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    bloodstream

    Explore "bloodstream" with insightful episodes like "#48 - “Soaring to the Sky” How Patient Navigators are Changing Sickle Cell with Dr. Wally Smith", "#47 - “Reproductive Health in Sickle Cell” with Dr. Lydia Pecker", "#46 - Fueled by Connections: Agios and the Sickle Cell Community with special guest host, Blaze Eppinger and guest Sarah Gheuens, Chief Medical Officer at Agios Pharmaceuticals.", "#45 - “Man in the Arena” A Conversation with Dr. Mark T. Gladwin" and "In Remembrance of Hertz Nazaire" from podcasts like ""Cheat Codes: A Sickle Cell Podcast", "Cheat Codes: A Sickle Cell Podcast", "Cheat Codes: A Sickle Cell Podcast", "Cheat Codes: A Sickle Cell Podcast" and "Cheat Codes: A Sickle Cell Podcast"" and more!

    Episodes (91)

    #48 - “Soaring to the Sky” How Patient Navigators are Changing Sickle Cell with Dr. Wally Smith

    #48 - “Soaring to the Sky” How Patient Navigators are Changing Sickle Cell with Dr. Wally Smith
    Dr. Z and Dr. C talk shop with Dr. Wally Smith on how Patient Navigators are changing sickle cell disease.

    Show Notes:

    Episode Sponsor: Novartis,  For 40 years Novartis has been committed to helping individuals living with sickle cell disease.  Through research, educational resources and access programs, we will continue our efforts to support patients, healthcare providers and caregivers.

    Dr. Ahmar Zaidi on Twitter

    Dr. Michael Callaghan on Twitter

     

    Subscribe to and rate Cheat Codes

    BloodStream Media

    For all inquiries: mailbag@bloodstreammedia.com

    #47 - “Reproductive Health in Sickle Cell” with Dr. Lydia Pecker

    #47 - “Reproductive Health in Sickle Cell” with Dr. Lydia Pecker
    Dr. C and guest host Amy Board of BloodStream Media talk to Dr. Lydia Pecker about Reproductive Health in Sickle Cell. Hear Dr. Pecker’s thoughts on menstrual cycles with sickle cell, fertility, contraception and more on this important, little discussed topic. A must listen!

    Show Notes:

    Episode Sponsor: Novartis. For 40 years Novartis has been committed to helping individuals living with sickle cell disease.  Through research, educational resources and access programs, we will continue our efforts to support patients, healthcare providers and caregivers.

    Dr. Lydia Pecker on Twitter

    Dr. Ahmar Zaidi on Twitter

    Dr. Michael Callaghan on Twitter

    Guest Host Amy Board on Twitter

     

    Subscribe to and rate Cheat Codes

    BloodStream Media

    For all inquiries: mailbag@bloodstreammedia.com (subject: Cheat Codes)

    #46 - Fueled by Connections: Agios and the Sickle Cell Community with special guest host, Blaze Eppinger and guest Sarah Gheuens, Chief Medical Officer at Agios Pharmaceuticals.

    #46 - Fueled by Connections: Agios and the Sickle Cell Community with special guest host, Blaze Eppinger and guest Sarah Gheuens, Chief Medical Officer at Agios Pharmaceuticals.
    With the goal of getting a better understanding of Agios and their vision for partnering with the sickle cell community and being “fueled by connections,” join us as guest host, with special guest host, and patient advocate Blaze Eppinger returns to the show for a discussion with Agios’ and guest Sarah Gheuens, Chief Medical Officer, at Agios Pharmaceuticals. 

    Show Notes:

    Guest Host Blaze Eppinger on Instagram

    Dr. Ahmar Zaidi on Twitter

    Dr. Michael Callaghan on Twitter

     

    Subscribe to and rate Cheat Codes

    BloodStream Media

    For all inquiries: mailbag@bloodstreammedia.com (subject: Cheat Codes)

    #45 - “Man in the Arena” A Conversation with Dr. Mark T. Gladwin

    #45 - “Man in the Arena” A Conversation with Dr. Mark T. Gladwin
    Cheat Codes welcomes Dr. Mark T. Gladwin to talk about Pulmonary hypertension in sickle cell disease with Dr. Z and Dr. C.

    Show Notes:

    Episode Sponsor: Novartis. For 40 years Novartis has been committed to helping individuals living with sickle cell disease.  Through research, educational resources and access programs, we will continue our efforts to support patients, healthcare providers and caregivers.

    Sickle Cell Disease (textbook) by Mark T. Gladwin, M.D.

    Dr. Ahmar Zaidi on Twitter

    Dr. Michael Callaghan on Twitter

     

    Subscribe to and rate Cheat Codes

    BloodStream Media

    For all inquiries: mailbag@bloodstreammedia.com (subject: Cheat Codes)



    In Remembrance of Hertz Nazaire

    In Remembrance of Hertz Nazaire
    On October 29th, 2021, Hertz Nazaire, a prominent sickle cell warrior and prolific artist, passed away at age 48. In honor of Hertz, we’re re-airing Dr. Z’s interview with him for Cheat Codes, originally published in December of 2020. 

    Show Notes:

    Homegoing Expenses for Hertz

    Sickle Cell Disease: a battle for equality, justice and respect | Ahmar Zaidi | TEDxDetroit

    Program Notes:

    Subscribe to Cheat Codes on Apple Podcasts

    Dr. Ahmar Zaidi on Twitter

    Dr. Michael Callaghan on Twitter

    BloodStream Media - Cheat Codes - Website

    For all inquiries: mailbag@bloodstreammedia.com (subject: Cheat Codes)

    #44 - Fueled by Connections: Agios and the Sickle Cell Community with special guest host, Blaze Eppinger and guests Darrin Miles, Agios Chief Commercial Officer and Agios Head of Patient Advocacy, Holly John

    #44 - Fueled by Connections: Agios and the Sickle Cell Community with special guest host, Blaze Eppinger and guests Darrin Miles, Agios Chief Commercial Officer and Agios Head of Patient Advocacy, Holly John
    With the goal of getting a better understanding of Agios and their vision for partnering with the sickle cell community, join us as guest host, Blaze Eppinger speaks with Darrin Miles, the Chief Commercial Officer and Holly John, the Head of Patient Advocacy both of Agios Pharmaceuticals. 



    Show Notes:



    Guest Host Blaze Eppinger on Instagram

    Dr. Ahmar Zaidi on Twitter

    Dr. Michael Callaghan on Twitter

     

    Subscribe to and rate Cheat Codes

    BloodStream Media

    For all inquiries: mailbag@bloodstreammedia.com (subject: Cheat Codes)

    #43 - “Can Gene Therapy Live Long and Prosper?” A Conversation with Dr. Mitch Weiss and Dr. Vijay Sankaran

    #43 - “Can Gene Therapy Live Long and Prosper?” A Conversation with Dr. Mitch Weiss and Dr. Vijay Sankaran
    Dr. Z and Dr. C chop it up with two of the foremost experts (Mitch and Vijay) on the science of gene therapy in sickle cell disease.

     

    Show Notes:

     

    Episode Sponsor: Novartis,  For 40 years Novartis has been committed to helping individuals living with sickle cell disease.  Through research, educational resources and access programs, we will continue our efforts to support patients, healthcare providers and caregivers.

     

    Dr. Vijay Sankaran on Twitter

    Dr. Mitch Weiss Email at St.Judes

     

    Dr. Ahmar Zaidi on Twitter

    Dr. Michael Callaghan on Twitter

     

    Subscribe to and rate Cheat Codes

    BloodStream Media

    For all inquiries: mailbag@bloodstreammedia.com (subject: Cheat Codes)

    #42 - Pediatric to Adult Care - Transitioning with Sickle Cell Disease w/ Dr. Nirmish Shah

    #42 - Pediatric to Adult Care - Transitioning with Sickle Cell Disease w/ Dr. Nirmish Shah
    Dr. Nirmish Shah, the Director of Duke University’s sickle cell transition program, joins Cheat Codes to discuss the numerous challenges associated with helping patients with sickle cell disease successfully transition from pediatric to adult care.

     

    Show Notes:

    Episode Sponsor: Novartis,  For 40 years Novartis has been committed to helping individuals living with sickle cell disease.  Through research, educational resources and access programs, we will continue our efforts to support patients, healthcare providers and caregivers.

     

    Dr. Ahmar Zaidi on Twitter

    Dr. Michael Callaghan on Twitter

     

    Subscribe to and rate Cheat Codes

    BloodStream Media

    For all inquiries: mailbag@bloodstreammedia.com (subject: Cheat Codes)

    #41 - Sickle Cell in Jamaica and Around the World w/ Graham Serjeant

    #41 - Sickle Cell in Jamaica and Around the World w/ Graham Serjeant

    Graham Serjeant, a British-born medical researcher best known for his multi-decade study of sickle cell disease in Jamaica, joins Cheat Codes to share stories and learnings from across his storied career.

     

    Show Notes:

    Episode Sponsor: Novartis,  For 40 years Novartis has been committed to helping individuals living with sickle cell disease.  Through research, educational resources and access programs, we will continue our efforts to support patients, healthcare providers and caregivers.

     

    Graham Roger Serjeant on Wikipedia: https://bit.ly/GRSwiki

    Link to Jamaican Cohort Study Article: https://bit.ly/38auoRO

     

    Dr. Ahmar Zaidi on Twitter

    Dr. Michael Callaghan on Twitter

     

    Subscribe to and rate Cheat Codes

    BloodStream Media

    For all inquiries: mailbag@bloodstreammedia.com (subject: Cheat Codes)

    #40 - Think COVID Through with Dr. Lewis Hsu.

    #40 - Think COVID Through with Dr. Lewis Hsu.

    Dr. Z and Dr. C chop it up with Dr. Lewis Hsu, CMO of Sickle Cell Disease Association of America to get an update on COVID-19 and sickle cell disease!

     

    Show Notes:

    Dr. Ahmar Zaidi on Twitter

    Dr. Michael Callaghan on Twitter

    BloodStream Media

    For all inquiries: mailbag@bloodstreammedia.com (subject: Cheat Codes)

    Subscribe to and rate Cheat Codes

     

    Connect with BloodStream Media:

    Find all of our bleeding disorders podcasts on BloodStreamMedia.com

    BloodStream on Facebook

    BloodStream on Twitter

    #39 - "Just Get Out of My Way": Mapillar is Making Moves

    #39 - "Just Get Out of My Way": Mapillar is Making Moves

    Mapillar Dahn is a woman on a mission. Her organization, MTS, is not going to be stopped by anyone.  She is advocacy personified.  Dr. Z and Dr. C spend some time gleaning insight from this immense figure in sickle cell advocacy.

    Learn more about My Three Sicklers 

    Dr. Ahmar Zaidi on Twitter

    Dr. Michael Callaghan on Twitter

    BloodStream Media

    For all inquiries: mailbag@bloodstreammedia.com (subject: Cheat Codes)

    Subscribe to and rate Cheat Codes

    Subscribe to and rate The BloodStream Podcast

    Subscribe to and rate The Ask The Expert Podcast

    Subscribe to and rate BloodStream Journeys

    Connect with BloodStream Media:

    Find all of our bleeding disorders podcasts on BloodStreamMedia.com

    BloodStream on Facebook

    BloodStream on Twitter

    BDC Preview Party w/ NHF Staff

    BDC Preview Party w/ NHF Staff

    Patrick and guest co-host Mel Forrest welcome on members of National Hemophilia Foundation's staff to preview the community's biggest annual meeting of the year. 

    Show Notes:

    PRESENTING SPONSOR: Takeda 

    EPISODE SPONSOR: MyFactorFam.com

    REGISTER for BDC: https://bit.ly/3jT9SdJ

    CHECK out BDC Interactive program: https://bit.ly/3iJEcIJ

    LISTEN to The Pain Podcast

    SUBSCRIBE to BloodStream on Apple Podcasts

    CHECK out all our stuff

     

    BloodStream LIVE - HTC Psychologist Emily Wheat and new music from Max Feinstein

    BloodStream LIVE - HTC Psychologist Emily Wheat and new music from Max Feinstein
    Patrick and Amy are LIVE and joined by Alex Abreu Boria to chat about next month's Bleeding Disorders Conference, Emily Wheat to discuss the role of a clinical psychologist in the treatment center, Joshua Sterling Bragg with the latest Let's Talk mental health segment, and Max Feinstein shares his brand new song, "Dear Anxious." 
     

    Show Notes:

     

    PRESENTING SPONSOR: Takeda 

    SUBSCRIBE to BloodStream on Apple Podcasts

    CHECK OUT all our stuff

     

     

    Baby on Tour, Shared Decision Making + the ACA is here to stay!

    Baby on Tour, Shared Decision Making + the ACA is here to stay!

     Patrick and Amy catchup during the Lynch family’s east coast tour and discuss recent articles on California v Texas, shared decision making models, and safety related to AAV gene therapy.


    Show Notes:

     

    PRESENTING SPONSOR: Takeda 

    CONNECT with Genentech

    SUBSCRIBE to BloodStream on Apple Podcasts

    CHECK OUT all our stuff

    NEW BloodStream Media Website

    JD Supra Article - California v. Texas

    Article on Shared Decision-Making

    Gene Therapy Article

     

    #37 - Impact Players on Third and Long: Santonio Holmes and Martenzie Johnson

    #37 - Impact Players on Third and Long: Santonio Holmes and Martenzie Johnson

    Santonio Holmes, Super Bowl XLIII MVP and founder of the III & Long Foundation is joined by Martenzie Johnson, writer for ESPN's "The Undefeated", on this week's episode as they discuss the importance of Sickle Cell screening and advocacy within sports organizations, as well as their close and personal connections to Sickle Cell Disease and Trait.

     

    Dr. Ahmar Zaidi on Twitter

    Dr. Michael Callaghan on Twitter

    BloodStream Media

    Connect with BloodStream Media:

    Find all of our bleeding disorders podcasts on BloodStreamMedia.com

    BloodStream on Facebook

    BloodStream on Twitter

    Howlin' Rays, coffee's the new vitamins, and Two Disabled Dudes!

    Howlin' Rays, coffee's the new vitamins, and Two Disabled Dudes!

    Patrick and Amy are LIVE and discuss some unfortunate lunchtime mishaps and new studies on coffee before Josh leads the latest Let's Talk mental health segment and Patrick leads a talk with Sean and Kyle, hosts of the Two Disabled Dudes Podcast.  

    Notes:

    Presenting Sponsor: TAKEDA - bit.ly/TakedaBDsite

    Let’s Talk Segment Sponsor: SANOFI GENZYME - http://bit.ly/LetsTalkMHBSP

    CHECK OUT Two Disabled Dudes Podcast: https://bit.ly/3cPcM0z

    READ The Health Benefits of Coffee: https://nyti.ms/3gGrl7J

    CHECK OUT all our stuff:  bit.ly/AllBloodStreamStuff

    SUBSCRIBE to BloodStream on Apple Podcasts: bit.ly/BSPAP

    What do hormones do?

    What do hormones do?

    In episode 06, Christie and Jessica sit back down with Girlology’s Dr. Melissa Holmes to ask “What are hormones?” and “What do hormones do in the body?” More hard hitting questions include:

    How do hormones regulate menstruation?

    Can hormones cause abnormal physical symptoms?

    What are the benefits and risks of hormone replacement therapy (birth control)?

    What hormones shift during menopausal years?

    When is hormone replacement the right treatment course for menopausal years?

    ...Is it true that menstruators can ‘sync up’ their cycles because of hormones?

    PLUS - tips for tracking your cycle, upcoming events, and (as always) a reminder that you’re not crazy! 

    Program Notes:

    Hormones are messengers in the body, helping to regulate menstruation and menopause. What do hormones do in the body? How do they do what they do? Our Flow team asks hard-hitting questions of OB-GYN and co-founder of Girlology, Dr. Melissa Holmes!

    LINKS:

    GIRLOLOGY: https://girlology.com/

    Christie’s Course: https://howtotalktoyourdoctor.thinkific.com/courses/healthdisparities

    “The Controversial History of Hormone Replacement Therapy”: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6780820/

    Find our Hosts on Instagram:  @jessicalaurenrichmond @christie_publichealth

    FLOW is sponsored by Takeda, the manufacturer of a treatment for adults with von Willebrand disease. To see if this treatment might be right for you and your needs, visit: https://ssshare.it/HUcR 

     

    Connect with BloodStream Media:

    Find all of our bleeding disorders podcasts on BloodStreamMedia.com

    BloodStream on Facebook 

    BloodStream on Twitter 

     

    Check out Believe Limited’s Other Work:

    BloodFeed: bloodfeed.com

    Bombardier Blood: bombardierblood.com

    Hemophilia: The Musical: breakingthroughhemophilia.com

    My Beautiful Stutter: mybeautifulstutter.com/

    Stop The Bleeding!: stbhemo.com

    Teen Impact Awards: teenimpactawards.com

    The Science Fair: thesciencefair.org



    #36 - This is Why We Call it Advanced Practice

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