joe way

Mark from OXBOW supporting SKINDOG and Joe Way paddle

podcast with ben Skinner and Kai lenny at the SKINDOG surf school yesterday.

If all of Joe's supporters on Facebook donated £2 we could raise £4500.00 which would buy 5 boxes which would house and protect over 50 people for months please goto Joe's shelter box justgiving pageYOU can donate as little as £2 on line which would not buy a pint of beer but togeather you could help people who are suffering. Click here to donate. To see more about why we support this charity go to www.shelterbox.org Shelter box news.

Matt Way (Joe's Dad), Anna Heacock, Julie Richards and Vashti Barnicot all jumped for Joe to raise money for the Precious Lives Appeal in memory of Cornish toddler. The Cornish Parachute club had another 25 jumpers also jumping for Precious Lives over the weekend with conditions varied the team where on their toes to make sure the best was made of every weather window. Team Joe raised an overall amount of over £1500 taking the total over £51,000.00 in just over twelve months since the website started after little Joe Way died. Claire Way said “The journey we have been on since the start of Joe’s website has been amazing and the fundraising has been running at £1000 per week for most of the last twelve months, he has inspired so many new people” Matt Way jumped with tandem instructor Dr Ryan Jackson who also treated Joe during his long stays at The Royal Cornwall Hospital and knows the Way family, they where filmed by Ben Wood as the 10,000 feet jumped took place over the stunning Cornish coast line of Perranporth and St Agnes. Joes banner was worn by Matt however its remand with Ben as he still has some plans for it which will be extreme with a capital E. Matt said "It was the most amazing experience and as Ryan said before we exited the plane “This ones for Joe” I highly recommend it and the team where friendly and completely professional in every aspect of the experience” When Matt was asked if he would do it again he answered “I couldn’t not experience that rush again I will absolutely have to return” If you have a crazy way to get Joe’s web address out there or can take his banner abroad then email info@joeway.co.uk. To see why Cornwall needs a children’s hospice then look on Joe’s website www.joeway.co.uk

The paddle for life started after Lifeguards from Fistral beach held a “Joe Way memorial paddle” to raise money for the Precious Lives Appeal to build a children’s hospice in Cornwall in memory of Newquay toddler Joe Way. The great thing about the Paddle for Life is anyone can set up a paddle

A PAKISTANI boy in excruciating pain is close to having life saving treatment for his rare condition, partly funded by the parents of Newquay miracle boy Joe Way. Four-year-old Ali Ghazi suffers from Steven Johns Syndrome (SJS), a debilitating adverse drug reaction which has attacked Ali's skin and eyes, stopping him holding his head up because of the intense pain from light sensitivity. Joe Way contracted the syndrome which left him life limited and Joe died on May 7th last year and his parents Matt and Claire are now helping in Ali's fight for survival after being contacted by Helen Milne President and Founder Milne Stevens Johnson Syndrome Society in Canada. Helen, whose child has also suffered from SJS was contacted by the parents of four year old Ali Ghazi from Karachi in Pakistan. Ali literally lives in agony every day with severe ocular surface disease as a result of the SJS reaction to medication and Helen contacted Joe's website to ask for UK assistance for Ali.

Joe's Dad was part of a phone in on BBC radio Cornwall about hospital parking

Local ITV news interview with Louise Midgley who did a great story for us

A live interview with five news when Joe was alive - We where sticking up for the hospital as they had a poor rating on the national table

Joe's story is covered on the Wright Stuff by Melinda Messenager

Matt was invited by the Precious Lives appeal and BBC radio Cornwall to speak about Joe's inspirational story at the christmas recording infront over 1000 people.

Listen to the interview actor Ben Richards gave on Pirate FM, where he talks about learning to surf with Ben Skinner, the Joe Way Story and the Paddle for Life site.

Joe is the inspirational little boy who touched people's lives around the country and beyond. His story of hope and fighting against all the odds with a cheeky smile has made what could have been the worse of times the best of times. His story continues to inspire individuals and business to do something positive and to make a difference.