ehlers-danlos

If you have ever considered how you could reconnect with nature, here’s your answer – through bees.  Have you ever wondered why bees make honey? What does a drone do all day long? Why should we care about the health of our bees? Paula Carnell is a bee consultant and honey sommelier looking to create a buzz about health. She says that bees are Mother Nature’s way of connecting nature with humanity, “What’s happening to the bees is inevitably happening to us as well”. 

For more information, check out show notes at https://www.battingthebreeze.com/honeybees-herbalism-and-humans.

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Mary Broddle wanted to be an engineer from the age of 5, and has had a very successful career in mechanical engineering – in a typically male-dominated environment. She worked hard and really enjoyed her work in the corporate sphere, but in the background her health was deteriorating, until eventually she had to make the difficult decision to quit it all and focus on her physical, emotional and mental wellbeing.

It was round about this time that she re-discovered a pastime she enjoyed as a youngster, although now is ready to take it to the next level, sharing the holistic benefits she has gleaned from mindful and contemporary stitching with others.

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Mary Broddle at Creativityfound.co.uk
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Researched, edited and produced by Claire Waite Brown
Music: Day Trips by Ketsa Undercover / Ketsa Creative Commons License Free Music Archive - Ketsa - Day Trips
Artworks: Emily Portnoi emilyportnoi.co.uk
Photo: Ella Pallet

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Lucy Stafford is no ordinary 20 year old. She's dynamic, intelligent and passionate science student, but growing up, numbed by the increasingly heavy doses of opiates she had received since the age of 12, Lucy believed otherwise.

Lucy has Ehlers-Danlos syndrome - a debilitating and extreme painful condition caused by a lack of collagen in connective tissues. Before cannabis, Lucy had resigned herself to a future defined by her disease and the inability of her doctors to manage its symptoms.

When Fentanyl, which is fifty times more powerful than heroin, failed to control her pain, Lucy's doctor ran out of options, and in desperation to help his patient attempted to prescribe her Sativex through the NHS. Unfortunately, despite the recent change in the law legalising cannabis based medicines, his request was denied.

However, this sowed the seed for Lucy that cannabis might actually help her and she began her own personal journey navigating the illicit cannabis market, eventually getting a legal prescription through a private cannabis clinic.

Lucy now gets her cannabis medicine prescription through Project Twenty21, the national registry aiming to get 20,000 medical cannabis patients signed up by the end of 2021.

Lucy is also a founding member and patient advocate for PLEA (Patient-led Engagement for Access) and one of the first recipients of the recently launched Cancard - the card scheme started by friend of the show, Carly Barton, that allows to people to verify themselves to police as medicinal cannabis patients.

Oh and during lockdown, Lucy has taught herself to walk again (and is regularly walking 5km). Without cannabis, this would never have been possible.

Useful links:
PLEA
Project Twenty21
Cancard
The CBD Book: The Essential Guide to CBD Oil

For our 6th episode of H+K's Health+Wellness podcast, People Not Patients, we focus on our recent I Am Number 17 campaign, launched on behalf of Takeda UK, and what it's like to live with a rare disease. 

David and Rachel, two of the 17 changemakers involved in the I Am Number 17 campaign, join Jess Walsh and Jessi Langsen for a conversation on their experiences of living with a rare disease.  

Listen for:

• What it’s like to live with a rare disease, particularly thinking outside of the doctor’s office – how it impacts work, love and relationships
• Balancing becoming the de facto spokesperson for a person living with a rare diagnosis and the amount of vulnerability needed to talk about a deeply personal experience
• How to manage the isolation of living such a unique experience 
• The climate around COVID-19 as a person living with a rare disease

For more information on the I am number 17 campaign, please visit www.Iamnumber17.org.uk