Summarise the key points discussed in the episode?
    Were there any notable quotes or insights from the speakers?
    Which popular books were mentioned in this episode?
    Were there any points particularly controversial or thought-provoking discussed in the episode?
    Were any current events or trending topics addressed in the episode?

    About this Episode

    In his episode we talk a bit about Advance care directives. It’s about talking to those we care for about keeping their independence and choices for if there comes a point where they cannot speak and their voices are heard. 
     

    Click on the link to read up on more information About advance care planning 

    https://www.advancecareplanning.org.au/

    Caregiving during covid times

    https://www.redcross.org/get-help/how-to-prepare-for-emergencies/types-of-emergencies/coronavirus-safety/family-caregivers.html

    ways to cope during covid times & caregiving mentally:

    https://dailycaring.com/coronavirus-and-caregiver-mental-health-8-coping-tips/

    https://www.consumerreports.org/elder-care/coping-strategies-for-family-caregivers/


    To listen to Rods My FND Reality : his Caregiving story click below

    https://thefndpodcast.simplecast.com/episodes/my-fnd-reality-caregiving-talking-to-rodney

    Carer Gateway is an excellent resource provided by the federal government  to help support caregivers by giving resources, support , education, forums and more. We recently had an interview with Catholic care who runs Carer Gateway to learn more about them you can listen to their interview below :

    https://thefndpodcast.simplecast.com/episodes/supporting-caregivers-carer-gateway

    For more information on Carer Gateway 

    https://www.carergateway.gov.au/

    their phone number is 1800 422 737

    also join their Facebook page to keep updated and their support groups.

    For the FND Australian support services Facebook group to talk and share support of other caregivers looking after FNDers / support advocates click on the link below

    https://www.facebook.com/groups/588224248292396
     

    For more information about NDIS checkout Carers Australia @ www.carers australia.com.au

    https://www.carersaustralia.com.au/ndis-carers/what-is-the-ndis/

    To listen to our song playlist  started by our lovely Maggie on Spotify click on the link below

    https://open.spotify.com/playlist/5lvGhN4Ab3AtwBj42L5DDA?si=IyN0V1ENQdi1_6W6MrNjAA

    FND Merchandise to support FND Australia Support services by Chucky from @friendswithfnd

    https://imprintmerch.com.au/collections/lets-have-the-chat

    from masks to bags hoodies and tshirts check them out!

    HELPFUL RESOURCES:
    A website all things Functional neurological Disorder written by Professor Jon Stone who is the leading FND researcher and Consultant Neurologist in Edinburgh, Scotland.

    https://www.neurosymptoms.org/

    Neurosymptoms has an app that you can download now too. Look up neurosymptoms or Jon stone and you will find it there. 

    FND ORGANISATIONS:

    https://www.fndaus.org.au/

    FND AUSTRALIA SUPPORT  SERVICES INC: A wonderful resource for people in Australia with FND: from reasearch into FND, finding medical specialists and services and just information about FND. Solely dedicated to all things FND and helping those with FND in Australia.

    https://fndaus.org.au/

    https://www.fndaction.org.uk/

    FND Dimensions aims to develop a network of ‘peer support groups’ across the UK either in face to face meetings or online via methods such as Skype. By bringing people together on a regular basis, this helps alleviate the isolation that many FND patients feel. It also gives  opportunity  for others to open up dialog and to talk to others in a similar position about the day to day challenges, issues or concerns with one another.

    http://fnddimensions.org/

    A really helpful article and explanation of what FND is: 

    https://threadreaderapp.com/thread/1367576277956370432.html?fbclid=IwAR1GZpXe7IgC9qVlIr7ygA9RslPy6nxhQIumdUw9XMu2fs8MsMf8SwYZeVQ

    MY FND APP is another great tool that can be downloaded at any App Store which can help you monitor your FND symptoms and document it so you can see it for yourself long term and keep a log. Also it can be great to take along for appointment. 

    Other podcasts to follow:

    itsmeitsmeitsfnd

    https://open.spotify.com/show/6RSjTADQCw9tA4Udnutf0L?si=JZy4CAfuSB6FWaBCi8Avgg&dl_branch=1

    The Fnd Podcast always suggests that you always talk with your gp and or specialist with any treatments in regards with FND. 
     

     

     

    Recent Episodes from The FND Podcast

    The JJsegment| catch up with Jess

    The JJsegment| catch up with Jess

    Warning: this episode contains sensitive topics which can be triggering to some listeners. Please be advised.

    On this episode of the JJsegment Jess talks about how life has been this past year and about Mental Health. We are grateful that she has shared how she has been. Thankyou Jess for sharing. In the meantime she is an incredible author and you can support Jess also by reading her wonderful book!  Follow Jess on Instagram @functionallyjessWIDOWS FLAME: Jess is an author and she has received glowing reviews on her book. She is an amazing writer and you can purchase and read her book at most book stores.

    https://www.shawlinepublishing.com.au/our-titles/display/252-widowand%2339%3Bs-flame

    Goodreads:

    https://www.goodreads.com/en/book/show/63062237

    Booktopia:

    https://www.booktopia.com.au/widow-s-flame-jess-mcfarlane/ebook/9781922850126.html

    Foreign Accent syndrome

    https://pubmed.ncbi.nlm.nih.gov/27234850/#:~:text=Foreign%20accent%20syndrome%20(FAS)%20is,a%20video%20of%20her%20speech.

    https://youtu.be/x18AQT6yKGg

    NDIS:(available in Australia) https://www.ndis.gov.au/understanding/what-ndis

    The NDIS Provides funding to eligible people with disability to gain more time with family and friends, greater independence, access to new skills, jobs , or volunteering in their community and an improved quality of life. The NDIS connects anyone with disability to services in their community. 

    Is it still relevant the BMI index: it's questionable

    https://www.medicalnewstoday.com/articles/265215#Waist-to-height-ratio-better-than-BMI

    Food pyramid relevant still?

    https://www.houstonmethodist.org/blog/articles/2019/dec/is-the-food-pyramid-still-relevant/

    Introducing the myplate:

    https://www.uabmedicine.org/news/myplate-healthy-eating-chart-replaced-the-food-pyramid/#:~:text=In%202011%2C%20the%20U.S.%20Department,start%2C%20MyPlate%20is%20for%20you.

    A previous episode of medical cannibis:

    https://thefndpodcast.simplecast.com/episodes/conversations-with-chrissie-lets-talk-medical-cannibis

    The game:Marrying Mr Darcy

    https://boardgamegeek.com/boardgame/145308/marrying-mr-darcy

    The FND Podcast with Detty acknowledges the traditional custodians of the land in which we stand, the Bundjalung, Awakabal, Djinduburi , Arawak, Boon wurrang & Wurundjeri People. The FND Podcast pays respect to their Elders past, present and emerging.

    The FND Podcast with detty : song resonating at the moment maybe our song :

    The new normal by Kahlid to hear it it is on our playlist or click below to view lyrics and listen on YouTube.

    https://youtu.be/o3sXlxg4d5c

    Here re two essential reads on FND that are highly recommended by Chrissie and now myself Click on the titles to gain access on the articles.

    The Cadenza for fractured consciousness   From Medium.com on the fnd portal 

    The Road to Functional Neurological Disorder by Gabriel Brownstein 

    Also anything covid related and fnd here on neuro symptoms :

    https://www.neurosymptoms.org/en/faq/covid-19-the-covid-19-vaccine-and-fnd-what-do-we-know/

    A recent article written June this year what do you think ? From MJA 

    https://www.mja.com.au/journal/2022/216/10/functional-neurological-disorders-australian-interdisciplinary-perspectiveWhat has the team been listening to? What are are their song preferences ? In a flare and would like to listen to some songs? Head over to our playlist! Thank you Maggie for making it :) we have recently updated the list which features an eclectic list; itunes playlist : the fnd podcast with detty playlist or click on the link below for the playlist 

    https://open.spotify.com/playlist/5lvGhN4Ab3AtwBj42L5DDA?si=i1RzVbhmQ3GeJ6a3Iu7sHw&dl_branch=1

    FND TSHIRTS BAGS MASKS AND MORE ; FND PODCAST MERCHANDISE-CLICK BELOW

    https://imprintmerch.com.au/collections/lets-have-the-chat

    from masks to bags hoodies and tshirts featuring Friends of FND and FND will not hold me back : all proceeds going to FND Australia Support Services also FND Podcast merchanise check them out!

    HELPFUL RESOURCES:

    A website all things Functional neurological Disorder written by Professor Jon Stone who is the leading FND researcher and Consultant Neurologist in Edinburgh, Scotland.

    https://www.neurosymptoms.org/

    Neurosymptoms has an app that you can download now too. Look up neurosymptoms or Jon stone and you will find it there.

    https://www.health.qld.gov.au/news-events/podcast/my-amazing-body-the-brain-2.0

    An excellent podcast episode which explains what Functional Neurological Disorder is. Have a good listeners brilliant!

    Dr Mohsin Butt is an excellent doctor who explained what FND is perfectly click here to watch his explanation

    https://www.tiktok.com/@drbuttgastro/video/7020472244954549510

    https://www.neurokid.co.uk/\

    A website for young people and families living with NEAD and neurological symptom

    https://fndportal.org/

    Amazing website with information and links to fnd

    Information on Non Epileptic Seizures or NEAD

    https://www.sth.nhs.uk/clientfiles/File/Epilepsy/pil2072.pdf

    FND ORGANISATIONS:

    https://www.fndaus.org.au/

    FND AUSTRALIA SUPPORT  SERVICES INC: A wonderful resource for people in Australia with FND: from reasearch into FND, finding medical specialists and services and just information about FND. Solely dedicated to all things FND and helping those with FND in Australia.

    FND Australia Support services App:

    Android

    https://apksos.com/app/fndaustralia.com

    Apple

    https://apps.apple.com/au/app/fnd-australia-support-services/id1613121706

    Click below to hear more about FND Australia Support services and who Dr. Katherine Gill is

    https://thefndpodcast.simplecast.com/episodes/the-fnd-podcast-with-detty-dr-katherine-gill-and-fnd-australian-support-services

    FND Action is a patient-led charity who offer a caring and supporting hand to people living with Functional Neurological Disorder (FND) in the UK.

    https://www.fndaction.org.uk/

    FND Dimensions aims to develop a network of ‘peer support groups’ across the UK either in face to face meetings or online via methods such as Skype. By bringing people together on a regular basis, this helps alleviate the isolation that many FND patients feel. It also gives  opportunity  for others to open up dialog and to talk to others in a similar position about the day to day challenges, issues or concerns with one another.

    http://fnddimensions.org/

    A really helpful article and explanation of what FND is: '

    https://threadreaderapp.com/thread/1367576277956370432.html?fbclid=IwAR1GZpXe7IgC9qVlIr7ygA9RslPy6nxhQIumdUw9XMu2fs8MsMf8SwYZeVQ
     

    Other podcasts/ blogs / vlogs to follow:

    itsmeitsmeitsfnd

    by none other than our Jake! 


    https://www.tomplender.com/

    Tom Plender : follow this amazing creative human his art, music and writing on fnd 

    https://open.spotify.com/show/6RSjTADQCw9tA4Udnutf0L?si=JZy4CAfuSB6FWaBCi8Avgg&dl_branch=1
    Bed Life and Beyond by Rach also a lovely FNDer

    https://pandoralocksmith.wordpress.com/about/

    John McLeans Fnd Journey

    https://m.facebook.com/JohnsFND/?ref=page_internal&mt_nav=0

    Lmtd Life with FND

    https://m.youtube.com/channel/UC3xLKpn7gkgvVoH29ulu4IA/videos

    FNDer amplified: Meg Jacks follow on Instagram @ Meg.jacks_ TicTok: @megjacks

    Instagram follow Emma’s journey :@emmas_fnd_fun

    People Amplified on the FND Podcast by Maggies Corner ,brilliant incredible humans who you should look up / check out

    Dylan Alcott

    Athelete , paraolympics , podcaster , raising awareness and voices of the disabled

    Instagram :@ listenable_podcast @dylanalcott

    Website: www.abilityfest.com.au

     

    Elle Stella

    Business Success Coach , Paraolympian & intuitive healer

    Instagram: @iamellesteele

    Website: www.iamellesteele.com


    Carly Findlay

    Activist, writer, Blogger with a condition called ichtchyosis.

    Instagram: @carlyfindlay

    Website: www.carlyfindlay.com.au


    Sophie Butler

    Shes empowering women, disabled after a spinal cord injury , she inspirational and has an amazing attitude

    Instagram: @sophjbutler

    YouTube: https://youtu.be/wgfAYDlXXvM


    Meg Jacks

    She is a fellow FNDer who is very open about her journey with FND and has helped raised awareness with FND

    Instagram: @Meg.Jacks_

    TicTok: Megjacks

     

    Julian Gavino

    (he/him) is a trans-masculine model, writer, coach, and sex-positive disability influencer living with Ehlers-Danlos syndrome and comorbidities. ... In his work, Julian aims to normalize and destigmatize trans and disabled bodies in media — by facing discrimination down and creating space for representation

    Instagram:  @thedisabledhippie


    Nina Tame aka the Lunch Lady

    She’s a single mum who’s disabled and a disability advocate. Parenting with disability

    Website: https://hellolunchlady.com.au/parenting/parenting-around-the-world-nina/


    Chloè Haden

    she is an Australian actor YouTuber singer dancer and she’s autistic. She beings awareness about Autism and talks openly about life with Autism.

    Instagram: @princesssapien

    Website: https://www.chloehayden.com.au/

    Youtube: Chloè Haden

     

    Style like U

    Founded by mother-daughter duo, Elisa Goodkind & Lily Mandelbaum, StyleLikeU is a multimedia platform for radically honest docu-style content that gives voice to diverse role models who stand proudly outside of norms and are comfortable in their skin.

    Website: https://stylelikeu.com/about-us/

    Lucy Dawson

    who unfortunately became Disabled during a medical situation. Click this link to find out more https://www.theguardian.com/society/2021/aug/25/lucy-dawson-the-model-who-got-a-mystery-headache-a-misdiagnosis-and-a-new-mission-in-life However despite this all she continues now to advocate and model and be bloody amazing.

    Instagram : @luuudaw

    Website: https://lucyintheskywithencephalitis.wordpress.com/2021/03/16/all-my-links/

    Cripple Media

    Cripple media is a disability led media which represents the voice of the youth. As they have mentioned that the youth especially disabled have been represented by those who aren’t the youth primarily the teachers or parents , those in the medical fields so they are raising their voices and speaking up and being heard. It’s really important for their voices their oppinions to be heard and what a great idea and platform. A way to educate aswell as raise awareness

    Instagram: @cripple media

    Website: https://cripplemedia.com/about/

    Aaron Rose Philip

     For more information check out this wonderful article here

    https://www.uncrazed.com/aaron-rose-philip-makes-runway-debut-says-disabled-talents-matter/32893

    Instagram:aaron_phillip transgendered disabled fabulous Model check him out

    Nicole Parish

    she is raising awareness on Autism, how she lives with autism, what tools she uses and her love for insects. Follow her on Tik Tok at Sound of the Forest

    A great news platform for young Australians to get the news firsthand ; available internet podcast and app easily digestible and accessible check it out

    https://www.thedailyaus.com.au/

    The FND Podcast
    enMarch 25, 2023
    mental health
    fnd
    functional neurological disorder
    jjsegment
    fnd warrior

    The FND Podcast| Inform the Doctors Campaign

    The FND Podcast| Inform the Doctors Campaign

    Following on the episode "Hello Mr. Tom Plender" we talked about the Inform the Doctor campaign that FND ACTION has. With Toms permission we were able to record his explanation he had on this campaign and encourage you wherever you are in the world to utilise this campaign/information. It is a worldwide campaign and it's to help spread the awareness of the advancements of FND. To find out more head to FND ACTION website: www.fndaction.org.uk , follow Tom on his instagram : @tplender and have a look at his website at www.tomplender.com 

    FND ACTION UK : FND AWARENESS DAY

    https://www.fndaction.org.uk/fnd-awareness-day-uk/

    Click on the link to participate

    Including two paediatric consultants in FND:  if you are a parent and would like to participate especially you're more than welcome to join and ask questions. 

    Inform the doctor:

    https://www.fndaction.org.uk/fnd-action-campaign-informthedoctor-functional-neurological-disorder/

    INTERVIEWS AND ARTICLES:
    Sky News interviews Tom Plender: https://youtu.be/65ZR3E4dqko

    GB News https://youtu.be/8EMspXvKWd8

    I Newspaper article: https://inews.co.uk/inews-lifestyle/brain-disorder-stopped-walking-medics-often-miss-2200655

    FND : Tiktok

    https://www.tiktok.com/tag/fnd?lang=en

    FNDPORTAL: follow him on twitterhttps://twitter.com/FndPortal?ref_src=twsrc%5Egoogle%7Ctwcamp%5Eserp%7Ctwgr%5Eauthor

    Music: 

    Winter at east darby by TAYME

    Europian Sunrise by Anthony Catacoli

    The FND Podcast with Detty acknowledges the traditional custodians of the land in which we stand, the Bundjalung, Awakabal, Djinduburi , Arawak, Boon wurrang & Wurundjeri People. The FND Podcast pays respect to their Elders past, present and emerging.

    The FND Podcast with detty : song resonating at the moment maybe our song :

    The new normal by Kahlid to hear it it is on our playlist or click below to view lyrics and listen on YouTube.

    https://youtu.be/o3sXlxg4d5c

    Here re two essential reads on FND that are highly recommended by Chrissie and now myself Click on the titles to gain access on the articles.

    The Cadenza for fractured consciousness   From Medium.com on the fnd portal 

    The Road to Functional Neurological Disorder by Gabriel Brownstein 

    Also anything covid related and fnd here on neuro symptoms :

    https://www.neurosymptoms.org/en/faq/covid-19-the-covid-19-vaccine-and-fnd-what-do-we-know/

    A recent article written June this year what do you think ? From MJA 

    https://www.mja.com.au/journal/2022/216/10/functional-neurological-disorders-australian-interdisciplinary-perspectiveWhat has the team been listening to? What are are their song preferences ? In a flare and would like to listen to some songs? Head over to our playlist! Thank you Maggie for making it :) we have recently updated the list which features an eclectic list; itunes playlist : the fnd podcast with detty playlist or click on the link below for the playlist 

    https://open.spotify.com/playlist/5lvGhN4Ab3AtwBj42L5DDA?si=i1RzVbhmQ3GeJ6a3Iu7sHw&dl_branch=1

    FND TSHIRTS BAGS MASKS AND MORE ; FND PODCAST MERCHANDISE-CLICK BELOW

    https://imprintmerch.com.au/collections/lets-have-the-chat

    from masks to bags hoodies and tshirts featuring Friends of FND and FND will not hold me back : all proceeds going to FND Australia Support Services also FND Podcast merchanise check them out!

    HELPFUL RESOURCES:

    A website all things Functional neurological Disorder written by Professor Jon Stone who is the leading FND researcher and Consultant Neurologist in Edinburgh, Scotland.

    https://www.neurosymptoms.org/

    Neurosymptoms has an app that you can download now too. Look up neurosymptoms or Jon stone and you will find it there.

    https://www.health.qld.gov.au/news-events/podcast/my-amazing-body-the-brain-2.0

    An excellent podcast episode which explains what Functional Neurological Disorder is. Have a good listeners brilliant!

    Dr Mohsin Butt is an excellent doctor who explained what FND is perfectly click here to watch his explanation

    https://www.tiktok.com/@drbuttgastro/video/7020472244954549510

    https://www.neurokid.co.uk/\

    A website for young people and families living with NEAD and neurological symptom

    https://fndportal.org/

    Amazing website with information and links to fnd

    Information on Non Epileptic Seizures or NEAD

    https://www.sth.nhs.uk/clientfiles/File/Epilepsy/pil2072.pdf

    FND ORGANISATIONS:

    https://www.fndaus.org.au/

    FND AUSTRALIA SUPPORT  SERVICES INC: A wonderful resource for people in Australia with FND: from reasearch into FND, finding medical specialists and services and just information about FND. Solely dedicated to all things FND and helping those with FND in Australia.

    FND Australia Support services App:

    Android

    https://apksos.com/app/fndaustralia.com

    Apple

    https://apps.apple.com/au/app/fnd-australia-support-services/id1613121706

    Click below to hear more about FND Australia Support services and who Dr. Katherine Gill is

    https://thefndpodcast.simplecast.com/episodes/the-fnd-podcast-with-detty-dr-katherine-gill-and-fnd-australian-support-services

    FND Action is a patient-led charity who offer a caring and supporting hand to people living with Functional Neurological Disorder (FND) in the UK.

    https://www.fndaction.org.uk/

    FND Dimensions aims to develop a network of ‘peer support groups’ across the UK either in face to face meetings or online via methods such as Skype. By bringing people together on a regular basis, this helps alleviate the isolation that many FND patients feel. It also gives  opportunity  for others to open up dialog and to talk to others in a similar position about the day to day challenges, issues or concerns with one another.

    http://fnddimensions.org/

    A really helpful article and explanation of what FND is: '

    https://threadreaderapp.com/thread/1367576277956370432.html?fbclid=IwAR1GZpXe7IgC9qVlIr7ygA9RslPy6nxhQIumdUw9XMu2fs8MsMf8SwYZeVQ
     

    FND TOGETHER:

    https://fndtogether.com/en


     

    itsmeitsmeitsfnd

    by none other than our Jake! 
    https://www.tomplender.com/

    Tom Plender : follow this amazing creative human his art, music and writing on fnd 

    https://open.spotify.com/show/6RSjTADQCw9tA4Udnutf0L?si=JZy4CAfuSB6FWaBCi8Avgg&dl_branch=1
    Bed Life and Beyond by Rach also a lovely FNDer

    https://pandoralocksmith.wordpress.com/about/

    John McLeans Fnd Journey

    https://m.facebook.com/JohnsFND/?ref=page_internal&mt_nav=0

    Lmtd Life with FND

    https://m.youtube.com/channel/UC3xLKpn7gkgvVoH29ulu4IA/videos

    FNDer amplified: Meg Jacks follow on Instagram @ Meg.jacks_ TicTok: @megjacks

    Instagram follow Emma’s journey :@emmas_fnd_fun

    People Amplified on the FND Podcast by Maggies Corner ,brilliant incredible humans who you should look up / check out

    Dylan Alcott

    Athelete , paraolympics , podcaster , raising awareness and voices of the disabled

    Instagram :@ listenable_podcast @dylanalcott

    Website: www.abilityfest.com.au

     

    Elle Stella

    Business Success Coach , Paraolympian & intuitive healer

    Instagram: @iamellesteele

    Website: www.iamellesteele.com


    Carly Findlay

    Activist, writer, Blogger with a condition called ichtchyosis.

    Instagram: @carlyfindlay

    Website: www.carlyfindlay.com.au


    Sophie Butler

    Shes empowering women, disabled after a spinal cord injury , she inspirational and has an amazing attitude

    Instagram: @sophjbutler

    YouTube: https://youtu.be/wgfAYDlXXvM


    Meg Jacks

    She is a fellow FNDer who is very open about her journey with FND and has helped raised awareness with FND

    Instagram: @Meg.Jacks_

    TicTok: Megjacks

     

    Julian Gavino

    (he/him) is a trans-masculine model, writer, coach, and sex-positive disability influencer living with Ehlers-Danlos syndrome and comorbidities. ... In his work, Julian aims to normalize and destigmatize trans and disabled bodies in media — by facing discrimination down and creating space for representation

    Instagram:  @thedisabledhippie


    Nina Tame aka the Lunch Lady

    She’s a single mum who’s disabled and a disability advocate. Parenting with disability

    Website: https://hellolunchlady.com.au/parenting/parenting-around-the-world-nina/


    Chloè Haden

    she is an Australian actor YouTuber singer dancer and she’s autistic. She beings awareness about Autism and talks openly about life with Autism.

    Instagram: @princesssapien

    Website: https://www.chloehayden.com.au/

    Youtube: Chloè Haden

     

    Style like U

    Founded by mother-daughter duo, Elisa Goodkind & Lily Mandelbaum, StyleLikeU is a multimedia platform for radically honest docu-style content that gives voice to diverse role models who stand proudly outside of norms and are comfortable in their skin.

    Website: https://stylelikeu.com/about-us/

    Lucy Dawson

    who unfortunately became Disabled during a medical situation. Click this link to find out more https://www.theguardian.com/society/2021/aug/25/lucy-dawson-the-model-who-got-a-mystery-headache-a-misdiagnosis-and-a-new-mission-in-life However despite this all she continues now to advocate and model and be bloody amazing.

    Instagram : @luuudaw

    Website: https://lucyintheskywithencephalitis.wordpress.com/2021/03/16/all-my-links/

    Cripple Media

    Cripple media is a disability led media which represents the voice of the youth. As they have mentioned that the youth especially disabled have been represented by those who aren’t the youth primarily the teachers or parents , those in the medical fields so they are raising their voices and speaking up and being heard. It’s really important for their voices their oppinions to be heard and what a great idea and platform. A way to educate aswell as raise awareness

    Instagram: @cripple media

    Website: https://cripplemedia.com/about/

    Aaron Rose Philip

     For more information check out this wonderful article here

    https://www.uncrazed.com/aaron-rose-philip-makes-runway-debut-says-disabled-talents-matter/32893

    Instagram:aaron_phillip transgendered disabled fabulous Model check him out

    Nicole Parish

    she is raising awareness on Autism, how she lives with autism, what tools she uses and her love for insects. Follow her on Tik Tok at Sound of the Forest

    A great news platform for young Australians to get the news firsthand ; available internet podcast and app easily digestible and accessible check it out

    https://www.thedailyaus.com.au/


     

    The FND Podcast
    enMarch 25, 2023
    fnd
    functional neurological disorder
    fnd action
    inform the doctor campaign
    fndpodcast

    The FND Podcast| Hello Jake

    The FND Podcast| Hello Jake

    Follow Jake on his podcast! Check it out!!!!!

    Itsmeitsmeitsfnd https://open.spotify.com/show/6RSjTADQCw9tA4Udnutf0L

    Check out Jake on his youtube channel:  and as they say if you love what he does  : like follow and subscribe! @punkchef41

    https://youtube.com/shorts/JVoLO3Vtt8s?feature=share

    Foreign Accent Syndrome:

    https://pubmed.ncbi.nlm.nih.gov/30826739/

    Kelly Clarkson show : on youtube @thekellyclarksonshow

    https://www.youtube.com/watch?v=X20Spi7EOQY

    Kelly Clarkson and Pink sing on this youtube video and they are crazy amazing

     

    The FND Podcast with Detty acknowledges the traditional custodians of the land in which we stand, the Bundjalung, Awakabal, Djinduburi , Arawak, Boon wurrang & Wurundjeri People. The FND Podcast pays respect to their Elders past, present and emerging.

    The FND Podcast with detty : song resonating at the moment maybe our song :

    The new normal by Kahlid to hear it it is on our playlist or click below to view lyrics and listen on YouTube.

    https://youtu.be/o3sXlxg4d5c

    Here re two essential reads on FND that are highly recommended by Chrissie and now myself Click on the titles to gain access on the articles.

    The Cadenza for fractured consciousness   From Medium.com on the fnd portal 

    The Road to Functional Neurological Disorder by Gabriel Brownstein 

    Also anything covid related and fnd here on neuro symptoms :

    https://www.neurosymptoms.org/en/faq/covid-19-the-covid-19-vaccine-and-fnd-what-do-we-know/

    A recent article written June this year what do you think ? From MJA 

    https://www.mja.com.au/journal/2022/216/10/functional-neurological-disorders-australian-interdisciplinary-perspectiveWhat has the team been listening to? What are are their song preferences ? In a flare and would like to listen to some songs? Head over to our playlist! Thank you Maggie for making it :) we have recently updated the list which features an eclectic list; itunes playlist : the fnd podcast with detty playlist or click on the link below for the playlist 

    https://open.spotify.com/playlist/5lvGhN4Ab3AtwBj42L5DDA?si=i1RzVbhmQ3GeJ6a3Iu7sHw&dl_branch=1

    FND TSHIRTS BAGS MASKS AND MORE ; FND PODCAST MERCHANDISE-CLICK BELOW

    https://imprintmerch.com.au/collections/lets-have-the-chat

    from masks to bags hoodies and tshirts featuring Friends of FND and FND will not hold me back : all proceeds going to FND Australia Support Services also FND Podcast merchanise check them out!

    HELPFUL RESOURCES:

    A website all things Functional neurological Disorder written by Professor Jon Stone who is the leading FND researcher and Consultant Neurologist in Edinburgh, Scotland.

    https://www.neurosymptoms.org/

    Neurosymptoms has an app that you can download now too. Look up neurosymptoms or Jon stone and you will find it there.

    https://www.health.qld.gov.au/news-events/podcast/my-amazing-body-the-brain-2.0

    An excellent podcast episode which explains what Functional Neurological Disorder is. Have a good listeners brilliant!

    Dr Mohsin Butt is an excellent doctor who explained what FND is perfectly click here to watch his explanation

    https://www.tiktok.com/@drbuttgastro/video/7020472244954549510

    https://www.neurokid.co.uk/\

    A website for young people and families living with NEAD and neurological symptom

    https://fndportal.org/

    Amazing website with information and links to fnd

    Information on Non Epileptic Seizures or NEAD

    https://www.sth.nhs.uk/clientfiles/File/Epilepsy/pil2072.pdf

    FND ORGANISATIONS:

    https://www.fndaus.org.au/

    FND AUSTRALIA SUPPORT  SERVICES INC: A wonderful resource for people in Australia with FND: from reasearch into FND, finding medical specialists and services and just information about FND. Solely dedicated to all things FND and helping those with FND in Australia.

    FND Australia Support services App:

    Android

    https://apksos.com/app/fndaustralia.com

    Apple

    https://apps.apple.com/au/app/fnd-australia-support-services/id1613121706

    Click below to hear more about FND Australia Support services and who Dr. Katherine Gill is

    https://thefndpodcast.simplecast.com/episodes/the-fnd-podcast-with-detty-dr-katherine-gill-and-fnd-australian-support-services

    FND Action is a patient-led charity who offer a caring and supporting hand to people living with Functional Neurological Disorder (FND) in the UK.

    https://www.fndaction.org.uk/

    FND Dimensions aims to develop a network of ‘peer support groups’ across the UK either in face to face meetings or online via methods such as Skype. By bringing people together on a regular basis, this helps alleviate the isolation that many FND patients feel. It also gives  opportunity  for others to open up dialog and to talk to others in a similar position about the day to day challenges, issues or concerns with one another.

    http://fnddimensions.org/

    A really helpful article and explanation of what FND is: '

    https://threadreaderapp.com/thread/1367576277956370432.html?fbclid=IwAR1GZpXe7IgC9qVlIr7ygA9RslPy6nxhQIumdUw9XMu2fs8MsMf8SwYZeVQ
     

    FND TOGETHER:

    https://fndtogether.com/en


     

    itsmeitsmeitsfnd

    by none other than our Jake! 
    https://www.tomplender.com/

    Tom Plender : follow this amazing creative human his art, music and writing on fnd 

    https://open.spotify.com/show/6RSjTADQCw9tA4Udnutf0L?si=JZy4CAfuSB6FWaBCi8Avgg&dl_branch=1
    Bed Life and Beyond by Rach also a lovely FNDer

    https://pandoralocksmith.wordpress.com/about/

    John McLeans Fnd Journey

    https://m.facebook.com/JohnsFND/?ref=page_internal&mt_nav=0

    Lmtd Life with FND

    https://m.youtube.com/channel/UC3xLKpn7gkgvVoH29ulu4IA/videos

    FNDer amplified: Meg Jacks follow on Instagram @ Meg.jacks_ TicTok: @megjacks

    Instagram follow Emma’s journey :@emmas_fnd_fun

    People Amplified on the FND Podcast by Maggies Corner ,brilliant incredible humans who you should look up / check out

    Dylan Alcott

    Athelete , paraolympics , podcaster , raising awareness and voices of the disabled

    Instagram :@ listenable_podcast @dylanalcott

    Website: www.abilityfest.com.au

     

    Elle Stella

    Business Success Coach , Paraolympian & intuitive healer

    Instagram: @iamellesteele

    Website: www.iamellesteele.com


    Carly Findlay

    Activist, writer, Blogger with a condition called ichtchyosis.

    Instagram: @carlyfindlay

    Website: www.carlyfindlay.com.au


    Sophie Butler

    Shes empowering women, disabled after a spinal cord injury , she inspirational and has an amazing attitude

    Instagram: @sophjbutler

    YouTube: https://youtu.be/wgfAYDlXXvM


    Meg Jacks

    She is a fellow FNDer who is very open about her journey with FND and has helped raised awareness with FND

    Instagram: @Meg.Jacks_

    TicTok: Megjacks

     

    Julian Gavino

    (he/him) is a trans-masculine model, writer, coach, and sex-positive disability influencer living with Ehlers-Danlos syndrome and comorbidities. ... In his work, Julian aims to normalize and destigmatize trans and disabled bodies in media — by facing discrimination down and creating space for representation

    Instagram:  @thedisabledhippie


    Nina Tame aka the Lunch Lady

    She’s a single mum who’s disabled and a disability advocate. Parenting with disability

    Website: https://hellolunchlady.com.au/parenting/parenting-around-the-world-nina/


    Chloè Haden

    she is an Australian actor YouTuber singer dancer and she’s autistic. She beings awareness about Autism and talks openly about life with Autism.

    Instagram: @princesssapien

    Website: https://www.chloehayden.com.au/

    Youtube: Chloè Haden

     

    Style like U

    Founded by mother-daughter duo, Elisa Goodkind & Lily Mandelbaum, StyleLikeU is a multimedia platform for radically honest docu-style content that gives voice to diverse role models who stand proudly outside of norms and are comfortable in their skin.

    Website: https://stylelikeu.com/about-us/

    Lucy Dawson

    who unfortunately became Disabled during a medical situation. Click this link to find out more https://www.theguardian.com/society/2021/aug/25/lucy-dawson-the-model-who-got-a-mystery-headache-a-misdiagnosis-and-a-new-mission-in-life However despite this all she continues now to advocate and model and be bloody amazing.

    Instagram : @luuudaw

    Website: https://lucyintheskywithencephalitis.wordpress.com/2021/03/16/all-my-links/

    Cripple Media

    Cripple media is a disability led media which represents the voice of the youth. As they have mentioned that the youth especially disabled have been represented by those who aren’t the youth primarily the teachers or parents , those in the medical fields so they are raising their voices and speaking up and being heard. It’s really important for their voices their oppinions to be heard and what a great idea and platform. A way to educate aswell as raise awareness

    Instagram: @cripple media

    Website: https://cripplemedia.com/about/

    Aaron Rose Philip

     For more information check out this wonderful article here

    https://www.uncrazed.com/aaron-rose-philip-makes-runway-debut-says-disabled-talents-matter/32893

    Instagram:aaron_phillip transgendered disabled fabulous Model check him out

    Nicole Parish

    she is raising awareness on Autism, how she lives with autism, what tools she uses and her love for insects. Follow her on Tik Tok at Sound of the Forest

    A great news platform for young Australians to get the news firsthand ; available internet podcast and app easily digestible and accessible check it out

    https://www.thedailyaus.com.au/


     

    The FND Podcast
    enMarch 25, 2023
    fnd
    functional neurological disorder
    fnd warrior
    itsmeitsmeitsfnd

    The FND Podcast | Hello Mr. Tom Plender

    The FND Podcast | Hello Mr. Tom Plender

    On this episode of the FND Podcast we are talking to Mr. Tom Plender who is a massive Campaigner for FND. We talk to him about FND and he brings up what we need to do to help FND Awareness and talk about FND. Thankyou so much for your time and for talking to us Tom it's been an amazing conversation with you, food for thought, inspiration and just so valuable. To follow Tom on instagram : @tplender. He has a website: www.tomplender.com and also FND ACTION: www.fndaction.org.uk 

    FND ACTION UK : FND AWARENESS DAY

    https://www.fndaction.org.uk/fnd-awareness-day-uk/

    Click on the link to participate

    Including two paediatric consultants in FND:  if you are a parent and would like to participate especially you're more than welcome to join and ask questions. 

    Inform the doctor:

    https://www.fndaction.org.uk/fnd-action-campaign-informthedoctor-functional-neurological-disorder/

    INTERVIEWS AND ARTICLES:
    Sky News interviews Tom Plender: https://youtu.be/65ZR3E4dqko

    GB News https://youtu.be/8EMspXvKWd8

    I Newspaper article: https://inews.co.uk/inews-lifestyle/brain-disorder-stopped-walking-medics-often-miss-2200655

    FND : Tiktok

    https://www.tiktok.com/tag/fnd?lang=en

    FNDPORTAL: follow him on twitterhttps://twitter.com/FndPortal?ref_src=twsrc%5Egoogle%7Ctwcamp%5Eserp%7Ctwgr%5Eauthor

    Music: 

    Sam Barsh Yellow Letter

    Sam Bars Hope Springs Internal

    The FND Podcast with Detty acknowledges the traditional custodians of the land in which we stand, the Bundjalung, Awakabal, Djinduburi , Arawak, Boon wurrang & Wurundjeri People. The FND Podcast pays respect to their Elders past, present and emerging.

    The FND Podcast with detty : song resonating at the moment maybe our song :

    The new normal by Kahlid to hear it it is on our playlist or click below to view lyrics and listen on YouTube.

    https://youtu.be/o3sXlxg4d5c

    Here re two essential reads on FND that are highly recommended by Chrissie and now myself Click on the titles to gain access on the articles.

    The Cadenza for fractured consciousness   From Medium.com on the fnd portal 

    The Road to Functional Neurological Disorder by Gabriel Brownstein 

    Also anything covid related and fnd here on neuro symptoms :

    https://www.neurosymptoms.org/en/faq/covid-19-the-covid-19-vaccine-and-fnd-what-do-we-know/

    A recent article written June this year what do you think ? From MJA 

    https://www.mja.com.au/journal/2022/216/10/functional-neurological-disorders-australian-interdisciplinary-perspectiveWhat has the team been listening to? What are are their song preferences ? In a flare and would like to listen to some songs? Head over to our playlist! Thank you Maggie for making it :) we have recently updated the list which features an eclectic list; itunes playlist : the fnd podcast with detty playlist or click on the link below for the playlist 

    https://open.spotify.com/playlist/5lvGhN4Ab3AtwBj42L5DDA?si=i1RzVbhmQ3GeJ6a3Iu7sHw&dl_branch=1

    FND TSHIRTS BAGS MASKS AND MORE ; FND PODCAST MERCHANDISE-CLICK BELOW

    https://imprintmerch.com.au/collections/lets-have-the-chat

    from masks to bags hoodies and tshirts featuring Friends of FND and FND will not hold me back : all proceeds going to FND Australia Support Services also FND Podcast merchanise check them out!

    HELPFUL RESOURCES:

    A website all things Functional neurological Disorder written by Professor Jon Stone who is the leading FND researcher and Consultant Neurologist in Edinburgh, Scotland.

    https://www.neurosymptoms.org/

    Neurosymptoms has an app that you can download now too. Look up neurosymptoms or Jon stone and you will find it there.

    https://www.health.qld.gov.au/news-events/podcast/my-amazing-body-the-brain-2.0

    An excellent podcast episode which explains what Functional Neurological Disorder is. Have a good listeners brilliant!

    Dr Mohsin Butt is an excellent doctor who explained what FND is perfectly click here to watch his explanation

    https://www.tiktok.com/@drbuttgastro/video/7020472244954549510

    https://www.neurokid.co.uk/\

    A website for young people and families living with NEAD and neurological symptom

    https://fndportal.org/

    Amazing website with information and links to fnd

    Information on Non Epileptic Seizures or NEAD

    https://www.sth.nhs.uk/clientfiles/File/Epilepsy/pil2072.pdf

    FND ORGANISATIONS:

    https://www.fndaus.org.au/

    FND AUSTRALIA SUPPORT  SERVICES INC: A wonderful resource for people in Australia with FND: from reasearch into FND, finding medical specialists and services and just information about FND. Solely dedicated to all things FND and helping those with FND in Australia.

    FND Australia Support services App:

    Android

    https://apksos.com/app/fndaustralia.com

    Apple

    https://apps.apple.com/au/app/fnd-australia-support-services/id1613121706

    Click below to hear more about FND Australia Support services and who Dr. Katherine Gill is

    https://thefndpodcast.simplecast.com/episodes/the-fnd-podcast-with-detty-dr-katherine-gill-and-fnd-australian-support-services

    FND Action is a patient-led charity who offer a caring and supporting hand to people living with Functional Neurological Disorder (FND) in the UK.

    https://www.fndaction.org.uk/

    FND Dimensions aims to develop a network of ‘peer support groups’ across the UK either in face to face meetings or online via methods such as Skype. By bringing people together on a regular basis, this helps alleviate the isolation that many FND patients feel. It also gives  opportunity  for others to open up dialog and to talk to others in a similar position about the day to day challenges, issues or concerns with one another.

    http://fnddimensions.org/

    A really helpful article and explanation of what FND is: '

    https://threadreaderapp.com/thread/1367576277956370432.html?fbclid=IwAR1GZpXe7IgC9qVlIr7ygA9RslPy6nxhQIumdUw9XMu2fs8MsMf8SwYZeVQ
     

    FND TOGETHER:

    https://fndtogether.com/en


     

    itsmeitsmeitsfnd

    by none other than our Jake! 
    https://www.tomplender.com/

    Tom Plender : follow this amazing creative human his art, music and writing on fnd 

    https://open.spotify.com/show/6RSjTADQCw9tA4Udnutf0L?si=JZy4CAfuSB6FWaBCi8Avgg&dl_branch=1
    Bed Life and Beyond by Rach also a lovely FNDer

    https://pandoralocksmith.wordpress.com/about/

    John McLeans Fnd Journey

    https://m.facebook.com/JohnsFND/?ref=page_internal&mt_nav=0

    Lmtd Life with FND

    https://m.youtube.com/channel/UC3xLKpn7gkgvVoH29ulu4IA/videos

    FNDer amplified: Meg Jacks follow on Instagram @ Meg.jacks_ TicTok: @megjacks

    Instagram follow Emma’s journey :@emmas_fnd_fun

    People Amplified on the FND Podcast by Maggies Corner ,brilliant incredible humans who you should look up / check out

    Dylan Alcott

    Athelete , paraolympics , podcaster , raising awareness and voices of the disabled

    Instagram :@ listenable_podcast @dylanalcott

    Website: www.abilityfest.com.au

     

    Elle Stella

    Business Success Coach , Paraolympian & intuitive healer

    Instagram: @iamellesteele

    Website: www.iamellesteele.com


    Carly Findlay

    Activist, writer, Blogger with a condition called ichtchyosis.

    Instagram: @carlyfindlay

    Website: www.carlyfindlay.com.au


    Sophie Butler

    Shes empowering women, disabled after a spinal cord injury , she inspirational and has an amazing attitude

    Instagram: @sophjbutler

    YouTube: https://youtu.be/wgfAYDlXXvM


    Meg Jacks

    She is a fellow FNDer who is very open about her journey with FND and has helped raised awareness with FND

    Instagram: @Meg.Jacks_

    TicTok: Megjacks

     

    Julian Gavino

    (he/him) is a trans-masculine model, writer, coach, and sex-positive disability influencer living with Ehlers-Danlos syndrome and comorbidities. ... In his work, Julian aims to normalize and destigmatize trans and disabled bodies in media — by facing discrimination down and creating space for representation

    Instagram:  @thedisabledhippie


    Nina Tame aka the Lunch Lady

    She’s a single mum who’s disabled and a disability advocate. Parenting with disability

    Website: https://hellolunchlady.com.au/parenting/parenting-around-the-world-nina/


    Chloè Haden

    she is an Australian actor YouTuber singer dancer and she’s autistic. She beings awareness about Autism and talks openly about life with Autism.

    Instagram: @princesssapien

    Website: https://www.chloehayden.com.au/

    Youtube: Chloè Haden

     

    Style like U

    Founded by mother-daughter duo, Elisa Goodkind & Lily Mandelbaum, StyleLikeU is a multimedia platform for radically honest docu-style content that gives voice to diverse role models who stand proudly outside of norms and are comfortable in their skin.

    Website: https://stylelikeu.com/about-us/

    Lucy Dawson

    who unfortunately became Disabled during a medical situation. Click this link to find out more https://www.theguardian.com/society/2021/aug/25/lucy-dawson-the-model-who-got-a-mystery-headache-a-misdiagnosis-and-a-new-mission-in-life However despite this all she continues now to advocate and model and be bloody amazing.

    Instagram : @luuudaw

    Website: https://lucyintheskywithencephalitis.wordpress.com/2021/03/16/all-my-links/

    Cripple Media

    Cripple media is a disability led media which represents the voice of the youth. As they have mentioned that the youth especially disabled have been represented by those who aren’t the youth primarily the teachers or parents , those in the medical fields so they are raising their voices and speaking up and being heard. It’s really important for their voices their oppinions to be heard and what a great idea and platform. A way to educate aswell as raise awareness

    Instagram: @cripple media

    Website: https://cripplemedia.com/about/

    Aaron Rose Philip

     For more information check out this wonderful article here

    https://www.uncrazed.com/aaron-rose-philip-makes-runway-debut-says-disabled-talents-matter/32893

    Instagram:aaron_phillip transgendered disabled fabulous Model check him out

    Nicole Parish

    she is raising awareness on Autism, how she lives with autism, what tools she uses and her love for insects. Follow her on Tik Tok at Sound of the Forest

    A great news platform for young Australians to get the news firsthand ; available internet podcast and app easily digestible and accessible check it out

    https://www.thedailyaus.com.au/


     

    The FND Podcast
    enMarch 25, 2023
    functional neurological disorder
    fnd
    fnd action
    tom plender
    fnd awareness day

    The FNDPodcast | Calling all parents and caregivers with kids with FND

    The FNDPodcast | Calling all parents and caregivers with kids with FND

    An announcement for FND awareness day , especially for caregivers and Parents who are looking after child/children with FND there is an amazing even happening today. To check it out please look at the FND ACTION UK website. 

    https://www.fndaction.org.uk/fnd-awareness-day-uk/

    The FND Podcast with Detty acknowledges the traditional custodians of the land in which we stand, the Bundjalung, Awakabal, Djinduburi , Arawak, Boon wurrang & Wurundjeri People. The FND Podcast pays respect to their Elders past, present and emerging.

    The FND Podcast with detty : song resonating at the moment maybe our song :

    The new normal by Kahlid to hear it it is on our playlist or click below to view lyrics and listen on YouTube.

    https://youtu.be/o3sXlxg4d5c

    Here re two essential reads on FND that are highly recommended by Chrissie and now myself Click on the titles to gain access on the articles.

    The Cadenza for fractured consciousness   From Medium.com on the fnd portal 

    The Road to Functional Neurological Disorder by Gabriel Brownstein 

    Also anything covid related and fnd here on neuro symptoms :

    https://www.neurosymptoms.org/en/faq/covid-19-the-covid-19-vaccine-and-fnd-what-do-we-know/

    A recent article written June this year what do you think ? From MJA 

    https://www.mja.com.au/journal/2022/216/10/functional-neurological-disorders-australian-interdisciplinary-perspectiveWhat has the team been listening to? What are are their song preferences ? In a flare and would like to listen to some songs? Head over to our playlist! Thank you Maggie for making it :) we have recently updated the list which features an eclectic list; itunes playlist : the fnd podcast with detty playlist or click on the link below for the playlist 

    https://open.spotify.com/playlist/5lvGhN4Ab3AtwBj42L5DDA?si=i1RzVbhmQ3GeJ6a3Iu7sHw&dl_branch=1

    FND TSHIRTS BAGS MASKS AND MORE ; FND PODCAST MERCHANDISE-CLICK BELOW

    https://imprintmerch.com.au/collections/lets-have-the-chat

    from masks to bags hoodies and tshirts featuring Friends of FND and FND will not hold me back : all proceeds going to FND Australia Support Services also FND Podcast merchanise check them out!

    HELPFUL RESOURCES:

    A website all things Functional neurological Disorder written by Professor Jon Stone who is the leading FND researcher and Consultant Neurologist in Edinburgh, Scotland.

    https://www.neurosymptoms.org/

    Neurosymptoms has an app that you can download now too. Look up neurosymptoms or Jon stone and you will find it there.

    https://www.health.qld.gov.au/news-events/podcast/my-amazing-body-the-brain-2.0

    An excellent podcast episode which explains what Functional Neurological Disorder is. Have a good listeners brilliant!

    Dr Mohsin Butt is an excellent doctor who explained what FND is perfectly click here to watch his explanation

    https://www.tiktok.com/@drbuttgastro/video/7020472244954549510

    https://www.neurokid.co.uk/\

    A website for young people and families living with NEAD and neurological symptom

    https://fndportal.org/

    Amazing website with information and links to fnd

    Information on Non Epileptic Seizures or NEAD

    https://www.sth.nhs.uk/clientfiles/File/Epilepsy/pil2072.pdf

    FND ORGANISATIONS:

    https://www.fndaus.org.au/

    FND AUSTRALIA SUPPORT  SERVICES INC: A wonderful resource for people in Australia with FND: from reasearch into FND, finding medical specialists and services and just information about FND. Solely dedicated to all things FND and helping those with FND in Australia.

    FND Australia Support services App:

    Android

    https://apksos.com/app/fndaustralia.com

    Apple

    https://apps.apple.com/au/app/fnd-australia-support-services/id1613121706

    Click below to hear more about FND Australia Support services and who Dr. Katherine Gill is

    https://thefndpodcast.simplecast.com/episodes/the-fnd-podcast-with-detty-dr-katherine-gill-and-fnd-australian-support-services

    FND Action is a patient-led charity who offer a caring and supporting hand to people living with Functional Neurological Disorder (FND) in the UK.

    https://www.fndaction.org.uk/

    FND Dimensions aims to develop a network of ‘peer support groups’ across the UK either in face to face meetings or online via methods such as Skype. By bringing people together on a regular basis, this helps alleviate the isolation that many FND patients feel. It also gives  opportunity  for others to open up dialog and to talk to others in a similar position about the day to day challenges, issues or concerns with one another.

    http://fnddimensions.org/

    A really helpful article and explanation of what FND is: '

    https://threadreaderapp.com/thread/1367576277956370432.html?fbclid=IwAR1GZpXe7IgC9qVlIr7ygA9RslPy6nxhQIumdUw9XMu2fs8MsMf8SwYZeVQ
     

    FND TOGETHER:

    https://fndtogether.com/en


     

    itsmeitsmeitsfnd

    by none other than our Jake! 
    https://www.tomplender.com/

    Tom Plender : follow this amazing creative human his art, music and writing on fnd 

    https://open.spotify.com/show/6RSjTADQCw9tA4Udnutf0L?si=JZy4CAfuSB6FWaBCi8Avgg&dl_branch=1
    Bed Life and Beyond by Rach also a lovely FNDer

    https://pandoralocksmith.wordpress.com/about/

    John McLeans Fnd Journey

    https://m.facebook.com/JohnsFND/?ref=page_internal&mt_nav=0

    Lmtd Life with FND

    https://m.youtube.com/channel/UC3xLKpn7gkgvVoH29ulu4IA/videos

    FNDer amplified: Meg Jacks follow on Instagram @ Meg.jacks_ TicTok: @megjacks

    Instagram follow Emma’s journey :@emmas_fnd_fun

    People Amplified on the FND Podcast by Maggies Corner ,brilliant incredible humans who you should look up / check out

    Dylan Alcott

    Athelete , paraolympics , podcaster , raising awareness and voices of the disabled

    Instagram :@ listenable_podcast @dylanalcott

    Website: www.abilityfest.com.au

     

    Elle Stella

    Business Success Coach , Paraolympian & intuitive healer

    Instagram: @iamellesteele

    Website: www.iamellesteele.com


    Carly Findlay

    Activist, writer, Blogger with a condition called ichtchyosis.

    Instagram: @carlyfindlay

    Website: www.carlyfindlay.com.au


    Sophie Butler

    Shes empowering women, disabled after a spinal cord injury , she inspirational and has an amazing attitude

    Instagram: @sophjbutler

    YouTube: https://youtu.be/wgfAYDlXXvM


    Meg Jacks

    She is a fellow FNDer who is very open about her journey with FND and has helped raised awareness with FND

    Instagram: @Meg.Jacks_

    TicTok: Megjacks

     

    Julian Gavino

    (he/him) is a trans-masculine model, writer, coach, and sex-positive disability influencer living with Ehlers-Danlos syndrome and comorbidities. ... In his work, Julian aims to normalize and destigmatize trans and disabled bodies in media — by facing discrimination down and creating space for representation

    Instagram:  @thedisabledhippie


    Nina Tame aka the Lunch Lady

    She’s a single mum who’s disabled and a disability advocate. Parenting with disability

    Website: https://hellolunchlady.com.au/parenting/parenting-around-the-world-nina/


    Chloè Haden

    she is an Australian actor YouTuber singer dancer and she’s autistic. She beings awareness about Autism and talks openly about life with Autism.

    Instagram: @princesssapien

    Website: https://www.chloehayden.com.au/

    Youtube: Chloè Haden

     

    Style like U

    Founded by mother-daughter duo, Elisa Goodkind & Lily Mandelbaum, StyleLikeU is a multimedia platform for radically honest docu-style content that gives voice to diverse role models who stand proudly outside of norms and are comfortable in their skin.

    Website: https://stylelikeu.com/about-us/

    Lucy Dawson

    who unfortunately became Disabled during a medical situation. Click this link to find out more https://www.theguardian.com/society/2021/aug/25/lucy-dawson-the-model-who-got-a-mystery-headache-a-misdiagnosis-and-a-new-mission-in-life However despite this all she continues now to advocate and model and be bloody amazing.

    Instagram : @luuudaw

    Website: https://lucyintheskywithencephalitis.wordpress.com/2021/03/16/all-my-links/

    Cripple Media

    Cripple media is a disability led media which represents the voice of the youth. As they have mentioned that the youth especially disabled have been represented by those who aren’t the youth primarily the teachers or parents , those in the medical fields so they are raising their voices and speaking up and being heard. It’s really important for their voices their oppinions to be heard and what a great idea and platform. A way to educate aswell as raise awareness

    Instagram: @cripple media

    Website: https://cripplemedia.com/about/

    Aaron Rose Philip

     For more information check out this wonderful article here

    https://www.uncrazed.com/aaron-rose-philip-makes-runway-debut-says-disabled-talents-matter/32893

    Instagram:aaron_phillip transgendered disabled fabulous Model check him out

    Nicole Parish

    she is raising awareness on Autism, how she lives with autism, what tools she uses and her love for insects. Follow her on Tik Tok at Sound of the Forest

    A great news platform for young Australians to get the news firsthand ; available internet podcast and app easily digestible and accessible check it out

    https://www.thedailyaus.com.au/


     

    The FND Podcast
    enMarch 25, 2023
    fnd
    fnd and kids
    fndawarenessday 2023
    fnd warriors

    The FND Podcast| Dr. Katherine Gill Australia Support Services

    The FND Podcast| Dr. Katherine Gill Australia Support Services

    On this episode we are proud to talk to Dr. Katherine Gill president and founder of FND Australia Support Services. For those newly diagnosed in Australia we describe what FND Australia Services does and provides and hearing about a new FND  wellbeing course that is going to be available. We thankyou Katherine Gill for giving us the opportunity to talk to you again. Check out the website and the app.

     FND Australia Support Services

    https://fndaus.org.au/

    The FND AUS APP

    Apple
    https://apps.apple.com/au/app/fnd-aus-app/id1635024300

    Andriod:

    https://play.google.com/store/apps/details?id=com.fndaustralia&pli=1
     

    Walk and Wheel  Awareness day tshirt/jumpers are available here:

     https://www.etsy.com/au/shop/KraftyDesignsByKate

    Go for a walk : raise awareness , raise funds and do it within their community. 

    Expressions of interest for Kokoro Mollitia a 12 week FND wellbeing program link is below:

    https://www.surveymonkey.com/r/KokoroMollitia

    The FND Podcast with Detty acknowledges the traditional custodians of the land in which we stand, the Bundjalung, Awakabal, Djinduburi , Arawak, Boon wurrang & Wurundjeri People. The FND Podcast pays respect to their Elders past, present and emerging.

    The FND Podcast with detty : song resonating at the moment maybe our song :

    The new normal by Kahlid to hear it it is on our playlist or click below to view lyrics and listen on YouTube.

    https://youtu.be/o3sXlxg4d5c

    Here re two essential reads on FND that are highly recommended by Chrissie and now myself Click on the titles to gain access on the articles.

    The Cadenza for fractured consciousness   From Medium.com on the fnd portal 

    The Road to Functional Neurological Disorder by Gabriel Brownstein 

    Also anything covid related and fnd here on neuro symptoms :

    https://www.neurosymptoms.org/en/faq/covid-19-the-covid-19-vaccine-and-fnd-what-do-we-know/

    A recent article written June this year what do you think ? From MJA 

    https://www.mja.com.au/journal/2022/216/10/functional-neurological-disorders-australian-interdisciplinary-perspectiveWhat has the team been listening to? What are are their song preferences ? In a flare and would like to listen to some songs? Head over to our playlist! Thank you Maggie for making it :) we have recently updated the list which features an eclectic list; itunes playlist : the fnd podcast with detty playlist or click on the link below for the playlist 

    https://open.spotify.com/playlist/5lvGhN4Ab3AtwBj42L5DDA?si=i1RzVbhmQ3GeJ6a3Iu7sHw&dl_branch=1

    FND TSHIRTS BAGS MASKS AND MORE ; FND PODCAST MERCHANDISE-CLICK BELOW

    https://imprintmerch.com.au/collections/lets-have-the-chat

    from masks to bags hoodies and tshirts featuring Friends of FND and FND will not hold me back : all proceeds going to FND Australia Support Services also FND Podcast merchanise check them out!

    HELPFUL RESOURCES:

    A website all things Functional neurological Disorder written by Professor Jon Stone who is the leading FND researcher and Consultant Neurologist in Edinburgh, Scotland.

    https://www.neurosymptoms.org/

    Neurosymptoms has an app that you can download now too. Look up neurosymptoms or Jon stone and you will find it there.

    https://www.health.qld.gov.au/news-events/podcast/my-amazing-body-the-brain-2.0

    An excellent podcast episode which explains what Functional Neurological Disorder is. Have a good listeners brilliant!

    Dr Mohsin Butt is an excellent doctor who explained what FND is perfectly click here to watch his explanation

    https://www.tiktok.com/@drbuttgastro/video/7020472244954549510

    https://www.neurokid.co.uk/\

    A website for young people and families living with NEAD and neurological symptom

    https://fndportal.org/

    Amazing website with information and links to fnd

    Information on Non Epileptic Seizures or NEAD

    https://www.sth.nhs.uk/clientfiles/File/Epilepsy/pil2072.pdf

    FND ORGANISATIONS:

    https://www.fndaus.org.au/

    FND AUSTRALIA SUPPORT  SERVICES INC: A wonderful resource for people in Australia with FND: from reasearch into FND, finding medical specialists and services and just information about FND. Solely dedicated to all things FND and helping those with FND in Australia.

    FND Australia Support services App:

    Android

    https://apksos.com/app/fndaustralia.com

    Apple

    https://apps.apple.com/au/app/fnd-australia-support-services/id1613121706

    Click below to hear more about FND Australia Support services and who Dr. Katherine Gill is

    https://thefndpodcast.simplecast.com/episodes/the-fnd-podcast-with-detty-dr-katherine-gill-and-fnd-australian-support-services

    FND Action is a patient-led charity who offer a caring and supporting hand to people living with Functional Neurological Disorder (FND) in the UK.

    https://www.fndaction.org.uk/

    FND Dimensions aims to develop a network of ‘peer support groups’ across the UK either in face to face meetings or online via methods such as Skype. By bringing people together on a regular basis, this helps alleviate the isolation that many FND patients feel. It also gives  opportunity  for others to open up dialog and to talk to others in a similar position about the day to day challenges, issues or concerns with one another.

    http://fnddimensions.org/

    FND TOGETHER:

    https://fndtogether.com/en/

    This is a FND charity/ in Canada run by volunteers.  "Our goal is to support individuals diagnosed with Functional Neurological Disorder (FND). FND Together provides a platform for individuals affected by FND to join together in support of one another as peers. We exist to help people living with FND experience better recognition and support, improved health and social services, and we strive to provide a strong common voice on behalf of people affected by FND. Our focus is to help patients with FND and to create a network of services with other organizations and institutions in Canada and beyond our borders.A really helpful article and explanation of what FND is: '

    https://threadreaderapp.com/thread/1367576277956370432.html?fbclid=IwAR1GZpXe7IgC9qVlIr7ygA9RslPy6nxhQIumdUw9XMu2fs8MsMf8SwYZeVQ
     

    Other podcasts/ blogs / vlogs to follow:

    itsmeitsmeitsfnd

    by none other than our Jake! 
    https://www.tomplender.com/

    Tom Plender : follow this amazing creative human his art, music and writing on fnd 

    https://open.spotify.com/show/6RSjTADQCw9tA4Udnutf0L?si=JZy4CAfuSB6FWaBCi8Avgg&dl_branch=1
    Bed Life and Beyond by Rach also a lovely FNDer

    https://pandoralocksmith.wordpress.com/about/

    John McLeans Fnd Journey

    https://m.facebook.com/JohnsFND/?ref=page_internal&mt_nav=0

    Lmtd Life with FND

    https://m.youtube.com/channel/UC3xLKpn7gkgvVoH29ulu4IA/videos

    FNDer amplified: Meg Jacks follow on Instagram @ Meg.jacks_ TicTok: @megjacks

    Instagram follow Emma’s journey :@emmas_fnd_fun

    People Amplified on the FND Podcast by Maggies Corner ,brilliant incredible humans who you should look up / check out

    Dylan Alcott

    Athelete , paraolympics , podcaster , raising awareness and voices of the disabled

    Instagram :@ listenable_podcast @dylanalcott

    Website: www.abilityfest.com.au

     

    Elle Stella

    Business Success Coach , Paraolympian & intuitive healer

    Instagram: @iamellesteele

    Website: www.iamellesteele.com


    Carly Findlay

    Activist, writer, Blogger with a condition called ichtchyosis.

    Instagram: @carlyfindlay

    Website: www.carlyfindlay.com.au


    Sophie Butler

    Shes empowering women, disabled after a spinal cord injury , she inspirational and has an amazing attitude

    Instagram: @sophjbutler

    YouTube: https://youtu.be/wgfAYDlXXvM


    Meg Jacks

    She is a fellow FNDer who is very open about her journey with FND and has helped raised awareness with FND

    Instagram: @Meg.Jacks_

    TicTok: Megjacks

     

    Julian Gavino

    (he/him) is a trans-masculine model, writer, coach, and sex-positive disability influencer living with Ehlers-Danlos syndrome and comorbidities. ... In his work, Julian aims to normalize and destigmatize trans and disabled bodies in media — by facing discrimination down and creating space for representation

    Instagram:  @thedisabledhippie


    Nina Tame aka the Lunch Lady

    She’s a single mum who’s disabled and a disability advocate. Parenting with disability

    Website: https://hellolunchlady.com.au/parenting/parenting-around-the-world-nina/


    Chloè Haden

    she is an Australian actor YouTuber singer dancer and she’s autistic. She beings awareness about Autism and talks openly about life with Autism.

    Instagram: @princesssapien

    Website: https://www.chloehayden.com.au/

    Youtube: Chloè Haden

     

    Style like U

    Founded by mother-daughter duo, Elisa Goodkind & Lily Mandelbaum, StyleLikeU is a multimedia platform for radically honest docu-style content that gives voice to diverse role models who stand proudly outside of norms and are comfortable in their skin.

    Website: https://stylelikeu.com/about-us/

    Lucy Dawson

    who unfortunately became Disabled during a medical situation. Click this link to find out more https://www.theguardian.com/society/2021/aug/25/lucy-dawson-the-model-who-got-a-mystery-headache-a-misdiagnosis-and-a-new-mission-in-life However despite this all she continues now to advocate and model and be bloody amazing.

    Instagram : @luuudaw

    Website: https://lucyintheskywithencephalitis.wordpress.com/2021/03/16/all-my-links/

    Cripple Media

    Cripple media is a disability led media which represents the voice of the youth. As they have mentioned that the youth especially disabled have been represented by those who aren’t the youth primarily the teachers or parents , those in the medical fields so they are raising their voices and speaking up and being heard. It’s really important for their voices their oppinions to be heard and what a great idea and platform. A way to educate aswell as raise awareness

    Instagram: @cripple media

    Website: https://cripplemedia.com/about/

    Aaron Rose Philip

     For more information check out this wonderful article here

    https://www.uncrazed.com/aaron-rose-philip-makes-runway-debut-says-disabled-talents-matter/32893

    Instagram:aaron_phillip transgendered disabled fabulous Model check him out

    Nicole Parish

    she is raising awareness on Autism, how she lives with autism, what tools she uses and her love for insects. Follow her on Tik Tok at Sound of the Forest

    A great news platform for young Australians to get the news firsthand ; available internet podcast and app easily digestible and accessible check it out

    https://www.thedailyaus.com.au/


     

    The FND Podcast
    enMarch 25, 2023
    fnd
    functional neurological disorder
    fnd warrior
    fnd australia support services
    #voices4fnd

    The Deb and Detty Show | All things FND

    The Deb and Detty Show | All things FND

    On this episode of the Deb and Detty Show we are joined by a special guest Jess (as Deb said the famous author) I ask questions in relation  FND 1. Why is it so important to raise awareness for FND 2.What difference would it have made if you received proper treatment from the very beginning? 3. What message would you give to those who are newly diagnosed? 4.how do you deal with new symptoms?

    Hypohydrosis

    https://www.mayoclinic.org/diseases-conditions/hyperhidrosis/diagnosis-treatment/drc-20367173

    The FND Podcast with Detty acknowledges the traditional custodians of the land in which we stand, the Bundjalung, Awakabal, Djinduburi , Arawak, Boon wurrang & Wurundjeri People. The FND Podcast pays respect to their Elders past, present and emerging.

    The FND Podcast with detty : song resonating at the moment maybe our song :

    The new normal by Kahlid to hear it it is on our playlist or click below to view lyrics and listen on YouTube.

    https://youtu.be/o3sXlxg4d5c

    Here re two essential reads on FND that are highly recommended by Chrissie and now myself Click on the titles to gain access on the articles.

    The Cadenza for fractured consciousness   From Medium.com on the fnd portal 

    The Road to Functional Neurological Disorder by Gabriel Brownstein 

    Also anything covid related and fnd here on neuro symptoms :

    https://www.neurosymptoms.org/en/faq/covid-19-the-covid-19-vaccine-and-fnd-what-do-we-know/

    A recent article written June this year what do you think ? From MJA 

    https://www.mja.com.au/journal/2022/216/10/functional-neurological-disorders-australian-interdisciplinary-perspectiveWhat has the team been listening to? What are are their song preferences ? In a flare and would like to listen to some songs? Head over to our playlist! Thank you Maggie for making it :) we have recently updated the list which features an eclectic list; itunes playlist : the fnd podcast with detty playlist or click on the link below for the playlist 

    https://open.spotify.com/playlist/5lvGhN4Ab3AtwBj42L5DDA?si=i1RzVbhmQ3GeJ6a3Iu7sHw&dl_branch=1

    FND TSHIRTS BAGS MASKS AND MORE ; FND PODCAST MERCHANDISE-CLICK BELOW

    https://imprintmerch.com.au/collections/lets-have-the-chat

    from masks to bags hoodies and tshirts featuring Friends of FND and FND will not hold me back : all proceeds going to FND Australia Support Services also FND Podcast merchanise check them out!

    HELPFUL RESOURCES:

    A website all things Functional neurological Disorder written by Professor Jon Stone who is the leading FND researcher and Consultant Neurologist in Edinburgh, Scotland.

    https://www.neurosymptoms.org/

    Neurosymptoms has an app that you can download now too. Look up neurosymptoms or Jon stone and you will find it there.

    https://www.health.qld.gov.au/news-events/podcast/my-amazing-body-the-brain-2.0

    An excellent podcast episode which explains what Functional Neurological Disorder is. Have a good listeners brilliant!

    Dr Mohsin Butt is an excellent doctor who explained what FND is perfectly click here to watch his explanation

    https://www.tiktok.com/@drbuttgastro/video/7020472244954549510

    https://www.neurokid.co.uk/\

    A website for young people and families living with NEAD and neurological symptom

    https://fndportal.org/

    Amazing website with information and links to fnd

    Information on Non Epileptic Seizures or NEAD

    https://www.sth.nhs.uk/clientfiles/File/Epilepsy/pil2072.pdf

    FND ORGANISATIONS:

    https://www.fndaus.org.au/

    FND AUSTRALIA SUPPORT  SERVICES INC: A wonderful resource for people in Australia with FND: from reasearch into FND, finding medical specialists and services and just information about FND. Solely dedicated to all things FND and helping those with FND in Australia.

    FND Australia Support services App:

    Android

    https://apksos.com/app/fndaustralia.com

    Apple

    https://apps.apple.com/au/app/fnd-australia-support-services/id1613121706

    Click below to hear more about FND Australia Support services and who Dr. Katherine Gill is

    https://thefndpodcast.simplecast.com/episodes/the-fnd-podcast-with-detty-dr-katherine-gill-and-fnd-australian-support-services

    FND Action is a patient-led charity who offer a caring and supporting hand to people living with Functional Neurological Disorder (FND) in the UK.

    https://www.fndaction.org.uk/

    FND Dimensions aims to develop a network of ‘peer support groups’ across the UK either in face to face meetings or online via methods such as Skype. By bringing people together on a regular basis, this helps alleviate the isolation that many FND patients feel. It also gives  opportunity  for others to open up dialog and to talk to others in a similar position about the day to day challenges, issues or concerns with one another.

    http://fnddimensions.org/

    A really helpful article and explanation of what FND is: '

    https://threadreaderapp.com/thread/1367576277956370432.html?fbclid=IwAR1GZpXe7IgC9qVlIr7ygA9RslPy6nxhQIumdUw9XMu2fs8MsMf8SwYZeVQ
     

    FND TOGETHER:

    https://fndtogether.com/en


     

    itsmeitsmeitsfnd

    by none other than our Jake! 
    https://www.tomplender.com/

    Tom Plender : follow this amazing creative human his art, music and writing on fnd 

    https://open.spotify.com/show/6RSjTADQCw9tA4Udnutf0L?si=JZy4CAfuSB6FWaBCi8Avgg&dl_branch=1
    Bed Life and Beyond by Rach also a lovely FNDer

    https://pandoralocksmith.wordpress.com/about/

    John McLeans Fnd Journey

    https://m.facebook.com/JohnsFND/?ref=page_internal&mt_nav=0

    Lmtd Life with FND

    https://m.youtube.com/channel/UC3xLKpn7gkgvVoH29ulu4IA/videos

    FNDer amplified: Meg Jacks follow on Instagram @ Meg.jacks_ TicTok: @megjacks

    Instagram follow Emma’s journey :@emmas_fnd_fun

    People Amplified on the FND Podcast by Maggies Corner ,brilliant incredible humans who you should look up / check out

    Dylan Alcott

    Athelete , paraolympics , podcaster , raising awareness and voices of the disabled

    Instagram :@ listenable_podcast @dylanalcott

    Website: www.abilityfest.com.au

     

    Elle Stella

    Business Success Coach , Paraolympian & intuitive healer

    Instagram: @iamellesteele

    Website: www.iamellesteele.com


    Carly Findlay

    Activist, writer, Blogger with a condition called ichtchyosis.

    Instagram: @carlyfindlay

    Website: www.carlyfindlay.com.au


    Sophie Butler

    Shes empowering women, disabled after a spinal cord injury , she inspirational and has an amazing attitude

    Instagram: @sophjbutler

    YouTube: https://youtu.be/wgfAYDlXXvM


    Meg Jacks

    She is a fellow FNDer who is very open about her journey with FND and has helped raised awareness with FND

    Instagram: @Meg.Jacks_

    TicTok: Megjacks

     

    Julian Gavino

    (he/him) is a trans-masculine model, writer, coach, and sex-positive disability influencer living with Ehlers-Danlos syndrome and comorbidities. ... In his work, Julian aims to normalize and destigmatize trans and disabled bodies in media — by facing discrimination down and creating space for representation

    Instagram:  @thedisabledhippie


    Nina Tame aka the Lunch Lady

    She’s a single mum who’s disabled and a disability advocate. Parenting with disability

    Website: https://hellolunchlady.com.au/parenting/parenting-around-the-world-nina/


    Chloè Haden

    she is an Australian actor YouTuber singer dancer and she’s autistic. She beings awareness about Autism and talks openly about life with Autism.

    Instagram: @princesssapien

    Website: https://www.chloehayden.com.au/

    Youtube: Chloè Haden

     

    Style like U

    Founded by mother-daughter duo, Elisa Goodkind & Lily Mandelbaum, StyleLikeU is a multimedia platform for radically honest docu-style content that gives voice to diverse role models who stand proudly outside of norms and are comfortable in their skin.

    Website: https://stylelikeu.com/about-us/

    Lucy Dawson

    who unfortunately became Disabled during a medical situation. Click this link to find out more https://www.theguardian.com/society/2021/aug/25/lucy-dawson-the-model-who-got-a-mystery-headache-a-misdiagnosis-and-a-new-mission-in-life However despite this all she continues now to advocate and model and be bloody amazing.

    Instagram : @luuudaw

    Website: https://lucyintheskywithencephalitis.wordpress.com/2021/03/16/all-my-links/

    Cripple Media

    Cripple media is a disability led media which represents the voice of the youth. As they have mentioned that the youth especially disabled have been represented by those who aren’t the youth primarily the teachers or parents , those in the medical fields so they are raising their voices and speaking up and being heard. It’s really important for their voices their oppinions to be heard and what a great idea and platform. A way to educate aswell as raise awareness

    Instagram: @cripple media

    Website: https://cripplemedia.com/about/

    Aaron Rose Philip

     For more information check out this wonderful article here

    https://www.uncrazed.com/aaron-rose-philip-makes-runway-debut-says-disabled-talents-matter/32893

    Instagram:aaron_phillip transgendered disabled fabulous Model check him out

    Nicole Parish

    she is raising awareness on Autism, how she lives with autism, what tools she uses and her love for insects. Follow her on Tik Tok at Sound of the Forest

    A great news platform for young Australians to get the news firsthand ; available internet podcast and app easily digestible and accessible check it out

    https://www.thedailyaus.com.au/


     

    The FND Podcast
    enMarch 24, 2023
    functional neurological disorder
    fnd
    fnd awareness day

    The FND Podcast | FND awareness day 2023

    The FND Podcast | FND awareness day 2023

    The FND Podcast with Detty acknowledges the traditional custodians of the land in which we stand, the Bundjalung, Awakabal, Djinduburi , Arawak, Boon wurrang & Wurundjeri People. The FND Podcast pays respect to their Elders past, present and emerging.

    The FND Podcast with detty : song resonating at the moment maybe our song :

    The new normal by Kahlid to hear it it is on our playlist or click below to view lyrics and listen on YouTube.

    https://youtu.be/o3sXlxg4d5c

    Here re two essential reads on FND that are highly recommended by Chrissie and now myself Click on the titles to gain access on the articles.

    The Cadenza for fractured consciousness   From Medium.com on the fnd portal 

    The Road to Functional Neurological Disorder by Gabriel Brownstein 

    Also anything covid related and fnd here on neuro symptoms :

    https://www.neurosymptoms.org/en/faq/covid-19-the-covid-19-vaccine-and-fnd-what-do-we-know/

    A recent article written June this year what do you think ? From MJA 

    https://www.mja.com.au/journal/2022/216/10/functional-neurological-disorders-australian-interdisciplinary-perspectiveWhat has the team been listening to? What are are their song preferences ? In a flare and would like to listen to some songs? Head over to our playlist! Thank you Maggie for making it :) we have recently updated the list which features an eclectic list; itunes playlist : the fnd podcast with detty playlist or click on the link below for the playlist 

    https://open.spotify.com/playlist/5lvGhN4Ab3AtwBj42L5DDA?si=i1RzVbhmQ3GeJ6a3Iu7sHw&dl_branch=1

    FND TSHIRTS BAGS MASKS AND MORE ; FND PODCAST MERCHANDISE-CLICK BELOW

    https://imprintmerch.com.au/collections/lets-have-the-chat

    from masks to bags hoodies and tshirts featuring Friends of FND and FND will not hold me back : all proceeds going to FND Australia Support Services also FND Podcast merchanise check them out!

    HELPFUL RESOURCES:

    A website all things Functional neurological Disorder written by Professor Jon Stone who is the leading FND researcher and Consultant Neurologist in Edinburgh, Scotland.

    https://www.neurosymptoms.org/

    Neurosymptoms has an app that you can download now too. Look up neurosymptoms or Jon stone and you will find it there.

    https://www.health.qld.gov.au/news-events/podcast/my-amazing-body-the-brain-2.0

    An excellent podcast episode which explains what Functional Neurological Disorder is. Have a good listeners brilliant!

    Dr Mohsin Butt is an excellent doctor who explained what FND is perfectly click here to watch his explanation

    https://www.tiktok.com/@drbuttgastro/video/7020472244954549510

    https://www.neurokid.co.uk/\

    A website for young people and families living with NEAD and neurological symptom

    https://fndportal.org/

    Amazing website with information and links to fnd

    Information on Non Epileptic Seizures or NEAD

    https://www.sth.nhs.uk/clientfiles/File/Epilepsy/pil2072.pdf

    FND ORGANISATIONS:

    https://www.fndaus.org.au/

    FND AUSTRALIA SUPPORT  SERVICES INC: A wonderful resource for people in Australia with FND: from reasearch into FND, finding medical specialists and services and just information about FND. Solely dedicated to all things FND and helping those with FND in Australia.

    FND Australia Support services App:

    Android

    https://apksos.com/app/fndaustralia.com

    Apple

    https://apps.apple.com/au/app/fnd-australia-support-services/id1613121706

    Click below to hear more about FND Australia Support services and who Dr. Katherine Gill is

    https://thefndpodcast.simplecast.com/episodes/the-fnd-podcast-with-detty-dr-katherine-gill-and-fnd-australian-support-services

    FND Action is a patient-led charity who offer a caring and supporting hand to people living with Functional Neurological Disorder (FND) in the UK.

    https://www.fndaction.org.uk/

    FND Dimensions aims to develop a network of ‘peer support groups’ across the UK either in face to face meetings or online via methods such as Skype. By bringing people together on a regular basis, this helps alleviate the isolation that many FND patients feel. It also gives  opportunity  for others to open up dialog and to talk to others in a similar position about the day to day challenges, issues or concerns with one another.

    http://fnddimensions.org/

    A really helpful article and explanation of what FND is: '

    https://threadreaderapp.com/thread/1367576277956370432.html?fbclid=IwAR1GZpXe7IgC9qVlIr7ygA9RslPy6nxhQIumdUw9XMu2fs8MsMf8SwYZeVQ
     

    FND TOGETHER:

    https://fndtogether.com/en


     

    itsmeitsmeitsfnd

    by none other than our Jake! 
    https://www.tomplender.com/

    Tom Plender : follow this amazing creative human his art, music and writing on fnd 

    https://open.spotify.com/show/6RSjTADQCw9tA4Udnutf0L?si=JZy4CAfuSB6FWaBCi8Avgg&dl_branch=1
    Bed Life and Beyond by Rach also a lovely FNDer

    https://pandoralocksmith.wordpress.com/about/

    John McLeans Fnd Journey

    https://m.facebook.com/JohnsFND/?ref=page_internal&mt_nav=0

    Lmtd Life with FND

    https://m.youtube.com/channel/UC3xLKpn7gkgvVoH29ulu4IA/videos

    FNDer amplified: Meg Jacks follow on Instagram @ Meg.jacks_ TicTok: @megjacks

    Instagram follow Emma’s journey :@emmas_fnd_fun

    People Amplified on the FND Podcast by Maggies Corner ,brilliant incredible humans who you should look up / check out

    Dylan Alcott

    Athelete , paraolympics , podcaster , raising awareness and voices of the disabled

    Instagram :@ listenable_podcast @dylanalcott

    Website: www.abilityfest.com.au

     

    Elle Stella

    Business Success Coach , Paraolympian & intuitive healer

    Instagram: @iamellesteele

    Website: www.iamellesteele.com


    Carly Findlay

    Activist, writer, Blogger with a condition called ichtchyosis.

    Instagram: @carlyfindlay

    Website: www.carlyfindlay.com.au


    Sophie Butler

    Shes empowering women, disabled after a spinal cord injury , she inspirational and has an amazing attitude

    Instagram: @sophjbutler

    YouTube: https://youtu.be/wgfAYDlXXvM


    Meg Jacks

    She is a fellow FNDer who is very open about her journey with FND and has helped raised awareness with FND

    Instagram: @Meg.Jacks_

    TicTok: Megjacks

     

    Julian Gavino

    (he/him) is a trans-masculine model, writer, coach, and sex-positive disability influencer living with Ehlers-Danlos syndrome and comorbidities. ... In his work, Julian aims to normalize and destigmatize trans and disabled bodies in media — by facing discrimination down and creating space for representation

    Instagram:  @thedisabledhippie


    Nina Tame aka the Lunch Lady

    She’s a single mum who’s disabled and a disability advocate. Parenting with disability

    Website: https://hellolunchlady.com.au/parenting/parenting-around-the-world-nina/


    Chloè Haden

    she is an Australian actor YouTuber singer dancer and she’s autistic. She beings awareness about Autism and talks openly about life with Autism.

    Instagram: @princesssapien

    Website: https://www.chloehayden.com.au/

    Youtube: Chloè Haden

     

    Style like U

    Founded by mother-daughter duo, Elisa Goodkind & Lily Mandelbaum, StyleLikeU is a multimedia platform for radically honest docu-style content that gives voice to diverse role models who stand proudly outside of norms and are comfortable in their skin.

    Website: https://stylelikeu.com/about-us/

    Lucy Dawson

    who unfortunately became Disabled during a medical situation. Click this link to find out more https://www.theguardian.com/society/2021/aug/25/lucy-dawson-the-model-who-got-a-mystery-headache-a-misdiagnosis-and-a-new-mission-in-life However despite this all she continues now to advocate and model and be bloody amazing.

    Instagram : @luuudaw

    Website: https://lucyintheskywithencephalitis.wordpress.com/2021/03/16/all-my-links/

    Cripple Media

    Cripple media is a disability led media which represents the voice of the youth. As they have mentioned that the youth especially disabled have been represented by those who aren’t the youth primarily the teachers or parents , those in the medical fields so they are raising their voices and speaking up and being heard. It’s really important for their voices their oppinions to be heard and what a great idea and platform. A way to educate aswell as raise awareness

    Instagram: @cripple media

    Website: https://cripplemedia.com/about/

    Aaron Rose Philip

     For more information check out this wonderful article here

    https://www.uncrazed.com/aaron-rose-philip-makes-runway-debut-says-disabled-talents-matter/32893

    Instagram:aaron_phillip transgendered disabled fabulous Model check him out

    Nicole Parish

    she is raising awareness on Autism, how she lives with autism, what tools she uses and her love for insects. Follow her on Tik Tok at Sound of the Forest

    A great news platform for young Australians to get the news firsthand ; available internet podcast and app easily digestible and accessible check it out

    https://www.thedailyaus.com.au/


     

    The FND Podcast
    enMarch 24, 2023
    functional neurological disorder
    fnd
    fnd awareness day 2023
    the fnd podcast
    fnd awareness day

    Chucky chat | Ninja Step and emergencies

    Chucky chat | Ninja Step and emergencies

    In this episode of the FND podcast we are talking to chucky who unfortunately had an accident with his ankle. Or he was attacked by a ninja step! His experience with the emergency and how it all played out and what to do in an emergency. It’s important to prepare for emergencies especially with FND. 
     

    here’s some tools for when you do go to emergency: printable 

    https://www.fndaction.org.uk/fnd-toolkit/

    The fnd australia support services App is now available to download and use for free to utilise please check it out and use !

    https://apps.apple.com/au/app/fnd-aus-app/id1635024300

    There is now patient advocacy case managers 

    https://www.patientadvocates.com.au/index.html

    sos medical function on phone:

    https://support.apple.com/en-au/HT208076

    Here are two essential reads on FND that are highly recommended by Chrissie and now myself Click on the titles to gain access on the articles.

    The Cadenza for fractured consciousness   From Medium.com on the fnd portal 

    The Road to Functional Neurological Disorder by Gabriel Brownstein 

    The FND Podcast with Detty acknowledges the traditional custodians of the land in which we stand, the Bundjalung, Awakabal, Djinduburi , Arawak, Boon wurrang & Wurundjeri People. The FND Podcast pays respect to their Elders past, present and emerging.

    The FND Podcast with detty : song resonating at the moment maybe our song :

    The new normal by Kahlid to hear it it is on our playlist or click below to view lyrics and listen on YouTube.

    https://youtu.be/o3sXlxg4d5c

    What has the team been listening to? What are are their song preferences ? In a flare and would like to listen to some songs? Head over to our playlist! Thank you Maggie for making it :) we have recently updated the list which features an eclectic list; itunes playlist : the fnd podcast with detty playlist or click on the link below for the playlist 

    https://open.spotify.com/playlist/5lvGhN4Ab3AtwBj42L5DDA?si=i1RzVbhmQ3GeJ6a3Iu7sHw&dl_branch=1

    FND TSHIRTS BAGS MASKS AND MORE ; FND PODCAST MERCHANDISE-CLICK BELOW

    https://imprintmerch.com.au/collections/lets-have-the-chat

    from masks to bags hoodies and tshirts featuring Friends of FND and FND will not hold me back : all proceeds going to FND Australia Support Services also FND Podcast merchanise check them out!

    HELPFUL RESOURCES:

    A website all things Functional neurological Disorder written by Professor Jon Stone who is the leading FND researcher and Consultant Neurologist in Edinburgh, Scotland.

    https://www.neurosymptoms.org/

    Neurosymptoms has an app that you can download now too. Look up neurosymptoms or Jon stone and you will find it there.

    https://www.health.qld.gov.au/news-events/podcast/my-amazing-body-the-brain-2.0

    An excellent podcast episode which explains what Functional Neurological Disorder is. Have a good listeners brilliant!

    Dr Mohsin Butt is an excellent doctor who explained what FND is perfectly click here to watch his explanation

    https://vm.tiktok.com/ZSeYtCw7W/

    https://www.neurokid.co.uk/\

    A website for young people and families living with NEAD and neurological symptom

    https://fndportal.org/

    Amazing website with information and links to fnd

    Information on Non Epileptic Seizures or NEAD

    https://www.sth.nhs.uk/clientfiles/File/Epilepsy/pil2072.pdf

    FND ORGANISATIONS:

    https://www.fndaus.org.au/

    FND AUSTRALIA SUPPORT  SERVICES INC: A wonderful resource for people in Australia with FND: from reasearch into FND, finding medical specialists and services and just information about FND. Solely dedicated to all things FND and helping those with FND in Australia.

    FND Australia Support services App:

    Android

    https://apksos.com/app/fndaustralia.com

    Apple

    https://apps.apple.com/au/app/fnd-australia-support-services/id1613121706

    Click below to hear more about FND Australia Support services and who Dr. Katherine Gill is

    https://thefndpodcast.simplecast.com/episodes/the-fnd-podcast-with-detty-dr-katherine-gill-and-fnd-australian-support-services

    FND Action is a patient-led charity who offer a caring and supporting hand to people living with Functional Neurological Disorder (FND) in the UK.

    https://www.fndaction.org.uk/

    FND Dimensions aims to develop a network of ‘peer support groups’ across the UK either in face to face meetings or online via methods such as Skype. By bringing people together on a regular basis, this helps alleviate the isolation that many FND patients feel. It also gives  opportunity  for others to open up dialog and to talk to others in a similar position about the day to day challenges, issues or concerns with one another.

    http://fnddimensions.org/

    A really helpful article and explanation of what FND is: '

    https://threadreaderapp.com/thread/1367576277956370432.html?fbclid=IwAR1GZpXe7IgC9qVlIr7ygA9RslPy6nxhQIumdUw9XMu2fs8MsMf8SwYZeVQ
     

    Other podcasts/ blogs / vlogs to follow:

    itsmeitsmeitsfnd

    by none other than our Jake! 
    https://www.tomplender.com/

    Tom Plender : follow this amazing creative human his art, music and writing on fnd 

    https://open.spotify.com/show/6RSjTADQCw9tA4Udnutf0L?si=JZy4CAfuSB6FWaBCi8Avgg&dl_branch=1
    Bed Life and Beyond by Rach also a lovely FNDer

    https://pandoralocksmith.wordpress.com/about/

    John McLeans Fnd Journey

    https://m.facebook.com/JohnsFND/?ref=page_internal&mt_nav=0

    Lmtd Life with FND

    https://m.youtube.com/channel/UC3xLKpn7gkgvVoH29ulu4IA/videos

    FNDer amplified: Meg Jacks follow on Instagram @ Meg.jacks_ TicTok: @megjacks

    Instagram follow Emma’s journey :@emmas_fnd_fun

    People Amplified on the FND Podcast by Maggies Corner ,brilliant incredible humans who you should look up / check out

    Dylan Alcott

    Athelete , paraolympics , podcaster , raising awareness and voices of the disabled

    Instagram :@ listenable_podcast @dylanalcott

    Website: www.abilityfest.com.au

     

    Elle Stella

    Business Success Coach , Paraolympian & intuitive healer

    Instagram: @iamellesteele

    Website: www.iamellesteele.com


    Carly Findlay

    Activist, writer, Blogger with a condition called ichtchyosis.

    Instagram: @carlyfindlay

    Website: www.carlyfindlay.com.au


    Sophie Butler

    Shes empowering women, disabled after a spinal cord injury , she inspirational and has an amazing attitude

    Instagram: @sophjbutler

    YouTube: https://youtu.be/wgfAYDlXXvM


    Meg Jacks

    She is a fellow FNDer who is very open about her journey with FND and has helped raised awareness with FND

    Instagram: @Meg.Jacks_

    TicTok: Megjacks

     

    Julian Gavino

    (he/him) is a trans-masculine model, writer, coach, and sex-positive disability influencer living with Ehlers-Danlos syndrome and comorbidities. ... In his work, Julian aims to normalize and destigmatize trans and disabled bodies in media — by facing discrimination down and creating space for representation

    Instagram:  @thedisabledhippie


    Nina Tame aka the Lunch Lady

    She’s a single mum who’s disabled and a disability advocate. Parenting with disability

    Website: https://hellolunchlady.com.au/parenting/parenting-around-the-world-nina/


    Chloè Haden

    she is an Australian actor YouTuber singer dancer and she’s autistic. She beings awareness about Autism and talks openly about life with Autism.

    Instagram: @princesssapien

    Website: https://www.chloehayden.com.au/

    Youtube: Chloè Haden

     

    Style like U

    Founded by mother-daughter duo, Elisa Goodkind & Lily Mandelbaum, StyleLikeU is a multimedia platform for radically honest docu-style content that gives voice to diverse role models who stand proudly outside of norms and are comfortable in their skin.

    Website: https://stylelikeu.com/about-us/

    Lucy Dawson

    who unfortunately became Disabled during a medical situation. Click this link to find out more https://www.theguardian.com/society/2021/aug/25/lucy-dawson-the-model-who-got-a-mystery-headache-a-misdiagnosis-and-a-new-mission-in-life However despite this all she continues now to advocate and model and be bloody amazing.

    Instagram : @luuudaw

    Website: https://lucyintheskywithencephalitis.wordpress.com/2021/03/16/all-my-links/

    Cripple Media

    Cripple media is a disability led media which represents the voice of the youth. As they have mentioned that the youth especially disabled have been represented by those who aren’t the youth primarily the teachers or parents , those in the medical fields so they are raising their voices and speaking up and being heard. It’s really important for their voices their oppinions to be heard and what a great idea and platform. A way to educate aswell as raise awareness

    Instagram: @cripple media

    Website: https://cripplemedia.com/about/

    Aaron Rose Philip

     For more information check out this wonderful article here

    https://www.uncrazed.com/aaron-rose-philip-makes-runway-debut-says-disabled-talents-matter/32893

    Instagram:aaron_phillip transgendered disabled fabulous Model check him out

    Nicole Parish

    she is raising awareness on Autism, how she lives with autism, what tools she uses and her love for insects. Follow her on Tik Tok at Sound of the Forest

    A great news platform for young Australians to get the news firsthand ; available internet podcast and app easily digestible and accessible check it out

    https://www.thedailyaus.com.au/

    The FND Podcast
    enSeptember 07, 2022
    fnd
    functional neurological disorder
    fnders
    fnd warrior
    fnd advocate

    Maggies Corner | catching up part 1

    Maggies Corner | catching up part 1

    On this episode of Maggies corner we talk to Maggie on how she’s been doing. We split this episode into two parts as there is so much to catch up on. Maggie has done amazing podcast episodes with @zoopnetwork @ the #9for9 real talk series.  Maggie on Instagram @Maggie.Chapman and her creatively on @maggiesa.creative we congratulate her also on finishing the challenge #9for9 29 days in cold water and for you guys raising money towards youth mental health. 

    The zoop network:

    https://www.thezoopnetwork.com/ 

    Maggie is part of this amazing community, check it out !

    The FND Podcast with Detty acknowledges the traditional custodians of the land in which we stand, the Bundjalung, Awakabal, Djinduburi , Arawak, Boon wurrang & Wurundjeri People. The FND Podcast pays respect to their Elders past, present and emerging.

    The FND Podcast with detty : song resonating at the moment maybe our song :

    The new normal by Kahlid to hear it it is on our playlist or click below to view lyrics and listen on YouTube.

    https://youtu.be/o3sXlxg4d5c

    What has the team been listening to? What are are their song preferences ? In a flare and would like to listen to some songs? Head over to our playlist! Thank you Maggie for making it :) we have recently updated the list which features an eclectic list; itunes playlist : the fnd podcast with detty playlist or click on the link below for the playlist 

    https://open.spotify.com/playlist/5lvGhN4Ab3AtwBj42L5DDA?si=i1RzVbhmQ3GeJ6a3Iu7sHw&dl_branch=1

    FND TSHIRTS BAGS MASKS AND MORE ; FND PODCAST MERCHANDISE-CLICK BELOW

    https://imprintmerch.com.au/collections/lets-have-the-chat

    from masks to bags hoodies and tshirts featuring Friends of FND and FND will not hold me back : all proceeds going to FND Australia Support Services also FND Podcast merchanise check them out!

    HELPFUL RESOURCES:

    A website all things Functional neurological Disorder written by Professor Jon Stone who is the leading FND researcher and Consultant Neurologist in Edinburgh, Scotland.

    https://www.neurosymptoms.org/

    Neurosymptoms has an app that you can download now too. Look up neurosymptoms or Jon stone and you will find it there.

    https://www.health.qld.gov.au/news-events/podcast/my-amazing-body-the-brain-2.0

    An excellent podcast episode which explains what Functional Neurological Disorder is. Have a good listeners brilliant!

    Dr Mohsin Butt is an excellent doctor who explained what FND is perfectly click here to watch his explanation

    https://vm.tiktok.com/ZSeYtCw7W/

    https://www.neurokid.co.uk/\

    A website for young people and families living with NEAD and neurological symptom

    https://fndportal.org/

    Amazing website with information and links to fnd

    Information on Non Epileptic Seizures or NEAD

    https://www.sth.nhs.uk/clientfiles/File/Epilepsy/pil2072.pdf

    FND ORGANISATIONS:

    https://www.fndaus.org.au/

    FND AUSTRALIA SUPPORT  SERVICES INC: A wonderful resource for people in Australia with FND: from reasearch into FND, finding medical specialists and services and just information about FND. Solely dedicated to all things FND and helping those with FND in Australia.

    FND Australia Support services App:

    Android

    https://apksos.com/app/fndaustralia.com

    Apple

    https://apps.apple.com/au/app/fnd-australia-support-services/id1613121706

    Click below to hear more about FND Australia Support services and who Dr. Katherine Gill is

    https://thefndpodcast.simplecast.com/episodes/the-fnd-podcast-with-detty-dr-katherine-gill-and-fnd-australian-support-services

    FND Action is a patient-led charity who offer a caring and supporting hand to people living with Functional Neurological Disorder (FND) in the UK.

    https://www.fndaction.org.uk/

    FND Dimensions aims to develop a network of ‘peer support groups’ across the UK either in face to face meetings or online via methods such as Skype. By bringing people together on a regular basis, this helps alleviate the isolation that many FND patients feel. It also gives  opportunity  for others to open up dialog and to talk to others in a similar position about the day to day challenges, issues or concerns with one another.

    http://fnddimensions.org/

    A really helpful article and explanation of what FND is: '

    https://threadreaderapp.com/thread/1367576277956370432.html?fbclid=IwAR1GZpXe7IgC9qVlIr7ygA9RslPy6nxhQIumdUw9XMu2fs8MsMf8SwYZeVQ
     

    Other podcasts/ blogs / vlogs to follow:

    itsmeitsmeitsfnd

    by none other than our Jake! 

    HTTPS://www.tomplender.com

    Tom Plender : follow this amazing creative human his art, music and writing on fnd 

    https://open.spotify.com/show/6RSjTADQCw9tA4Udnutf0L?si=JZy4CAfuSB6FWaBCi8Avgg&dl_branch=1
    Bed Life and Beyond by Rach also a lovely FNDer

    https://pandoralocksmith.wordpress.com/about/

    John McLeans Fnd Journey

    https://m.facebook.com/JohnsFND/?ref=page_internal&mt_nav=0

    Lmtd Life with FND

    https://m.youtube.com/channel/UC3xLKpn7gkgvVoH29ulu4IA/videos

    FNDer amplified: Meg Jacks follow on Instagram @ Meg.jacks_ TicTok: @megjacks

    Instagram follow Emma’s journey :@emmas_fnd_fun

    People Amplified on the FND Podcast by Maggies Corner ,brilliant incredible humans who you should look up / check out

    Dylan Alcott

    Athelete , paraolympics , podcaster , raising awareness and voices of the disabled

    Instagram :@ listenable_podcast @dylanalcott

    Website: www.abilityfest.com.au

     

    Elle Stella

    Business Success Coach , Paraolympian & intuitive healer

    Instagram: @iamellesteele

    Website: www.iamellesteele.com


    Carly Findlay

    Activist, writer, Blogger with a condition called ichtchyosis.

    Instagram: @carlyfindlay

    Website: www.carlyfindlay.com.au


    Sophie Butler

    Shes empowering women, disabled after a spinal cord injury , she inspirational and has an amazing attitude

    Instagram: @sophjbutler

    YouTube: https://youtu.be/wgfAYDlXXvM


    Meg Jacks

    She is a fellow FNDer who is very open about her journey with FND and has helped raised awareness with FND

    Instagram: @Meg.Jacks_

    TicTok: Megjacks

     

    Julian Gavino

    (he/him) is a trans-masculine model, writer, coach, and sex-positive disability influencer living with Ehlers-Danlos syndrome and comorbidities. ... In his work, Julian aims to normalize and destigmatize trans and disabled bodies in media — by facing discrimination down and creating space for representation

    Instagram:  @thedisabledhippie


    Nina Tame aka the Lunch Lady

    She’s a single mum who’s disabled and a disability advocate. Parenting with disability

    Website: https://hellolunchlady.com.au/parenting/parenting-around-the-world-nina/


    Chloè Haden

    she is an Australian actor YouTuber singer dancer and she’s autistic. She beings awareness about Autism and talks openly about life with Autism.

    Instagram: @princesssapien

    Website: https://www.chloehayden.com.au/

    Youtube: Chloè Haden

     

    Style like U

    Founded by mother-daughter duo, Elisa Goodkind & Lily Mandelbaum, StyleLikeU is a multimedia platform for radically honest docu-style content that gives voice to diverse role models who stand proudly outside of norms and are comfortable in their skin.

    Website: https://stylelikeu.com/about-us/

    Lucy Dawson

    who unfortunately became Disabled during a medical situation. Click this link to find out more https://www.theguardian.com/society/2021/aug/25/lucy-dawson-the-model-who-got-a-mystery-headache-a-misdiagnosis-and-a-new-mission-in-life However despite this all she continues now to advocate and model and be bloody amazing.

    Instagram : @luuudaw

    Website: https://lucyintheskywithencephalitis.wordpress.com/2021/03/16/all-my-links/

    Cripple Media

    Cripple media is a disability led media which represents the voice of the youth. As they have mentioned that the youth especially disabled have been represented by those who aren’t the youth primarily the teachers or parents , those in the medical fields so they are raising their voices and speaking up and being heard. It’s really important for their voices their oppinions to be heard and what a great idea and platform. A way to educate aswell as raise awareness

    Instagram: @cripple media

    Website: https://cripplemedia.com/about/

    Aaron Rose Philip

     For more information check out this wonderful article here

    https://www.uncrazed.com/aaron-rose-philip-makes-runway-debut-says-disabled-talents-matter/32893

    Instagram:aaron_phillip transgendered disabled fabulous Model check him out

    Nicole Parish

    she is raising awareness on Autism, how she lives with autism, what tools she uses and her love for insects. Follow her on Tik Tok at Sound of the Forest

    A great news platform for young Australians to get the news firsthand ; available internet podcast and app easily digestible and accessible check it out

    https://www.thedailyaus.com.au/

    The FND Podcast
    enSeptember 07, 2022
    fnd
    functional neurological disorder
    fnd warrior
    Logo

    © 2024 Podcastworld. All rights reserved

    TwitterYouTubeInstagramPinterestFacebookLinkedIn

    Company

    About usBlogPricingTestimonials

    Pages

    PodcastsEpisodesTopics

    Support

    Refund PolicyTerms of ServiceContact usPrivacy Policy

    Stay up to date

    For any inquiries, please email us at hello@podcastworld.io