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batten disease
Explore " batten disease" with insightful episodes like "RNA Therapeutics: Recoding Drug Design, One Gene at a Time--Dr. Athma Pai", "Research screenings give rare disease families hope", "Carrying Grief – Bekah Bowman", "Can't Steal My Joy: Facing Unexpected Heartbreak – Bekah Bowman" and "Ep. 18: Speed vs. Safety: Rapid Approvals from the FDA" from podcasts like ""Science Straight Up", "Reimagining Rural Health | Sanford Health News", "Joni and Friends Ministry Podcast", "Joni and Friends Ministry Podcast" and "Sounds of Science"" and more!
Episodes (5)
Research screenings give rare disease families hope
Hello, and welcome to the “Reimagining Rural Health” podcast series, brought to you by Sanford Health. In this series, we explore the challenges facing health care systems across the country from improving access to equitable care, building a sustainable workforce, and discovering innovative ways to deliver high-quality, low-cost services in rural and underserved populations. Each episode examines how Sanford Health and other health systems are advancing care for the unique communities they serve.
In this episode, we're talking to Dr. Jill Weimer, who heads up the Weimer Lab at Sanford Research in Sioux Falls, South Dakota, about a potential breakthrough in screening for a rare disease.
Learn more about Sanford Health at: http://www.news.sanfordhealth.org
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Carrying Grief – Bekah Bowman
It’s not that she’s not grieving, it’s that she’s put her hope in someone that won’t disappoint. Something greater is happening in her grief.
On our last episode of the podcast, Bekah Bowman shared about finding beauty and goodness in the middle of unthinkable loss. As a coach's wife and mother to two young boys, Titus and Ely, Bekah served as a children's pastor and teacher until Batten disease came knocking at her door.
This week, she is talking about her journey with grief as she walked through the fatal diagnosis for both of her sons. Hear how she’s learned to hold both pain and joy simultaneously, and how God has used Bekah’s community to minister to her when she’s been unable to support herself.
If you are journeying with grief today, subscribe to the podcast. Be encouraged by Bekah’s conversation about experiencing Jesus in a whole new way in the middle of brokenness and loss.
Resources:
- Read Can’t Steal My Joy: The Journey to a Different Kind of Brave
- Find Bekah on Instagram and Facebook
Questions or comments? Email Crystal at podcast@joniandfriends.org
Support Joni and Friends to help make this podcast possible.
*Joni and Friends envisions a world where every person with a disability finds hope, dignity, and their place in the body of Christ. Join us in answering the call in Luke 14:21-23... until his house is full!
Founded by author and international disability advocate Joni Eareckson Tada, the ministry provides Christ-centered care that serves needs and transforms hearts through Joni's House, Wheels for the World, and Retreats and Getaways. Joni and Friends also equips individuals and churches with disability ministry training and provides higher education courses and internships through the Christian Institute on Disability. Find more encouragement through Joni's radio podcast, daily devotional, or by following us on Facebook, Instagram, and YouTube.
Can't Steal My Joy: Facing Unexpected Heartbreak – Bekah Bowman
How do you stay grounded when your life path takes an unexpected turn? Is it possible to hold pain in one hand and joy in the other? This week on the podcast, Bekah Bowman is sharing her journey of finding beauty and goodness amid unthinkable loss and grief.
Bekah is a coach's wife and mother to two boys, Titus and Ely. She served as a children's pastor and teacher until Batten disease came knocking at her door. Facing the heartbreak of a fatal diagnosis for both children, Bekah journeyed through dark valleys of death and grief. But it's been in these deeply broken places that she’s experienced Jesus in a whole new way.
If you are in a season of mourning or struggling with the heaviness of life, hear where Bekah has found hope and joy. Be encouraged to see wholeness in cracks, courage in the broken-hearted, and bravery in the act of letting go.
Resources:
- Read Can’t Steal My Joy: The Journey to a Different Kind of Brave
- Find Bekah on Instagram and Facebook
Questions or comments? Email Crystal at podcast@joniandfriends.org
Support Joni and Friends to help make this podcast possible.
*Joni and Friends envisions a world where every person with a disability finds hope, dignity, and their place in the body of Christ. Join us in answering the call in Luke 14:21-23... until his house is full!
Founded by author and international disability advocate Joni Eareckson Tada, the ministry provides Christ-centered care that serves needs and transforms hearts through Joni's House, Wheels for the World, and Retreats and Getaways. Joni and Friends also equips individuals and churches with disability ministry training and provides higher education courses and internships through the Christian Institute on Disability. Find more encouragement through Joni's radio podcast, daily devotional, or by following us on Facebook, Instagram, and YouTube.
Ep. 18: Speed vs. Safety: Rapid Approvals from the FDA
Genome mapping has made personalized medicine achievable, but how can the FDA balance safety requirements with the speed that is necessary for desperate patients?