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    batten's disease

    Explore " batten's disease" with insightful episodes like "The Pathway" and "Being the First" from podcasts like ""Vital Science" and "Vital Science"" and more!

    Episodes (2)

    The Pathway

    The Pathway

    Mila’s groundbreaking treatment, the first created and approved for a single patient, has given hope to thousands of rare-disease patients around the world. Hear Julia Vitarello, Mila’s Mom, and Dr. Timothy Yu discuss their plans to help other children with rare disease.

    Watch the documentary and learn more about Mila’s story at: www.criver.com/everystep

    In partnership with Mila’s Miracle Foundation, we are on a mission to bring this new treatment path to children fighting rare diseases. An anonymous donor will match up to $150,000 in donations to help with this fight, and Charles River has already donated $50,000 to get the campaign started.

    Join our giving campaign

    ACKNOWLEDGMENTS

    Hosted by: Gina Mullane and Chris Garcia
    Produced by: Meaghan Root and Ryan Stevenson
    Sound and Music by: Ryan Stevenson

    Special thanks to: Julia Vitarello, Dr. Timothy Yu, and Boston Children’s Hospital.

    Being the First

    Being the First

    Mila is a young girl fighting Batten Disease, a rare, fatal disease with no cure. Her Mom, Julia Vitarello sits down with Gina to tell the story of Mila’s diagnosis and her incredible journey since; from diagnosis to Mila’s experimental genetic treatment, created just for her.

    Watch the documentary and learn more about Mila’s story at www.criver.com/everystep.

    Hosted by: Gina Mullane and Chris Garcia
    Produced by: Meaghan Root, Ryan Stevenson
    Sound and Music by: Ryan Stevenson
    Special thanks to: Julia Vitarello, Dr. Timothy Yu, and Boston Children’s Hospital. 

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