Explore "ehlersdanlos" with insightful episodes like "Episode One-Hundred-Four - Sometimes It's Not Easy", "POTs With Maddie", "Thriving with a Chronic Illness: The Inspiring Story of Jessica Miles", "260 - Should You Wear A Brace?" and "210 - My Ehlers Danlos Syndrome" from podcasts like ""Frequency Specific Microcurrent Podcast", "PodcastDX", "The Beautiful Bag", "Better Daily Podcast" and "Better Daily Podcast"" and more!
00:30 Post-Herpetic Neuralgia, PHN
05:08 Challenges in treating insomnia and neuropathies.
08:34 Shoulder surgery complications
16:26 Certifications on FSM Equipment
19:12 Using FSM without training
24:17 Pesticide exposure - Parkenson's
26:29 Chiari - Ehlers-danlos
32:24 ADHD and FSM
38:13 Ehlers-danlos spectrum
44:17 PCOS - too much testosterone
49:38 Itching from bone marrow transplant
This week we will discuss POTs once again with a new guest, Maddie Connell. Maddie is a 27 year old who works in Veterinary neurology and neurosurgery studying to become a Veterinary Neurologist herself. She runs a popular TikTok to raise awareness and provide research based information on Ehlers Danlos, POTs, Mast Cell Activation Syndrome and Complex PTSD.
Postural orthostatic tachycardia syndrome (POTS): A disorder that causes problems with circulation (blood flow), POTS can cause your heart to beat too fast when you stand up. It can lead to fainting, chest pain and shortness of breath. It is one of the 5 types of Dysautonomia.
Dysautonomia is a general term for a group of disorders that share a common problem – that is, an autonomic nervous system (ANS) that doesn’t function as it should. The ANS is the part of the nervous system that controls involuntary body functions (functions you don’t consciously control) like your heart rate, blood pressure, breathing, digestion, body and skin temperature, hormonal function, bladder function, sexual function and many other functions.
When the ANS doesn’t work the way it should, it can cause heart and blood pressure problems, breathing trouble, loss of bladder control and many other problems.
Dysautonomia happens when the nerves in your ANS don’t communicate as they should. When your ANS doesn’t send messages or receive messages as it should or the message isn’t clear, you experience a variety of symptoms and medical conditions.
Dysautonomia can affect ANS functions including:
Blood pressure.
Breathing.
Digestion.
Heart rate.
Kidney function.
Pupil dilation and constriction in the eyes.
Sexual function.
Body and skin temperature control.
The podcast episode features an interview with Jessica Miles, a photographer, registered nurse, and ostomy advocate who shares her journey with a connective tissue disorder and multiple surgeries that led to her having a colostomy. Jessica talks about her experiences with doctors and surgeries, her positive attitude despite her health challenges, and how she copes with her chronic illness through self-portrait photography and birth photography. She emphasizes the importance of taking breaks and setting boundaries, as well as the need for greater awareness and education around ostomies and chronic illnesses. Jessica's story serves as an inspiration for others facing similar challenges.
Connect with LeeAnne on Instagram @leeannehayden and @ www.leeannehayden.com
Meghan O’ Rourke is the editor of the Yale Review as well as the author of articles in Scientific American, the New York Times, the New Yorker, the Wall Street Journal, Slate and many poetry publications. She is the author of several books including her newly released book, "The Invisible Kingdom: Reimagining Chronic Illness". Meghan is the winner of many awards and prizes including the Guggenheim Award for General Nonfiction. Meghan has recently been featured on NPR’s Fresh Air, the Ezra Klein Show and Good Morning America.
Squeeze a world of passion, goal driven problem solver and an adventurous triathlete into 5 feet of fun and you get Faith Louise Cooper.
Faith Louise grew up in a family of 5 with 2 younger sisters. At the 12 she was diagnosed with Juvenile Rheumatoid Arthritis, now known as Juvenile Idiopathic Arthritis. In 2017 she was diagnosed with hypermobility syndrome and was recently changed to Hypermobility Ehlers Danlos Syndrome abbreviated as hEDS. Her younger sister also battles with hEDS on a daily basis.
Faith Louise joined the swim team in middle school to help manage the arthritis. She lives an enriching life and despite what the medical research says she has gone from being in excreting pain when standing for 15 mins to completing a half Ironman a few years back. Faith Louise has great joy and strength in life because of challenges she has faced.
Faith Louise, wanting to have all the tools in her tool box to live an enriching life has decided to study nutrition and is completing her certified holistic nutrition. She has passion for equipping, educating and inspiring other families going through the same thing as well as raising awareness.
In this episode she discusses the difficulties during COVID with EDS.
Why You Should Listen:
In this episode, you will learn about sulfur dysregulation and "The Devil in the Garlic".
About My Guests:
My guest for this episode is Dr. Greg Nigh. Greg Nigh, ND, LAc is a primary care physician, naturopathic oncologist, and acupuncturist. He is a 2001 graduate of the National College of Natural Medicine where he completed both the Naturopathic Doctor (ND) program and the Master of Science in Oriental Medicine (MSOM) program. He is an avid researcher and has published several peer-reviewed papers covering sulfur metabolism, glyphosate, cancer, and other topics. He has been a prominent voice within the naturopathic profession. He has spoken at dozens of conferences, both nationally and internationally, on topics as diverse as hypnosis in clinical practice, cancer cell metabolism, naturopathic treatment of strokes, the use of therapeutic diets in the clinical setting, and much else. He has spoken at the Conference on the Physics, Chemistry, and Biology of Water which takes place annually in Europe, where he has educated researchers from around the world about the unique role of sulfur in the maintenance of water structure in the body. In addition to his work with cancer patients, he also works extensively with Lyme disease, mold toxicity, and related illnesses, Chronic Fatigue and Fibromyalgia, gastrointestinal symptoms including inflammatory bowel disease, and many other challenging conditions. He has received additional training in both environmental medicine and heavy metal testing and IV chelation therapies. He creates comprehensive detoxification and rebalancing programs related to all these conditions, utilizing one of the widest ranges of therapeutic modalities available. He is in practice at Immersion Health in Portland, Oregon.
Key Takeaways:
Connect With My Guest:
Related Resources:
Low Sulfur Protocol - Picture Guide
Interview Date:
February 23, 2021
Transcript:
To review a transcript of this show, visit https://BetterHealthGuy.com/Episode140.
Additional Information:
To learn more, visit https://BetterHealthGuy.com.
Disclaimer:
The content of this show is for informational purposes only and is not intended to diagnose, treat, or cure any illness or medical condition. Nothing in today's discussion is meant to serve as medical advice or as information to facilitate self-treatment. As always, please discuss any potential health-related decisions with your own personal medical authority.
In this episode of Real Chiropractic Stories, Dr. Patrick Lowe shares his story of early diagnosis of Ehlers-Danlos syndrome as a teen. Over the years Dr. Lowe has overcome this disorder and is now a blue belt in Brazilian Jiu-Jitsu and is active in CrossFit. Listen to Dr. Lowe explain the importance of chiropractic in his life, and his three (but really two) key things to strive to achieve a healthy and happy lifestyle.
Today we’re getting real about parenting (and living) with chronic illness. Fellow podcaster, Monica, stops by to tell us her unbelievable story and what she’s learned the hard way as a parent with multiple health conditions. I share my own struggles, and the two of us talk candidly about humor as a coping strategy, shifting our parenting standards to really low, and how we feel about having to do that. We also discuss marriage guilt, sex life changes, upswings vs. downswings, the insanity that is being your own medical detective, the paralyzation that contradictory advice can cause, and the problem with “mind over matter” and toxic positivity. We both have a hilarious revelation about optimism, and Monica shares about the ultimatum she gave her husband after the passing of a close friend. If you have a “supplement graveyard” (that’s a pile of half-used supplements), then this episode is for you.
Stay up to date
For any inquiries, please email us at hello@podcastworld.io