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    Living With Scanxiety: Cancer Podcast

    Join Rosaria Kozar, the mother of a warrior, as she interviews oncologists, pediatricians, survivors, parents, and other applicable organizations in the pediatric cancer world. If you need support as a caregiver or are just curious about childhood cancer, this is the show for you. Living With Scanxiety: Cancer Podcast discusses more than scans; it covers life during treatment and post-treatment. Subscribe, and I hope you will get some much-needed support from the show. Rosaria's mission is to inform, support, and promote hope.
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    Episodes (94)

    St. Baldrick's: Advocacy in Action with Scott and Rosalie

    St. Baldrick's: Advocacy in Action with Scott and Rosalie

    Season 6 Episode 2 When Scott, a childhood cancer survivor turned advocate, and Rosalie, the director of government relations and advocacy from St. Baldrick's Foundation, joined me, Rosaria Kozar, the conversation was nothing short of inspiring. Our dialogue cut through the complexities of advocacy, unraveling how crucial policies like the STAR Act shape the landscape of pediatric cancer care. We shared the often unseen struggles that follow the victory of 'beating' cancer — the continuous health battles, risks of secondary cancers, and the psychological toll on families.

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    T Cell Therapy: Is A Cure For Cancer Almost Here?

    T Cell Therapy: Is A Cure For Cancer Almost Here?

    Season 6 Episode One: Join me at the mic with Dr. Pei Wang, who is the Vice President of Clinical Development and Technical Operations, and Dr. Nicole Nunez, who is the Manager of Regulatory Affairs and Patient Engagement of Eureka Therapeutics. Eureka Therapeutics is a clinical-stage biopharmaceutical company located in the Bay Area of California, focused on developing novel therapies for cancer treatment, specifically solid tumors such as liver cancer. 

    Visit www.livingwithscanxiety.org for shownotes and more

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    An Interview with Stacey of The Rare Patient Voice

    An Interview with Stacey of The Rare Patient Voice

    Season 5 Episode Join me as I interview Stacey of  The Rare Patient Voice! I am so excited to publish this episode! She joined the Rare Patient Voice team in 2021. She is personable, empathetic, and caring about childhood cancer. Additionally, she builds long-lasting relationships with patients and family caregivers. The Rare Patient Voice connects patients and caregivers with research opportunities and more.

    More about the Rare Patient Voice:
    They are celebrating our 10th anniversary and have raised their patient and family caregiver reward to $120 an hour. Rare Patient Voice has over 100,000 participants in our panel and over 3,000 Referral Partners. 


    For more information and show notes:
    www.livingwithscanxiety.org

    Organization Website:
    www.rarepatientvoice.com

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    Lighthouse: A Retreat for Families Affected by Childhood Cancer

    Lighthouse: A Retreat for Families Affected by Childhood Cancer

    Season 5 Episode 5: Join me at the mic with Chris Woodruff, the CEO of Lighthouse. Lighthouse is a non-profit located in Georgia. Lighthouse's mission is to strengthen families living through childhood cancer by offering restorative retreats and helpful resources.  Tune in to hear about what they can provide for your family and the history behind what they do.


    For Show Notes and Links, visit:
    www.livingwithscanxiety.org

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    AYA Warrior Meg Gallagher Advocate, AYA Survivor, Driver of Awareness and More

    AYA Warrior Meg Gallagher Advocate, AYA Survivor, Driver of Awareness and More

    Season 5 Episode 4 Join me at the mic with Meg Gallagher, who discusses everything from friendship and the end of treatment. What she says about childhood cancer and aya cancer might surprise you. She gives a fresh perspective on life with and after cancer and advice for caregivers—a remarkable young woman and survivor of Leukemia.

    For show notes and more:
    www.livingwithscanxiety.org/shownotes

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    Mother of a Rhabdomyosarcoma Warrior, Therapist, and host of Family Chemotherapy

    Mother of a Rhabdomyosarcoma Warrior, Therapist, and host of Family Chemotherapy

    Season 5 Episode 3 Join me as I interview Adriana Lewin, a momcologist of a fantastic survivor. Hear her story of triumph during hardship and what she is up to now in the childhood cancer world. She is revolutionizing the coming together of caregivers through mental health and more. 

    For Show Notes Visit:
    www.livingwithscanxiety.com


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    Anna's Pals: Beach House for Immunocompromised Children

    Anna's Pals: Beach House for Immunocompromised Children

    Season 5 Episode 1: Join me while I speak with Kris Jerome, CEO of Anna's Pals believes that childhood cancer patients need a safe environment, away from the clinics and hospitals, to bond with family and friends. Listen and learn how they want to provide a place for immune-compromised children that will improve their morale and mindset.

    For Show Notes and More Visit:
    www.livingwithscanxiety.org

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    Sarcoma Alliance: Advocacy. Support, Inform, and Wellness

    Sarcoma Alliance: Advocacy. Support, Inform, and Wellness

    Season 4 Episode 6:  Listen and find out how you and your child can benefit from their services for sarcoma patients. A philanthropy professional, Alyssa O’Driscoll has been at the helm of the Sarcoma Alliance since 2017. She has a family history of sarcoma and knows the important role patient advocacy has when facing a difficult diagnosis. Alyssa’s experience includes leadership at healthcare nonprofits such as Harvard teaching hospital, Dana-Farber Cancer Institute, and Intermountain Healthcare. 
    She received her undergraduate degree from the University of Kentucky and holds both her MBA and MPA. In May 2021 she completed her Nonprofit Management Certificate from Harvard University Extension School. 

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    Part II: Dr. Baumgarten on Fran's Place: Center for Cancer Counseling

    Part II: Dr. Baumgarten on Fran's Place: Center for Cancer Counseling

    Season 4 Episode 4: Part II with Dr. Frances Baumgarten of Fran's Place: Center for Cancer Counseling. In this part, we discuss pediatric cancer, and how her Çancer for Counseling can help all people involved in the journey on a mental health level.


    For Show Notes Visit:
    www.livingwithscanxiety.org/shownotes


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    Natalie Nowroozi: ATRT, Research, and Social Media

    Natalie Nowroozi: ATRT, Research, and Social Media

    Season 4 Episode 1: Join me as I talk with the mother of Vincent The Conquer. He is currently battling pediatric brain cancer. We discuss all things cancer and Vincent's journey as a cancer warrior. Everything from neurosurgery to research and even social media is touched upon through her perspective. Learn how to better help your child through her story as a momcologist. 

    For Show Notes Visit:
    www.livingwithscanxiety.org

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    A Childhood Cancer Resource: Strong Little Souls

    A Childhood Cancer Resource: Strong Little Souls

    Season 3 Episode 12: Join me as you get an inside look at the non-profit Strong Little Souls. From customized care packages to wishes, they are worldwide accessible. But they offer so much more. Please tune in to find out what they can do for your child with cancer, also how this pediatric oncology support started.

    For Show Notes:
    www.livingwithscanxiety.org/shownotes

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    Marriage and Trauma: Valerie Hamaker; LPC, NCC, CPT, SATP

    Marriage and Trauma: Valerie Hamaker; LPC, NCC, CPT, SATP

    Season 3 Episode 11 Join me for a therapeutic look at what trauma can do to a relationship and how to hold it together with Valerie Hamaker; LPC, NCC, CPT, SATP. She is also the host of Voices About Living, which she will summarize during this show. So tune in and hear about siblings, marriage, and more during the face of childhood cancer. 

    For Show Notes Visit:
    www.livingwithscanxiety.org/shownotes

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