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    emdserono

    Explore "emdserono" with insightful episodes like "Episode 90: The MS Association of America with President & CEO Gina Murdoch", "Bonus: From the AAN Annual Meeting (Tues 5/07)" and "Episode 84: A New Way of Measuring Mobility & Evaluating Disability with Dr. Valerie Block" from podcasts like ""RealTalk MS", "RealTalk MS" and "RealTalk MS"" and more!

    Episodes (3)

    Episode 90: The MS Association of America with President & CEO Gina Murdoch

    Episode 90: The MS Association of America with President & CEO Gina Murdoch
    The Multiple Sclerosis Association of America, or MSAA, provides programs and resources designed to improve the lives of people affected by MS. Whether it's financial assistance for an MRI exam, a new computer, mobility equipment, or even a cooling vest, the MSAA can help.
     
    My guest today is Gina Murdoch, the President and CEO of the MSAA, and we're talking about the organization's almost 50-year history, their shared management philosophy of living with MS, and we're taking a deeper dive into into some of their remarkable programs.

    Gina Murdoch

    We're also talking about the Progressive MS Alliance Scientific Steering Committee Meeting that begins tomorrow in Copenhagen, Denmark. You'll hear about the Patient 360 meeting that EMD Serono hosted last week in Washington, D.C., and I'll tell you why that meeting was so special to me.

    We're talking about the just announced $100,000 research grant to investigate the challenges faced by people of color who are living with MS and their caregivers. You'll learn about the special search engine that matches MS patients with financial support for disease-modifying therapy.

    We'll tell you about 2 new programs from Can-Do MS, focused on young adults who are living with MS and people who are living with secondary progressive MS. And you'll find out how you can be my special guest on the 100th episode of RealTalk MS.

    We have a lot to talk about. Are you ready for RealTalk MS??!

    Be Jon's Guest on Our 100th Episode

    Progressive MS Alliance Scientific Steering Committee Meeting in Copenhagen  :22

    EMD Serono Hosts Patient 360 Meeting  2:27

    Accelerated Cure Project & Us Against Alzheimer's Receive $100,000 Grant to Study Challenges Faced by People of Color Living with MS & Alzheimer's Disease   6:07

    MAT Can Connect You to Financial Support for Disease-Modifying Therapy  7:53

    Can-Do MS Announces Programs for Young Adults Living with MS and People Living with Secondary Progressive MS  9:58

    Finalists Announced for Lyfebulb-Celgene Addressing Unmet Needs in MS: Innovation Challenge   12:22

    My Interview with MSAA's Gina Murdoch  16:13

    ___________

    ADD YOUR VOICE TO THE CONVERSATION

    I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes.

    Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts!

    Email: jon@realtalkms.com
    Phone: (310) 526-2283

    ___________

    LINKS

    If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com

    International Progressive MS Alliance

    Multiple Sclerosis Association of America

    MAT (Medicine Assistance Tool)

    Can-Do MS Young Adults Take Charge Program

    Can-Do MS Secondary Progressive MS Webinar Series

    Celgene Lyfebulb MS Innovation Challenge

    Be My Guest on RealTalk MS Episode #100

    Download the RealTalk MS App for iOS

    Download the RealTalk MS App for Android

    Give RealTalk MS a Rating & Review

     ___________

    Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com.

    RealTalk MS Episode 90
    Hosted By: Jon Strum
    Guest: Gina Murdoch

    Tags: MS, MultipleSclerosis, MSResearch, ProgressiveMS, CanDoMS, MSAA, EMDSerono, Celgene, Lyfebulb, Caregiving, RealTalkMS

    iConquerMS

    Episode 84: A New Way of Measuring Mobility & Evaluating Disability with Dr. Valerie Block

    Episode 84: A New Way of Measuring Mobility & Evaluating Disability with Dr. Valerie Block
    If someone is being treated for MS, their neurologist is using the Expanded Disability Status Score, or EDSS, to indicate their level of disability. What if there were a better, easier, and more accurate way to measure mobility and evaluate disability? 
     
    Valerie Block
     
    My guest today is Dr. Valerie Block, a Postdoctoral Fellow in the Department of Neurology at University of California San Francisco.  As a physical therapist, Dr. Block is focused on MS rehabilitation. And we're talking about a just-published study that demonstrates that the way neurologists measure disability may not be providing a complete and accurate picture...and there may be a much better way to get that done.
     
    We're also talking about a new effort to eliminate the Affordable Care Act and strip away all of its protections for people living with MS and every other chronic illness -- and how the National MS Society and 25 other national patient organizations are fighting back by supporting new legislation designed to strengthen the ACA. 
     
    We'll tell you about the TWO!!! MS prescription medications that just received FDA approval, and we'll even tell you about yet another MS prescription medication that's now awaiting FDA approval.
     
    We have a lot to talk about! Are you ready for RealTalk MS?!
     
    ___________

    RealTalk MS Reaches a Milestone  :26

    Join the RealTalk MS Conversation  :48

    Living with MS? Your Access to Healthcare is Under Attack ...Again!  2:53

    Mavenclad Receives FDA Approval for Treating Relapsing-Remitting and Active Secondary Progressive MS  11:37

    Siponimod Receives FDA Approval for Treating Relapsing-Remitting and Active Secondary Progressive MS 15:01

    Celgene Submits Application for FDA Approval of Ozanimod for Treating Relapsing-Remitting MS  16:41

    My Interview with Dr. Valerie Block  19:16

    Download the Free RealTalk MS App  34:04

    ___________

    ADD YOUR VOICE TO THE CONVERSATION

    I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes.

    Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts!

    Email: jonstrum@RealTalkMS.com
    Phone: (310) 526-2283

    ___________

    LINKS

    If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com

    Download the RealTalk MS App for iOS

    Download the RealTalk MS App for Android

    Give RealTalk MS a Rating & Review

     
     

    ___________

    Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com.

    RealTalk MS Episode 84
    Hosted By: Jon Strum
    Guest: Dr. Valerie Block

    Tags: MS, MultipleSclerosis, MSResearch, ProgressiveMS, Mavenclad, EMDSerono, Siponimod, Novartis, Celgene, RealTalkMS

    iConquerMS

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