mcas

This episode centers around unveiling 'Taming the Zebra', a book co-authored by physical therapists, Dr. Patty Stott and Heather Purdin.  The book aims to fill a void in understanding and provide therapists with the knowledge to effectively work with patients with hypermobility spectrum disorders (HSD) and Ehlers-Danlos Syndromes (EDS). It covers the impact of connective tissue disorders on various body systems and provides practical tips for modifying physical therapy approaches. The book emphasizes the importance of addressing primary issues and understanding the complexity of each individual's presentation. The chapters cover topics such as modifying movement for gentle exercise, addressing deconditioning and weakness, building confidence and safe strengthening programs, finding physical therapists open to working with EDS patients, expanding the toolkit for physical therapy, and more. 

Takeaways

• The book 'Taming the Zebra' fills a void in understanding and provides physical therapists with the knowledge to effectively work with patients with HSD and EDS.
• The book emphasizes the importance of addressing primary issues and understanding the individualized nature of each patient's presentation.
• A collaborative approach between therapists and patients is essential in managing overlapping problems and setbacks. Modifying movement can allow individuals with HSD and EDS to engage in gentle exercise and maintain movement despite physical limitations.
• Deconditioning and weakness are common issues for individuals with HSD and EDS, and addressing these problems requires a comprehensive approach that considers the underlying causes and individual goals.
• Physical therapists should approach treatment with intention, focusing on building confidence and creating safe strengthening programs tailored to the individual's needs.
• Expanding the toolkit of physical therapy techniques, such as neural rehabilitation and manual therapies, can improve outcomes for individuals with HSD and EDS.

Chapters ➡

00:00 Introduction and Background

01:58 Motivation for Writing the Book

03:28 Challenges in Managing EDS and HSD

06:08 Different Types of Hypermobility and Connective Tissue Disorders

07:35 Approaching Physical Therapy for EDS and HSD

09:21 Primary Treatment Approach and Identifying Key Issues

21:04 Approaching Physical Therapy with Overlapping Problems

22:48 Non-Linear Path of Physical Therapy

31:01 Modifying Movement for Gentle Exercise

31:21 Addressing Deconditioning and Weakness

35:13 Neural Rehabilitation and Muscle Firing

36:09 Steps to Successful Strengthening

40:18 Expanding the Toolkit for Physical Therapy

43:13 Approaching Stabilization and Alignment

56:32 Hypermobility Hacks

Connect with YOUR Bendy Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/.  

Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them.

Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/.      

YOUR bendy body is our highest priority! 🧬🔬🦓

Resources:  

Virtual book event sign up

https://www.tamingthezebra.org

http://www.elevationwellness.co/

www.goodhealthphysicaltherapy.com/clinic-staff/

www.medbridge.com/heather-purdin-physical-therapy

https://www.olagrimsby.com/courses-page/

https://www.naiomt.com

https://feldenkrais.com

https://counterstrain.com

https://frequencyspecific.com

https://pt.wustl.edu/education/movement-system-impairment-syndromes-courses/where-in-the-world-is-shirley-sahrmann/

#ZebraWarriors #ZebraStrong #HSD #PhysicalTherapy #EhlersDanlos #Podcast #TamingTheZebra

#BendyBodiesPodcast #BendyBuddy #HypermobilityMD 

In this Bendy Bodies podcast episode, Dr. Lillian Holm discusses effective physical therapy for EDS and HSD and the importance of correcting function to achieve pain relief and tolerance for exercise. She explains why physical therapy may not always lead to the expected outcome, emphasizing the need for specialized therapists and individualized treatment. She addresses common misconceptions about physical therapy and highlights the importance of communication and realistic expectations. Dr. Linda Bluestein and Dr. Holm cover topics such as progress and setbacks, balancing stretching with strengthening, starting to walk again after severe limitations, physical therapy for scoliosis, and helpful resources and information. Dr. Holm also shares her favorite hypermobility hacks to help individuals stay motivated and achieve their goals.

Takeaways

• Physical therapy can be highly beneficial for symptomatic joint hypermobility, providing pain relief and improving function.
• Finding a specialized physical therapist with expertise in hypermobility conditions is crucial for successful treatment.
• Misconceptions about physical therapy, such as the belief that it should be painful, can hinder progress.
• Individualized treatment plans and gradual progression are key to achieving the best outcomes in physical therapy.
• Open communication with the physical therapist and realistic expectations are essential for success.

Chapters ➡

00:00 Introduction to Dr. Lillian Holm

01:15 What can physical therapy do for people with symptomatic joint hypermobility?

04:19 Reasons why physical therapy may not lead to expected outcomes

09:09 How to find the best possible physical therapist for EDS and HSD

11:58 Misconceptions about physical therapy for joint hypermobility

21:25 Approach for people who don't like to exercise

25:41 Resetting the boom and bust cycle

35:23 Metrics for measuring success in physical therapy

50:18 Progress and Setbacks

52:47 Balancing Stretching with Strengthening

56:22 Starting to Walk Again

58:12 Physical Therapy for Scoliosis

01:01:04 Resources and Information

01:02:23 Hypermobility Hacks

Connect with YOUR Bendy Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/.  

Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them.

Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/.      

YOUR bendy body is our highest priority! 🧬🔬🦓

Resources:  

Learn more about guest, Dr. Lilian Holm:

https://www.lilianholm.com/

https://www.instagram.com/hypermobilitydoctor/

https://www.facebook.com/HypermobilityD

Read her guest blog post for the Hypermobility MD website:

https://www.hypermobilitymd.com/post/hypermobile-five-principles-to-make-physical-therapy-work-for-you

#RareDiseaseDay #ZebraWarriors #ZebraStrong #HSD #PhysicalTherapy #EhlersDanlos #HypermobilityDoctor #Podcast

#BendyBodiesPodcast #BendyBuddy #HypermobilityMD 

In this episode, Dr. Linda Bluestein and Corinne McLees discuss hand problems in EDS including pain, weakness, and injuries.  This conversation covers various topics related to hand problems, including ring splints, hand exercises, avoiding strain and hyperextension, tips for traveling, challenges of the medical system for chronic pain, hand pain with writing, hand pain and numbness in sleep, thumb pain and De Quervain's tendonitis, cubital tunnel syndrome, TFCC tear, trigger finger and so much  more. 

Takeaways

• Hand pain, weakness, and injuries are common in individuals with joint hypermobility.
• Hand pain in connective tissue disorders can be caused by hypermobility, subluxations, nerve impingement, and arthritis.
• TheraPutty is a useful tool for strengthening hands.  Low profile hand support options include kinesio tape, silicone thumb supports, and the Push MetaGrip.
• Traditional therapies may not work for hand pain in hypermobility if the underlying hypermobility is not addressed.
• Ring splints can provide support and stability for hypermobile joints in the hands.
• Insurance coverage for ring splints may vary, and Silver Ring Splints is a US-based provider that offers insurance coverage options. 
• Trigger finger occurs when the tissue surrounding a tendon becomes knotted, causing the tendon to catch and lock when the finger is flexed.
• Steroid injections combined with splinting can be effective in treating trigger finger, especially in acute cases.
• Trigger finger may be misdiagnosed in the hypermobile population, as it can be a result of subluxation rather than tissue accumulation.
• Hypermobility hacks include ergonomic hand movements, swimming, abdominal compression, and prioritizing daily movement.

YOUR host, as always, is Dr. Linda Bluestein, the Hypermobility MD.

Chapters

00:00 Introduction and Overview

01:38 Difference between Occupational and Physical Therapy

04:44 Common Reasons for Hand Pain in Connective Tissue Disorders

09:53 Approach to Hypermobility in Hands

12:46 Strengthening Hands with TheraPutty

20:55 Strengthening Hands without Overdoing It

21:27 Reasons Traditional Therapies May Not Work for Hand Pain

24:08 Low Profile Hand Support Options

28:23 Ring Splints and Insurance Coverage

38:34 Ring Splints and Plastic Splints

40:33 Hand Exercises for Different Age Groups

42:33 Avoiding Strain and Hyperextension

45:21 Tips for Traveling with Hand Problems

47:51 Challenges of the Medical System for Chronic Pain

51:22 Hand Pain with Writing

53:52 Hand Pain and Numbness in Sleep

56:16 Thumb Pain and De Quervain's Tendonitis

59:17 Cubital Tunnel Syndrome

01:02:19 Torn Triangular Fibrocartilage Complex (TFCC)

01:06:14 Decuervain's Tendonitis

01:09:17 TFCC Tear

01:13:32 Trigger Finger

01:17:31 Differentiating Trigger Finger from Subluxation

01:18:38 Pulley Injuries in Rock Climbers

01:19:25 Hypermobility Misdiagnosis

01:20:46 Hypermobility Hacks

Connect with YOUR Bendy Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/.  

Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them.

Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/.      

YOUR bendy body is our highest priority! 🧬🔬🦓

Resources:  

Learn more about guest, Corinne McLees here:

https://www.handcoachcorinne.com/

Check out the items mentioned in episode 91 here:

https://amzn.to/49FkaGY

Check out the Bendy Bodies Amazon Shop here:

https://www.amazon.com/shop/hypermobilitymd

Links to other products:

https://www.silverringsplint.com/

https://www.evabellejewelry.com/

https://bracelab.com/metagrip.html?utm_source=Affiliate+Partnership&utm_medium=Social&utm_campaign=Corinne

#HandPain #HandProblems #HandWeakness #WristPain

#BendyBodiesPodcast #BendyBuddy #HypermobilityMD 

In this episode, Dr. Linda Bluestein interviews Dr. Ilene Ruhoy about causes of brain fog, as well as its relationship to various conditions such as mast cell activation syndrome, craniocervical instability, dysautonomia, and CSF leaks. She explains how these conditions contribute to cognitive dysfunction and the importance of identifying underlying causes. Dr. Ruhoy emphasizes the need for a comprehensive evaluation and individualized treatment approach for patients experiencing brain fog.  They delve into the role of nutrition in cognitive function, emphasizing the impact of food choices on inflammation. They highlight the importance of avoiding processed foods and sugar, increasing vegetable consumption, and improving lifestyle factors.  Dr. Ruhoy shares surprising findings on the MRI of mast cell activation syndrome (MCAS) patients. 

YOUR host, as always, is Dr. Linda Bluestein, the Hypermobility MD.

Takeaways

• Brain fog is characterized by cognitive difficulties such as slow thinking, difficulty learning and recalling information, and trouble focusing and paying attention.
• Conditions such as mast cell activation syndrome (MCAS), craniocervical instability (CCI), dysautonomia, Ehlers-Danlos Syndromes, and CSF leaks can contribute to cognitive dysfunction and brain fog.
• Intracranial hypertension (high pressure), hypotension (low pressure), and Tarlov cysts can also contribute to brain fog. 
• Identifying the underlying causes of brain fog is crucial for developing an effective treatment plan.
• A comprehensive evaluation, including medical history, imaging studies, and laboratory tests, can help determine the contributing factors and guide treatment decisions. Applying knowledge gained from podcasts and research in clinical practice can help healthcare professionals provide better care to their patients.
• Making a meaningful difference in patients' lives is a rewarding aspect of being a healthcare professional.
• Nutrition plays a crucial role in cognitive function, and food choices can either be anti-inflammatory or pro-inflammatory.
• Avoiding processed foods and sugar, increasing vegetable consumption, and improving lifestyle factors can positively impact cognitive function.

Chapters

00:00 Introduction of Dr. Ilene Ruhoy

01:57 Defining Brain Fog

04:14 Risk Factors for Brain Fog

09:42 Identifying Contributing Factors

11:52 Cognitive Dysfunction and Mast Cell Activation Syndrome

14:09 Cognitive Dysfunction and Craniocervical Instability

18:18 Cognitive Dysfunction and CSF Leak

22:59 Cognitive Dysfunction and Dysautonomia

25:25 Cognitive Dysfunction and Upper Cervical Instability

30:12 Cognitive Dysfunction and CSF Leak

38:11 Applying Knowledge in Clinical Practice

39:04 The Importance of Making a Meaningful Difference

40:31 The Role of Nutrition in Cognitive Function

42:38 The Impact of Food Choices on Inflammation

43:44 Avoiding Processed Foods and Sugar

44:38 The Role of Complex Carbohydrates and Dairy

45:28 Increasing Vegetable Consumption

46:44 Improving Lifestyle Factors

47:09 Where to Find Dr. Ilene Ruhoy Online

Connect with YOUR Bendy Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/.  

Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them.

Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/.      

YOUR bendy body is our highest priority! 🧬🔬🦓

Resources:  

https://www.bendybodiespodcast.com/13-healing-the-brain-holistically-with-ilene-ruhoy-md-phd/

https://patreon.com/unraveledpod

https://instagram.com/ileneruhoymdphd/

https://twitter.com/RuhoyMD

https://tiktok.com/ileneruhoymdphd

#BrainFog #BrainFogAwareness #BrainHealth

#FunctionalMedicine #NutritionForBrainHealth #InflammationAwareness

#MastCellActivationSyndrome #MCAS #CSFLeakInsights #TarlovCystAwareness #TarlovCystWarrior

#BendyBodiesPodcast #BendyBuddy #HypermobilityMD 

In this episode, Dr. Linda Bluestein interviews Dr. Roger Seheult about the importance of sleep for people with chronic illness, chronic pain, and joint hypermobility.  Dr Seheult, a quadruple board-certified physician with expertise in sleep medicine, discusses various topics related to sleep, including the circadian rhythm, the impact of light on sleep, the effect of blue light on sleep, ideal bedtime, the impact of electronics on sleep, the role of melatonin, and the timing of eating and its effect on sleep.  Other topics include challenges of working from home, sleep schedules and chronic illness, shifting sleep patterns, sleep apnea and its relationship with chronic illness, sleep medications, sleep watches and monitoring devices, sleep positions and joint instability, and the importance of sleep education in medical training. Dr. Seheult provides valuable insights and recommendations for improving sleep quality and managing sleep-related issues.

YOUR host, as always, is Dr. Linda Bluestein, the Hypermobility MD.

Takeaways:

Sleep is crucial for people with chronic illness, chronic pain, and joint hypermobility.

Understanding the circadian rhythm is important for optimizing sleep.

Light, especially blue light, can significantly impact sleep quality.

The suprachiasmatic nucleus plays a key role in regulating the sleep-wake cycle.

Morning light exposure is important for setting the body's internal clock.

The timing of eating can affect sleep quality.

Establishing a consistent sleep schedule and avoiding late-night eating can improve sleep quality.

Shifting sleep patterns can be challenging, especially for individuals with chronic illness.

Sleep apnea is common in individuals with chronic illness and connective tissue disorders like Ehlers-Danlos Syndromes.

Home sleep studies can be effective in detecting sleep apnea, but in-lab studies may be necessary for individuals at higher risk of central apnea.

Sleep medications should be used cautiously due to potential side effects and dependency issues.

Sleep watches and monitoring devices can provide valuable insights into sleep patterns and quality.

Proper sleep positions, pillows, and mattresses can help alleviate joint instability and pain during sleep.

Education on sleep disorders and their relationship with chronic illness should be improved in medical training.

Patient advocacy and sharing information through podcasts can help raise awareness and improve access to sleep education.

Chapters

00:00 Introduction of Dr. Roger Seheult

03:22 Understanding the Circadian Rhythm

07:02 Impact of Light on Sleep

09:20 The Suprachiasmatic Nucleus and its Role in Sleep

09:49 The Importance of Light for People with Chronic Illness

13:35 The Effect of Blue Light on Sleep

15:28 Ideal Bedtime for Optimal Sleep

17:25 The Impact of Electronics on Sleep

19:26 The Role of Melatonin in Sleep

20:05 The Importance of Morning Light

23:29 The Timing of Eating and its Effect on Sleep

24:00 Challenges of Working from Home and Small Meals

25:20 Sleep Schedule and Chronic Illness

28:57 Falling Asleep While Watching TV

31:49 Sleep Apnea and Chronic Illness

39:05 Sleep Apnea and Temporomandibular Dysfunction

44:09 EDS and Central Sleep Apnea

44:30 Elevating the Head of the Bed

45:23 Alignment Problems and Breathing

47:37 Sleep Medications and Side Effects

1:00:15 Supplements for Sleep

1:02:01 Sleep Watches and Monitoring Devices

1:03:01 Sleep Positions and Joint Instability

1:04:46 Paresthesias and Numbness in Sleep

1:05:11 Pillow Recommendations for Cervical Instability

1:07:35 Waking Up in Pain

1:09:58 Sympathetic Nervous System Activation

1:12:23 Safety of Melatonin

1:14:49 Improving Education on EDS and HSD

Connect with YOUR Bendy Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/.  

Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them.

Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/.      

YOUR bendy body is our highest priority! 🧬🔬🦓

Resources:  

www.medcram.com

https://www.youtube.com/@Medcram

https://www.optum.com/care/locations/california.html

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6175781/

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7052958/

https://www.itamar-medical.com/professionals/watchpat-300/

https://youtu.be/OIwHYaDyswA?si=xSOW5miP4otLEKR6

#BendyBodiesPodcast 

In this episode, Dr. Linda Bluestein interviews Dr. Roger Seheult about the importance of sleep for people with chronic illness, chronic pain, and joint hypermobility.  Dr Seheult, a quadruple board-certified physician with expertise in sleep medicine, discusses various topics related to sleep, including the circadian rhythm, the impact of light on sleep, the effect of blue light on sleep, ideal bedtime, the impact of electronics on sleep, the role of melatonin, and the timing of eating and its effect on sleep.  Other topics include challenges of working from home, sleep schedules and chronic illness, shifting sleep patterns, sleep apnea and its relationship with chronic illness, sleep medications, sleep watches and monitoring devices, sleep positions and joint instability, and the importance of sleep education in medical training. Dr. Seheult provides valuable insights and recommendations for improving sleep quality and managing sleep-related issues.

YOUR host, as always, is Dr. Linda Bluestein, the Hypermobility MD.

Takeaways:

Sleep is crucial for people with chronic illness, chronic pain, and joint hypermobility.

Understanding the circadian rhythm is important for optimizing sleep.

Light, especially blue light, can significantly impact sleep quality.

The suprachiasmatic nucleus plays a key role in regulating the sleep-wake cycle.

Morning light exposure is important for setting the body's internal clock.

The timing of eating can affect sleep quality.

Establishing a consistent sleep schedule and avoiding late-night eating can improve sleep quality.

Shifting sleep patterns can be challenging, especially for individuals with chronic illness.

Sleep apnea is common in individuals with chronic illness and connective tissue disorders like Ehlers-Danlos Syndromes.

Home sleep studies can be effective in detecting sleep apnea, but in-lab studies may be necessary for individuals at higher risk of central apnea.

Sleep medications should be used cautiously due to potential side effects and dependency issues.

Sleep watches and monitoring devices can provide valuable insights into sleep patterns and quality.

Proper sleep positions, pillows, and mattresses can help alleviate joint instability and pain during sleep.

Education on sleep disorders and their relationship with chronic illness should be improved in medical training.

Patient advocacy and sharing information through podcasts can help raise awareness and improve access to sleep education.

Chapters

00:00 Introduction of Dr. Roger Seheult

03:22 Understanding the Circadian Rhythm

07:02 Impact of Light on Sleep

09:20 The Suprachiasmatic Nucleus and its Role in Sleep

09:49 The Importance of Light for People with Chronic Illness

13:35 The Effect of Blue Light on Sleep

15:28 Ideal Bedtime for Optimal Sleep

17:25 The Impact of Electronics on Sleep

19:26 The Role of Melatonin in Sleep

20:05 The Importance of Morning Light

23:29 The Timing of Eating and its Effect on Sleep

24:00 Challenges of Working from Home and Small Meals

25:20 Sleep Schedule and Chronic Illness

28:57 Falling Asleep While Watching TV

31:49 Sleep Apnea and Chronic Illness

39:05 Sleep Apnea and Temporomandibular Dysfunction

44:09 EDS and Central Sleep Apnea

44:30 Elevating the Head of the Bed

45:23 Alignment Problems and Breathing

47:37 Sleep Medications and Side Effects

1:00:15 Supplements for Sleep

1:02:01 Sleep Watches and Monitoring Devices

1:03:01 Sleep Positions and Joint Instability

1:04:46 Paresthesias and Numbness in Sleep

1:05:11 Pillow Recommendations for Cervical Instability

1:07:35 Waking Up in Pain

1:09:58 Sympathetic Nervous System Activation

1:12:23 Safety of Melatonin

1:14:49 Improving Education on EDS and HSD

Connect with YOUR Bendy Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/.  

Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them.

Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/.      

YOUR bendy body is our highest priority! 🧬🔬🦓

Resources:  

www.medcram.com

https://www.youtube.com/@Medcram

https://www.optum.com/care/locations/california.html

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6175781/

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7052958/

https://www.itamar-medical.com/professionals/watchpat-300/

https://youtu.be/OIwHYaDyswA?si=xSOW5miP4otLEKR6

#BendyBodiesPodcast 

In this episode, Professor Tiffany Lee is interviewed about service dogs and disability rights and accommodations. They discuss the Americans with Disabilities Act, the definition of disability, and disability benefits. They also explore reasonable accommodations in the workplace and education settings, as well as the challenges and advocacy involved. The conversation covers topics such as disclosing disabilities to employers and universities, getting a service dog, dealing with unresponsive disability lawyers, appealing denied disability benefits, and correcting inaccuracies in medical records. The episode provides valuable insights and guidance for individuals with disabilities navigating legal and practical aspects of their rights and accommodations. Professor Lee wanted to clarify the following points from the discussion of Social Security disability. SSI places limits on assets ($2000 for an individual) and income. SSDI does not have an asset limit but requires the recipient not be able to engage in “substantial gainful activity,” which generally acts as an income limit. There is a “Ticket to Work” program called “Choose Work” available that provides some options similar to those in the earlier “Ticket to Work” program mentioned in this episode.

YOUR host, as always, is Dr. Linda Bluestein, the Hypermobility MD.

Key points discussed: 

**Americans with Disabilities Act (ADA):** The conversation explores the ADA, a crucial piece of legislation that prohibits discrimination against individuals with disabilities and mandates reasonable accommodations.

**Disability Benefits:** The episode delves into disability benefits, including the process of applying, appealing denied benefits, and addressing inaccuracies in medical records.

**Workplace and Education Accommodations:** Reasonable accommodations in both workplace and education settings are explored, shedding light on the challenges and advocacy involved.

**Disclosure to Employers and Universities:** Professor Tiffany Lee provides insights into the considerations and potential challenges of disclosing disabilities to employers and universities.

**Service Dogs:** The episode discusses obtaining a service dog and the associated considerations.

**Dealing with Disability Lawyers:** Challenges related to unresponsive disability lawyers are addressed, offering guidance on how to navigate such situations.

**Financial Impact of Disability:** The limitations and financial impact of applying for disability, including asset limits and restrictions on work and income, are discussed.

**Flaws in the Disability System:** Issues within the disability system, such as the poverty threshold and its impact on marriage, are highlighted.

**Emergency Response Accessibility:** Making disaster and emergency response accessible to people with disabilities is discussed.

Overall, the episode provides an exploration of the legal, practical, and personal aspects of disability rights and accommodations, offering valuable insights and guidance for individuals with disabilities.

Chapters

00:00 Introduction and Overview

01:14 Americans with Disabilities Act

03:28 Reasonable Accommodations in the Workplace

04:38 Determining Reasonable Accommodations

09:07 Accommodations in High School and College

11:22 Challenges with Disability Services in Education

13:59 Advocating for Accommodations in Education

16:36 Disclosing Disabilities to Employers and Universities

19:03 Determining Job Compatibility with Accommodations

21:03 Getting a Service Dog

23:37 Regulations and Considerations for Service Dog Training

36:33 Dealing with Unresponsive Disability Lawyers

38:07 Appealing Denied Disability Benefits

40:03 Legal Recourse for Undertreatment of Pain

43:07 Accommodations for Productivity Standards

43:45 Correcting Inaccuracies in Medical Records

47:46 Knowing When to Get an Accommodation or Apply for Disability

48:36 Considerations for Applying for Disability

50:23 Assets and Poverty Threshold for Disability

58:58 Making Disaster and Emergency Response Accessible

01:02:44 Hypermobility Hack: Walking Desk

Connect with YOUR Bendy Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/.  

Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them.

Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/.      

YOUR bendy body is our highest priority! 🧬🔬🦓

Resources:  

For disability rights in general: https://www.ada.gov and https://adata.org/

For service dogs: https://www.ada.gov/resources/service-animals-2010-requirements/ and https://www.ada.gov/resources/service-animals-faqs/

For disability rights in employment: https://www.dol.gov/general/topic/disability/ada and https://www.eeoc.gov/laws/guidance/your-employment-rights-individual-disability

https://choosework.ssa.gov/

#BendyBodiesPodcast #HealthAdvocacy #DisabilityRights #ADAInsights #AccommodationsTalk #LegalAdvocacy #ServiceDogJourney #DisabilityBenefits #WorkforceChallenges 

In this episode, psychologist Josh Spell discusses disordered eating in dance. Josh shares insights into the coping mechanisms behind eating disorders and offers advice for directors, teachers, and friends who suspect someone may be struggling with an eating disorder. 

YOUR host, as always, is Dr. Linda Bluestein, the Hypermobility MD.

YOUR guest co-host is Jennifer Milner, former professional ballet and Broadway dancer and founder of Bodies In:Motion.  

Takeaways

• Dancers, especially those with hypermobility, are at a higher risk for developing eating disorders due to the pressure to achieve a certain body image and the overlap with other mental health issues.
• Eating disorders are often coping mechanisms that provide a sense of control or avoidance of difficult emotions and stressors.
• The dance world's emphasis on perfectionism and sacrifice can contribute to the development of eating disorders.
• It is important for dance studios and companies to have protocols in place for addressing eating disorders and to provide support and resources for dancers.
• If you suspect someone may be struggling with an eating disorder, reach out to a trusted adult or professional for guidance and support.

Chapters

00:00 Introduction and Welcome

00:30 Introducing Josh Spell

01:36 Prevalence of Eating Disorders in Dancers

03:09 The Relationship Between Hypermobility and Eating Disorders

05:08 Understanding Eating Disorders as Coping Mechanisms

08:00 The Intersection of Eating Disorders and Other Mental Health Issues

10:35 The Impact of Social Media and Diet Culture on Eating Disorders

13:25 Self-Image and Body Standards in the Dance World

16:19 The Influence of Social Media and Zoom on Body Image

20:25 Balancing Sacrifice and Suffering in the Dance World

23:00 The Role of Dance Studios and Companies in Supporting Dancers' Mental Health

27:13 Steps for Directors and Teachers to Take When Suspecting an Eating Disorder

32:47 Steps for Friends and Loved Ones to Take When Suspecting an Eating Disorder

36:31 Steps to Take If You Suspect You Have an Eating Disorder

42:18 Hypermobility Hack: Giving the Eating Disorder a Persona

45:12 Where to Find Josh Spell Online

This important conversation with Josh Spell about disordered eating in dance will leave you feeling more knowledgeable and better equipped to handle difficult situations.  

Connect with YOUR Bendy Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/.  

Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them.

Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/.      

YOUR bendy body is our highest priority! 🧬🔬🦓

Resources mentioned during the episode:

Links for show notes:

https://flexiblemindcounseling.org/

https://www.instagram.com/spellbound20/

https://www.linkedin.com/in/josh-spell-msw-licsw-07b17816/

https://www.jennifer-milner.com/

National Suicide Prevention Lifeline: 1.800.273.8255

Crisis Text Line: Text HOME to 741741; Free crisis support, anywhere in US

Eating Disorder Helpline: Call or text 1.800.931.2237

NEDA – National Eating Disorders Association: www.nationaleatingdisorders.org

NAMI – National Alliance on Mental Illness: www.nami.org

Project Heal – https://www.theprojectheal.org/

Find an Accredited Registered Dietitian (RDN) – www.eatright.org/find-an-expert

Find a Therapist: www.psychologytoday.com/us/therapists

#Hypermobility #JointHypermobility #BalletLife #HypermobilityAware #DanceWellness #BodyPositiveBallet #HealthyDancer #BalletBodyLove #DancerTips #NutritionForDancers #EmpoweredDancer #NourishYourPassion #MindBodyBallet #BalancedDancerLife #hEDS #EhlersDanlos #HSD

In this episode, psychologist Dr. Amanda Cassil discusses the unfair EDS journey (Ehlers-Danlos Syndromes) and provides strategies for effectively communicating with healthcare providers.  Dr. Cassil provides valuable insights and tools for navigating the healthcare system and improving the quality of life for individuals with chronic illnesses. In this conversation, Dr. Amanda Cassil and Linda Bluestein, MD discuss the challenges faced by patients with hypermobility disorders (like Ehlers-Danlos Syndromes) and chronic illnesses.

YOUR host, as always, is Dr. Linda Bluestein, the Hypermobility MD.

Takeaways

• Approach advocacy from a place of compassion and understanding
• Regulate your nervous system and slow down to make more intentional and strategic decisions
• Acknowledge and process grief as a natural part of living with chronic illness
• Consult with trusted individuals and healthcare providers for guidance and support.
• Collaboration between patients and healthcare providers can be challenging due to the merging of different knowledge and experiences.
• Patients can advocate for themselves by asking doctors how to prioritize and address multiple symptoms and issues.
• Dialectical behavioral therapy (DBT) is an effective tool for nervous system and emotional regulation.
• Patients should remember that their medical journey is often unfair, but there are healthcare providers working to make systemic changes.

Chapters

00:00 Introduction

01:04 Motivation for Giving the Talk at the EDS Society Global Conference

04:14 Advocacy and the Challenges of the Healthcare System

07:16 Approaching Advocacy without Blame

10:27 Grief and Acceptance in Chronic Illness

13:34 Key Takeaways from the Talk

18:04 The Role of the Prefrontal Cortex in Chronic Illness

19:12 Neurodiversity and Advocacy

20:12 Presenting Research to Doctors

23:02 Dealing with Suboptimal Experiences with Clinicians

26:09 Processing Traumatic Experiences

29:16 The Role of Grief in Chronic Illness

36:09 Coping with Traumatic Experiences

40:36 Presenting Research to Doctors (Continued)

46:27 Navigating the Challenges of Collaboration

48:07 Addressing Multiple Symptoms and Issues

53:42 Dialectical Behavioral Therapy (DBT) for Nervous System and Emotional Regulation

59:41 Finding Your Way Through an Unfair Journey

This important conversation with Dr. Amanda Cassil about the unfair EDS journey will leave you feeling better equipped to handle difficult medical encounters.  

Connect with YOUR Bendy Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/.  

Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them.

Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/.      

YOUR bendy body is our highest priority!

Resources mentioned during the episode:

https://www.STEMpsychology.com

https://www.instagram.com/stempsychology/

https://www.linkedin.com/in/drcassil

https://drgabormate.com/book/the-myth-of-normal/

https://www.resmaa.com/merch

https://www.besselvanderkolk.com/

#HealthJourney #ChronicIllness #ChronicPain #EhlersDanlos #HSD #JointHypermobility #HypermobileLife #MedicalGaslighting 

#BendyBuddy #HypermobilityMD  #BendyBodies #HealthAdvocacy #SupportPatients #PatientEmpowerment #HealthcareStruggles #WomenInStem #DisabledInStem 

In this Bendy Bodies with the Hypermobility MD podcast episode, making a MCAS documentary is discussed.  Distinguished participants in this collaborative effort include Dr. Leonard Weinstock, Dr. Larry Afrin, Dr. Tania Dempsey, Dr. Laurence Kinsella, and Dr. Linda Bluestein, alongside dedicated patient advocate Jill Brook.   

YOUR host, as always, is Dr. Linda Bluestein, the Hypermobility MD.

Key Highlights:

1. The initiative incorporates both a documentary and an online educational library strategically designed to elevate awareness surrounding MCAS, Dysautonomia, and Hypermobility Spectrum Disorders.

2. Renowned healthcare professionals, namely Dr. Leonard Weinstock, Dr. Larry Afrin, Dr. Tania Dempsey, Dr. Laurence Kinsella, and Dr. Linda Bluestein, in conjunction with patient advocate Jill Brook, are pivotal contributors to this initiative.

3. The documentary aspires to elucidate the myriad challenges confronted by individuals navigating the complexities inherent in the triad of syndromes, emphasizing the imperative of heightened awareness among healthcare providers to facilitate more efficacious treatment modalities.

4. Dr. Afrin underscores the prevalence of MCAS and advocates for its consideration in the differential diagnosis for patients with complex medical presentations.

5. The term "dystrophism" is introduced within the discourse, signifying aberrations in growth and development propelled by dysfunctional mast cells.

6. Participants candidly share their experiences during the documentary's filming process, underscoring the inherent difficulty of condensing intricate information into concise soundbites.

7. The timely recognition of MCAS is underscored as a critical determinant for effective treatment interventions and an enhanced quality of life.

8. The team is dedicated to elucidating the nuances of MCAS, POTS, and EDS through the medium of a documentary, with the aim of providing comprehensive knowledge about these medical conditions.

9. Emphasis is placed on the significance of joint hypermobility. Should it give rise to complications, it may serve as a potential indicator for dysautonomia or MCAS.

10. Dysautonomia serves as an encompassing term, inclusive of conditions such as POTS and Inappropriate Sinus Tachycardia. 

11. Identifying growing pains (quite literally!) associated with these conditions can be a challenging endeavor. The gradual development poses a considerable challenge for all involved.

12. A fervent commitment is made towards establishing an educational repository, replete with in-depth explorations by experts, delving into the intricacies of these subjects.

13. The team candidly discloses the necessity for financial support to conclude their documentary project. Their overarching objective is to disseminate awareness about MCAS, POTS, and EDS.

14. The documentary, at its core, is designed to render this information easily accessible, ensuring that individuals – be they patients, families, or clinicians – can acquire a comprehensive understanding of coping with these conditions.

Chapters

00:00 Introduction
00:37 Creating Awareness and Increasing Treatment Options
03:09 The Birth of the Documentary Project
05:20 Filming in New York
07:19 Filming in St. Louis
10:32 The Motivation to Work with Complex Patients
15:49 The Journey of Recognizing MCAS
17:34 The Impact of MCAS Treatment
21:00 Personal Experiences and Incorporating MCAS Treatment
22:42 The Need for an Educational Library
25:29 The Challenge of Condensing Information
26:21 Describing MCAS in Sound Bites
31:10 The Importance of Raising Awareness
34:42 Growth and Development Abnormalities in MCAS
40:03 Main Points about Hypermobility Syndromes and Dysautonomia
44:48 Partnership with LDN Research Trust
51:47 Final Words and Call for Support
54:26 Recognition and Treatment of Unrecognized Patients
55:44 Importance of Learning and Trying
56:13 Gratitude for Dedicated Doctors
56:47 Closing Remarks and Resources

Connect with YOUR Bendy Specialist, Linda Bluestein, MD!
 
Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them.

Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/.      

YOUR bendy body is our highest priority!

Products, organizations, and services mentioned in this episode:

https://www.mcasfund.org/
https://aimcenterpm.com/
https://www.gidoctor.net/leonard-weinstock-md
https://www.ssmhealth.com/find-a-doctor/doctor-details/laurence-j-kinsella-md
https://www.hypermobilitymd.com/
https://www.standinguptopots.org/

#MCAS #film #documentary #HealthJourney #ChronicIllness #ChronicPain #EhlersDanlos #HSD #JointHypermobility #HypermobileLife #POTS #Dysautonomia #BendyBuddy #HypermobilityMD  #BendyBodies #UnexplainedHealthIssues #POTSsyndrome #MastCells #PainManagement  #PatientAdvocacy

In this episode, join thoracic surgeon and chest wall reconstruction expert Adam Hansen, MD, to learn about slipping rib surgery in EDS.  Well known for his innovative surgeries for slipping rib syndrome (SRS), Dr Hansen has treated close to 1000 SRS patients.  Many of his patients are challenged with Ehlers-Danlos Syndrome and other skeletal hypermobility disorders.  

YOUR host, as always, is Dr. Linda Bluestein, the Hypermobility MD.

Takeaways

• Slipping rib syndrome and other chest wall disorders are often related to skeletal hypermobility.
• Evaluation and diagnosis of chest wall problems require a thorough physical exam and imaging, such as CT scans.
• Symptoms of chest wall compression syndromes include pain, breathing difficulties, and organ dysfunction.
• Emerging areas of discovery include posterior joint disorders and bridging cartilage separation.
• Self-help strategies, such as improving posture and specific exercises, can help manage chest wall problems and potentially avoid surgery. Maintaining good posture and performing exercises that strengthen the back can help alleviate slipping rib syndrome.
• Taping strategies and lifestyle changes, such as using lumbar pillows and sit-to-stand desks, can provide relief and improve posture.
• Avoid high velocity manipulation, as it can exacerbate slipping rib syndrome.
• Candidates for surgery should have a strong core, realistic expectations, and should reduce or eliminate the use of pain medications before the procedure.
• The Hansen 3.0 technique is the preferred surgical procedure for slipping rib syndrome, offering better outcomes compared to previous techniques.
• The surgery has a low rate of complications, with the most common being collapsed lungs, hematomas, and wound infections.
• There is no significant difference in outcomes between patients with hypermobility spectrum disorder and those with Ehlers-Danlos syndrome.
• The likelihood of recurrence or additional slipped ribs after repair is low when the surgery is performed correctly.
• Physicians should be aware of slipping rib syndrome and other chest wall problems and stay updated on the latest techniques and treatments. Dr. Adam Hansen teaches other surgeons how to address slipping ribs and complex chest wall reconstruction.
• He has built a network of surgeons around the world to provide local treatment options for patients.
• There is a correlation between cervical instability and slipping ribs, and both are part of the broader issue of hypermobility and skeletal disorders.
• Focusing on key areas for stability, such as the core, can have a significant impact on overall care and muscle strength.

Chapters

00:00 Introduction and Warm-up
01:03 Background and Expertise of Dr. Adam Hansen
03:14 Understanding Slipping Rib Syndrome and Other Chest Wall Disorders
09:32 Relationship Between Chest Wall Disorders and Skeletal Hypermobility
14:01 Evaluation and Diagnosis of Chest Wall Problems
21:16 Symptoms and Impact of Chest Wall Compression Syndromes
24:49 Emerging Areas of Discovery in Slipping Rib Syndrome
28:47 Evaluation of Chest Wall Problems: Physical Exam and Imaging
36:37 Abdominal Compression Syndromes and Chest Wall Disorders
41:19 Self-Help Strategies and Avoiding Surgery
43:48 Posture and Exercise
45:09 Taping Strategies and Lifestyle Changes
46:23 Avoiding High Velocity Manipulation
48:08 Qualifications for Surgery
51:18 Preparing for Surgery
53:21 Surgical Procedures
58:08 The Hansen 3.0 Technique
01:01:18 Outcomes and Complications
01:20:06 Hypermobility Spectrum Disorder and EDS
01:21:09 Male-Female Differences
01:22:11 Recurrence and Additional Slipped Ribs
01:23:49 Physician Awareness and Education
01:24:58 Teaching Other Surgeons
01:26:05 Building a Network of Surgeons
01:26:50 Correlation Between Cervical Instability and Slipping Ribs
01:28:38 Hypermobility and Skeletal Disorders
01:29:59 Key Areas for Stability
01:30:17 Hypermobility Hacks
01:31:00 Finding Dr. Adam Hansen Online
01:33:33 Closing Remarks

This important conversation with Dr. Adam Hansen about surgery for slipping rib syndrome and other chest wall problems will leave you feeling more knowledgeable and with a better understanding of the key factors to consider when contemplating surgery for these painful conditions.  

Connect with YOUR Bendy Specialist, Linda Bluestein, MD!
 
Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them.

Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/.      

YOUR bendy body is our highest priority!

Products, organizations, and services mentioned in this episode:

http://www.youtube.com/@adamhansen6524

Slipping Rib Syndrome Physical Examination   SD 480p:
https://www.youtube.com/watch?v=Na69xXUZGhg

In this episode, join thoracic surgeon and chest wall reconstruction expert Adam Hansen, MD, to learn about slipping rib surgery in EDS.  Well known for his innovative surgeries for slipping rib syndrome (SRS), Dr Hansen has treated close to 1000 SRS patients.  Many of his patients are challenged with Ehlers-Danlos Syndrome and other skeletal hypermobility disorders.  

YOUR host, as always, is Dr. Linda Bluestein, the Hypermobility MD.

Takeaways

• Slipping rib syndrome and other chest wall disorders are often related to skeletal hypermobility.
• Evaluation and diagnosis of chest wall problems require a thorough physical exam and imaging, such as CT scans.
• Symptoms of chest wall compression syndromes include pain, breathing difficulties, and organ dysfunction.
• Emerging areas of discovery include posterior joint disorders and bridging cartilage separation.
• Self-help strategies, such as improving posture and specific exercises, can help manage chest wall problems and potentially avoid surgery. Maintaining good posture and performing exercises that strengthen the back can help alleviate slipping rib syndrome.
• Taping strategies and lifestyle changes, such as using lumbar pillows and sit-to-stand desks, can provide relief and improve posture.
• Avoid high velocity manipulation, as it can exacerbate slipping rib syndrome.
• Candidates for surgery should have a strong core, realistic expectations, and should reduce or eliminate the use of pain medications before the procedure.
• The Hansen 3.0 technique is the preferred surgical procedure for slipping rib syndrome, offering better outcomes compared to previous techniques.
• The surgery has a low rate of complications, with the most common being collapsed lungs, hematomas, and wound infections.
• There is no significant difference in outcomes between patients with hypermobility spectrum disorder and those with Ehlers-Danlos syndrome.
• The likelihood of recurrence or additional slipped ribs after repair is low when the surgery is performed correctly.
• Physicians should be aware of slipping rib syndrome and other chest wall problems and stay updated on the latest techniques and treatments. Dr. Adam Hansen teaches other surgeons how to address slipping ribs and complex chest wall reconstruction.
• He has built a network of surgeons around the world to provide local treatment options for patients.
• There is a correlation between cervical instability and slipping ribs, and both are part of the broader issue of hypermobility and skeletal disorders.
• Focusing on key areas for stability, such as the core, can have a significant impact on overall care and muscle strength.

Chapters

00:00 Introduction and Warm-up
01:03 Background and Expertise of Dr. Adam Hansen
03:14 Understanding Slipping Rib Syndrome and Other Chest Wall Disorders
09:32 Relationship Between Chest Wall Disorders and Skeletal Hypermobility
14:01 Evaluation and Diagnosis of Chest Wall Problems
21:16 Symptoms and Impact of Chest Wall Compression Syndromes
24:49 Emerging Areas of Discovery in Slipping Rib Syndrome
28:47 Evaluation of Chest Wall Problems: Physical Exam and Imaging
36:37 Abdominal Compression Syndromes and Chest Wall Disorders
41:19 Self-Help Strategies and Avoiding Surgery
43:48 Posture and Exercise
45:09 Taping Strategies and Lifestyle Changes
46:23 Avoiding High Velocity Manipulation
48:08 Qualifications for Surgery
51:18 Preparing for Surgery
53:21 Surgical Procedures
58:08 The Hansen 3.0 Technique
01:01:18 Outcomes and Complications
01:20:06 Hypermobility Spectrum Disorder and EDS
01:21:09 Male-Female Differences
01:22:11 Recurrence and Additional Slipped Ribs
01:23:49 Physician Awareness and Education
01:24:58 Teaching Other Surgeons
01:26:05 Building a Network of Surgeons
01:26:50 Correlation Between Cervical Instability and Slipping Ribs
01:28:38 Hypermobility and Skeletal Disorders
01:29:59 Key Areas for Stability
01:30:17 Hypermobility Hacks
01:31:00 Finding Dr. Adam Hansen Online
01:33:33 Closing Remarks

This important conversation with Dr. Adam Hansen about surgery for slipping rib syndrome and other chest wall problems will leave you feeling more knowledgeable and with a better understanding of the key factors to consider when contemplating surgery for these painful conditions.  

Connect with YOUR Bendy Specialist, Linda Bluestein, MD!
 
Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them.

Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/.      

YOUR bendy body is our highest priority!

Products, organizations, and services mentioned in this episode:

http://www.youtube.com/@adamhansen6524

Slipping Rib Syndrome Physical Examination   SD 480p:
https://www.youtube.com/watch?v=Na69xXUZGhg

This week's episode is extra long, and extra juicy. Grab a warm cup of tea, a cozy blanket, and listen in to our very first interview on the pod!

Join herbalist and nutritionist Kelsey Conger on PLANET SPOONIE, the podcast for lymies and spoonies healing themselves and the world.

Are you plant curious? Perhaps you're interested in starting a garden or learning to forage, or maybe just looking for a way to reconnect to your roots and the lands around you? Do you ever feel overwhelmed dealing with everyday life as a spoonie, managing medical appointments, and new sensitivities, and a culture that's less-than-accessible? Are you wondering how rekindling your relationship with the more-than-human world could actually help you feel more empowered to tackle these everyday issues?

Today I had the incredible opportunity to sit down and chat with herbalist, aromatherapist, and permaculture designer Denise Cusack of Wholly Rooted. She shares so much wisdom and knowledge about land tending as a source of beauty, resilience, abundance, and healing as someone living with chronic illness.

Discover how Denise's experiences in the garden have shaped her perspective, her family, and her own journey with chronic conditions, calling her to embrace the natural ebbs and flows as a guide for both rest + radical healing.  We'll get nerdy and talk about some of our most beloved plant allies, the stories and cultural significance lands hold, and the importance of self-advocacy as a spoonie.

To sign up for her upcoming masterclass on Regenerative Herbalism, click this link for an *exclusive* launch party invite!

Remember, our bodies are a direct reflection of the ecosystems we inhabit, and just like this earth, our bodies know how to heal.

________________________________

Denise Cusack is a clinical regenerative herbalist, certified aromatherapist, and certified permaculture designer, with over 20 years of experience in the natural health and wellness community.   She is a hands-on and passionate educator and mentor, living with her family at Wholly Rooted Regenerative Education and Permaculture Farm in South Central Wisconsin. 

Find Denise on:
Facebook
Instagram

This episode is meant to be empowering and educational, but it is not medical advice. Please seek the support of your primary care provider or a qualified healthcare practitioner before making any changes.

As you navigate life with chronic health conditions, my goal is always to provide you with foundational tools to support you and help you feel your best. In addition to these educational episodes, working with clients 1:1 is one of the most powerful ways to initiate change - ensuring that you receive deeply personalized, compassionate, and inclusive care.

If you’re living with lyme disease or complex chronic illness and you feel ready to take your power back, begin healing, reconnect to yourself + nature, and find your *SHINE* again…

Book a FREE Q+A call with me to learn about working with me in 1:1 herbal consultations! And to stay tuned with upcoming offers, sign up for my newsletter and find me @kelseytheherbalist 🌼

Thanks for tuning into the PLANET SPOONIE podcast 🌎

Acknowledging that this podcast was recorded on the unceded land of the Kumeyaay (Iipai-Tipai-Diegueño) people, who have called this land home for 600 generations. This is now commonly called San Diego County in Southern California.

The lower extremities must bear the weight of our whole bodies. Problems in the hip may cause a chain reaction of aches, imbalances, or chronic issues that could manifest in the knee, ankle, or somewhere else along the kinetic chain.

Continuing our series on pain with Dr. Pradeep Chopra, we explore the hips, knees, ankles and feet, diving into multiple possible causes of issues in these joints.

Dr. Chopra discusses why rolling of the ankles is unhealthy, even if it’s asymptomatic, explains how pain in one part of the leg may be due to an issue in a different joint, and explores why and how you might correct knee hyperextension.

Dr. Chopra dives into the hip joint structure, outlining possible reasons for hip subluxation. He shares different ways to treat SI joint pain, and offers practical suggestions for dealing with multiple lower extremity pain issues.

Filled with detailed information, accessible medical explanations, and Dr. Chopra’s popular “hack” tips, this episode belongs on your must-listen list!

Learn more about Dr. Chopra here.

Check out the products discussed during this episode:

https://pedagusa.com/

https://medspec.com/product-category/knee/patellofemoral/

https://www.bauerfeind.com/

https://www.drmartens.com/us/en/

https://www.converse.com/

#Podcast #HypermobilityHacks #HypermobilitySyndrome #HypermobilitySpectrumDisorder #EhlersDanlos #Hypermobility #Hyperextension #HipPain #Subluxation #PainManagementStrategies #JointPainRelief #LowerBodyPain #MobilityIssues #HipProblems #JointHealth #ChronicPainSupport #LowerBackPain #KneePain #BendyBuddy

Joints of the upper extremity (eg: shoulders, elbows, fingers, etc) can be prone to subluxation and dislocation in those with joint hypermobility and/or joint instability. As we continue our discussions on common causes of pain throughout the body with Pradeep Chopra, MD, we focus on an often-overloaded area of the body: the upper extremities.

Dr. Chopra breaks down the shoulder joint and its inherent instability. He gives advice on how to have hard conversations about sports that push an excessive range of motion in the upper extremities, and addresses noisy joints (eg: cavitation) in the hypermobile person.

Dr. Chopra shares his experience with muscle relaxants, and why releasing tight muscles is not always helpful with joint pain. He also explains thoracic outlet syndrome and how it can mimic cervical disc issues, making it difficult to find effective treatments.  We cover complex regional pain syndrome (CRPS) and how this extremely painful condition may influence treatment choices. 

Pain and hypermobility in the wrists and hands are covered, and Dr. Chopra shares how your writing style might be influenced by joint hypermobility. He offers hacks to increase proprioception in fine motor skills, and explains the downside to wearing a full hand brace.

With an incredible body of knowledge to share, Dr. Chopra continues to help us examine complicated issues in a methodical way.

For doctors, therapists, patients, and anyone associated with connective tissue disorders, this is another episode to add to your must-listen list.

Learn more about Dr. Chopra here.

Check out the products discussed during this episode:

https://www.oxo.com/

https://www.ancient-minerals.com/

https://www.zebrasplints.com/

https://www.etsy.com/

Connective tissue runs throughout your body, surrounding and connecting every system. This is what makes treating issues that arise from connective tissue disorders so difficult: when everything is connected, it’s hard to find the root cause of something.

We’re in the midst of our summer series with Dr. Pradeep Chopra, renowned expert on connective tissue disorders such as Ehlers-Danlos Syndromes. In this discussion, Dr. Chopra talks through several common causes of head, neck, and chest pain in people with connective tissue disorders or symptomatic joint hypermobility.

Dr. Chopra discusses his approach to exploring a patient’s signs and symptoms, and dives into common causes of headaches in this population and how to seek treatment. He shares headache hacks for different types of head pain and explains Chiari malformation and various problems that may arise from it.

Dr. Chopra also offers hacks for TMD head pain, and touches briefly on craniocervical instability. He shares why he looks for cranial settling, looks at rib subluxations, and offers hacks for them as well. Finally, Dr. Chopra discusses chronic pain and the loneliness it may cause, emphasizing the benefits that may come from having an understanding support group.

Another episode full of wisdom and encouragement from one of the world’s top experts in his field, you will find yourself listening, saving and sharing it with everyone!

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#RootCauseAnalysis #PatientCare #HeadAndSpineHealth #ChiariAwareness #UprightMRIAdvantage #SpinalConditions #ChiariWarrior #MRIInnovation #NeurologicalDisorders #SpineHealthMatters #ChiariJourney #AdvancedImaging #HSD  #JointHyermobility  #ChronicIllness  #ChronicPain  #EhlersDanlos --- Send in a voice message: https://podcasters.spotify.com/pod/show/bendy-bodies/message

Abdominal pain is an extremely common finding in people with connective tissue disorders, like Ehlers-Danlos Syndromes (EDS).  Similar to other issues patients face with EDS or Hypermobility Spectrum Disorders (HSD), getting answers can be challenging. Often, people go from specialist to specialist, trying to get help. Gastroenterologists, allergists, nutritionists, and pain specialists may look at abdominal pain from very different points of view. So getting complete information can be elusive and frustrating. 

That’s why Bendy Bodies took this opportunity to talk about abdominal pain with Dr. Pradeep Chopra, a pain management physician who works with complex chronic pain conditions.  Dr. Chopra lists many possible causes of abdominal pain, and talks through different diagnoses and how they might be interrelated.

Dr. Chopra looks at over two dozen different diagnoses, from gastroparesis to small intestinal bacterial overgrowth (SIBO) to postural orthostatic tachycardia syndrome (POTS) to endometriosis. He shares his approach to uncovering abdominal pain sources, as well as the question he asks himself with every patient.

Finally, Dr. Chopra offers some concrete tips for people suffering with abdominal pain. He suggests solutions for people who have trouble absorbing medication, and reveals his hacks for people working to sort out the source of their abdominal pain.

For doctors looking to deepen their understanding of abdominal pain, as well as people trying to figure their own issues out, this deep dive of a podcast is not to be missed.

Learn more about Dr. Chopra here.  --- Send in a voice message: https://podcasters.spotify.com/pod/show/bendy-bodies/message

Abdominal pain is an extremely common finding in people with connective tissue disorders, like Ehlers-Danlos Syndromes (EDS).  Similar to other issues patients face with EDS or Hypermobility Spectrum Disorders (HSD), getting answers can be challenging. Often, people go from specialist to specialist, trying to get help. Gastroenterologists, allergists, nutritionists, and pain specialists may look at abdominal pain from very different points of view. So getting complete information can be elusive and frustrating. 

That’s why Bendy Bodies took this opportunity to talk about abdominal pain with Dr. Pradeep Chopra, a pain management physician who works with complex chronic pain conditions.  Dr. Chopra lists many possible causes of abdominal pain, and talks through different diagnoses and how they might be interrelated.

Dr. Chopra looks at over two dozen different diagnoses, from gastroparesis to small intestinal bacterial overgrowth (SIBO) to postural orthostatic tachycardia syndrome (POTS) to endometriosis. He shares his approach to uncovering abdominal pain sources, as well as the question he asks himself with every patient.

Finally, Dr. Chopra offers some concrete tips for people suffering with abdominal pain. He suggests solutions for people who have trouble absorbing medication, and reveals his hacks for people working to sort out the source of their abdominal pain.

For doctors looking to deepen their understanding of abdominal pain, as well as people trying to figure their own issues out, this deep dive of a podcast is not to be missed.

Learn more about Dr. Chopra here.  --- Send in a voice message: https://podcasters.spotify.com/pod/show/bendy-bodies/message