her als story

May is ALS Awareness month.  So in the spirit of increasing awareness of ALS, a terminal illness with no cure, I continue my chat with 3 others living with ALS.  We answer the questions sent in by listeners of this podcast about what it's like being a young adult and living with a terminal illness.  My guests, Ashley Rivera and Mira Hudson were diagnosed at 24 and James Smith was diagnosed at 36.  They dig deep and open their hearts to answer your questions like, "Can you share about the moment you were diagnosed with ALS?"  "How do you find the strength day in and out to persevere and overcome fears, pain, negative emotions, etc.? "  "What's important now that wasn't before your diagnosis?"  "What makes you feel inspired or like your best self now?"  and "How are you dealing with the mental side of living with ALS."  Those are a few examples of questions they answer and generate a full conversation around.  Please consider sharing this episode to share their courageous spirits and to tell others about ALS.  Thank you. Hugs, Lorri  

I am so incredibly grateful that you are here. It means the world to me! Thank you. Follow and see what's coming next: Instagram, Facebook, Twitter, TikTok, LinkedIn.

In this special Q&A episode, 3 young adults answer questions you sent in about ALS and living with a terminal illness.  May is ALS Awareness month.  So in the spirit of increasing awareness of ALS, a terminal illness with no cure, I chatted with 3 others living with ALS.  We answer the questions sent in by listeners of this podcast about what it's like being a young adult and living with a terminal illness.  My guests, Ashley Rivera and Mira Hudson were diagnosed at 24 and James Smith was diagnosed at 36.  They dig deep and open their hearts to answer your questions like, "Can you share about the moment you were diagnosed with ALS?"  "How do you find the strength day in and out to persevere and overcome fears, pain, negative emotions, etc.? "  "What's important now that wasn't before your diagnosis?"  "What makes you feel inspired or like your best self now?"  and "How are you dealing with the mental side of living with ALS."  Those are a few examples of questions they answer and generate a full conversation around.  Please consider sharing this episode to share their courageous spirits and to tell others about ALS.  Thank you. Hugs, Lorri  

I am so incredibly grateful that you are here. It means the world to me! Thank you. Follow and see what's coming next: Instagram, Facebook, Twitter, TikTok, LinkedIn.

Here I talk to 34 year old TikToker, Brooke Eby who is using humor and social media to navigate life after being diagnosed with a fatal disease.  Brooke was diagnosed with the terminal illness, ALS, at a young 33.   With the support of her family, friends, and co-workers, Brooke's been able to laugh in the face of ALS by using humor on social media..  Brooke created a TikTok account @LimpBroozkit to help explain what she  was going through without making it a heavy conversation.  Not only is creating TikTok videos about ALS a case of "laughter is the best medicine" right now, but Brooke is also educating others and creating new ALS awareness.   With millions of views, Brooke's ultimate goal is that her humor continues to boost others through any hard times.  Brooke said that after getting a terminal diagnosis, she felt a mix of shock and sadness and was depressed during the first couple of months.   Right now, Brooke's TikTok videos are helping her cope.   She hopes her videos can help start conversations to drive awareness, support and ultimately cures for ALS.  Check out Brooke's TikTok channel @LimpBroozkit .  Thank you for listening in and sharing with a friend.  Hugs, Lorri
Follow:  https://bit.ly/ImDyingToTellYouInstagram

I am so incredibly grateful that you are here. It means the world to me! Thank you. Follow and see what's coming next: Instagram, Facebook, Twitter, TikTok, LinkedIn.

Listen in to my conversation with former Kansas City police officer, Sarah Nauser as we chat about  life and love while living with a terminal illness.  For eight years, Sarah earned high praise as a young, vibrant, rising star within the Kansas City Police Department.   She was living her dream until she was told she had ALS at the young age of 29.    Sarah, also a former body builder continues to be strong and determined.   In our conversation, we talked about life before ALS, her dream of being a police officer, her love for the Kansas City Royals, finding love after her diagnosis & even being a grandma at 33.  Sarah shares how she’s able to live a joyful life despite being diagnosed with a terminal illness.  Sarah has faced this devastating disease with a positive attitude and a resilience to focus on the good in her life.  "Your life can change in an instant like mine, don’t wait.  Be kind you never know the lives you may touch or the difference you can make," Sarah.  I hope you'll tune in to our chat and share it with a friend.  Thanks for listening.  Hugs, Lorri

I am so incredibly grateful that you are here. It means the world to me! Thank you. Follow and see what's coming next: Instagram, Facebook, Twitter, TikTok, LinkedIn.

Amyotrophic lateral sclerosis (ALS), also known as Lou Gehrig's disease, is a degenerative neurological disease most often associated with older while males. However, it is not exclusive to them, and obtaining a diagnosis as a young woman can be tricky. The women of Her ALS story are patients and spokespeople who are trying to change that by sharing their stories with the world. Listen now to hear their stories, and learn more at heralsstory.org.