micropreemie

Explore "micropreemie" with insightful episodes like "We're Back!", "Episode 24: Retinopathy of Prematurity (ROP), Causes, Treatment & Research ft. Dr. Olachi Mezu-Ndubuisi", "The Ripple Effect", "The Positive Effects of Parental Engagement in the NICU" and "Life After NICU With a Medically Complex Child: What is the Reality? Part II" from podcasts like ""The Zev Project", "NICU Heroes Podcast", "The Zev Project", "Empowering NICU Parents Podcast" and "Empowering NICU Parents Podcast"" and more!

Episodes (10)

We're Back!

We're back from a long hiatus! After releasing the first 2 episodes of Season 3, our plans for the year got a bit redirected - lots of loving on and celebrating former micropreemies like Zev and their families and lots (and lots and lots) of running. But here we are! Ready to release and finish up the final season of The Zev Project. We have some incredible guests and interviews ahead. We can't wait to share them with you!

If you'd like to check out our nonprofit 4those, find us online at www.4those.org where we are writing a new story for micropreemie families, or visit us on Instagram @4thoseorg to stay up-to-date with all of our awesome happenings!

enDecember 15, 2023

Episode 24: Retinopathy of Prematurity (ROP), Causes, Treatment & Research ft. Dr. Olachi Mezu-Ndubuisi

Dr. Olachi Mezu-Ndubuisi, MD, OD, Neonatologist & Licensed Optometrist

McPherson Eye Research Institute’s Retina Research Foundation Edwin and Dorothy Gamewell Professor; Associate Professor, Division of Neonatology, Department of Pediatrics; Flaum Eye Institute, Department of Ophthalmology, University of Rochester

Disclaimer: The speaker in this interview discusses off-label medications and investigational treatments. These views and recommendations are the speaker's own and should not be considered professional medical advice or endorsement. You should follow your local policies and procedures.

In this episode:

Explain the prevalence of ROP in North America compared to globally
Describe the two most common treatment options for ROP and their pros and cons
List two long-term challenges infants with ROP face in childhood and/or as adults

This episode is eligible for CEUs. Visit https://handtohold.org/resources/podcasts/nicu-heroes/ to complete the questionnaire.

Resources:

LinkedIn: https://www.linkedin.com/in/olachi-mezu-ndubuisi-449307119

Twitter: https://www.twitter.com/obiolarose

Instagram: https://www.instagram.com/millieolasoul

YouTube: https://www.youtube.com/OlachiMezu-Ndubuisi-bs2qz

Website: https://www.urmc.rochester.edu/pediatrics/mezu-ndubuisi-lab.aspx

ROP retinal images of stages/zones:

https://www.sciencedirect.com/science/article/pii/S0161642021004164?via%3Dihub

https://www.nejm.org/doi/full/10.1056/NEJMra1208129

The NICU is hard. We’re here to help.

Hand to Hold is a national nonprofit dedicated to providing neonatal intensive care unit (NICU) parents with personalized emotional support, educational resources and community before, during and after their baby’s NICU stay. NICU support is available at no cost to NICU parents in English and Spanish.

Connect with Hand to Hold:

Learn more or get support at handtohold.org

Follow Hand to Hold on social media:

Facebook: https://www.facebook.com/handtohold

Instagram: https://www.instagram.com/handtohold/

Twitter: https://www.twitter.com/NICUHandtoHold

YouTube: https://www.youtube.com/HandtoHold

The following music was used for this media project:

Music: Thriving Together [Full version] by MusicLFiles

Free download: https://filmmusic.io/song/10332-thriving-together-full-version

License (CC BY 4.0): https://filmmusic.io/standard-license

Music: Bright Colors Of Life by MusicLFiles

Free download: https://filmmusic.io/song/7855-bright-colors-of-life

License (CC BY 4.0): https://filmmusic.io/standard-license

enSeptember 18, 2023

The Ripple Effect

We're back with Season 3! About a year after Zev came home, we asked people who were there with us during the Zev season to share some of their memories and recollections about that time. Each recording opens up the gates to new ways of looking at our bigger story. In these shares, you will hear narratives of hope, faith, fear, grief, love, community, connection, and humanity. There are so many seeds of wisdom that speak to the impact sharing one story can have in the world at large. I hope you find peace and love in these words. And if you are in your own valley, please know that our community is your community, and we are all with you as you go forward living out your own big, narrative-shifting stories in the world. Happy listening!

For more information about our nonprofit, 4those, please visit us at www.4those.org, on Instagram @4thoseorg, or find the link through The Zev Project website at www.thezevproject.com.

enMarch 25, 2023

The Positive Effects of Parental Engagement in the NICU

If your baby is currently in the NICU, and you are doubting the importance of your role as a parent, this podcast episode is for you! I hope as NICU parents you have been educated on the importance of your involvement with your baby - even while they are in the NICU! Parental engagement in the NICU has a plethora of benefits and not just for your baby, but for you as parents as well!Â

Although as a NICU parent, you may feel completely powerless, you need to remember that you play a major role in the success of your baby by being present and simply loving on them! In the NICU, we cannot have positive outcomes for our infants without empowering and involving the parents! This is not meant to put additional pressure on you, but to simply remind you of your worth! Please realize that your role as a parent is incredibly important, even in the NICU!

Our guest, Katie Ross, is a Neonatal Occupational Therapist. She is very passionate about positively fostering the development of our specialized NICU population from the earliest stage of life.Â
We continued our conversation on infant mental health and how it can be positively affected by parental involvement.

After I had my son William at 23 weeks, it has become even more apparent to me just how important parental engagement is for NICU babies. Not only do we both believe in the power of parental participation, but research has shown that when parents are present, they do skin-to-skin care, begin to respond to their infantâs cues, and learn to care for their own baby, it results in positive short and long-term outcomes for the baby.

Tune in to learn how parental involvement is so impactful. Once you recognize the importance of your role as a parent to your NICU baby, your anxiety and stress will decrease, it will enhance your ability to bond with your baby, promote continued engagement, and ultimately result in positive developmental outcomes for your baby! Yes, you as a parent can actually positively change the trajectory of your infantâs developmental outcomes by being present, learning and responding to your infantâs cues, and by giving them the love they need!

Our NICU Roadmap: https://empoweringnicuparents.com/nicujournal/

Website: https://empoweringnicuparents.com

Empowering NICU Parents Show Notes: https://empoweringnicuparents.com/episode27/

Empowering NICU Parents Instagram: https://www.instagram.com/empoweringnicuparents/

Empowering NICU Parents FB Group:
https://www.facebook.com/groups/empoweringnicuparents

Pinterest Page: https://pin.it/36MJjmH

Empowering NICU Parents Podcast

enMarch 29, 2022

Life After NICU With a Medically Complex Child: What is the Reality? Part II

If you are getting ready to bring your baby home from the NICU or you have a child who has complex medical needs, this episode is for you! Being a parent is difficult, but when you have a sick child or one that requires extensive medical care, therapies, and appointments, it can dramatically change your life and that of your family. Today we continue to spotlight some of the difficulties, stresses, and struggles of parents who have children with complex medical needs.

We discuss the importance of parents working with a professional therapist to work through their grief and trauma. We review how crucial self-care is but discuss the need for it to be adaptable to your familyâs lifestyle and to recognize that âchronically ill children have chronically stressed parents.â Tune in to listen as my guest, Alissa MacDonald bravely shares personal experience, knowledge, and advice as a mother of a child with complex medical needs.

Alissa and her husband Matt became foster parents and they ultimately adopted Tegan, a former 24 weeker who spent months in the NICU. And sadly, since his discharge from the NICU, he has been ridden with multiple complications, several life threatening scares, PICU admissions, and debilitating diagnoses including but not limited to reactive airway, cerebral palsy and autism.

We discuss the importance of finding a therapist and how they can help you cope and work through your trauma. Alissa identifies ways that parents of chronically ill children can participate in adaptable self care and she speaks to the importance of finding the right support group or community that fulfills you. We also discuss how difficult it can be when your significant other processes trauma and stress differently than you. But most importantly, we share that as a parent of a child with complex medical needs that itâs simply okay to say, that youâre not okay.Â

Our NICU Roadmap: https://empoweringnicuparents.com/nicujournal/

For a chance to win a FREE NICU Journal: https://empoweringnicuparents.com/freejournal

Empowering NICU Parents Show Notes: https://empoweringnicuparents.com/episode24

Empowering NICU Parents Instagram: https://www.instagram.com/empoweringnicuparents/

Empowering NICU Parents FB Group: https://www.facebook.com/groups/empoweringnicuparents

Website Link: https://empoweringnicuparents.com/episode24

Empowering NICU Parents Podcast

enJanuary 02, 2022

Optimizing Neurodevelopmental Outcomes in NICU Patients with Occupational Therapy - Part II

If you are a current or former NICU parent, you will want to listen to this episode. There are so many pieces of information you receive as a NICU parent while your baby is in the NICU and it continues once you bring your baby home. Tune in to hear great recommendations on how to best advocate and help your child while they are in the NICU and especially once they are home to optimize their neurodevelopmental outcomes!Â

For our 17th podcast episode, I continued my discussion with Tracey Kondrasuk-Branker a certified Neonatal Occupational Therapist who has over 22 years of experience with children from birth to 3 years.

In this episode, Tracey explains why she started her early developmental online consulting company. We discuss the importance of providing parents with resources and trying to bridge the common gap for NICU families between their time in the NICU and their transition to home.

For NICU patients, their follow-up appointments are vital to their long-term neurodevelopmental outcomes. Appropriate follow-ups also help NICU infants achieve all of their developmental milestones.

We also discuss the importance of finding appropriate support groups as well as other local, state and national programs that will ensure children receive the best care possible and that all parents feel supported. We provide names of some of the trustworthy NICU support groups currently available that will help parents with the common parental feelings of fear, anxiety, and loneliness that occur once they bring their NICU infants home.Â

We also review how imperative it is that if a parent feels that there is an issues that is not being addressed properly, to never stop advocating for them as well as steps you can take to get the help they need!

Empowering NICU Parents Show Notes: https://empoweringnicuparents.com/episode17/

Empowering NICU Parents Instagram: https://www.instagram.com/empoweringnicuparents/

Empowering NICU Parents FB Group:https://www.facebook.com/groups/empoweringnicuparents

Website Link: https://empoweringnicuparents.com/episode17/

Empowering NICU Parents Podcast

enJuly 23, 2021

Beyond All Odds

This episode takes a closer look at the journey of our micro preemie. From birth at 26 weeks to defying all odds along the way, it is the story of the power of resilience, hope and faith in the face of unimaginable adversity.

enFebruary 23, 2021

Episode 57 | A NICU stay for micro preemie twins born at 23 weeks

Katie, Certified Child Life Specialist interviews Amanda, mom to two micro preemie twins born at 23 weeks.

Amanda and her husband met at Baylor University and had a normal pregnancy and delivery with their first son. Their second go at getting pregnant was not as easy and included fertility treatments, bed rest and an traumatic, emergent c-section at 23 weeks.

She describes how:

*Her faith was instrumental for getting through their experience

*Detailed preparation from NICU team before hand helped her understand what was happening

*Creating community within the NICU setting (with both families and staff) was necessary for getting through.

Child Life On Call is a community of parents and professionals that share ideas, stories and resources to help YOU navigate your child’s unique experiences. We give you strategies to support yourself and your family through life’s challenges. We are so glad you are here.

Child Life On Call | Instagram | Facebook | Twitter

Child Life On Call: Parents of children with an illness or medical condition share their stories with a child life specialist

enFebruary 03, 2021

Get to Know Your Host

You've discovered a new podcast for NICU parents that you think may be exactly what you've been searching for, but who is this host? How does she know what I'm going through? What are her credentials?
In this episode, Nicole quickly addresses the elephant in the room, who is she? She explains why she became a nurse, her perseverance to work in the NICU, and why she ultimately went onto graduate school to become an NNP.
But most importantly, she describes what lead her to start the podcast. She had a complicated pregnancy, followed by an emergent delivery at 23 weeks due to a placental abruption. Listen to how she thought she knew and understood the NICU, but really had no idea.

Empowering NICU Parents Podcast

enFebruary 01, 2021

NICU Dads Discussions Episode 9: Henry Medrano

Henry and Alex discuss his experience of his wife being on bedrest then giving birth to their twins in the NICU. They also speak about how having a micropreemie changed Henry's outlook of being in the NICU. Henry describes how he navigated his NICU experience and the challenges facing his sons during the NICU stay and after.

enJanuary 22, 2021