coarctation_of_the_aorta

Why would a Heart Warrior choose to become a Nurse Practitioner? What does the liver and liver health mean to a Fontan Heart Warrior? What does the future hold for people with single ventricle hearts and compromised livers?


Mary is a 29-year-old female with hypoplastic right heart syndrome, atrial septal defect, transposition of the great vessels, and coarctation of the aorta. At 9 days old, she had the Norwood, then at 3-6 months old, the Glenn, and Fontan around 2 years old. After the Fontan, she saw her pediatric cardiologist semiannually for routine checkups but overall felt like a “normal” child. At 15, she started having increased fatigue, which led to a pacemaker/defibrillator implantation. She was so inspired by the healthcare providers caring for her that she earned a nursing (BSN) and Nurse Practitioner degree (Doctor of Nursing Practice - DNP). She began working as a nurse practitioner in Gastroenterology and eventually hepatology. She is passionate about working with congenital heart disease patients with chronic liver disease. She has also become an advocate for CHD and started a website called notaperfectheart with her mom.

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Mary's website: http://notaperfectheart.com/

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Aubyn Baker-Riley is an adult born in 1963 with a bicuspid aortic valve and coarctation of the aorta. She had open-heart surgery at 7 years of age to widen the coarctation and ablations in 2005, 2016 and 2018. She is currently in heart failure.

Although Aubyn is only in her 50s, it's unusual for someone like her to have made it to adulthood. Many people born in the 1960s, and even in the next decade, succumbed to their heart defects before reaching adulthood. What has Aubyn's path been like for her? What symptoms and warning signs has she had?

More importantly, what is it like to live in heart failure? What are some coping techniques that can be used if you are in heart failure? Aubyn answers these questions and more in today's episode of "Heart to Heart with Anna."

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If you enjoy this program and would like to be a Patron, please check out our Patreon page: https://www.patreon.com/HeartToHeart

Anna's Buzzsprout Affiliate Link

Baby Blue Sound Collective

Social Media Pages:

Apple Podcasts
Facebook
Instagram
MeWe
Twitter
YouTube
Website

Anna's Buzzsprout Affiliate Link

Baby Blue Sound Collective

Social Media Pages:

Apple Podcasts
Facebook
Instagram
MeWe
Twitter
YouTube
Website