Lewy Body Roller Coaster

Bill from Central Texas never foresaw becoming an expert in resilience and caregiving, but life's unpredictable turns have made him just that. As he opens up about his and Linda's encounters with Lewy Body Dementia, you'll find yourself moved by their tale of love, challenge, and unwavering commitment. Their story is a beacon of inspiration, guiding us through the murky waters of diagnosis and daily care.

Thank you all for your continued support and patience with us as we try really hard to get a new podcast done- hoping we get one a week but as you all know, Lewy and life sometimes get in the way. We know you all understand and support us anyway and for that we thank you!!! xoxo

Remember...We are doing this for all of us and we thank you from the bottom of our hearts.
Should you wish to bless us with your support for the podcast, you can  use links below.

Copy and paste link, if needed
https://patreon.com/lewybodyrollercoasterpodcast
the GoFundMe page at
https://gofund.me/c416ecb6
 
Thank you for listening. 
Don't forget to join our Lewy Body Roller Coaster Podcast Facebook page.

Welcome back to the podcast Sam and Tracie. Sam has LBD and shares his path to diagnosis. Tracie shares some great caregiver tips. Sam shares helpful uplifting ways he deals with his diagnosis and as Curry says...lives his best life.

A big shout out to all of our supporters!!

Thank you all for your continued support and patience with us as we try really hard to get a new podcast done- hoping we get one a week but as you all know, Lewy and life sometimes get in the way. We know you all understand and support us anyway and for that we thank you!!! xoxo

Remember...We are doing this for all of us and we thank you from the bottom of our hearts.
Should you wish to bless us with your support for the podcast, you can  use links below.

Copy and paste link, if needed
https://patreon.com/lewybodyrollercoasterpodcast
the GoFundMe page at
https://gofund.me/c416ecb6
 
Thank you for listening. 
Don't forget to join our Lewy Body Roller Coaster Podcast Facebook page.

Welcome to the podcast Sam and Tracie. Sam has LBD and shares his path to diagnosis. Tracie shares some great caregiver tips. Sam shares helpful uplifting ways he deals with his diagnosis and as Curry says...lives his best life.

A big shout out to all of our supporters!!

Thank you all for your continued support and patience with us as we try really hard to get a new podcast done- hoping we get one a week but as you all know, Lewy and life sometimes get in the way. We know you all understand and support us anyway and for that we thank you!!! xoxo

Remember...We are doing this for all of us and we thank you from the bottom of our hearts.
Should you wish to bless us with your support for the podcast, you can  use links below.

Copy and paste link, if needed
https://patreon.com/lewybodyrollercoasterpodcast
the GoFundMe page at
https://gofund.me/c416ecb6
 
Thank you for listening. 
Don't forget to join our Lewy Body Roller Coaster Podcast Facebook page.

When Miriam Owens bravely faced her diagnosis of Lewy body dementia at 54, it was a stark reminder that our health can take unexpected turns. Her story, rich with challenges and resilience, is the centerpiece of our latest episode, offering insights into the nuances of living with early-onset dementia. Join us as Miriam opens up about the changes she's navigated, the importance of advocating for oneself in the healthcare journey, and the empowering role support groups play in fostering community for those affected by LBD.
 
A big shout out to all of our supporters!!

Thank you all for your continued support and patience with us as we try really hard to get a new podcast done- hoping we get one a week but as you all know, Lewy and life sometimes get in the way. We know you all understand and support us anyway and for that we thank you!!! xoxo

Remember...We are doing this for all of us and we thank you from the bottom of our hearts.
Should you wish to bless us with your support for the podcast, you can  use links below.

Copy and paste link, if needed
https://patreon.com/lewybodyrollercoasterpodcast
the GoFundMe page at
https://gofund.me/c416ecb6
 
Thank you for listening. 
Don't forget to join our Lewy Body Roller Coaster Podcast Facebook page.

Welcome back! This week, it's just the two of us as we share some helpful comments on a few questions raised in the groups.... One of our fireside chats as Curry likes to call them. We discuss show timing versus fluctuations, how to deal with hallucinations and a few other topics.

We know everyone can't always see all the facebook comments and questions and some people don't even use Facebook so we wanted to share a few topics that have been talked about a lot recently.

Thank you all for your continued support and patience with us as we try really hard to get a new podcast done- hoping we get one a week but as you all know, Lewy and life sometimes get in the way. We know you all understand and support us anyway and for that we thank you!!! xoxo

Remember...We are doing this for all of us and we thank you from the bottom of our hearts.
Should you wish to bless us with your support for the podcast, you can  use links below.

Copy and paste link, if needed
https://patreon.com/lewybodyrollercoasterpodcast
the GoFundMe page at
https://gofund.me/c416ecb6
 
Thank you for listening. 
Don't forget to join our Lewy Body Roller Coaster Podcast Facebook page.

Part 2
Welcome back to the podcast, Teepa Snow! This time we wanted Teepa to come on and share all she has been up to as well as share all the ways you all can access her information. She discusses her PAC- Positive Approach to Care, her Teepa Talks, YouTube and more. We love partnering with her to bring educational information to you all. Enjoy this two part recording..we were having too much fun talking and sharing that it went longer tan we expected so we had to break into two parts but, and we hope you enjoy listening to this two part conversation.

Thank you all for your continued support and patience with us as we try really hard to get a new podcast done- hoping we get one a week but as you all know, Lewy and life sometimes get in the way. We know you all understand and support us anyway and for that we thank you!!! xoxo

Remember...We are doing this for all of us and we thank you from the bottom of our hearts.
Should you wish to bless us with your support for the podcast, you can  use links below.

Copy and paste link, if needed
https://patreon.com/lewybodyrollercoasterpodcast
the GoFundMe page at
https://gofund.me/c416ecb6
 
Thank you for listening. 
Don't forget to join our Lewy Body Roller Coaster Podcast Facebook page.
If you have a topic you would like us to discuss or wish to share your thoughts on any episode, please email us at lewybodyrollercoaster@gmail.com 

Welcome back to the podcast, Teepa Snow! This time we wanted Teepa to come on and share all she has been up to as well as share all the ways you all can access her information. She discusses her PAC- Positive Approach to Care, her Teepa Talks, YouTube and more. We love partnering with her to bring educational information to you all. Enjoy this two part recording..we were having too much fun talking and sharing that it went longer tan we expected so we had to break into two parts but, and we hope you enjoy listening to this two part conversation.

Thank you all for your continued support and patience with us as we try really hard to get a new podcast done- hoping we get one a week but as you all know, Lewy and life sometimes get in the way. We know you all understand and support us anyway and for that we thank you!!! xoxo

Remember...We are doing this for all of us and we thank you from the bottom of our hearts.
Should you wish to bless us with your support for the podcast, you can  use links below.

Copy and paste link, if needed
https://patreon.com/lewybodyrollercoasterpodcast
the GoFundMe page at
https://gofund.me/c416ecb6
 
Thank you for listening. 
Don't forget to join our Lewy Body Roller Coaster Podcast Facebook page.
If you have a topic you would like us to discuss or wish to share your thoughts on any episode, please email us at lewybodyrollercoaster@gmail.com 5

Welcome to 2024!
This week, it's just Podcast Linda and Curry with a fireside chat. Curry's Lewy symptoms have been pretty bad the last three weeks or so and he wanted to share. We discuss how he has gone over 34 hours without sleep , internal tremors and scary hallucinations.  As always, Curry tries to be as strong as he can be and wants to "ride it out" as he shares he has done many times before. It is just amazing how this disease truly has so many ups and downs and that no two people with LBD have same symptoms

Thank you all for your continued support and patience with us as we try really hard to get a new podcast done- hoping we get one a week but as you all know, Lewy and life sometimes get in the way. We know you all understand and support us anyway and for that we thank you!!! xoxo

Remember...We are doing this for all of us and we thank you from the bottom of our hearts.
Should you wish to bless us with your support for the podcast, you can  use links below.

Copy and paste link, if needed
https://patreon.com/lewybodyrollercoasterpodcast
the GoFundMe page at
https://gofund.me/c416ecb6
 
Thank you for listening. 
Don't forget to join our Lewy Body Roller Coaster Podcast Facebook page.
If you have a topic you would like us to discuss or wish to share your thoughts on any episode, please email us at lewybodyrollercoaster@gmail.com 5

This week its just Podcast Linda reading a poem written by one of our members, Rick Phelps. Rick wrote this poem in 2016 and gave us permission to share ith our listeners.
It really gives insight from someone with LBD and how he and many feel.

Thank you all for your continued support and patience with us as we try really hard to get a new podcast done- hoping we get one a week but as you all know, Lewy and life sometimes get in the way. We know you all understand and support us anyway and for that we thank you!!! xoxo

Remember...We are doing this for all of us and we thank you from the bottom of our hearts.
Should you wish to bless us with your support for the podcast, you can  use links below.

Copy and paste link, if needed
https://patreon.com/lewybodyrollercoasterpodcast
the GoFundMe page at
https://gofund.me/c416ecb6
 
Thank you for listening. 
Don't forget to join our Lewy Body Roller Coaster Podcast Facebook page.
If you have a topic you would like us to discuss or wish to share your thoughts on any episode, please email us at lewybodyrollercoaster@gmail.com 

This week we wanted to take a few minutes to update y'all on how we are doing. Curry's hallucinations have come back but he explains this has happened before and he was overstimulated with many visitors over the last 2-3 weeks so that is one factor that triggered his hallucinations.  One thing he unfortunately got to see that was NOT a hallucination  was the alien trying to come out of Podcast Linda's stomach. Quite a tale we have to share on that crazy yet scary experience.
We so appreciate all the well wishes you continue to send us and support us in doing this podcast. Even when we just have our fire side chat where we tell y'all about how Curry is feeling and how he copes.
We appreciate each and every one of you more than you know. xo

Remember...We are doing this for all of us and we thank you from the bottom of our hearts.
Should you wish to bless us with your support for the podcast, you can  use links below.

Copy and paste link, if needed
https://patreon.com/lewybodyrollercoasterpodcast
the GoFundMe page at
https://gofund.me/c416ecb6
 
Thank you for listening. 
Don't forget to join our Lewy Body Roller Coaster Podcast Facebook page.
If you have a topic you would like us to discuss or wish to share your thoughts on any episode, please email us at lewybodyrollercoaster@gmail.com 

Welcome Antionio and Barb G. This week, Antoni and Barb share with us their journey to diagnosis and beyond. They openly share some of Antonio's symptoms and then Antonio shares how he  still lives a good life even with LBD. Very heartwarming interview with two amazing people.

Remember...We are doing this for all of us and we thank you from the bottom of our hearts.
Should you wish to bless us with your support for the podcast, you can  use links below.

Copy and paste link, if needed
https://patreon.com/lewybodyrollercoasterpodcast
the GoFundMe page at
https://gofund.me/c416ecb6
 
Thank you for listening. 
Don't forget to join our Lewy Body Roller Coaster Podcast Facebook page.
If you have a topic you would like us to discuss or wish to share your thoughts on any episode, please email us at lewybodyrollercoaster@gmail.com 

Welcome care partner  Chris Gungor. We get to hear a male care partner's perspective as he cares for his love- Jamie Sue. Chris shares with us Jamie Sue's journey to get diagnosed and how they both manage her symptoms now. He also shares many helpful hints for other caregivers.

Remember...We are doing this for all of us and we thank you from the bottom of our hearts.
Should you wish to bless us with your support for the podcast, you can  use links below.

Copy and paste link, if needed
https://patreon.com/lewybodyrollercoasterpodcast
the GoFundMe page at
https://gofund.me/c416ecb6
 
Thank you for listening. 
Don't forget to join our Lewy Body Roller Coaster Podcast Facebook page.
If you have a topic you would like us to discuss or wish to share your thoughts on any episode, please email us at lewybodyrollercoaster@gmail.com 

This week, welcome Dr. Jason Cohen.
Dr. Cohen is a dementia specialist who answered many of our burning questions about LBD. We are sure some of our questions to him are some each of you would have asked. He said he would come on again, so if anyone has other questions to ask, please email them to us at lewybodyrollercoaster@gmail.com

Hearing his responses made us feel hope and he said everyone needs to share about their LBD experiences because the more we all share, tjhe more people will know what the disease is.

Remember...We are doing this for all of us and we thank you from the bottom of our hearts.
Should you wish to bless us with your support for the podcast, you can  use links below.

Copy and paste link, if needed
https://patreon.com/lewybodyrollercoasterpodcast
the GoFundMe page at
https://gofund.me/c416ecb6
 
Thank you for listening. 
Don't forget to join our Lewy Body Roller Coaster Podcast Facebook page.
If you have a topic you would like us to discuss or wish to share your thoughts on any episode, please email us at lewybodyrollercoaster@gmail.com 

This week welcome Tom and Dorie. Both Tom and Dorie discuss the  symptoms Tom had that prompted a doctor visit. Tom shares with us how he overcame denial  after being  diagnosed. They both share with us how they feel about attending the support meetings and all they gain from attending the  meetings. You will come to love them as much as all of us in the support meetings do.

Remember...We are doing this for all of us and we thank you from the bottom of our hearts.
Should you wish to bless us with your support for the podcast, you can  use links below.

Copy and paste link, if needed
https://patreon.com/lewybodyrollercoasterpodcast
the GoFundMe page at
https://gofund.me/c416ecb6
 
Thank you for listening. 
Don't forget to join our Lewy Body Roller Coaster Podcast Facebook page.
If you have a topic you would like us to discuss or wish to share your thoughts on any episode, please email us at lewybodyrollercoaster@gmail.com 

Welcome Back Podcaast Family!
This week, we share our thoughts on whether there are stages of LBD. There are so many different sites that speak of anywhere from 3-7 stages. We give our two cents on stages and then discuss what it was like for Podcast Linda with the Brain Foundation and Lewy research.

We are doing this for all of us and we thank you from the bottom of our hearts.
Should you wish to bless us with your support for the podcast, you can  use links below.

Copy and paste link, if needed
https://patreon.com/lewybodyrollercoasterpodcast
the GoFundMe page at
https://gofund.me/c416ecb6
 
Thank you for listening. 
Don't forget to join our Lewy Body Roller Coaster Podcast Facebook page.
If you have a topic you would like us to discuss or wish to share your thoughts on any episode, please email us at lewybodyrollercoaster@gmail.com 

We are back after a much needed break to handle many personal issues. Thank you all for your continued patience. Just as LBD is a roller coaster ride, so has been our lives been the last few months.

A big shout out to all of our supporters. We couldn't do all this without your help and support. xo

This episode, we do a quick recap of how this all got started..the podcast, our 5 support groups, 2 Facebook support pages and now  a LBD awareness documentary.

We share with you all what we have been involved in over the past year or so that many of you may not be aware of.  We have been working with a film crew on  a documentary about those with LBD and their caregivers. Since that the film is close to completion, we thought now is the perfect time to share more details with y'all.

Welcome this week,  the producer and director of the documentary we have been working on titled  Facing the Wind. -Tony Heriza and Diedre Fishel.
The four of us share more details about the film and what it was like to be a part of this project.

Please consider watching the documentary trailer ( link below) and clink on the donate button  to help get the film completion over the finish line. No amount is too small.
Go to: Facingthewindfilm.com or click on link below.

https://facingthewindfilm.com/

We are doing this for all of us and we thank you from the bottom of our hearts.
Should you wish to bless us with your support for the podcast, you can  use links below.

Copy and paste link, if needed
https://patreon.com/lewybodyrollercoasterpodcast
the GoFundMe page at
https://gofund.me/c416ecb6
 
Thank you for listening. 
Don't forget to join our Lewy Body Roller Coaster Podcast Facebook page.
If you have a topic you would like us to discuss or wish to share your thoughts on any episode, please email us at lewybodyrollercoaster@gmail.com 

This week we talk about bathroom related issues- specifically peeing and how to help your loved one hit the bowl. We share a lot of great suggestions from listeners and members of our support group pages that we hope will help you or your loved one deal with some Lewy issues around the bathroom.

We thank you all for your continued patience during the last months as Podcast Linda navigates life after the passing of her husband and Curry makes a few bigs moves.  xo

A shout out to all our supporters Carl Ladd, Eileen McGarity, Karen Wright  and to all of our supporters. xo

We are doing this for all of us and we thank you from the bottom of our hearts.
Should you wish to bless us with your support you can  use links below.

Copy and paste link, if needed
https://patreon.com/lewybodyrollercoasterpodcast
the GoFundMe page at
https://gofund.me/c416ecb6

Thank you for listening each week.
Don't forget to join our Lewy Body Roller Coaster Podcast Facebook page.
If you have a topic you would like us to discuss or wish to share your thoughts on any episode, please email us at lewybodyrollercoaster@gmail.com 

Welcome back Podcast Family. Curry and Linda have had very busy months and share news about big moves! Curry also shares with us how he has found a new freedom using his Jazzy chair and how it has changed his life for the better. Podcast Linda shares news about a big move coming but, also share some important advice for spouses and caregivers about what to do now and not put off.

We thank you all for your continued patience during the last months as Podcast Linda navigates life after the passing of her husband and Curry makes a few bigs moves.  xo

A shout out to all our supporters Carl Ladd, Lori Reiner, Beverly Weber and to all of our supporters. xo

We are doing this for all of us and we thank you from the bottom of our hearts.
Should you wish to bless us with your support you can  use links below.

Copy and paste link, if needed
https://patreon.com/lewybodyrollercoasterpodcast
the GoFundMe page at
https://gofund.me/c416ecb6

Thank you for listening each week.
Don't forget to join our Lewy Body Roller Coaster Podcast Facebook page.
If you have a topic you would like us to discuss or wish to share your thoughts on any episode, please email us at lewybodyrollercoaster@gmail.com 

This week Curry shares with us about his big move from Texas to Kansas and how all that made him feel. He also shares about his new fun mobile that has him scooting all around his new town...but we share ideas on how to make him and anyone with LBD safer to be out on their own.

A shout out to all our supporters Beverly Weber, Lori Reiner, Antonio and Barb Garcia.

We are doing this for all of us and we thank you from the bottom of our hearts.
Should you wish to bless us with your support you can  use links below.

Copy and paste link, if needed
https://patreon.com/lewybodyrollercoasterpodcast
the GoFundMe page at
https://gofund.me/c416ecb6

Thank you for listening each week.
Don't forget to join our Lewy Body Roller Coaster Podcast Facebook page.
If you have a topic you would like us to discuss or wish to share your thoughts on any episode, please email us at lewybodyrollercoaster@gmail.com 

We shared a link in the fb groups about a new study on how walking patterns differentiate the types of dementia from Medical News Today. We wanted to  share some highlights with you for you to share with your doctors.
 The causes of dementia can damage the brain in different ways. Is it possible that these differences may reveal themselves in the way that people walk? A new study that compared walking patterns in people with two types of dementia explored the question.

We discuss how the study was performed and the initial results. 

A shout out to all our supporters Cindy Hansen, Wendy Cogan, Deb Telem and Jill Lehrke.

We are doing this for all of us and we thank you from the bottom of our hearts.
Should you wish to bless us with your support you can  use links below.

Copy and paste link, if needed
https://patreon.com/lewybodyrollercoasterpodcast
the GoFundMe page at
https://gofund.me/c416ecb6

Thank you for listening each week.
Don't forget to join our Lewy Body Roller Coaster Podcast Facebook page.
If you have a topic you would like us to discuss or wish to share your thoughts on any episode, please email us at lewybodyrollercoaster@gmail.com