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    About IBD

    Crohn's disease and ulcerative colitis (collectively known as inflammatory bowel disease) are about more than diarrhea: they affect the whole person. About IBD focuses on health and lifestyle issues important to people living with Crohn's or colitis. IBD patients, doctors, therapists, and care partners give their tips and advice on topics including diet, nutrition, treatments, mental health, family dynamics, and sexuality as it relates to living with IBD.
    enAbout IBD With Amber J Tresca161 Episodes

    Episodes (161)

    Yoga for IBD With Desiree Schmidt

    Yoga for IBD With Desiree Schmidt

    Desiree Schmidt, a 500-hour yoga instructor and owner of a personal training business, shares her passion for helping people with chronic illnesses, which is inspired by her own experience with Crohn's disease. She discusses how yoga has been key in her journey, both physically and mentally.

    Amber and Desiree discuss the benefits of different yoga forms and how to choose the right practice based on whether one is in a flare-up or in remission. Desiree points out how it is important to modify poses when living with a health condition, including IBD, to ensure comfort and safety during classes. She offers insights into providing options for different needs, making the yoga accessible for everyone.

    Gain valuable insights into the world of yoga, its benefits for chronic illness, and how to embark on your own yoga practice with confidence and guidance.

    Find Desiree (Schmidt) VanDaalwyk, NASM-CPT, FNS at:

     

    Find Dutchmen Kettlebells at:

     

    Find Amber J Tresca at:

     

    Find Mac Cooney (mix, sound design, and theme music) at:

     

    Episode transcript and more information at: https://bit.ly/AIBD135

    These show notes contain affiliate links. If you choose to purchase after clicking a link, Mal and Tal Enterprises, LLC may receive a commission at no extra cost to you.

    About IBD
    enMay 23, 2023

    An Ostomy Is a Beginning With Brad Watson-Davelaar

    An Ostomy Is a Beginning With Brad Watson-Davelaar

    Brad Watson-Davelaar, founder of Gaming for Guts, shares his experiences in living with Crohn’s disease and how he found support and community through his IBD journey. He talks about his ostomy surgery and how for him, it is a beginning rather than an end.

    Brad describes the upcoming fundraising event sponsored by Gaming for Guts to celebrate World IBD Day on May 19th. It will feature Canadian-themed activities in support of Crohn's and Colitis Canada. The IBD and gaming communities are encouraged to get involved with the fun. Brad also shares his thoughts on how the gaming community helps people with IBD connect to form meaningful relationships.

    Find Brad Watson-Davelaar at:

    Find Gaming4Guts at:

    Find Amber J Tresca at:

    Find Mac Cooney (mix, sound design, and theme music) at:

    Episode transcript and more information at: https://bit.ly/AIBD134

    These show notes may contain affiliate links. If you choose to purchase after clicking a link, Mal and Tal Enterprises, LLC may receive a commission at no extra cost to you.

    About IBD
    enMay 09, 2023
    crohn's disease
    ibd
    ostomy
    ileostomy
    ulcerative colitis

    I Pooped My Pants With April Michelle Harris

    I Pooped My Pants With April Michelle Harris

    When is the last time you pooped your pants? Amber speaks with April Michelle Harris, who lives with ulcerative colitis, a type of inflammatory bowel disease (IBD), for over 13 years. April shares her journey, from her initial diagnosis to her struggles with depression and anxiety, and how she has managed to build a fulfilling life despite the many challenges that come with living with a chronic illness.

    We also dive into April's new book "I Pooped My Pants", where she shares her story and those of 20 other IBD warriors who have bravely shared their experiences with living with the disease. April's book provides a refreshing and honest perspective on what it's like to live with IBD, and it's a must-read for anyone who wants to learn more about the disease and how it affects people on a daily basis.

    Tune in to hear April's inspiring story and learn more about living with a chronic illness, and how you can build a fulfilling life despite the challenges that may come your way.

    Find April Michelle Harris at:

    Find Amber J Tresca at:

    Find Mac Cooney (mix, sound design, and theme music) at:

    Episode transcript and more information at: https://bit.ly/AIBD133

    These show notes contain affiliate links. If you choose to purchase after clicking a link, Mal and Tal Enterprises, LLC may receive a commission at no extra cost to you.

    About IBD
    enApril 25, 2023
    health
    colitis
    books
    author
    ibd
    ulcerative colitis

    RunPee: The App That Tells You the Best Time to Use the Bathroom During a Movie

    RunPee: The App That Tells You the Best Time to Use the Bathroom During a Movie

    Going to a movie can be a frustrating experience for anyone with a digestive or urinary condition. Not only are the bathrooms sometimes far from the theaters, it’s difficult to know when to duck out if nature calls. Enter RunPee. The RunPee app is designed to help moviegoers know when the best time is to use the restroom (a peetime) during a movie without missing any important scenes. The creator, Dan Gardner, discusses how he and his team choose the best times to use the restroom while still ensuring that users do not miss any critical moments in the film. Additionally, Gardner talks about the other features of the app, such as movie ratings and reviews, and the importance of understanding the needs of different demographic groups.

    Find RunPee at:

    Find Amber J Tresca at:

    Find Mac Cooney (mix, sound design, and theme music) at:

    Episode transcript and more information at: https://bit.ly/AIBD131

    These show notes contain affiliate links. If you choose to purchase after clicking a link, Mal and Tal Enterprises, LLC may receive a commission at no extra cost to you.

    About IBD
    enApril 18, 2023
    colitis
    crohn's disease
    movie reviews
    chronic illness
    ibd
    movie fans
    ulcerative colitis
    crohn's

    Accommodations for IBD in College With Sari Grossman

    Accommodations for IBD in College With Sari Grossman

    What happens when your professional life and your IBD overlap? Sari Grossman is a research scientist, Crohn's disease patient, and advocate for patients with chronic illnesses. She shares her experience with Crohn's disease, including her family history of IBD, diagnosis at a young age, her unusual symptoms, and the impact it had on her life. She speaks candidly about the physical and emotional challenges of living with a chronic illness, and how she has learned to cope with the ups and downs of her condition.

    Find Sari Grossman at:

    Find Amber J Tresca at:

    Find Mac Cooney (mix, sound design, and theme music) at:

    Episode transcript and more information at: https://bit.ly/AIBD131

    These show notes contain affiliate links. If you choose to purchase after clicking a link, Mal and Tal Enterprises, LLC may receive a commission at no extra cost to you.

    About IBD
    enMarch 28, 2023
    university
    crohn's disease
    college
    disability
    ibd
    ulcerative colitis

    Up and Adam: A Patient's Experience on Winning with IBD

    Up and Adam: A Patient's Experience on Winning with IBD

    Is it possible for kids to look at their touchpoints with medical care as empowering experiences? Adam Finkelstein, a medical student and author, shared his experiences of living with IBD from a young age, and how he coped with surgeries and doctor's appointments as a child. Adam provides tips for helping kids develop positive associations with going to the doctor, which include building trust with healthcare professionals, being honest about what to expect during appointments, and creating a comfortable environment for kids. Adam's book, "Up and Adam," is a resource for children with IBD and their families.

    Contact Adam Finkelstein at adamibdstory@gmail.com.

    Get "Up and Adam: A Patient's Experience on Winning with IBD" at Barnes and Noble.

    Find Amber J Tresca at:

    Find Mac Cooney (mix, sound design, and theme music) at:

    Episode transcript and more information at: https://bit.ly/AIBD130

    These show notes contain affiliate links. If you choose to purchase after clicking a link, Mal and Tal Enterprises, LLC may receive a commission at no extra cost to you.

    About IBD
    enMarch 14, 2023

    Living with IBD: How Caitlin McGinnis, LCSW Supports Mental Health

    Living with IBD: How Caitlin McGinnis, LCSW Supports Mental Health

    Caitlin McGinnis, LCSW was diagnosed with ulcerative colitis at the age of 22 and had her entire colon removed. This experience prompted her to become a social worker and specialize in providing mental health support for patients with various digestive health issues. Through her own experiences and connecting with support groups, Caitlin has learned the importance of creating communities, bringing awareness, and being a source of support for those going through similar struggles. She strives to provide her patients with the support she did not have when she was diagnosed.

    Find Caitlin McGinnis, LCSW on:

    Concepts discussed on this episode:

    Find Amber J Tresca at:

    Find Mac Cooney (mix, sound design, and theme music) at:

    Episode transcript and more information at: https://bit.ly/AIBD129

    These show notes contain affiliate links. If you choose to purchase after clicking a link, Mal and Tal Enterprises, LLC may receive a commission at no extra cost to you.

    About IBD
    enFebruary 28, 2023

    CDPATH: A Prognostic Tool for Crohn's Disease

    CDPATH: A Prognostic Tool for Crohn's Disease

    Are we getting close to predicting how Crohn's disease might change over time? Dr. Corey Siegel, co-director of the Inflammatory Bowel Disease Center at the Dartmouth Hitchcock Medical Center in Lebanon, New Hampshire, and Jessica Caron, a patient key opinion leader who lives with Crohn's, discuss a prognostic tool called CDPATH. This tool may help patient and healthcare providers understand how the disease may change over the next few years, and better inform a discussion of treatment options.

    Find Corey Siegel, MD on:

    Find Jessica Caron at:

    Find Amber J Tresca at:

    Find Mac Cooney (mix, sound design, and theme music) at:

    Episode transcript and more information at: https://bit.ly/AIBD128

    These show notes contain affiliate links. If you choose to purchase after clicking a link, Mal and Tal Enterprises, LLC may receive a commission at no extra cost to you.

    About IBD
    enFebruary 14, 2023
    health
    medicine
    colitis
    crohn's disease
    digestion
    ibd

    The Plant-Based Crohn’s and Colitis Cookbook

    The Plant-Based Crohn’s and Colitis Cookbook

    For years we were told that diet doesn’t matter in inflammatory bowel disease (IBD). We know now that diet is important in IBD. What’s still not clear is how we should be thinking about it in terms of management. Helena Murphy is a photographer, yoga teacher, and Crohn’s disease patient who brought her skills and experience to writing a book entitled, "The Plant-Based Crohn’s and Colitis Cookbook." She shares her secret to publishing her book, as well as how her life has changed since being diagnosed with Crohn’s disease.

    Find Helena Murphy at:

    Find Amber J Tresca at:

    Find Mac Cooney (mix, sound design, and theme music) at:

    Episode transcript and more information at: https://bit.ly/AIBD127

    These show notes contain affiliate links. If you choose to purchase after clicking a link, Mal and Tal Enterprises, LLC may receive a commission at no extra cost to you.

    About IBD
    enJanuary 31, 2023
    yoga
    vegan
    cookbook
    diet
    treatments
    ibd
    plant based
    crohn's

    Pelvic Health With Amanda Olson, DPT, PRPC

    Pelvic Health With Amanda Olson, DPT, PRPC

    Caring for pelvic health is important for people of all genders who live with an inflammatory bowel disease (Crohn’s disease or ulcerative colitis). Dr. Amanda Olson, who holds a doctorate in physical therapy and is the President and Chief Clinical Officer for Intimate Rose, has dedicated her professional life to helping people improve their pelvic health. Learn more about pelvic therapy and how she has developed resources and tools to help people living with all types of conditions.

    Find Amanda Olson, DPT, PRPC at:

    Find Amber J Tresca at:

    Find Mac Cooney (mix, sound design, and theme music) at:

    Episode transcript and more information at: https://bit.ly/AIBD126

    These show notes contain affiliate links. If you choose to purchase after clicking a link, Mal and Tal Enterprises, LLC may receive a commission at no extra cost to you.

    About IBD
    enJanuary 24, 2023
    crohn's disease
    pelvic health
    pelvic therapist
    inflamamtory bowel disease
    pelvic therapy
    ulcerative colitis

    Amber's Year in Books 2022

    Amber's Year in Books 2022

    What did you read over the past year? If you made a reading goal: did you hit it? The books I read this year ranged from self-help to true crime to science fiction. Hear more about some of the books I enjoyed in 2022 (and in the year after I was diagnosed with ulcerative colitis) and if you’ll want to pick them up for yourself.

    Find Amber J Tresca at:

    Find Mac Cooney (mix, sound design, and theme music) at:

    Episode transcript and more information at: https:/bit.ly/AIBD125

    These show notes contain affiliate links. If you choose to purchase after clicking a link, Mal and Tal Enterprises, LLC may receive a commission at no extra cost to you.

    About IBD
    enDecember 26, 2022

    Recovering from Medical Catatonia

    Recovering from Medical Catatonia

    For some people living with Crohn’s disease or ulcerative colitis, the disease puts roadblocks in the way when it comes to going to school, having a career, and participating in sports. For Lauren Thibodeau, a diagnosis of ulcerative colitis led to a complication of medical catatonia, which derailed her life and her career as a college golfer. However, with her family, her medical team, and her teammates around her, she made her way back to the golf course and in fact, wound up playing better than ever. Lauren shares what kept her motivated during the long and difficult recovery and how it changed her perspective on her golf game as well as her outlook on life.

    Find Lauren Thibodeau at:

    Find Amber J Tresca at:

    Find Mac Cooney (mix, sound design, and theme music) at:

    Episode transcript and more information at: https:/bit.ly/AIBD124

    About IBD
    enDecember 13, 2022

    Understanding Resilience With Mara Shapiro

    Understanding Resilience With Mara Shapiro

    Does living with Crohn’s disease or ulcerative colitis make a person more resilient? And is resilience something that should be a part of management plan for people with inflammatory bowel disease (IBD) or other chronic illnesses? Mara Shapiro, healthcare journalist and Crohn’s disease patient, has had no other choice but to find a way towards resilience in her life, having lived through grief and loss early in life, followed by the diagnosis of several chronic illnesses. She provides deep insight on coping mechanisms and resilience, including the various ways we can look at these ideas to fit our own needs.

    Find Mara Shapiro (and Morty) at:

    Find Amber J Tresca at:

    Find Mac Cooney ( mix, sound design, and theme music) at:

    Episode transcript and more information at: https:/bit.ly/AIBD123

    About IBD
    enNovember 21, 2022
    mental health
    colitis
    resilience
    crohns
    crohns disease
    ibd
    ulcerative colitis

    Serving in the Navy With Crohn’s Disease, With Daniel Rausa, DO

    Serving in the Navy With Crohn’s Disease, With Daniel Rausa, DO

    When it comes to people with Crohn’s disease or ulcerative colitis serving in the military, the usual policy is that the two things are incompatible. The reason being that people living with an inflammatory bowel disease (IBD) need care and treatments that are incompatible with being deployed. However, sometimes there are other considerations, as Dr Daniel Rausa describes. Dr Rausa was diagnosed with Crohn’s disease while serving in the Navy, and he has advice for people who live with an IBD and want to serve or who want to pursue a medical career. He also describes why it’s so important to follow up and stay on top of transition of care when leaving military service.

    Find Daniel Rausa, DO at:

    Find Amber J Tresca at:

    Credits:

    Episode transcript and more information at: https:/bit.ly/AIBD122

    About IBD
    enNovember 08, 2022

    IBD and Biomarkers: What You Need to Know With Andres Hurtado-Lorenzo, PhD

    IBD and Biomarkers: What You Need to Know With Andres Hurtado-Lorenzo, PhD

    What if we knew which patients would have severe Crohn’s disease or ulcerative colitis? And which wouldn’t? How about if we could tell which drug would work best in which patient? Knowing these things would change how inflammatory bowel disease (IBD) is diagnosed and treated. Plus, more importantly: it would improve lives. Dr Andres Hurtado-Lorenzo, Vice President of Translational research and IBD Ventures at the Crohn's and Colitis Foundation explains biomarkers and how they may play into the future of how IBD is diagnosed, managed, and treated.

    Resources:

    Research:

    Find Amber J Tresca at:

    Credits:

    About IBD
    enJuly 11, 2022
    science
    disease
    colitis
    research
    treatment
    biomarkers
    crohns
    pediatrics
    predict
    bowel

    Don’t Google Your Symptoms With CJ Papuro

    Don’t Google Your Symptoms With CJ Papuro
    There aren’t as many men who are vocal in the inflammatory bowel disease (IBD) space as there are women. Crohn’s disease and ulcerative colitis affect men as often as they do women, but fewer men seem comfortable being public about their disease.
     
    That’s why Carlos “CJ" Cabrera, who also goes by CJ Papuro, entered the IBD community after his diagnosis of Crohn’s. He gives an overview of how difficult it was to be diagnosed as a US veteran using the Veterans Health Administration, his struggles with finding his way with nutrition, the ways in which IBD has affected him as a man, and his advice for other men.
     
    Concepts discussed on this episode include:
    Find CJ Papuro at:
     
    Find Amber J Tresca at
    AboutIBD.com: http://aboutibd.com/
     
    Credits: Mix and sound design is by Mac Cooney: https://www.facebook.com/michaelandrewcooney
    Theme music, IBD Dance Party, is from Cooney Studio: https://michaelandrewcooney.bandcamp.com/track/ibd-dance-party-single
     
    Episode transcript and more information at: https:/bit.ly/AIBD120
     
     
    About IBD
    enJune 27, 2022

    The Restroom Access Act

    The Restroom Access Act

    Have you ever been out in public and needed a toilet — but there wasn’t one available?

    This has happened to everyone who lives with an inflammatory bowel disease (IBD, Crohn’s disease or ulcerative colitis), which is why so many of us have “bathroom accident” stories. Needing to use the bathroom is a basic human need, but it’s treated like an afterthought. That’s where the Restroom Access Act comes into play: a law passed in several states that allows people to request access to a toilet when they live with certain conditions.

    There is no such law currently in California. That’s hopefully going to change thanks to the efforts of Ashlyn Saltzburg and Kelly Silk. Ashlyn is a teenager living with IBD and Kelly is her mom. Their effort to get a law passed in California is nothing short of heroic. Learn about how they got started on this journey to have the Restroom Access Act passed in California, and how you can help.

    More information and a transcript: https://bit.ly/AIBD119

    Concepts discussed on this episode:

    Find Amber J Tresca at:

    Credits:

    About IBD
    enJune 19, 2022
    legislation
    story
    young
    teens
    toilet
    bathroom
    crohns
    ibd
    restroom

    Cannabis and IBD

    Cannabis and IBD

    There are significant unmet needs for IBD patients that include pain control, sleep disturbances, anxiety, and depression. Some patients turn to medical cannabis for these symptoms. But is that a good idea, does it work, and what should patients and their doctors know about medical cannabis? To answer these questions and more, Amber talks to cannabis and IBD expert Dr Jami Kinnucan, who is a Senior Associate Consultant in the Section of Gastroenterology and Hepatology at the Mayo Clinic in Jacksonville, Florida.

    Get lots more information and a transcript at https://bit.ly/AIBD118

    Find Jami A. Kinnucan, MD at:

    Find Amber J Tresca at:

    Credits:

     

    About IBD
    enJune 06, 2022
    cbd
    cannabis
    marijuana
    thc
    ibd

    How Physical Therapy Can Help People With IBD

    How Physical Therapy Can Help People With IBD
    When you think of Crohn’s disease or ulcerative colitis, you might not think of physical therapy. But physical therapy and pelvic floor therapy can be integral to helping with function, pain, and having better bowel movements. To learn more, I connected with Nancy Cullinane, who is a Board-Certified Women’s Health Clinical Specialist at Overlake Hospital and Clinics Outpatient Rehab in Washington State, and Christine Morgan, who is a Board-Certified Sports Clinical Specialist and the Director of Clinical Education at the Florida Southern College School of Physical Therapy. They describe the ways in which a physical therapist can help with some of the issues that crop up with inflammatory bowel disease (IBD) and how you can find a physical therapist to help you.
     
    Concepts discussed on this episode include:
    Athletic Greens — AG1: https://athleticgreens.com/ibdpod
    The Sherman Prize: https://shermanprize.org/
    Academy of Pelvic Health Physical Therapy: https://aptapelvichealth.org
    American Physical Therapy Association: https://www.choosept.com/
    Herman & Wallace Pelvic Rehabilitation Institute: https://hermanwallace.com/
     
    Social Media:
    Nancy Cullinane, PT, MHS, DPT, WCS on LinkedIn: https://www.linkedin.com/in/nancy-cullinane-pt-mhs-dpt-wcs-405866b1/
    FSC School of Physical Therapy on Instagram: https://www.instagram.com/fsc.dpt/
    Overlake Medical Center & Clinics on Facebook: https://www.facebook.com/overlakemedicalcenter
     
    Find Amber J Tresca at:
     
    Credits:
    Mix and sound design is by Mac Cooney: https://www.facebook.com/michaelandrewcooney
    Theme music, IBD Dance Party, is from Cooney Studio: https://michaelandrewcooney.bandcamp.com/track/ibd-dance-party-single
     
    Episode transcript and more information at: https:/bit.ly/AIBD117
    About IBD
    enMay 23, 2022
    health
    therapy
    pain
    colitis
    crohns
    ibd

    How to Be Happy & Healthy With IBD: The Psychosocial Impact of IBD

    How to Be Happy & Healthy With IBD: The Psychosocial Impact of IBD

    There are tools available to address the psychosocial impact of inflammatory bowel disease (IBD). Learn what’s available to you from Dr Jessica Naftaly, a GI behavioral health fellow at the University of Michigan and Amy Bugwadia, higher education coordinator for Generation Patient, Teaching Assistant at Stanford University School of Medicine, ulcerative colitis patient, and key opinion leader in the IBD community.

    Concepts discussed on this episode include:

    Find Jessica Naftaly, PhD on Twitter.

    Find Amy Bugwadia on Instagram, Facebook, LinkedIn, and at Generation Patient.

    Find Amber J Tresca at AboutIBD.com, Verywell, Facebook, Twitter, Pinterest, and Instagram.

    Credits: Mix and sound design is by Mac Cooney. Theme music, "IBD Dance Party," is from ©Cooney Studio.

    Episode transcript and more information at https:/bit.ly/AIBD116

    About IBD
    enMay 16, 2022
    stress
    therapy
    mental
    colitis
    digestion
    crohns
    ibd
    bowel
    gastropsychology
    gastropsych
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