fnd podcast

The FND Podcast with Detty acknowledges the traditional custodians of the land in which we stand, the Bundjalung, Awakabal, Djinduburi , Arawak, Boon wurrang & Wurundjeri People. The FND Podcast pays respect to their Elders past, present and emerging.

Fnd Awareness Day 2022 #voices4FND On this Episode of the FND Podcast we are honoured and privileged to talk to Dr Katherine Gill the Founder and President of FND Australia Support services dedicated and passionate about enriching the quality of lives of those with FND. Hear her story, what the organisation is all about and what is to come In the near future.

https://www.fndaus.org.au/

FND AUSTRALIA SUPPORT  SERVICES INC: A wonderful resource for people in Australia with FND: from reasearch into FND, finding medical specialists and services and just information about FND. Solely dedicated to all things FND and helping those with FND in Australia.

FND Australia Support Services also has a YouTube Channel https://youtube.com/channel/UCycQKrrP9TApdA3H5Gqge2A

FND Australia Support services App:

Android

https://apksos.com/app/fndaustralia.com

Apple

https://apps.apple.com/au/app/fnd-australia-support-services/id1613121706

FND TSHIRTS BAGS MASKS AND MORE ; FND PODCAST MERCHANDISE-CLICK BELOW

https://imprintmerch.com.au/collections/lets-have-the-chat

from masks to bags hoodies and tshirts featuring Friends of FND and FND will not hold me back : all proceeds going to FND Australia Support Services also FND Podcast merchanise check them out!

The Mindgardens Functional neurological symptom disorders clinic -evaluation of feasibility and effectiveness of a multidisciplinary tertiary FND clinic with a nestled brief psychobehavioural intervention

https://ndarc.med.unsw.edu.au/mindgardens-functional-neurological-symptom-disorders-fnd-clinic-evaluation-feasibility-and

Manual Handling workshop for caregivers : 

https://youtu.be/QfD457lbTmQ

The FND Podcast with detty : song resonating at the moment maybe our song :

The new normal by Kahlid to hear it it is on our playlist or click below to view lyrics and listen on YouTube.

https://youtu.be/o3sXlxg4d5c

What has the team been listening to? What are are their song preferences ? In a flare and would like to listen to some songs? Head over to our playlist! Thank you Maggie for making it :) we have recently updated the list which features an eclectic list; itunes playlist : the fnd podcast with detty playlist or click on the link below for the playlist 

https://open.spotify.com/playlist/5lvGhN4Ab3AtwBj42L5DDA?si=i1RzVbhmQ3GeJ6a3Iu7sHw&dl_branch=1

HELPFUL RESOURCES:

A website all things Functional neurological Disorder written by Professor Jon Stone who is the leading FND researcher and Consultant Neurologist in Edinburgh, Scotland.

https://www.neurosymptoms.org/

Neurosymptoms has an app that you can download now too. Look up neurosymptoms or Jon stone and you will find it there.

https://www.health.qld.gov.au/news-events/podcast/my-amazing-body-the-brain-2.0

An excellent podcast episode which explains what Functional Neurological Disorder is. Have a good listeners brilliant!

Dr Mohsin Butt is an excellent doctor who explained what FND is perfectly click here to watch his explanation

https://vm.tiktok.com/ZSeYtCw7W/

https://www.neurokid.co.uk/\

A website for young people and families living with NEAD and neurological symptom

https://fndportal.org/

Amazing website with information and links to fnd

Information on Non Epileptic Seizures or NEAD

https://www.sth.nhs.uk/clientfiles/File/Epilepsy/pil2072.pdf

FND ORGANISATIONS:

https://www.fndaus.org.au/

FND AUSTRALIA SUPPORT  SERVICES INC: A wonderful resource for people in Australia with FND: from reasearch into FND, finding medical specialists and services and just information about FND. Solely dedicated to all things FND and helping those with FND in Australia.

Click below to hear more about FND Australia Support services and who Dr. Katherine Gill is

https://thefndpodcast.simplecast.com/episodes/the-fnd-podcast-with-detty-dr-katherine-gill-and-fnd-australian-support-services

FND Action is a patient-led charity who offer a caring and supporting hand to people living with Functional Neurological Disorder (FND) in the UK.

https://www.fndaction.org.uk/

FND Dimensions aims to develop a network of ‘peer support groups’ across the UK either in face to face meetings or online via methods such as Skype. By bringing people together on a regular basis, this helps alleviate the isolation that many FND patients feel. It also gives  opportunity  for others to open up dialog and to talk to others in a similar position about the day to day challenges, issues or concerns with one another.

http://fnddimensions.org/

A really helpful article and explanation of what FND is: '

https://threadreaderapp.com/thread/1367576277956370432.html?fbclid=IwAR1GZpXe7IgC9qVlIr7ygA9RslPy6nxhQIumdUw9XMu2fs8MsMf8SwYZeVQ
 

Other podcasts/ blogs / vlogs to follow:

itsmeitsmeitsfnd

by none other than our Jake! 

HTTPS://www.tomplender.com

Tom Plender : follow this amazing creative human his art, music and writing on fnd 

https://open.spotify.com/show/6RSjTADQCw9tA4Udnutf0L?si=JZy4CAfuSB6FWaBCi8Avgg&dl_branch=1
Bed Life and Beyond by Rach also a lovely FNDer

https://pandoralocksmith.wordpress.com/about/

John McLeans Fnd Journey

https://m.facebook.com/JohnsFND/?ref=page_internal&mt_nav=0

Lmtd Life with FND

https://m.youtube.com/channel/UC3xLKpn7gkgvVoH29ulu4IA/videos

FNDer amplified: Meg Jacks follow on Instagram @ Meg.jacks_ TicTok: @megjacks

Instagram follow Emma’s journey :@emmas_fnd_fun

People Amplified on the FND Podcast by Maggies Corner ,brilliant incredible humans who you should look up / check out

Dylan Alcott

Athelete , paraolympics , podcaster , raising awareness and voices of the disabled

Instagram :@ listenable_podcast @dylanalcott

Website: www.abilityfest.com.au

Elle Stella

Business Success Coach , Paraolympian & intuitive healer

Instagram: @iamellesteele

Website: www.iamellesteele.com

Carly Findlay

Activist, writer, Blogger with a condition called ichtchyosis.

Instagram: @carlyfindlay

Website: www.carlyfindlay.com.au

Sophie Butler

Shes empowering women, disabled after a spinal cord injury , she inspirational and has an amazing attitude

Instagram: @sophjbutler

YouTube: https://youtu.be/wgfAYDlXXvM

Meg Jacks

She is a fellow FNDer who is very open about her journey with FND and has helped raised awareness with FND

Instagram: @Meg.Jacks_

TicTok: Megjacks

Julian Gavino

(he/him) is a trans-masculine model, writer, coach, and sex-positive disability influencer living with Ehlers-Danlos syndrome and comorbidities. ... In his work, Julian aims to normalize and destigmatize trans and disabled bodies in media — by facing discrimination down and creating space for representation

Instagram:  @thedisabledhippie

Nina Tame aka the Lunch Lady

She’s a single mum who’s disabled and a disability advocate. Parenting with disability

Website: https://hellolunchlady.com.au/parenting/parenting-around-the-world-nina/

Chloè Haden

she is an Australian actor YouTuber singer dancer and she’s autistic. She beings awareness about Autism and talks openly about life with Autism.

Instagram: @princesssapien

Website: https://www.chloehayden.com.au/

Youtube: Chloè Haden

Style like U

Founded by mother-daughter duo, Elisa Goodkind & Lily Mandelbaum, StyleLikeU is a multimedia platform for radically honest docu-style content that gives voice to diverse role models who stand proudly outside of norms and are comfortable in their skin.

Website: https://stylelikeu.com/about-us/

Lucy Dawson

who unfortunately became Disabled during a medical situation. Click this link to find out more https://www.theguardian.com/society/2021/aug/25/lucy-dawson-the-model-who-got-a-mystery-headache-a-misdiagnosis-and-a-new-mission-in-life However despite this all she continues now to advocate and model and be bloody amazing.

Instagram : @luuudaw

Website: https://lucyintheskywithencephalitis.wordpress.com/2021/03/16/all-my-links/

Cripple Media

Cripple media is a disability led media which represents the voice of the youth. As they have mentioned that the youth especially disabled have been represented by those who aren’t the youth primarily the teachers or parents , those in the medical fields so they are raising their voices and speaking up and being heard. It’s really important for their voices their oppinions to be heard and what a great idea and platform. A way to educate aswell as raise awareness

Instagram: @cripple media

Website: https://cripplemedia.com/about/

Aaron Rose Philip

 For more information check out this wonderful article here

https://www.uncrazed.com/aaron-rose-philip-makes-runway-debut-says-disabled-talents-matter/32893

Instagram:aaron_phillip transgendered disabled fabulous Model check him out

Nicole Parish

she is raising awareness on Autism, how she lives with autism, what tools she uses and her love for insects. Follow her on Tik Tok at Sound of the Forest

A great news platform for young Australians to get the news firsthand ; available internet podcast and app easily digestible and accessible check it out

https://www.thedailyaus.com.au/

Fnd awareness week 2022 On this episode we congratulate Jake on the 1 year birthday anniversary of it’s me it’s me it’s fnd! We truly believe I’m supporting one another and uplifting one another as we are all for spreading awareness with fnd and we are also great mates! If you’ve ever wondered what it’s like to do a podcast let alone one for FND we discuss this and also encourage you to do so! Follow Jake on Instagram on @punkchef41 and his podcast it’s me it’s me it’s fnd & Facebook page and Instagram FND & US. Fnd and Us is also run by Steph and Rach Follow Steph on Instagram @_fnd_and_me follow Rach on @unwireddesigner they are also incredible xo 

Recommendations:

Ted Lasso

https://www.imdb.com/title/tt10986410/
if you want a laugh must check this out on Apple TV you can watch this series ! American college football coach Ted Lasso heads to London to manage AFC Richmond, a struggling English Premier League football team. Theyre expecting him to fail heck even you as a viewer think he will too but does he? Check out the trailer below available to watch on Apple TV.

https://youtu.be/3u7EIiohs6U
 

it’s me it’s me it’s fnd :Jakes podcast 

https://open.spotify.com/episode/7oNAaMbF7GOqpKsHlDzF4v?si=vw3PxMFBR422C3uonLfgeA

and also FND and US go check them out to go looking for support and connections and turning a negative mindset to a positive. 

The Fnd Podcast always suggests that you always talk with your gp and or specialist with any treatments in regards with FND

The FND Podcast with Detty acknowledges the traditional custodians of the land in which we stand, the Bundjalung, Awakabal, Djinduburi , Arawak, Boon wurrang & Wurundjeri People. The FND Podcast pays respect to their Elders past, present and emerging.

The FND Podcast with detty : song resonating at the moment maybe our song :

The new normal by Kahlid to hear it it is on our playlist or click below to view lyrics and listen on YouTube.

https://youtu.be/o3sXlxg4d5c

What has the team been listening to? What are are their song preferences ? In a flare and would like to listen to some songs? Head over to our playlist! Thank you Maggie for making it :) we have recently updated the list which features an eclectic list; itunes playlist : the fnd podcast with detty playlist or click on the link below for the playlist 

https://open.spotify.com/playlist/5lvGhN4Ab3AtwBj42L5DDA?si=i1RzVbhmQ3GeJ6a3Iu7sHw&dl_branch=1

FND TSHIRTS BAGS MASKS AND MORE ; FND PODCAST MERCHANDISE-CLICK BELOW

https://imprintmerch.com.au/collections/lets-have-the-chat

from masks to bags hoodies and tshirts featuring Friends of FND and FND will not hold me back : all proceeds going to FND Australia Support Services also FND Podcast merchanise check them out!

HELPFUL RESOURCES:

A website all things Functional neurological Disorder written by Professor Jon Stone who is the leading FND researcher and Consultant Neurologist in Edinburgh, Scotland.

https://www.neurosymptoms.org/

Neurosymptoms has an app that you can download now too. Look up neurosymptoms or Jon stone and you will find it there.

https://www.health.qld.gov.au/news-events/podcast/my-amazing-body-the-brain-2.0

An excellent podcast episode which explains what Functional Neurological Disorder is. Have a good listeners brilliant!

Dr Mohsin Butt is an excellent doctor who explained what FND is perfectly click here to watch his explanation

https://vm.tiktok.com/ZSeYtCw7W/

https://www.neurokid.co.uk/\

A website for young people and families living with NEAD and neurological symptom

https://fndportal.org/

Amazing website with information and links to fnd

Information on Non Epileptic Seizures or NEAD

https://www.sth.nhs.uk/clientfiles/File/Epilepsy/pil2072.pdf

FND ORGANISATIONS:

https://www.fndaus.org.au/

FND AUSTRALIA SUPPORT  SERVICES INC: A wonderful resource for people in Australia with FND: from reasearch into FND, finding medical specialists and services and just information about FND. Solely dedicated to all things FND and helping those with FND in Australia.

Click below to hear more about FND Australia Support services and who Dr. Katherine Gill is

https://thefndpodcast.simplecast.com/episodes/the-fnd-podcast-with-detty-dr-katherine-gill-and-fnd-australian-support-services

FND Action is a patient-led charity who offer a caring and supporting hand to people living with Functional Neurological Disorder (FND) in the UK.

https://www.fndaction.org.uk/

FND Dimensions aims to develop a network of ‘peer support groups’ across the UK either in face to face meetings or online via methods such as Skype. By bringing people together on a regular basis, this helps alleviate the isolation that many FND patients feel. It also gives  opportunity  for others to open up dialog and to talk to others in a similar position about the day to day challenges, issues or concerns with one another.

http://fnddimensions.org/

A really helpful article and explanation of what FND is: '

https://threadreaderapp.com/thread/1367576277956370432.html?fbclid=IwAR1GZpXe7IgC9qVlIr7ygA9RslPy6nxhQIumdUw9XMu2fs8MsMf8SwYZeVQ
 

Other podcasts/ blogs / vlogs to follow:

itsmeitsmeitsfnd

by none other than our Jake! 

HTTPS://www.tomplender.com

Tom Plender : follow this amazing creative human his art, music and writing on fnd 

https://open.spotify.com/show/6RSjTADQCw9tA4Udnutf0L?si=JZy4CAfuSB6FWaBCi8Avgg&dl_branch=1
Bed Life and Beyond by Rach also a lovely FNDer

https://pandoralocksmith.wordpress.com/about/

John McLeans Fnd Journey

https://m.facebook.com/JohnsFND/?ref=page_internal&mt_nav=0

Lmtd Life with FND

https://m.youtube.com/channel/UC3xLKpn7gkgvVoH29ulu4IA/videos

FNDer amplified: Meg Jacks follow on Instagram @ Meg.jacks_ TicTok: @megjacks

Instagram follow Emma’s journey :@emmas_fnd_fun

People Amplified on the FND Podcast by Maggies Corner ,brilliant incredible humans who you should look up / check out

Dylan Alcott

Athelete , paraolympics , podcaster , raising awareness and voices of the disabled

Instagram :@ listenable_podcast @dylanalcott

Website: www.abilityfest.com.au

Elle Stella

Business Success Coach , Paraolympian & intuitive healer

Instagram: @iamellesteele

Website: www.iamellesteele.com

Carly Findlay

Activist, writer, Blogger with a condition called ichtchyosis.

Instagram: @carlyfindlay

Website: www.carlyfindlay.com.au

Sophie Butler

Shes empowering women, disabled after a spinal cord injury , she inspirational and has an amazing attitude

Instagram: @sophjbutler

YouTube: https://youtu.be/wgfAYDlXXvM

Meg Jacks

She is a fellow FNDer who is very open about her journey with FND and has helped raised awareness with FND

Instagram: @Meg.Jacks_

TicTok: Megjacks

Julian Gavino

(he/him) is a trans-masculine model, writer, coach, and sex-positive disability influencer living with Ehlers-Danlos syndrome and comorbidities. ... In his work, Julian aims to normalize and destigmatize trans and disabled bodies in media — by facing discrimination down and creating space for representation

Instagram:  @thedisabledhippie

Nina Tame aka the Lunch Lady

She’s a single mum who’s disabled and a disability advocate. Parenting with disability

Website: https://hellolunchlady.com.au/parenting/parenting-around-the-world-nina/

Chloè Haden

she is an Australian actor YouTuber singer dancer and she’s autistic. She beings awareness about Autism and talks openly about life with Autism.

Instagram: @princesssapien

Website: https://www.chloehayden.com.au/

Youtube: Chloè Haden

Style like U

Founded by mother-daughter duo, Elisa Goodkind & Lily Mandelbaum, StyleLikeU is a multimedia platform for radically honest docu-style content that gives voice to diverse role models who stand proudly outside of norms and are comfortable in their skin.

Website: https://stylelikeu.com/about-us/

Lucy Dawson

who unfortunately became Disabled during a medical situation. Click this link to find out more https://www.theguardian.com/society/2021/aug/25/lucy-dawson-the-model-who-got-a-mystery-headache-a-misdiagnosis-and-a-new-mission-in-life However despite this all she continues now to advocate and model and be bloody amazing.

Instagram : @luuudaw

Website: https://lucyintheskywithencephalitis.wordpress.com/2021/03/16/all-my-links/

Cripple Media

Cripple media is a disability led media which represents the voice of the youth. As they have mentioned that the youth especially disabled have been represented by those who aren’t the youth primarily the teachers or parents , those in the medical fields so they are raising their voices and speaking up and being heard. It’s really important for their voices their oppinions to be heard and what a great idea and platform. A way to educate aswell as raise awareness

Instagram: @cripple media

Website: https://cripplemedia.com/about/

Aaron Rose Philip

 For more information check out this wonderful article here

https://www.uncrazed.com/aaron-rose-philip-makes-runway-debut-says-disabled-talents-matter/32893

Instagram:aaron_phillip transgendered disabled fabulous Model check him out

Nicole Parish

she is raising awareness on Autism, how she lives with autism, what tools she uses and her love for insects. Follow her on Tik Tok at Sound of the Forest

On this episode we get an update on our lovely Debrus and how she went on her surgery day. Also sending well wishes to Deb xo 
If you need someone to advocate for you and you are disabled there is the disability advocacy finder:

Disability advocacy is acting, speaking or writing to promote, protect and defend the human rights of people with disability. The Australian Government, and some state and territory governments, fund independent advocacy to help people with disability who face complex challenges or are unable to advocate for themselves, and do not have family, friends or peers who can support them as informal advocates, to access advocacy support.

To listen to Rods My FND Reality : his Caregiving story click below

https://thefndpodcast.simplecast.com/episodes/my-fnd-reality-caregiving-talking-to-rodney

Carer Gateway is an excellent resource provided by the federal government  to help support caregivers by giving resources, support , education, forums and more. We recently had an interview with Catholic care who runs Carer Gateway to learn more about them you can listen to their interview below :

https://thefndpodcast.simplecast.com/episodes/supporting-caregivers-carer-gateway

For more information on Carer Gateway 

https://www.carergateway.gov.au/

their phone number is 1800 422 737

also join their Facebook page to keep updated and their support groups.

For the FND Australian support services Facebook group to talk and share support of other caregivers looking after FNDers / support advocates click on the link below

https://www.facebook.com/groups/588224248292396

For more information about NDIS checkout Carers Australia @ www.carers australia.com.au

https://www.carersaustralia.com.au/ndis-carers/what-is-the-ndis/

https://imprintmerch.com.au/collections/lets-have-the-chat

from masks to bags hoodies and tshirts check them out!

What has the team been listening to? What are are their song preferences ? In a flare and would like to listen to some songs? Head over to our playlist! Thank you Maggie for making it :)

https://open.spotify.com/playlist/5lvGhN4Ab3AtwBj42L5DDA?si=i1RzVbhmQ3GeJ6a3Iu7sHw&dl_branch=1

https://imprintmerch.com.au/collections/lets-have-the-chat

from masks to bags hoodies and tshirts check them out!

HELPFUL RESOURCES:

A website all things Functional neurological Disorder written by Professor Jon Stone who is the leading FND researcher and Consultant Neurologist in Edinburgh, Scotland.

https://www.neurosymptoms.org/

Neurosymptoms has an app that you can download now too. Look up neurosymptoms or Jon stone and you will find it there. 

https://www.health.qld.gov.au/news-events/podcast/my-amazing-body-the-brain-2.0

An excellent podcast episode which explains what Functional Neurological Disorder is. Have a good listeners brilliant!

https://www.neurokid.co.uk/

A website for young people and families living with NEAD and neurological symptom

https://fndportal.org/

Amazing website with information and links to fnd 

Information on Non Epileptic Seizures or NEAD

https://www.sth.nhs.uk/clientfiles/File/Epilepsy/pil2072.pdf

FND ORGANISATIONS:

https://www.fndaus.org.au/

FND AUSTRALIA SUPPORT  SERVICES INC: A wonderful resource for people in Australia with FND: from reasearch into FND, finding medical specialists and services and just information about FND. Solely dedicated to all things FND and helping those with FND in Australia.

Click below to hear more about FND Australia Support services and who Dr. Katherine Gill is 

https://thefndpodcast.simplecast.com/episodes/the-fnd-podcast-with-detty-dr-katherine-gill-and-fnd-australian-support-services

FND Action is a patient-led charity who offer a caring and supporting hand to people living with Functional Neurological Disorder (FND) in the UK.

https://www.fndaction.org.uk/

FND Dimensions aims to develop a network of ‘peer support groups’ across the UK either in face to face meetings or online via methods such as Skype. By bringing people together on a regular basis, this helps alleviate the isolation that many FND patients feel. It also gives  opportunity  for others to open up dialog and to talk to others in a similar position about the day to day challenges, issues or concerns with one another.

http://fnddimensions.org/

A really helpful article and explanation of what FND is: '

https://threadreaderapp.com/thread/1367576277956370432.html?fbclid=IwAR1GZpXe7IgC9qVlIr7ygA9RslPy6nxhQIumdUw9XMu2fs8MsMf8SwYZeVQ

Other podcasts/ blogs / vlogs to follow:

itsmeitsmeitsfnd

https://open.spotify.com/show/6RSjTADQCw9tA4Udnutf0L?si=JZy4CAfuSB6FWaBCi8Avgg&dl_branch=1

Bed Life and Beyond by Rach also a lovely FNDer 

https://pandoralocksmith.wordpress.com/about/

John McLeans Fnd Journey

https://m.facebook.com/JohnsFND/?ref=page_internal&mt_nav=0

Lmtd Life with FND

https://m.youtube.com/channel/UC3xLKpn7gkgvVoH29ulu4IA/videos

FNDer amplified: Meg Jacks

follow on Instagram @ Meg.jacks_

TicTok: @megjacks

Instagram follow Emma’s journey :@emmas_fnd_fun

The Fnd Podcast always suggests that you always talk with your gp and or specialist with any treatments in regards with FND

In this episode our lovely Maggie is still in Quarantine. Yet despite being in Quarantine and stuck in the situation she still shows up to talk about FND, answers some questions from you guys the listeners and amplifys others in the community. What an amazing lady! follow Maggie on Instagram @Maggie.Chapman

Follow Maggie on Instagram @Maggie.Chapman and her creatively on @maggiesa.creative

To listen to our song playlist  started by our lovely Maggie on Spotify click on the link below

https://open.spotify.com/playlist/5lvGhN4Ab3AtwBj42L5DDA?si=IyN0V1ENQdi1_6W6MrNjAA

FND Merchandise to support FND Australia Support services by Chucky from @friendswithfnd

https://imprintmerch.com.au/collections/lets-have-the-chat

from masks to bags hoodies and tshirts check them out!

LINKS AND INFORMATION TO CHECK OUT:

Information on NEAD: Pdf on how to manage your Nead 

https://www.sth.nhs.uk/clientfiles/File/Epilepsy/pil2072.pdf

We talked a little about Medibands you can customise your own to suit you

https://www.mediband.com/au/

In Emergency situations for those with Apple phones here’s how to access Medical ID information to contacting emergency contacts and even emergency numbers

https://support.apple.com/en-au/HT208076

The myFND App

myFND, has been launched to support people with Functional Neurological Disorder (FND) to understand and manage their symptoms. Supported by St George's Hospital Charity and St George's NHS FT, the app has been launched by Consultant Neuropsychiatrist, Dr Chris Symeon. You can find it at any App Store. 

https://myfnd.co.uk/
for more information about the fnd app

AMPLIFYING:

Meg Jacks

TICTOK account : @ Megjacks

follow her on Instagram @Meg.Jacks_

She is a fellow FNDer who is very open about her journey with FND and has helped raised awareness with FND. She is amazing, check her out!

HELPFUL RESOURCES:
A website all things Functional neurological Disorder written by Professor Jon Stone who is the leading FND researcher and Consultant Neurologist in Edinburgh, Scotland.

https://www.neurosymptoms.org/

Neurosymptoms has an app that you can download now too. Look up neurosymptoms or Jon stone and you will find it there. 

FND ORGANISATIONS:

https://www.fndaus.org.au/

FND AUSTRALIA SUPPORT  SERVICES INC: A wonderful resource for people in Australia with FND: from reasearch into FND, finding medical specialists and services and just information about FND. Solely dedicated to all things FND and helping those with FND in Australia.

https://fndaus.org.au/

https://www.fndaction.org.uk/

FND Dimensions aims to develop a network of ‘peer support groups’ across the UK either in face to face meetings or online via methods such as Skype. By bringing people together on a regular basis, this helps alleviate the isolation that many FND patients feel. It also gives  opportunity  for others to open up dialog and to talk to others in a similar position about the day to day challenges, issues or concerns with one another.

http://fnddimensions.org/

A really helpful article and explanation of what FND is: '

https://threadreaderapp.com/thread/1367576277956370432.html?fbclid=IwAR1GZpXe7IgC9qVlIr7ygA9RslPy6nxhQIumdUw9XMu2fs8MsMf8SwYZeVQ

Other podcasts/ blogs / vlogs to follow:

itsmeitsmeitsfnd

https://open.spotify.com/show/6RSjTADQCw9tA4Udnutf0L?si=JZy4CAfuSB6FWaBCi8Avgg&dl_branch=1

Bed Life and Beyond by Rach also a lovely FNDer 

https://pandoralocksmith.wordpress.com/about/

John McLeans Fnd Journey

https://m.facebook.com/JohnsFND/?ref=page_internal&mt_nav=0

Lmtd Life with FND

https://m.youtube.com/channel/UC3xLKpn7gkgvVoH29ulu4IA/videos

FNDer amplified: Meg Jacks

follow on Instagram @ Meg.jacks_

TicTok: @megjacks

The Fnd Podcast always suggests that you always talk with your gp and or specialist with any treatments in regards with FND. 
 

This episode we talk about self care, boundaries and of course FND. Join me and Deb as we don’t hold anything back. 

To listen to our song playlist  started by our lovely Maggie on Spotify click on the link below

https://open.spotify.com/playlist/5lvGhN4Ab3AtwBj42L5DDA?si=IyN0V1ENQdi1_6W6MrNjAA

FND Merchandise to support FND Australia Support services by Chucky from @friendswithfnd

https://imprintmerch.com.au/collections/lets-have-the-chat

from masks to bags hoodies and tshirts check them out!

HELPFUL RESOURCES:
A website all things Functional neurological Disorder written by Professor Jon Stone who is the leading FND researcher and Consultant Neurologist in Edinburgh, Scotland.

https://www.neurosymptoms.org/

Neurosymptoms has an app that you can download now too. Look up neurosymptoms or Jon stone and you will find it there. 

FND ORGANISATIONS:

https://www.fndaus.org.au/

FND AUSTRALIA SUPPORT  SERVICES INC: A wonderful resource for people in Australia with FND: from reasearch into FND, finding medical specialists and services and just information about FND. Solely dedicated to all things FND and helping those with FND in Australia.

https://fndaus.org.au/

https://www.fndaction.org.uk/

FND Dimensions aims to develop a network of ‘peer support groups’ across the UK either in face to face meetings or online via methods such as Skype. By bringing people together on a regular basis, this helps alleviate the isolation that many FND patients feel. It also gives  opportunity  for others to open up dialog and to talk to others in a similar position about the day to day challenges, issues or concerns with one another.

http://fnddimensions.org/

A really helpful article and explanation of what FND is: 

https://threadreaderapp.com/thread/1367576277956370432.html?fbclid=IwAR1GZpXe7IgC9qVlIr7ygA9RslPy6nxhQIumdUw9XMu2fs8MsMf8SwYZeVQ

MY FND APP is another great tool that can be downloaded at any App Store which can help you monitor your FND symptoms and document it so you can see it for yourself long term and keep a log. Also it can be great to take along for appointment. 

Other podcasts/ blogs / vlogs to follow:

itsmeitsmeitsfnd

https://open.spotify.com/show/6RSjTADQCw9tA4Udnutf0L?si=JZy4CAfuSB6FWaBCi8Avgg&dl_branch=1

Bed Life and Beyond by Rach also a lovely FNDer 

https://pandoralocksmith.wordpress.com/about/

John McLeans Fnd Journey

https://m.facebook.com/JohnsFND/?ref=page_internal&mt_nav=0

Lmtd Life with FND

https://m.youtube.com/channel/UC3xLKpn7gkgvVoH29ulu4IA/videos

The Fnd Podcast always suggests that you always talk with your gp and or specialist with any treatments in regards with FND. 
 

Join me as we talk to others with FND in the community as they share their time, their lived experiences and invaluable and priceless insights with FND. Each person brings to the table their own unique truth of what it is to genuinely live with FND. For that I am absolutely humbled, grateful and show great respect to each person that I have talked to.

In this episode of My FND Reality we are amplyfying another fellow fnd podcast because we support fnd awareness. It is my greatest pleasure and well overdue to present this amazing podcaster and Fnd advocate/ warrior Jake!

follow him on Instagram on @punkchef41 and his podcast  it’s me it’s me it’s fnd

click here for Apple podcast

 https://podcasts.apple.com/au/podcast/toxic-people-can-make-your-fnd-so-much-worst-ep24/id1557148347?i=1000527867893

and for Spotify:

https://open.spotify.com/show/6RSjTADQCw9tA4Udnutf0L?si=AYZJ06XxRvOG2eBbO3bfAg&dl_branch=1

To listen to our song playlist  started by our lovely Maggie on Spotify click on the link below

https://open.spotify.com/playlist/5lvGhN4Ab3AtwBj42L5DDA?si=IyN0V1ENQdi1_6W6MrNjAA

FND Merchandise to support FND Australia Support services by Chucky from @friendswithfnd

https://imprintmerch.com.au/collections/lets-have-the-chat

from masks to bags hoodies and tshirts check them out!

HELPFUL RESOURCES:
A website all things Functional neurological Disorder written by Professor Jon Stone who is the leading FND researcher and Consultant Neurologist in Edinburgh, Scotland.

https://www.neurosymptoms.org/

Neurosymptoms has an app that you can download now too. Look up neurosymptoms or Jon stone and you will find it there. 

FND ORGANISATIONS:

https://www.fndaus.org.au/

FND AUSTRALIA SUPPORT  SERVICES INC: A wonderful resource for people in Australia with FND: from reasearch into FND, finding medical specialists and services and just information about FND. Solely dedicated to all things FND and helping those with FND in Australia.

https://fndaus.org.au/

https://www.fndaction.org.uk/

FND Dimensions aims to develop a network of ‘peer support groups’ across the UK either in face to face meetings or online via methods such as Skype. By bringing people together on a regular basis, this helps alleviate the isolation that many FND patients feel. It also gives  opportunity  for others to open up dialog and to talk to others in a similar position about the day to day challenges, issues or concerns with one another.

http://fnddimensions.org/

A really helpful article and explanation of what FND is: 

https://threadreaderapp.com/thread/1367576277956370432.html?fbclid=IwAR1GZpXe7IgC9qVlIr7ygA9RslPy6nxhQIumdUw9XMu2fs8MsMf8SwYZeVQ

MY FND APP is another great tool that can be downloaded at any App Store which can help you monitor your FND symptoms and document it so you can see it for yourself long term and keep a log. Also it can be great to take along for appointment. 

The Fnd Podcast always suggests that you always talk with your gp and or specialist with any treatments in regards with FND. 
 

the lighter group that Deb had mentioned that she will go to you can check out where is the closest in your area. Please consult with your fnd team first to check if it is right for you.

https://www.meetup.com/en-AU/topics/laughter-club/

Kerris My FND Reality: Deb is referring to her FND Reality: her story is here:

https://thefndpodcast.simplecast.com/episodes/my-fnd-reality-talking-to-keri

The Carer Gateway : Australian Government Initiative. To learn more you can listen to their interview from this podcast episode here:

https://thefndpodcast.simplecast.com/episodes/supporting-caregivers-carer-gateway

and the website link is here:

https://www.carergateway.gov.au/

Blue care offer home assistance  which Deb uses here is the link for more information 

https://www.bluecare.org.au/home-care

The Red Cross offers a service which calls people on a daily basis to ensure they are okay every day; if the call isn’t answered Red Cross will take action to make sure you’re okay. This can be a temporary service too. It’s called Telecross

https://www.redcross.org.au/get-help/community-services/telecross

Meals on wheels :

https://mealsonwheels.org.au/

HELPFUL RESOURCES:

A website all things Functional neurological Disorder written by Professor Jon Stone who is the leading FND researcher and Consultant Neurologist in Edinburgh, Scotland.

www.neurosymptoms.org

Youtube video: What is Functional Neurological Condition By Dr. Phil Parker. A great thorough explanation of FND and the updates of FND.

FND ORGANISATIONS:

FND AUSTRALIA SUPPORT SERVICES INC: A wonderful resource for people in Australia with FND: from reasearch into FND, finding medical specialists and services and just information about FND. Solely dedicated to all things FND and helping those with FND in Australia.

https://fndaus.org.au/

FND Action: FND Action is a patient-led charity who offer a caring and supporting hand to people living with Functional Neurological Disorder (FND) in the UK. FND Action provide support to those diagnosed and their caregivers by hosting online support groups, an informative website and actively advocating for the cause.

https://www.fndaction.org.uk/

FND Dimensions aims to develop a network of ‘peer support groups’ across the UK either in face to face meetings or online via methods such as Skype. By bringing people together on a regular basis, this helps alleviate the isolation that many FND patients feel. It also gives  opportunity  for others to open up dialog and to talk to others in a similar position about the day to day challenges, issues or concerns with one another.

http://fnddimensions.org/

A really helpful article and explanation of what FND is: '

https://threadreaderapp.com/thread/1367576277956370432.html?fbclid=IwAR1GZpXe7IgC9qVlIr7ygA9RslPy6nxhQIumdUw9XMu2fs8MsMf8SwYZeVQ

if you are interested in FND Merchandise to support FND Australia support services by Friends of FND

https://imprintmerch.com.au/collections/lets-have-the-chat

to listen to Chuckys my fnd reality :

https://thefndpodcast.simplecast.com/episodes/my-fnd-reality-talking-to-chucky

Latest research on fnd brings hope: study on the cause of fnd

https://www.eurekalert.org/pub_releases/2021-03/uoy-nrr031521.php

And 

https://www.google.com.au/amp/s/www.news-medical.net/amp/news/20210316/Researchers-identify-a-possible-cause-of-functional-neurological-disorder.aspx?fbclid=IwAR31fhr6DDupfWkYiPPW2Tjl5uIx8ob7_iYPD3LcWfx0_CbKgAbK29KYJOQ

the functional mri and fnd :

https://www.itnonline.com/content/imaging-study-provides-new-biological-insights-functional-neurological-disorder

and the need for continual studies and research into fmri and fnd 

https://www.sciencedirect.com/science/article/pii/S221315822100067X

HELPFUL RESOURCES:

A website all things Functional neurological Disorder written by Professor Jon Stone who is the leading FND researcher and Consultant Neurologist in Edinburgh, Scotland.

www.neurosymptoms.org

Youtube video: What is Functional Neurological Condition By Dr. Phil Parker. A great thorough explanation of FND and the updates of FND.

FND ORGANISATIONS:

FND AUSTRALIA SUPPORT SERVICES INC: A wonderful resource for people in Australia with FND: from reasearch into FND, finding medical specialists and services and just information about FND. Solely dedicated to all things FND and helping those with FND in Australia.

https://fndaus.org.au/

FND Action: FND Action is a patient-led charity who offer a caring and supporting hand to people living with Functional Neurological Disorder (FND) in the UK. FND Action provide support to those diagnosed and their caregivers by hosting online support groups, an informative website and actively advocating for the cause.

https://www.fndaction.org.uk/

FND Dimensions aims to develop a network of ‘peer support groups’ across the UK either in face to face meetings or online via methods such as Skype. By bringing people together on a regular basis, this helps alleviate the isolation that many FND patients feel. It also gives  opportunity  for others to open up dialog and to talk to others in a similar position about the day to day challenges, issues or concerns with one another.

http://fnddimensions.org/

A really helpful article and explanation of what FND is: '

https://threadreaderapp.com/thread/1367576277956370432.html?fbclid=IwAR1GZpXe7IgC9qVlIr7ygA9RslPy6nxhQIumdUw9XMu2fs8MsMf8SwYZeVQ

if you are interested in FND Merchandise to support FND Australia support services by Friends of FND

https://imprintmerch.com.au/collections/lets-have-the-chat

HELPFUL RESOURCES:

A website all things Functional neurological Disorder written by Professor Jon Stone who is the leading FND researcher and Consultant Neurologist in Edinburgh, Scotland.

www.neurosymptoms.org

Youtube video: What is Functional Neurological Condition By Dr. Phil Parker. A great thorough explanation of FND and the updates of FND.

FND ORGANISATIONS:

www.fndaus.org.au

FND AUSTRALIA SERVICES INC: A wonderful resource for people in Australia with FND: from reasearch into FND, finding medical specialists and services and just information about FND. Solely dedicated to all things FND and helping those with FND in Australia.

https://fndaus.org.au/

FND Action: FND Action is a patient-led charity who offer a caring and supporting hand to people living with Functional Neurological Disorder (FND) in the UK. FND Action provide support to those diagnosed and their caregivers by hosting online support groups, an informative website and actively advocating for the cause.

https://www.fndaction.org.uk/

FND Dimensions aims to develop a network of ‘peer support groups’ across the UK either in face to face meetings or online via methods such as Skype. By bringing people together on a regular basis, this helps alleviate the isolation that many FND patients feel. It also gives  opportunity  for others to open up dialog and to talk to others in a similar position about the day to day challenges, issues or concerns with one another.

http://fnddimensions.org/

A really helpful article and explanation of what FND is:

https://threadreaderapp.com/thread/1367576277956370432.html?fbclid=IwAR1GZpXe7IgC9qVlIr7ygA9RslPy6nxhQIumdUw9XMu2fs8MsMf8SwYZeVQ

if you are interested in FND Merchandise to support FND Australia support services by Friends of FND

https://imprintmerch.com.au/collections/lets-have-the-chat