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    What is it like to be face blind? With Joe DeGutis, PhD, and Sadie Dingfelder

    enJanuary 27, 2021

    Podcast Summary

    • Discovering Face Blindness1 in 50 people struggle with face blindness, affecting their ability to recognize and remember faces, with two subtypes: perceptual and memory related. Research suggests genetic variation in faces may explain our recognition abilities, and treatments are available to help improve recognition skills.

      Prosopagnosia, or face blindness, is a condition that affects an estimated 1 in 50 people and makes it difficult for individuals to recognize and remember faces. Sadie Dingfelder, a former colleague of mine, recently discovered she has this condition after participating in a study at Harvard Medical School. People with prosopagnosia don't see faces as a blur, but rather have trouble remembering them once they're out of sight. Research suggests there are two subtypes: one with a perceptual issue where faces aren't distinguishable, and another with a memory component where other information about the person isn't automatically recalled. Neuroscientist and experimental psychologist Dr. Joseph Degoutis, who runs the study Sadie participated in, explains that faces have a remarkable amount of genetic variation, which may explain why we're so good at recognizing them. He also develops treatment programs to help those with face blindness improve their ability to recognize faces.

    • Understanding Prosopagnosia: Struggling with Face RecognitionProsopagnosia is a disorder that impairs face recognition, possibly due to difficulties in perceptual and memory processes. Individuals may struggle with holistic processing and sensitivity to the eye region, as well as issues with recollection memory.

      Prosopagnosia is a specific disorder that affects the ability to recognize faces, despite having normal or above-average intellectual abilities. The human face's variability might be a factor in our evolved brain's ability to recognize faces, but individuals with Prosopagnosia struggle with this. Brain imaging studies suggest that people with Prosopagnosia have difficulties in both perceptual and memory processes. On the perceptual side, they might struggle with holistic processing, or the ability to put all the parts of a face together into a complete whole. They may also have trouble with sensitivity to the eye region, which holds significant information for identity. On the memory side, they might have issues with recollection memory, which usually brings back a flood of semantic information associated with a face. Instead, they experience a vague sense of familiarity. Sadie, who has Prosopagnosia, confirms these challenges, which can even occur with very familiar people.

    • Masks impact children's face recognition developmentMasks make face recognition harder, children with less face exposure may be more affected, it's unclear if screen time can compensate, face blindness can be linked to non-stereo vision and eye movement issues.

      The widespread use of masks during the pandemic may impact children's face recognition development. The masks make it harder for people to recognize each other, and research suggests that face recognition improves with exposure to diverse faces and during critical developmental periods. Children, especially those with less exposure to various faces, may be more affected. It's unclear if screen time and exposure to flattened faces on TikTok or TV can make up for this. Sadie, who is face blind, shared her experience of seeing faces as flat due to her non-stereo vision, which is linked to prosopagnosia. Eye movement issues like strabismus or amblyopia are also associated with face blindness, and the reason why is not yet clear.

    • Coping Strategies for People with Face BlindnessPeople with face blindness use various strategies like excessive friendliness or social avoidance to navigate social situations.

      People with face blindness, or prosopagnosia, use various coping strategies to navigate social situations. Some individuals with face blindness are extremely friendly and smile at everyone they encounter, pretending to know them until proven otherwise. Others may feel anxious in social settings and may avoid interactions. These strategies have been developed over time as a way to manage the challenges of face blindness. Some people with face blindness may not even be aware that they have it and assume everyone else is coping in the same way. While face blindness can cause significant difficulties for some individuals, others have found ways to compensate. It's important to remember that everyone's experience with face blindness is unique.

    • Understanding Face Blindness: Impact and SolutionsRaising awareness about face blindness can provide relief and insight for individuals, while treatments and training programs can improve face recognition abilities.

      Raising awareness about face blindness, or prosopagnosia, can have a significant impact on individuals' lives. People with face blindness may struggle to recognize faces, which can lead to feelings of anxiety, frustration, and isolation. By increasing awareness and understanding of this condition, individuals can gain relief and insight, and even destigmatize their experiences of misrecognizing people. There are also various treatments and training programs available to help improve face recognition abilities. The discussion highlighted the importance of awareness, as well as the potential benefits of acknowledging and addressing this condition.

    • Exploring methods to enhance face recognition for prosopagnosiaResearchers are testing computer-based training and oxytocin to improve face recognition for prosopagnosia, offering hope for those affected.

      Researchers are exploring various methods to enhance face recognition abilities, particularly for individuals with prosopagnosia. These methods include computer-based training focused on matching faces and improving recollection memory, as well as the use of oxytocin, a neuropeptide that can temporarily improve face recognition. The training is still experimental and not a cure, with improvements varying from person to person. Some studies suggest that training can last for a few months before the effects wear off. Sadie, who has prosopagnosia, has tried the computer-based training and noticed some improvement initially, but it has since declined. The use of oxytocin is still in its infancy, but it may help individuals with prosopagnosia focus more on the eye region when recognizing faces. Overall, these findings challenge the long-held belief that face recognition abilities are fixed and offer hope for individuals with prosopagnosia.

    • Considering Face Recognition Issues in ChildrenRaise awareness of face recognition deficits in children, consider testing for potential issues during adolescence, and note the genetic component for early identification and support.

      While some people with face recognition deficits, such as prosopagnosia, may not initially recognize their condition, it is important to raise awareness and consider testing children for potential face recognition issues. Studies suggest that many prosopagnosics become aware of their condition during adolescence, and social interactions during this time can be particularly challenging. Although identifying children with face recognition deficits may present challenges due to the developing memory system, early identification could help alleviate suffering and difficulties in school. Additionally, there seems to be a genetic component to face recognition deficits, as some family members may also exhibit symptoms. Notable figures like Jane Goodall, who worked with chimpanzees, have also reported having face blindness.

    • Late diagnosis of face blindness and personal growthRecognizing unique challenges like face blindness can lead to personal growth and valuable connections. Resources like faceblind.harvard.edu and faceblind.org offer testing and information. Participating in research studies can provide insight and community.

      Understanding and acknowledging one's unique challenges, such as face blindness or prosopagnosia, can be a powerful tool for personal growth and connecting with others. Sadie's story illustrates this, as she shares how her late diagnosis of face blindness could have potentially helped her in her younger years. For those who suspect they might have face blindness, resources such as faceblind.harvard.edu and faceblind.org offer valuable information and testing. Additionally, participating in research studies can provide insight into one's condition and connect individuals with a community of like-minded individuals. Knowing that you're not alone in your experiences can be a source of comfort and understanding. Overall, being aware of your unique challenges and seeking out resources and support can lead to valuable insights and improved connections with others.

    • People with prosopagnosia find connection in online communitiesOxytocin, a social neuropeptide, is being explored as a potential treatment for prosopagnosia, but its effects on outgroup bonds are unclear. Brain differences in individuals with prosopagnosia include a less selective fusiform face area and thicker, less well-connected hippocampus.

      People with prosopagnosia, a condition that makes it difficult to recognize faces, often feel a sense of isolation due to their unique experience. They may find solace in online communities where they can connect with others who share similar experiences. Researchers have explored the use of oxytocin, a social neuropeptide, as a potential treatment for prosopagnosia due to its role in forming social bonds and face processing. Oxytocin may also have a dark side, as it may facilitate ingroup bonds but not outgroup bonds. The fusiform face area in the brain, which is responsible for processing faces, is not as selective in individuals with prosopagnosia, and their face areas may be thicker and less well-connected to other brain regions, such as the hippocampus, which is involved in memory. No surgical interventions for prosopagnosia have been explored extensively, as the condition is primarily thought of as a developmental issue rather than a physical one.

    • Anterior Temporal Lobes and Face Recognition in ProsopagnosiaAnterior temporal lobes, crucial for face recognition, are underdeveloped or disconnected in prosopagnosia. Stimulating this region can alter face perception, shedding light on neuroplasticity. No cure exists, but facial recognition technology is a promising solution.

      The anterior temporal lobes, a brain region crucial for face recognition and retrieving familiarity with people, are not optimally developed or connected in individuals with developmental prosopagnosia. This condition, which makes it difficult for people to recognize faces, is characterized by the involvement of small, specialized brain areas. Research using invasive methods like electrodes in epilepsy patients has shown that stimulating the face area can significantly alter the perception of faces, suggesting the importance of this region in face processing. Understanding the neural mechanisms underlying prosopagnosia could provide valuable insights into neuroplasticity, the brain's ability to change with experience. Despite the potential benefits, there is currently no cure for prosopagnosia, and researchers are still exploring various methods to improve face recognition. However, the prospect of developing technology like facial recognition glasses is an exciting possibility. Personally, individuals with prosopagnosia, such as Sadie, would welcome a cure to experience the world with the ability to recognize faces and appreciate the three-dimensional depth of their surroundings.

    • Embrace new experiences and challenge yourself, even as you ageNever stop learning and growing, cherish relationships, and appreciate the value of reflection and new experiences

      Learning from today's episode of Speaking of Psychology is that it's never too late to try new things and challenge yourself, even as you age. The guest speaker shared how she had fully utilized her old brain for most of her life but was now open to exploring new experiences. This idea resonates with the concept of lifelong learning and personal growth. It's essential to embrace change and continue to challenge ourselves, regardless of our age. Additionally, the episode highlighted the importance of reflection and looking back on past experiences. The guest speaker reminisced about her past and appreciated the opportunity to reconnect with a friend. This moment served as a reminder to cherish relationships and appreciate the connections we make throughout our lives. Lastly, the production quality of Speaking of Psychology was noteworthy, with clear audio and professional editing. Overall, the episode provided valuable insights into the human experience and the importance of staying curious and open to new experiences.

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