blue_baby_syndrome

This is the 3rd episode in our CHD Spotlight mini-series and we'll be talking about Tetralogy of Fallot.

Our expert Guest is Roslyn Rivera and she is a pediatric cardiology nurse who was also born with a congenital heart defect. In this episode, Roslyn shares with Anna what tetralogy of Fallot is, who coined the term for this complex congenital heart condition, what methods are used to palliate the condition, what some possible causes of the condition are, and survival rates for babies born with ToF.

In the second segment, Roslyn even shares the name of a famous athlete born with ToF, proving that ToF doesn't have to mean that a person will have an inferior life and that there is great hope for babies born with this heart condition today.

Other Heart to Heart with Anna episodes featuring Rosyln Rivera, RN:

Congenital Heart Defects Around the Globe: The Novak Cardiac Alliance
https://www.buzzsprout.com/62761/398936
A View From the Other Side of the Bed
https://www.buzzsprout.com/62761/499730
Nurse Burnout in the CHD Community Part 1
https://www.buzzsprout.com/62761/2773843
Nurse Burnout in the CHD Community Part 2
https://www.buzzsprout.com/62761/2839018

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Baby Blue Sound Collective

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Mike Edenburn was born in 1943 with Tetralogy of Fallot (ToF). Mike was the 44th patient to receive the Blalock Taussig shunt. On October 2, 1945, Dr. Alfred Blalock, Vivian Thomas, and Dr. Denton Cooley performed heart surgery on Mike. After the surgery, Mike turned from blue to pink and was able to breathe freely for the first time in his life. Mike enjoyed good health until an auto accident at the age of 20 left him with subacute bacterial endocarditis, where it was discovered that the shunt was no longer sufficient. Dr. Horace Stansel performed another TOF repair on Mike's 21st birthday in 1964. Mike is a computer specialist, entrepreneur, family man, devoted Catholic, and volunteer with friends from everywhere. He is involved with the Rotary Club's Gift of Life program, which provides life-saving care to children with heart problems. Today, Mike is 77 years old and very grateful to Our Lord and medical professionals responsible for his good health. 

Today Mike will talk with Anna about the legendary doctors who worked with him, the choices he made in life and what kind of quality of life he has had, and what advice he has for others who are currently living with congenital heart defects. In the last segment, Mike shares with Anna what it's meant to him to be part of the Rotary Club's Gift of Life Program and how he has witnessed it change the lives of its recipients.

Links mentioned in the program:

Mike's Rotary club website: http://rotarycebu.org/
Mike's Rotary club Facebook page: https://www.facebook.com/rotarycebu
Gift of Life International website: https://www.giftoflifeinternational.org/

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Anna's Buzzsprout Affiliate Link

Baby Blue Sound Collective

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Twitter
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