MS Podcasts

In this episode we chat with neurologist Dr Cassie Nesbitt, one of the principal investigators for haematopoietic stem cell transplantation (HSCT) at the Alfred Hospital in Melbourne. 

Cassie explains the process of HSCT, risks and considerations for accessing HSCT treatment overseas, as well as the current research on who is likely to benefit and how this is accessed in Australia. Cassie outlines things to consider when undergoing HSCT such as fertility preservation, and the impact of HSCT on the immune system. We chat about how hope plays a role in people taking risks for treatment, and the future of HSCT and treatment for MS. Cassie also highlights how collaborative the MS HSCT community of neurologists are, and that they welcome people who have undergone HSCT overseas to continue seeing their neurologists and engaging in their healthcare 

With thanks to Dr Cassie Nesbitt

Dr Cassie Nesbitt is a neurologist at Alfred Health in Melbourne. She is one of the principle investigators for HSCT at the Alfred, and one of the Autologous Haematopoietic Stem Cell Transplant (AHSCT) Registry Steering Committee Members.

You can read the episode transcript Here

For more information about HSCT:
MS Research Australia: https://www.msaustralia.org.au/ahsct/
Get in touch with MS Plus to speak with a Nurse Advisor about HSCT and treatment options

Reach out for support:
MS Plus Connect 1800 042 138 or email connect@msplus.org.au

Get in touch to share your comments and suggestions about this episode, or for future guests and episode topics by emailing education@ms.org.au

Views expressed on the MS Podcast, including any discussions or reference to medications or treatments by podcast guests, do not necessarily represent the views of MS Plus and should not be seen as either an endorsement or rejection of a treatment.  

MS Plus does not recommend any specific treatment for people living with MS. Decisions about any treatments, taking into consideration the potential benefits and side effects for each individual’s circumstances, should be made in careful consultation with the person’s neurologist or health care professional. 

With thanks to Olivia Wills.

Olivia is an Accredited Practising Dietitian and member of Dietitians Australia’s. She completed a Bachelor of Nutrition and Dietetics (Hons)(Deans Scholar) from the University of Wollongong in 2021. Olivia is now completing a PhD in multiple sclerosis and lifestyle management and is supported by a postgraduate scholarship from MS Australia.

At the heart of Olivia’s research is her commitment to enhancing the lives of those living with MS. Her research focuses on the impact of adopting protective health behaviours to maximise lifelong brain health and she is particularly passionate about translational research, engaging healthcare professionals and people living with MS to support her research findings into actionable strategies. 

Olivia also has experience in providing dietetic counselling services for a range of endocrine, gastrointestinal, metabolic disorders and neurological disorders. She is a firm believer of providing individualised and specific advice and support to all of her patients and is a strong advocate for adopting a holistic approach in the management of medical conditions.

Check out the episode transcript here.

Check out the Brain Health: time matters in multiple sclerosis report here.

Views expressed on the MS Podcast, including any discussions or reference to medications or treatments by podcast guests, do not necessarily represent the views of MS Plus and should not be seen as either an endorsement or rejection of a treatment.  

MS Plus does not recommend any specific treatment for people living with MS. Decisions about any treatments, taking into consideration the potential benefits and side effects for each individual’s circumstances, should be made in careful consultation with the person’s neurologist or health care professional. 

Linda Rowley, mental health consultant, delves into the complexities of mental health for carers, focusing on the overlooked experience of ambiguous loss. Linda discusses the importance of acknowledging these emotions, how to find meaning and hope, as well as the need for compassion and self-care for carers. 

Linda is a wellbeing specialist with a professional interest in ambiguous loss. Linda draws on current research on ambiguous loss and wellbeing science coupled with her own lived experience. With qualifications in business wellbeing, positive psychology and the neuroscience of leadership, Linda brings a robust evidence base to her work.

With thanks to :Linda Rowley

Please see episode Transcript 

Reach out for support:
MS Plus Connect 1800 042 138 or email connect@msplus.org.au

Get in touch to share your comments and suggestions about this episode, or for future guests and episode topics by emailing education@ms.org.au

Views expressed on the MS Podcast, including any discussions or reference to medications or treatments by podcast guests, do not necessarily represent the views of MS Plus and should not be seen as either an endorsement or rejection of a treatment.  

MS Plus does not recommend any specific treatment for people living with MS. Decisions about any treatments, taking into consideration the potential benefits and side effects for each individual’s circumstances, should be made in careful consultation with the person’s neurologist or health care professional. 

Check out the transcript here.

Medical Gaslighting: Multiple Sclerosis’ Dirty Little Secret? Authored by Rachel Horne

With thanks to Rachel Horne.

Rachel Horne is a journalist and MS advocate. Rachel was diagnosed with MS in 2009, age 43. She has written extensively about the disease and has co-authored a number of papers published in The BMJ, Neurology, Nature Reviews Neurology and other prestigious journals. Rachel has also appeared on BBC’s Radio Four to talk about living with MS. In 2022, she set up the Rachel Horne Prize for Women's Research in MS – an international, annual award which recognizes a woman scientist for their outstanding contribution to women’s health-related research in MS. Rachel is an Honorary Research Fellow at Queen Mary University, London and has a strong interest in promoting gender-equality and diversity in the MS community. She is on social media: @rachelhorne19.

Have you experienced medical gaslighting? We’d love to hear from you, get in touch to share your comments and suggestions about this episode, or for future guests and episode topics by emailing education@ms.org.au  

Reach out for support:

MS Plus Connect 1800 042 138 or email connect@msplus.org.au

Views expressed on the MS Podcast, including any discussions or reference to medications or treatments by podcast guests, do not necessarily represent the views of MS Plus and should not be seen as either an endorsement or rejection of a treatment.  

MS Plus does not recommend any specific treatment for people living with MS. Decisions about any treatments, taking into consideration the potential benefits and side effects for each individual’s circumstances, should be made in careful consultation with the person’s neurologist or health care professional. 

In this episode of the new fortnightly series, the MS Boost, we discuss a new subcutaneous delivery mode for Tysabri, with MS nurse Louise Rath and the things you need to consider when making a switch, including the practical considerations, efficacy, logistics to costs and potential side effects.

Check out a copy of the transcript here.

With thanks to Louise Rath, MS Nurse

Louise Rath is the MS neuroimmunology nurse consultant at Alfred Health in Melbourne, Victoria. She has over 20 years’ experience in public neurology services including outpatient appointments. Louise is the nurse clinical lead at the Alfred Multiple Sclerosis & Neuroimmunology Clinic focusing on patient experience, promoting engagement in health care and developing health literacy documents for the service with consumers.

For more information about medications, call MS Plus Connect to speak with an MS Nurse Advisor.

Reach out for support:
MS Plus Connect 1800 042 138 or email connect@msplus.org.au

Get in touch to share your comments and suggestions about this episode, or for future guests and episode topics by emailing education@ms.org.au 

Views expressed on the MS Podcast, including any discussions or reference to medications or treatments by podcast guests, do not necessarily represent the views of MS Plus and should not be seen as either an endorsement or rejection of a treatment.  

MS Plus does not recommend any specific treatment for people living with MS. Decisions about any treatments, taking into consideration the potential benefits and side effects for each individual’s circumstances, should be made in careful consultation with the person’s neurologist or health care professional. 

In this podcast episode, Leif Lagesen, an accredited practicing dietitian and habit science practitioner, discusses the mechanisms behind building better habits. He explores the steps involved in building long-lasting habits and shares his tips on how small changes can lead to lasting lifestyle changes. 

Leif is an accredited practicing dietitian, with dual degrees in Sport and Exercise and Nutrition Dietetics. He is highly energised by the fusion of behavioural change strategies with health technologies. His experience extends from working with national health coaching programs to clinical settings, and includes various collaborations with health tech startups.

With thanks to Leif.

Read episodes transcript here

Reach out for support:
MS Plus Connect 1800 042 138 or email connect@msplus.org.au

Get in touch to share your comments and suggestions about this episode, or for future guests and episode topics by emailing education@ms.org.au

Views expressed on the MS Podcast, including any discussions or reference to medications or treatments by podcast guests, do not necessarily represent the views of MS Plus and should not be seen as either an endorsement or rejection of a treatment.  

MS Plus does not recommend any specific treatment for people living with MS. Decisions about any treatments, taking into consideration the potential benefits and side effects for each individual’s circumstances, should be made in careful consultation with the person’s neurologist or health care professional. 

Summer brings the risk of natural disasters, and preparing mentally is just as important as preparing physically. In this podcast, Catherine and Michael, MS Social Work Advisors discuss the importance of preparing mentally for crisis, and strategies to help people feel confident this coming summer season.  

With thanks to Catherine and Michael

Read episodes transcript here

Reach out for support:
MS Plus Connect 1800 042 138 or email connect@msplus.org.au

Get in touch to share your comments and suggestions about this episode, or for future guests and episode topics by emailing education@ms.org.au

Views expressed on the MS Podcast, including any discussions or reference to medications or treatments by podcast guests, do not necessarily represent the views of MS Plus and should not be seen as either an endorsement or rejection of a treatment.  

MS Plus does not recommend any specific treatment for people living with MS. Decisions about any treatments, taking into consideration the potential benefits and side effects for each individual’s circumstances, should be made in careful consultation with the person’s neurologist or health care professional. 

With the current high cost of living, many households are impacted, and their budgets are tightening. In this podcast, Catherine and Michael, MS Social Work Advisors discuss how to tackle the cost-of-living crisis and how to find some financial relief, with no concession card required. 

With thanks to Catherine and Michael, MS Plus Social Work Advisors.

View the episodes transcript here.

Reach out for support:
MS Plus Connect 1800 042 138 or email connect@msplus.org.au

Get in touch to share your comments and suggestions about this episode, or for future guests and episode topics by emailing education@ms.org.au

Resources mentioned in today's episode:

Moneysmart
National Debt Line  Phone: 1800 007 007
Good Shepherd No Interest Loans (NILs)

Government Energy Comparison websites
Victoria
NSW, ACT, Queensland, South Australia and Tasmania

Being safe online:
Scam Watch

Views expressed on the MS Podcast, including any discussions or reference to medications or treatments by podcast guests, do not necessarily represent the views of MS Plus and should not be seen as either an endorsement or rejection of a treatment.  

MS Plus does not recommend any specific treatment for people living with MS. Decisions about any treatments, taking into consideration the potential benefits and side effects for each individual’s circumstances, should be made in careful consultation with the person’s neurologist or health care professional. 

Nutrition can play an important role for women when trying to conceive, and it can be hard to find evidence-based information when thinking about making changes to your diet. Accredited Practising Dietitian and Certified Fertility Dietitian, Mariam Metwally discuss the impact of nutrition on preconception and fertility, and the specific considerations for women with MS.

Mariam, founder of Tayyib Nutrition, is passionate about helping women gain relief from conditions like PCOS and supporting women optimise their diet and lifestyle to support fertility and preconception health. She's also passionate about MS and using diet and lifestyle to help improve quality of life, particularly for women in the preconception period. 

This podcast is presented as part of the MS Australia Community Program for Women’s Health Week 2023.

With thanks to Mariam Metwally from  Tayyib Nutrition

View the episode transcript here.

Reach out for support:
MS Plus Connect 1800 042 138 or email connect@msplus.org.au

Get in touch to share your comments and suggestions about this episode, or for future guests and episode topics by emailing education@ms.org.au

Views expressed on the MS Podcast, including any discussions or reference to medications or treatments by podcast guests, do not necessarily represent the views of MS Plus and should not be seen as either an endorsement or rejection of a treatment.  

MS Plus does not recommend any specific treatment for people living with MS. Decisions about any treatments, taking into consideration the potential benefits and side effects for each individual’s circumstances, should be made in careful consultation with the person’s neurologist or health care professional. 

Dr Francesca Bridge is a Multiple Sclerosis and Neuroimmunology Fellow at the Alfred Hospital and a PhD Candidate at Monash University.  Clinically, Francesca cares for people with multiple sclerosis and other neuroimmunological conditions.  Her research interests lie in women’s health and multiple sclerosis.  Specifically, the impact of menopause on MS disease activity and the risk of cervical cancer in MS. In this podcast, Dr Bridge discuss the relationship between sex hormones and MS disease activity, and clinical course, particularly around the time of menopause. She discusses treatments for women experiencing menopause and empowering women to talk about their experience, rather than suffer in silence.

With thanks to Dr Francesca Bridge.

View the episodes transcript here.

Reach out for support:
MS Plus Connect 1800 042 138 or email connect@msplus.org.au

Get in touch to share your comments and suggestions about this episode, or for future guests and episode topics by emailing education@ms.org.au

Views expressed on the MS Podcast, including any discussions or reference to medications or treatments by podcast guests, do not necessarily represent the views of MS Plus and should not be seen as either an endorsement or rejection of a treatment.  

MS Plus does not recommend any specific treatment for people living with MS. Decisions about any treatments, taking into consideration the potential benefits and side effects for each individual’s circumstances, should be made in careful consultation with the person’s neurologist or health care professional. 

For someone living with MS, the changes in sensory load and sensations can impact on one’s quality of life. In the Learn from Me series, MS Plus Peer support coordinator Kim chats with Mark who shares his experience of sensory symptoms since being diagnosed with MS. Mark discusses the challenges and offers helpful tips and strategies that help him manage every day.

With thanks to Mark Elisha, MS Peer.

Read the episode transcript here.

Reach out for support: MS Plus Connect 1800 042 138 or email connect@msplus.org.au

Get in touch to share your comments and suggestions about this episode, or for future guests and episode topics by emailing education@ms.org.au

Views expressed on the MS Podcast, including any discussions or reference to medications or treatments by podcast guests, do not necessarily represent the views of MS Plus and should not be seen as either an endorsement or rejection of a treatment.  

MS Plus does not recommend any specific treatment for people living with MS. Decisions about any treatments, taking into consideration the potential benefits and side effects for each individual’s circumstances, should be made in careful consultation with the person’s neurologist or health care professional. 

Good sleep can be hard to get, and it’s vital for wellbeing. Sleep Coach Carla Butler shares tips for good sleep, and why this is so critical for good health.

Presenter:

Carla Butler is a sleep and recovery coach, and a women’s health coach from Ora Sleep Coaching. Carla's passion for sleep coaching was sparked by her own personal tragedy, after her father passed away due to chronic disease, partly caused by his poor sleep health and Carla knew that she needed to take action to protect her own health and longevity. Through her own journey to better sleep, Carla has gained a wealth of knowledge and expertise that she now uses to help others live better lives through private coaching, public workshops, and corporate seminars. 

With thanks to Carla Butler.

Read the episode transcript here.

Reach out for support:

MS Plus Connect 1800 042 138 or connect@msplus.org.au

Get in touch to share your comments and suggestions about this episode, or for future guests and episode topics by emailing education@ms.org.au

Views expressed on the MS Podcast, including any discussions or reference to medications or treatments by podcast guests, do not necessarily represent the views of MS Plus and should not be seen as either an endorsement or rejection of a treatment.  

MS Plus does not recommend any specific treatment for people living with MS. Decisions about any treatments, taking into consideration the potential benefits and side effects for each individual’s circumstances, should be made in careful consultation with the person’s neurologist or health care professional. 

Anjelo Ratnachandra is the founder of Beyond Pain and an award-winning physiotherapist who established one of the first private chronic pain and fatigue physiotherapy services in Australia. Anjelo has extensive experience having worked with chronic illnesses for almost 2 decades, and also experiences chronic pain himself. Aside from his work at Beyond pain, he is on the board of Chronic Pain Australia. Anjelo discusses his experience with chronic pain and the importance of treating the many complex facets of pain, such as mental health.

With thanks to Anjelo Ratnachandra, Founder & Director from Beyond Pain

Read the episode transcript here.

Chronic Pain Australia's National Pain Week is Australia’s annual awareness event for chronic pain. National Pain Week takes place in the last week of July each year. National Pain Week 2023 will run from 24-30 July 2023. 

Reach out for support: MS Plus Connect 1800 042 138 or mail to connect@msplus.org.au  

Get in touch to share your comments and suggestions about this episode, or for future guests and episode topics by emailing education@ms.org.au

Views expressed on the MS Podcast, including any discussions or reference to medications or treatments by podcast guests, do not necessarily represent the views of MS Plus and should not be seen as either an endorsement or rejection of a treatment.  

MS Plus does not recommend any specific treatment for people living with MS. Decisions about any treatments, taking into consideration the potential benefits and side effects for each individual’s circumstances, should be made in careful consultation with the person’s neurologist or health care professional. 

Men face greater health risks than women in Australia, they are less likely to seek help from their doctor and often don’t go until an illness is in its later stages. Jeff Lawrance, Senior Delivery Manager and Occupational Therapist with the MS Plus Employment Support Service discusses the barriers that men with MS face in the workplace, and how things such as stereotypical views of masculinity can influence this. Jeff offers invaluable advice and strategies to help you overcome these barriers and assist you in making the changes to feel better at work. 

With thanks to Jeff Lawrance.

Read the episodes transcript here.

Reach out for support: MS Plus Connect 1800 042 138 or email to connect@msplus.org.au  
Want support at work, get in touch with the Employment Support Service

Get in touch to share your comments and suggestions about this episode, or for future guests and episode topics by emailing education@ms.org.au

Views expressed on the MS Podcast, including any discussions or reference to medications or treatments by podcast guests, do not necessarily represent the views of MS Plus and should not be seen as either an endorsement or rejection of a treatment.  

MS Plus does not recommend any specific treatment for people living with MS. Decisions about any treatments, taking into consideration the potential benefits and side effects for each individual’s circumstances, should be made in careful consultation with the person’s neurologist or health care professional. 

Clinical trials are essential for the development of new medications and interventions, but how are they run and what is involved when you agree to participate in one? Dr Therese Burke AM is working as the Clinical Platform Coordinator at MS Australia to bring adaptive clinical trials to life for people with multiple sclerosis. Therese has been working in clinical trials and research since 1993 and, explains what a clinical trial might involve for participants.

With thanks to Dr Therese Burke AM, Clinical Platform Coordinator at MS Australia

Read the episode transcript here.
For more information about clinical trials: MS Trials

Reach out for support: MS Plus Connect 1800 042 138 or email  connect@msplus.org.au  

Feedback? Email us at education@ms.org.au

Views expressed on the MS Podcast, including any discussions or reference to medications or treatments by podcast guests, do not necessarily represent the views of MS Plus and should not be seen as either an endorsement or rejection of a treatment.  

MS Plus does not recommend any specific treatment for people living with MS. Decisions about any treatments, taking into consideration the potential benefits and side effects for each individual’s circumstances, should be made in careful consultation with the person’s neurologist or health care professional. 

With thanks to Simon Webster, MS Trust UK

Read the episode transcript here.

Reach out for support: MS Plus Connect 1800 042 138 or email  connect@msplus.org.au  

Get in touch to share your comments and suggestions about this episode, or for future guests and episode topics by emailing education@ms.org.au

Views expressed on the MS Podcast, including any discussions or reference to medications or treatments by podcast guests, do not necessarily represent the views of MS Plus and should not be seen as either an endorsement or rejection of a treatment.  

MS Plus does not recommend any specific treatment for people living with MS. Decisions about any treatments, taking into consideration the potential benefits and side effects for each individual’s circumstances, should be made in careful consultation with the person’s neurologist or health care professional. 

MS Plus Executive Manager and Nurse Practitioner, Jodi Haartsen discusses the stigmatisation of women’s health issues, and the barriers women face to accessing and receiving quality care. Jodi also examines the future of women’s and girls’ health and how this will impact how we think of women’s health needs in MS.

Jodi is a registered MS Nurse who has helped thousands of patients over her 20 years’ experience at Eastern Health MS service in Australia, in several roles including nurse educator, research nurse and nurse practitioner. Jodi is the 2022 winner of the global MS Brain Health Leader Award in the Independent Healthcare Professionals category.

With thanks to Jodi Haartsen.

View the episodes transcript here.

Reach out for support:
MS Plus Connect 1800 042 138 or email connect@msplus.org.au

Get in touch to share your comments and suggestions about this episode, or for future guests and episode topics by emailing education@ms.org.au

Views expressed on the MS Podcast, including any discussions or reference to medications or treatments by podcast guests, do not necessarily represent the views of MS Plus and should not be seen as either an endorsement or rejection of a treatment.  

MS Plus does not recommend any specific treatment for people living with MS. Decisions about any treatments, taking into consideration the potential benefits and side effects for each individual’s circumstances, should be made in careful consultation with the person’s neurologist or health care professional. 

The prospect of having to use a wheelchair can be daunting and frightening for anyone. But it is sometimes necessary to ensure a person’s autonomy and ability to continue enjoying life. Join Mark on the 'Learn from me' podcast series as he shares his experience in adjusting to using a wheelchair to enhance his independence.

With thanks to Mark.

View the episodes transcript here.

Reach out for support:
MS Plus Connect 1800 042 138 or email connect@msplus.org.au

Get in touch to share your comments and suggestions about this episode, or for future guests and episode topics by emailing education@ms.org.au 

Views expressed on the MS Podcast, including any discussions or reference to medications or treatments by podcast guests, do not necessarily represent the views of MS Plus and should not be seen as either an endorsement or rejection of a treatment.  

MS Plus does not recommend any specific treatment for people living with MS. Decisions about any treatments, taking into consideration the potential benefits and side effects for each individual’s circumstances, should be made in careful consultation with the person’s neurologist or health care professional. 

As part of the ‘Learn from Me’ series, MS Plus Peer support coordinator, Kim speaks with the inspirational and very honest, Mark Wilson. They chat about the importance of staying connected with friends and how to stop letting things get in the way of catching up with your mates.

Read episode transcript here

With thanks to Mark.

View the episodes transcript here.

Reach out for support:
MS Plus Connect 1800 042 138 or email connect@msplus.org.au

Get in touch to share your comments and suggestions about this episode, or for future guests and episode topics by emailing education@ms.org.au

Views expressed on the MS Podcast, including any discussions or reference to medications or treatments by podcast guests, do not necessarily represent the views of MS Plus and should not be seen as either an endorsement or rejection of a treatment.  

MS Plus does not recommend any specific treatment for people living with MS. Decisions about any treatments, taking into consideration the potential benefits and side effects for each individual’s circumstances, should be made in careful consultation with the person’s neurologist or health care professional. 

Do you find yourself surrounded by stuff but don't know how or where to start to declutter? Declutter coach and professional organiser from Space and Time, Julie Cliff  is thrilled to share her passion for decluttering and getting organised. Listen in to hear Julie's top tips and tricks for "clearing out stuff" and refreshing your space.

With thanks to Julie Cliff, declutter coach from Space & Time

Reach out for support:

MS Plus Connect 1800 042 138 or emailconnect@msplus.org.au

Get in touch to share your comments and suggestions about this episode, or for future guests and episode topics by emailingeducation@ms.org.au

Views expressed on the MS Podcast, including any discussions or reference to medications or treatments by podcast guests, do not necessarily represent the views of MS Plus and should not be seen as either an endorsement or rejection of a treatment.  

MS Plus does not recommend any specific treatment for people living with MS. Decisions about any treatments, taking into consideration the potential benefits and side effects for each individual’s circumstances, should be made in careful consultation with the person’s neurologist or health care professional.