Classic Metal with Pat McCormack
Pat and I take questions over on the YT livestream and talk about our background in classic metal!!!
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Explore "enc" with insightful episodes like "Classic Metal with Pat McCormack", "Smearing 101: What to do about Poo", "Ender's Game: Book VS. Movie", "Star Wars With Re-Writes" and "Creating a Game Plan with Joya Van Der Laan" from podcasts like ""Retro Cereal", "Embracing Holland", "Retro Cereal", "Retro Cereal" and "Embracing Holland"" and more!
Episodes (89)
Smearing 101: What to do about Poo
Fecal smearing and ingesting are taboo topics that often elicit a considerable amount of shame for families. We felt like it was time to give this topic some attention to those who are struggling in the dark and aren't comfortable reaching out for suggestions in the online support groups. In response to very little information openly available to families struggling with smearing and consuming feces (scatolia and coprophagia), Genevieve Engleman, The Remote OT, shares with us the background behind the behavior, information to reduce the stigma, and ways we can try to prevent and address this issue.
We talk about:
- Why mammals may consume their own feces
- History and incidence of these behaviors
- Reducing the stigma and shame associated
- What the behavior may be communicating
- How to address any potential medical problems that could lead to these behaviors
- What do do if and when it happens
- Ways to use OT, and sensory play to meet the needs currently served by poop play
Genevieve’s Website
Ender's Game: Book VS. Movie
Another in the Book Vs. Movie series. Which was better? What we would have changed? Listen and find out!
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Star Wars With Re-Writes
If you could change Star Wars how would you do it? My friend Jason and I talk about it!
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YT Page https://www.youtube.com/channel/UC33gMPKuJGcZi8aO6jts30A
Creating a Game Plan with Joya Van Der Laan
This week we chat with Joya Van Der Laan, a functional medicine family nurse practitioner whose curiosity and her own daughter’s autism diagnosis lead her down the biomedical path. We learn how she has used her personal and professional experience to create videos to teach parents how to create their own autism game plan, focused on helping parents address common symptoms and challenges associated with an autism diagnosis. Her videos cover everything from sleep, meltdowns, constipation and seizures to PANS and PANDAS. Tune in to learn about Joya and how her website could help your family!
We talk about:
- How overwhelming it was to face an autism diagnosis even as a medical professional
- Feeling the pressure to “fix” her child
- Using functional medicine to find the root cause of symptoms
- Deciphering between “voodoo” and science
- Creating a resource to quell the overwhelm and ease the burden on parents
- Testing to determine deficiencies and starting with basics like diet
- The importance of sleep for everyone!
- Healing is an artform not an end game
- Watching other children improve while her daughter struggled which led to learning
- How the desperation to help our kids can sometimes cloud our judgement with interventions
- Being methodical with trying new things to determine what’s working and what’s not
- How functional medicine can help parents too!
Joya’s Website
Books
How to End the Autism Epidemic
Healing the New Childhood Epidemics - Autism, ADHD, Asthma and Allergies
Doctors to follow
Holistic Healing with Megan Martin
For this episode we speak with Megan Martin, personal trainer, health coach and purveyor of holistic wellness who used lessons learned from her own health journey to help her son with autism. She shares with us what the biomedical approach means and how she used it to address her son’s symptoms, including how she did an at home fecal transplant.
We talk about:
- Personal illness and disease that led to path of holistic healing
- Exploring functional medicine
- Lifestyle factors and diet being the foundation for disease prevention and treatment
- Supporting the entire body to help with brain function
- Addressing GI dysfunction as not just another symptom of autism
- Using diet to address autism symptoms, including eczema
- Naturopathic doctors and what they do
- All about fecal microbiota transplants (currently only FDA approved for C-Diff but many clinical trials in patients with autism)
- Using the AMD Ion Cleanse foot bath for detox and she get her son to sit still
- Other alternative treatments to try
Links
Autism Research Institute - Gi webinar
Arizona State University Uses Bacteria to Improve Autism Symptoms
Stanford University - Microbiome studies
The Autism Community in Action
Recovering Kids Facebook Group
Detoxing Kids - A Parent Guide to Safe Metal Detox
Autism Effective Biomedical Treatments: Have We Done Everything We Can?
ATEC - Autism Treatment Evaluation Checklist
D&D And Other RPG: Interview With Dr. Brian Macdonald
D&D, RPG, and growing up Generation X
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Dr. Brian's YT pagehttps://www.youtube.com/channel/UCvLEP32Q6Ix4H0T_gMaEuGA
Starship Troopers Book Vs. Movie
Third in the instalment of Book Vs. Movie. What are the biggest differences between the two? Which do we prefer and why? Listen and find out.
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Thrash's YT page https://www.youtube.com/channel/UCJfuW4ydCrPKRIdD-J1_icA
Travel Tips with Kristy Kargel
Does the thought of traveling with your children and family members with disabilities and complex medical needs intimidate you and make you shy away from leaving the house? This is the episode for you! Join our friend of the show and fellow complex medical needs mom Kristy Kargel, as we chat about how to navigate airports, long trips, and making it from point A to point B without excessive stress.
We talk about:
- Finding accessible changing facilities
- Bringing medically necessary items as carry-on items
- Calling the airline two weeks prior to discuss specific travel needs
- Renting a modified van
- Writing into a waiver plan to justify funds to be utilized to cover travel needs
- Shipping supplies ahead of time from a durable medical equipment provider
- Pre-ordering groceries and having them delivered to your destination
- Renting a shower care
- Packing day by day for items necessary for each day
- Providing packets and information for fellow passengers
- Boarding the plane
- FAA approved seat harness available to keep passengers upright
- Noise-canceling headphones (for kids & adults)
- Video and photo social stories
- Bathroom locator apps for accessible restrooms
- The courage to give it a go
- Bed tents
- Free passes to national and state parks
- Beach wheelchairs
- Drive through zoos and safaris
- Accessible parking passes
- Easing into traveling and prepping the whole family
- Lowering expectations
Links
Autism on the Seas (For autism, Down syndrome and other disabilities)
Wheelchair Friendly Lodging in National Parks
FREE Lifetime Pass for National Parks
Great travel tips for wheelchair users
Faeries are Real: Connect with their Magic, Power & Joy
Kac writes: “In either this life or a past incarnation, faeries became one with the purest energy and spirit of creation and now travel through the gates between the material and spiritual worlds, bringing ancient knowledge with them. They live in a reality where their souls are connected to what the ancients knew and we have forgotten. Their role is to bring that awareness back to us, and they will stay as long as it takes for us to believe. It may seem to us that they perform acts of magic, but the truth is we are all capable of magic and we are simply out of the practice of using our primordial gifts. Faeries can only exist where and when people believe in magic. What do you believe?” Stories of faeries are prevalent in cultures across the world from ancient times to present. Please join us Thursday to learn the rules of faery life, what trees and plants attract faeries, and rituals to connect with faeries and experience the wisdom and magic they can bring into our lives.
Sleep Matters with Andrea Faris Roberts
Andrea Faris Roberts, renaissance woman, innkeeper, two-time non-profit starter, and mother of two children, including a son with Down syndrome. She graciously invited us to her flagship inn called the Terrace Guest House to tell us the story of its inception and discuss the importance of getting away. Join us as we discover how she created a beautiful way for parents and caregivers to experience true rest, what it took to create multiple sanctuaries for parents to recharge and how important it is to put ourselves on our own to-do list. #getinthecar
We talk about:
- The deep need for sleep
- Creating an organization from personal pain
- Reece’s Rainbow - international adoptions for children with Down syndrome and other disabilities
- The significant impact of caregiving and the unmet need for rest
- Creating a network of partner Inns (B&Bs) to serve families (40+)
- Curating the nation’s first year-round respite inn
- The unique thing about this sanctuary experience that meets unrealized needs
- Recuperative rest, not a vacation
- Putting yourself on your own to-do list
- Wishing that our kids didn’t have to struggle
- The trauma and challenges of raising a child with a disability
- Not “Embracing Holland”
- Her annual “Mommy & Me” trip for parents to get away with their child without a disability, or their own mom, or other special needs mom friend, or by yourself
- Andrea’s advice for new parents
Links
Links
Angie's Blog Post About Staying at the Inn
Give Monthly to Help Keep A Mother's Rest Open
Social Media
FB - A Mother's Rest - public page
The Guitar Hero Icon
Exploring the icon of the guitar hero with Pat MacCormack. The best the worst, the over and underrated. Don't be too sensitive
My YT Page https://www.youtube.com/channel/UC33gMPKuJGcZi8aO6jts30A
Buy me a coffee page buymeacoffee.com/boardgamelife
Pat's YT page https://www.youtube.com/user/GoldenRAGEofTV
Still Standing with Shelley Kramm
Shelley Kramm went from designer to special needs mom, to advocate then to non profit organization founder, then blogger, and she shares with us how she made her way through each of those roles as she focused on inclusive play and empowering women.
We talk about:
- Finding out her daughter has cerebral palsy
- Her transformation from mom to special needs mom
- Discovering the need for inclusive play spaces
- Putting her landscape design and architecture degree to use
- Deciding to start a non profit so all kids could have a place to play
- Making the connections to make her dream a reality
- Raising a million dollars for her park
- The birth of Hadley’s Park
- How over 50 parks were built in the mid atlantic area to serve everyone
- What exactly an inclusive park is and how it caters to all, no matter the disability
- Pivoting from one organization to another project, The DC Ladies
- Deriving joy from empowering women
- The shock of becoming a single parent
- Creating an online community for special needs moms
Links
Shane's Inspiration - Inclusive Play
Washington Post Article - A Playground for Hadley
I am Able - How Sarah Kramm advocated for her sister
Social Media
IG - @SEKramm
FB - Becoming Shelley
Special Needs Moms of Montgomery County - Facebook Page
Special Needs Moms of Montgomery County - Private Facebook Page
Finding Hope in Holland with Jackie Buzek
Jackie Buzek, rare disease mom, doctorate level BCBA, and executive director of the Rise School Of Denver wrote a piece for the Mighty about her follow up on Welcome to Holland, where she shares what life has been like for her in this new, foreign land, so we knew that we just had to have her on the podcast! Join us as we find out how reframing our perspective can help us enjoy Holland!
We talk about:
- Getting a rare diagnosis shortly after the birth of her first child
- What it’s like embark on the journey to Holland after spending a career serving others already there
- Cri du Chat, “cats cry syndrome”
- Finding your people, even if it’s on social media through a hashtag
- Being taught how strong you can be
- The transition from grief to loving Holland
- Surviving the turbulent entry into motherhood
- Writing as a therapeutic outlet to process big feelings
- Living in the moment
- Reframing difficult situations as opportunities to learn
Links
Website - A Different Us
Our Follow Up on Welcome to Holland - MIGHTY article
Social Media
IG - @jackiebuzek
Why Grunge Killed Glam
What is Grunge Music? Did it kill Glam Metal. Listen to this interview and find out.
Red Beard Videos https://www.youtube.com/channel/UCXGxgNxxS28b4JZGOoHNnnQ
Retro Cereal YT page https://www.youtube.com/channel/UC33gMPKuJGcZi8aO6jts30A
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Video Store Stories
everyone growing up Gen X has at least one video store story. Here are mine.
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Our YT page https://www.youtube.com/channel/UC33gMPKuJGcZi8aO6jts30A
Joy in Suffering with Bekah Bowman
Bekah Bowman, mother, and author with a heart for ministry shares with us what it looks like to do the hard work of stepping into the church community to show them how to love kids with disabilities and to see the incredible gifts God has given them. Bekah continually points to joy in the middle of suffering and discusses how they are often roommates.
We talk about:
- How her world was rocked upon the discovery of her children’s rare disease
- Raising two children with Batten disease, a rare degenerative disorder
- Treatment for her son Ely while grieving the loss of Titus
- The freedom in finding others that understand
- Church life and disability life being at odds with one another
- How people with disabilities belong in church and the body is not complete without them
- Watching her boys teach people things about God that they would have never learned
- Having a painful experience at church and seeking a new church home
- Asking a new church for what she needed
- How healing it is to attend church when the entire family is loved and cared for
- The weakest parts of the church are the most valuable
- Joni and Friends Ministry
- Her book, “Can’t Steal My Joy: A Journey to a Different Kind of Brave”
Links
Website - Bekah Bowman
Room For More Ministry - Coming soon!
Social Media
FB - @Team4TitusEly
IG - @bekahsbowman, @roomformoreministry
Related Episodes
Groomed for This with Eva Queen
Dune: Book Vs. Movie
Learn the differences and similarities of Dune the book Vs. movie
support us here buymeacoffee.com/boardgamelife
My YT page https://www.youtube.com/channel/UC33gMPKuJGcZi8aO6jts30A
Thrashpondo's YT Page https://www.youtube.com/channel/UCJfuW4ydCrPKRIdD-J1_icA
Changing the Narrative with Kalani Brown
This week we chat with Kalani Brown, mother of a son with Down syndrome and chair of the Maryland Developmental Disabilities Council, among many other roles. She shares with us the importance of inclusion and raising expectations for people with developmental disabilities.
We talk about:
- Receiving a down syndrome diagnosis and discovering support
- Navigating public school to find the balance of support and inclusion
- Shifting the idea that children are “suffering” from Down syndrome
- Launching into advocacy by serving in the community
- How Montessori concepts are designed for children with learning differences
- Changing the narrative about people with developmental disabilities
- Setting high expectations and following the child’s lead
Links
Maryland Developmental Disabilities Council
State Developmental Disabilities Council
Down Syndrome Diagnosis Network
National Down Syndrome Society
National Down Syndrome Congress
Local and National Down Syndrome Support Networks
Sting Sings Uplifting, Original Tune for World Down Syndrome Day
Books
- Gifts: Mothers Reflect on How Children with Down Syndrome Enrich Their Lives – Kathryn Lynard
- Gifts 2: How People with Down Syndrome Enrich the World- - Kathryn Lynard
- Whole Child Reading: A quick-Start Guide to Teaching Students with Down Syndrome and Other Developmental Delays - Nathalie Hale
- Supporting Positive Behavior in Children and Teens with Down Syndrome: The Respond but Don’t React Method – David Stein
Building a Bridge to Inclusion with Dee Sapp
This week we chat with Dee Sapp, Executive Director of Accessibility Bridge Corporation, mother of three including an olympic swimmer with an intellectual disability. Dee shares with us how her passion for community inclusion lead to great things for her son and to the birth of an organization that serves to encourage people with all disabilities to integrate into the larger society and connect them with resources.
We talk about:
- Raising a son who is a competitive athlete with an intellectual disability
- Getting a proper, accurate diagnosis before the age of 18 to get appropriate services
- How support decreased after elementary school
- Pushing for inclusion in order to have success
- Getting the IEP team to think outside the box
- Exploring college options for students with intellectual disabilities
- Discovering the Think College resource
- Building the college wish list: social inclusion, academic inclusion, competitive sports
- Finding recognized and accredited programs
- Switching from public school to home school to prepare for college
- Creating a movement to rethink what people with disabilities can do
- Company programs targeted for people with disabilities
- Redefining the end goal, and thinking beyond graduating from high school
Links
Accessibility Bridge Corporation