bleeding disorders

WFH statement on the Israel-Palestine crisis

Presenting Sponsor:

Takeda, visit bleedingdisorders.com to learn more.

I’m Fine and Elite Athletes with Hemophilia are presented by @SanofiUS

Sanofi seeks to expand the idea of what’s possible for the hemophilia community. Take a deeper look at the science behind hemophilia and an important connection between factor activity levels and potential activities at LevelsMatter.com

Sanofi aims to raise the bar for the patients living with hemophilia. Reimagine what’s possible by visiting Rareblooddisorders.com to hear more about Sanofi’s dedication to the bleeding disorder community.

Watch "I'm Fine": A panel discussion webinar led by Patrick with The National Bleeding Disorders Foundation

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enOctober 27, 2023

Washington Days and Amy’s Big Win

BloodStream welcomes back NHF Vice President of Public Policy, Nathan Schaefer to talk everything Washington Days and advocacy! Plus, an interview with community member and social worker, Mosi Williams and a new segment of The Well. Oh, and Amy and Patrick share some personal advocacy wins and bummers too!

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Presenting Sponsor:

Takeda, visit bleedingdisorders.com to learn more.

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enFebruary 10, 2023

Connie Montgomery and a Let’s Talk Segment featuring Mike Hargett

BloodStream honors Black History Month with a series of interviews with community members and KOL’s Join us for this pop-up episode with Connie Montgomery as she shares her perspective with James Maple. Plus, Josh Bragg is back with another Let’s Talk featuring community member, Mike Hargett.

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Presenting Sponsor:

Takeda, visit bleedingdisorders.com to learn more.

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enFebruary 03, 2023

Legislative wins and losses & CDC’s Aditi Kantipuly

A legislative package was approved at the end of 2022 with several wins and several disappointments for the rare disease community–we talk about it! Also, we welcome Aditi Kantipuly, a Research Collaborator for the CDC for a chat about health equity. Plus, Jessica Lauren Richmond is back with The Well, a segment featuring 5 steps to make your new year’s resolutions stick.

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Presenting Sponsor:

Takeda, visit bleedingdisorders.com to learn more.

As part of H.R. 2617, Congress delivered several crucial programs and reforms that are important to the rare disease community — measures that NORD and the rare community fought for and will help speed efforts to develop effective therapies and expand access to care.

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