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Dr. John Schuen is the division Chief of Pediatric Aerodigestive Specialties at Helen DeVos Children’s hospital in Grand Rapids.  He is also the director of the CF care center.  We’re talking to Dr. Schuen to discuss all that they have going on for CF patients in Grand Rapids. And why he decided to become a CF doctor.

You are a specialist in so many areas, in addition to CF, in sleep medicine as well.  Why did you decide to become a doctor, and specifically why did CF draw you in?

I wanted to do this podcast to highlight all the great things that you and Dr. Susan Millard are doing and Dr. Johanna Zea-Hernandez. Overall how many patients do you have in the pediatric department and what are you seeing since the latest modulator came about in 2019?

(Laura did have a cold through this podcast).

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John Schuen serves as division chief of Pediatric Aerodigestive Specialties at Helen DeVos Children’s Hospital. Schuen provides medical care of children with complex pulmonary, respiratory related problems and sleep disorders. He also serves as medical director of the pediatric sleep laboratory, center director of cystic fibrosis care center at Helen DeVos Children’s Hospital. He is board certified in pediatric pulmonology and sleep medicine.

After matriculating from Albion College, Dr. Schuen earned his medical degree from Michigan State University College of Human Medicine. He completed his residency in pediatrics at the Cleveland Clinic and fellowship in pediatric pulmonology & sleep medicine at Johns Hopkins Hospitals.

Dr. Schuen has been a member of numerous professional organizations including the American Academy of Pediatrics, the American College of Chest Physicians, the American Academy of Sleep Medicine, and the American Thoracic Society.  He serves on statewide and national committees devoted to advancing lung health in children such as the Cystic Fibrosis Newborn Screen Task Force as well as the Center Committee of the Cystic Fibrosis Foundation. The CF Care Center is also a member of the Cystic Fibrosis Learning Network as well as the Therapeutic Development Network. The Helen DeVos Children’s Hospital CF Care center also collaborates with Michigan State University to create and foster new research in their new Cystic Fibrosis Translational Research Program. 

The Pediatric Pulmonary section recently launched the system’s first Pediatric Pulmonary fellowship program and currently has two wonderful fellows. 

He chaired the Cystic Fibrosis Foundation’s Center Committee for two consecutive terms during the pandemic and is ex officio of Spectrum Health West Michigan’s Medical Group Committee of the Board.

He has published multiple original journal articles, book chapters, reviews as well as delivered dozens of invited talks devoted to advancing the state of the art in child’s lung and sleep health.

Helen DeVos Children's Hospital: https://www.spectrumhealth.org/for-health-professionals/referrals-and-consultations/pulmonary-critical-care-and-sleep-medicine/cystic-fibrosis-clinic

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The Bonnell Foundation website: https://thebonnellfoundation.org

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Please consider making a donation: https://thebonnellfoundation.org/donate/

The Bonnell Foundation website:https://thebonnellfoundation.org

Email us at: thebonnellfoundation@gmail.com 

Thanks to our sponsors:

Vertex: https://www.vrtx.com

Viatris:  https://www.viatris.com/en

As a child, Molly Pratt had a fear of medical facilities.  Today, you'll hear how her perspective changed.  She's now a BSN, RN in Pediatrics at Beaumont Children's at Corewell Health's Beaumont Hospital, Royal Oak, Michigan.

Molly was an active 16 year-old high school student when she was diagnosed with Hodgkin's Lymphoma.  Her first round of treatment involved outpatient chemotherapy, but she eventually needed a bone marrow transplant, which she received in 2017.  Her priorities shifted from extracurricular activities and college tours to her inpatient recovery.

But her hospital stay changed her perspective. Her nurses became her social circle, playing card games with them late at night.  Inspired by her care, she decided to follow in their footsteps.  She now provides the same level of compassion to the kids she works with.  She's able to relate to their experiences, having been through the process herself.  In fact, she just had her final 6 month checkup, and she got to spend time with her patients in clinic, as a patient herself.

Molly leaves us with inspiring advice about not taking any day for granted, and having the confidence to accomplish whatever it is you set your mind to.

Resources

National Bone Marrow Transplant Link - (800) LINK-BMT, or (800) 546-5268.

nbmtLINK Website: https://www.nbmtlink.org/

nbmtLINK Facebook Page:  https://www.facebook.com/nbmtLINK

nbmtLINK YouTube Page can be found by clicking here.

Thank you to our sponsors. This season is supported by a healthcare contribution from Sanofi  and The Leukemia & Lymphoma Society. 

https://www.sanofi.com/

https://www.lls.org/patient-support

Dr. Robert Jarve is the Associate Chief Medical Officer for Population Health at Corewell Health West. In this role, he leads the strategy and development of population health analytics capabilities for the system, as well as the implementation of a value-based care model for underserved, high-risk patients. He is also leading a pilot to help house at-risk patients who are experiencing homelessness.

In addition to his administrative responsibilities, Dr. Jarve practices as an internal medicine and pediatrics physician, providing primary care to high-risk patients one day a week. He has diverse experience in population health management, including implementing and leading care management teams, developing care pathways and analytics solutions, and leading the change management of health care teams to more integrated team care models. Dr. Jarve holds BS and MSc degrees from Michigan State University, an MD degree from Wayne State University, and an MBA from Grand Valley State University.

Dr. Jarve has lived in Michigan his whole life and enjoys spending time with his wife, two teenage boys, and pets. Outside work, his favorite activities are hiking, reading, traveling, and snowboarding.

John Marchica, CEO, Darwin Research Group

John Marchica is a veteran health care strategist and CEO of Darwin Research Group. He is leading ongoing, in-depth research initiatives on integrated health systems, accountable care organizations, and value-based care models. He is a faculty associate in the W.P. Carey School of Business and the graduate College of Health Solutions at Arizona State University.

John did his undergraduate work in economics at Knox College, has an MBA and M.A. in public policy from the University of Chicago, and completed his Ph.D. coursework at The Dartmouth Institute. He is an active member of the American College of Healthcare Executives and is pursuing certification as a Fellow.

About Darwin Research Group

Darwin Research Group Inc. provides advanced market intelligence and in-depth customer insights to health care executives, with a strategic focus on health care delivery systems and the global shift toward value-based care. Darwin’s client list includes forward-thinking biopharmaceutical and medical device companies, as well as health care providers, private equity, and venture capital firms. The company was founded in 2010 as Darwin Advisory Partners, LLC and is headquartered in Scottsdale, Ariz. with a satellite office in Princeton, N.J.