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    What is Spina Bfida?

    enOctober 13, 2022
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    Podcast Summary

    • Multitasking made easy: Groceries and celebrationsTechnology enables us to save time on errands, whether it's quick grocery delivery or anniversary sales, while individuals with Spina Bifida can live fulfilling lives thanks to medical advancements.

      Technology and convenience are making it easier than ever to multitask and save time on everyday errands, even during important events or celebrations. Instacart offers quick grocery delivery, allowing you to stock up for the week without missing a minute of your favorite game. Meanwhile, Ashley's anniversary sale provides an opportunity to celebrate and save on mattresses, with financing options and free adjustable bases available. On a more serious note, during this month of Spina Bifida Awareness, it's important to remember that individuals diagnosed with this condition can live fulfilling lives. Spina Bifida is a birth defect that occurs when the spinal column doesn't close correctly, leaving the spinal cord exposed to fluids in the womb. However, advancements in medical technology, such as shunts and clean intermittent catheterization, have significantly improved the life expectancy and quality of life for those with Spina Bifida. While challenges may exist, people with this condition can lead active, productive lives.

    • Living with the Unique Challenges of Spina BifidaSpina Bifida is a rare condition with varying impacts, but individuals can lead normal lives and excel in various professions. Life expectancy has improved, and it disproportionately affects Hispanic families, but reasons are unclear. Remember, each person's experience is unique and doesn't limit their abilities or potential.

      Spina Bifida is a complex condition that affects individuals differently, making it a "snowflake condition." Despite the challenges, people with Spina Bifida lead normal lives and excel in various professions. Approximately 1500 babies are born with it each year in the US, making it a rare condition, but life expectancy has significantly improved, with adults now living into their 70s and 80s. The condition seems to disproportionately affect Hispanic families, but the reason for this is not yet fully understood. Overall, Spina Bifida is a unique condition that brings its own set of challenges, but also opportunities for living a fulfilling life. It's important to remember that each person's experience with Spina Bifida is unique, and the condition does not define their abilities or potential.

    • Possible link between diet and higher spina bifida rates in HispanicsResearch suggests that diet, specifically the lack of enriched flour in corn masa, could contribute to higher spina bifida rates in the Hispanic population. However, genetics and other environmental factors may also play a role. New medical technologies, like in utero surgery, offer hope for better outcomes for affected children.

      More babies are born with spina bifida from the Hispanic population, but the reasons for this are not definitively known. Some theories suggest that diet, specifically the lack of enriched flour in corn masa diets, could be a factor. However, this is not the only possible explanation, as genetics and other environmental factors may also play a role. The good news is that advancements in medical technology, such as in utero surgery, are providing new possibilities for improving outcomes for children with spina bifida. While these procedures are not yet widely available or fully understood, they offer hope for better mobility and fewer complications for affected children. Overall, more research is needed to fully understand the causes of spina bifida in the Hispanic population and to develop effective prevention strategies.

    • Unique challenges of individuals with spina bifida lead to increased risk of depression and anxietyPeople with spina bifida face isolation and trauma, contributing to mental health issues. Recognizing these challenges can lead to more inclusive environments and support systems.

      Individuals with spina bifida face unique challenges that put them at an increased risk for depression and anxiety. Isolation and trauma are two significant factors contributing to this risk. Due to the rarity of the condition, people with spina bifida may feel isolated, leading to limited social interactions and opportunities for connection. Additionally, the numerous surgeries they undergo from a young age can result in long-term trauma, impacting their mental health. It's essential to recognize that mental health issues are not limited to children with spina bifida but also affect many adults living with the condition. By understanding these challenges, we can work towards creating more inclusive environments and support systems to help those with spina bifida feel seen, connected, and mentally healthy.

    • Hidden healthcare crisis for adults with spina bifidaAdults with spina bifida face challenges in finding suitable healthcare providers due to complex needs, leading to increased costs and potential life-threatening situations. Support organizations and advocate for better healthcare services.

      There's a hidden healthcare crisis in the adult community with spina bifida. Transitioning from pediatric to adult care, they face numerous challenges in finding suitable healthcare providers due to the complexity of their needs. The adult healthcare system lacks the multidisciplinary teams and expertise found in children's hospitals, leading to a lack of preventative care and frequent emergency room visits. This results in increased costs and potential life-threatening situations. To help, listeners can visit organizations and support groups focused on addressing these issues and advocating for better healthcare services for adults with spina bifida. Together, we can raise awareness and work towards a solution to bridge the gap in care for this community.

    • Support for Spina Bifida and Weight LossThe Spina Bifida Association supports individuals with Spina Bifida, while the CDC highlights the need for weight loss. Prolon, a plant-based nutrition program, can aid weight loss and cellular rejuvenation with a listener discount.

      The Spina Bifida Association, based in Arlington, Virginia, is dedicated to supporting individuals with Spina Bifida through resources, advocacy, and community engagement. You can find them online at spina-bifida.org or on social media. Meanwhile, the Centers for Disease Control and Prevention (CDC) reports that 74% of Americans are overweight, emphasizing the need for weight loss and improved metabolic health. Prolon, a structured plant-based nutrition program, can help enhance cellular rejuvenation and is offering a 10% discount to streaming listeners by visiting prolonlife.com/offer before March 31st.

    • Hyundai Sales Event: Spring Deals on Award-Winning ModelsExplore spring deals on Tucson, Kona, and Palisade with 0% APR or up to $1,500 bonus cash, America's best warranty, and complimentary maintenance for 3 years or 36,000 miles.

      The Hyundai Getaway Sales Event is an excellent opportunity to purchase your desired Hyundai model at great deals. Spring is the perfect time to explore in a new Hyundai vehicle, and you can find impressive discounts on award-winning models like the Tucson, Kona, and Palisade. These deals include 0% APR or up to 1,500 bonus cash on the Tucson. Moreover, Hyundai offers America's best warranty and complimentary maintenance for three years or 36,000 miles, ensuring peace of mind during your journey. However, these offers are time-limited, so don't miss out and call 562-314-4603 for more details before the deals end.

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