msinsideout

Explore "msinsideout" with insightful episodes like "Episode 66: Embracing Carers with EMD Serono's Scott Williams", "Episode 61: Voting IS MS Advocacy with MS Activist Karen Jackson" and "Episode 59: Live from Day 3 of ECTRIMS 2018" from podcasts like ""RealTalk MS", "RealTalk MS" and "RealTalk MS"" and more!

Episodes (3)

Episode 66: Embracing Carers with EMD Serono's Scott Williams

We're into the final few days of National Family Caregivers Month, and my guest on the podcast is Scott Williams, Vice President, Head of Global Patient Advocacy and Strategic Partnerships at EMD Serono. We're talking with Scott about EMD Serono's commitment to MS caregivers.

We're also talking about creating a caregiver protocol that becomes part of the conversation in the neurologist's office as soon as someone is newly diagnosed with MS. We'll tell you about the FDA's new warning about stopping Gilenya. We'll share news about two different clinical trials that are exploring two different cell therapies for treating progressive MS. And we'll share some amazing statistics that demonstrate the reach and effectiveness of the National MS Society's MS Navigator program, a remarkable one-on-one MS support program.

We have a lot to talk about! Are you ready for RealTalk MS?!

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Can We Talk About Establishing a Caregiver Protocol? 1:04

FDA Warns About Severe MS Worsening After Stopping Gilenya 4:54

Phase 2 Clinical Trial Planned for NurOwn Cell Therapy for Treating Progressive MS 6:30

ATA190 Cell Therapy Shows Promising Phase 1 Clinical Trial Results for Treating Progressive MS 7:43

MS Society's MS Navigator Program Demonstrates Reach & Effectiveness 10:36

Scott Williams, Vice-President, Head of Global Patient Advocacy and Strategic Partnerships Discusses EMD Serono's Commitment to MS Caregivers 14:08

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LINKS
If your podcast app doesn’t allow you to click on these links, you’ll find them in the show notes
in the RealTalk MS app or at www.RealTalkMS.com

Download the RealTalk MS App for iOS

Download the RealTalk MS App for Android

FDA Warns About Severe Worsening of Multiple Sclerosis After Stopping the Medicine Gilenya

BrainStorm Cell Therapeutics Announces Submission of IND for NurOwn in Progressive Multiple Sclerosis

Epstein-Barr Virus-Specific T Cell Therapy for Progressive Multiple Sclerosis

Ask An MS Navigator

RealTalk MS Episode 19: MS Navigators -- A Seriously Remarkable Service That You Need to Know About

DOCUMENTARY: Seeing MS From the Inside Out

Embracing Carers

Give RealTalk MS a Rating & Review

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Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com.

RealTalk MS Episode 66
Hosted By: Jon Strum
Guest: Scott Williams

Tags: MS, MultipleSclerosis, MSsociety, Gilenya, ProgressiveMS, MSInsideOut, EmbracingCarers, Caregiving, RealTalkMS

enNovember 27, 2018

Episode 61: Voting IS MS Advocacy with MS Activist Karen Jackson

We're 2 weeks away from an event that's going to have an impact on every person in the United States who's living with MS...or any other chronic illness. Because in 2 weeks time - on November 6th - an election's taking place, and healthcare is on the ballot. Maybe not directly...maybe not explicitly...but make no mistake, the choices that voters in America make on election day are going to have a huge affect on our access to healthcare, the cost of healthcare, and the protection that exists today for people living with pre-existing conditions.

That's why I'm launching the MS Congressional Report Card. It's an easy way for you to see whether your elected representatives in Congress have supported you and others affected by MS. Every member of Congress has received a letter grade based upon what they did -- or didn't do -- to support people affected by MS. You'll be able to see exactly how well your Representatives and Senators have supported the issues that directly affect you. And then, with that knowledge in hand, you'll be ready to cast your vote on November 6th.

We're also talking with my special guest, MS Activist Karen Jackson, about access issues when it comes to casting your vote. We'll tell you about a documentary film that features a new way of interpreting the many sides of living with MS, a possible predictor of brain atrophy in Progressive MS, a new framework for examining how exercise impacts neuroplasticity, and more!

We have a lot to talk about! Are you ready for RealTalk MS?!

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Introducing the RealTalk MS Congressional Report Card 1:50

A New Documentary -- "Seeing MS from the Inside Out" 5:29

Neurofilament Light Chain Level as a Predictor of Brain Atrophy in Progressive MS 8:38

Conceptual Framework Proposed to Examine Role of Exercise in MS 11:00

Interview with MS Activist Karen Jackson 13:15

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LINKS
If your podcast app doesn’t show these links, you’ll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com

Download the RealTalk MS App for iOS

Download the RealTalk MS App for Android

RealTalk MS Congressional Report Card

Video: "Seeing MS from the Inside Out"

Neurofilament Light Levels in the Blood of Patients with Secondary Progressive MS are Higher than in Primary Progressive MS and May Predict Brain Atrophy In Both MS Subtypes

Integrative CNS Plasticity with Exercise in MS: The PRIMERS (Processing, Integration of Multisensory Exercise-Related Stimuli) Conceptual Framework

Give RealTalk MS a Rating & Review

___________

Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com.

RealTalk MS Episode 61
Hosted By: Jon Strum
Guest: Karen Jackson

Tags: MS, MultipleSclerosis, MSActivist, MSInsideOut, KesslerFdn, RealTalkMS

enOctober 23, 2018

Episode 59: Live from Day 3 of ECTRIMS 2018

It's the 3rd and final day at ECTRIMS in Berlin! Today, we're taking you to a special documentary screening that we've been keeping under wraps! (You can watch the trailer as part of the "Bonus" content in the RealTalk MS app!)

ECTRIMS

We're talking about the amazing changes in almost every aspect of how we look at MS that have all taken place within just 25 years. We'll walk you through a couple of the scientific sessions that really stood out earlier today. And we'll tell you how you can find scientific victory in the midst of what some people might consider a setback.

ECTRIMS 2018 feels as though it's been a non-stop 3-day marathon, and this episode of RealTalk MS will take you to the finish line. We have a lot to talk about!

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LINKS
If your podcast app doesn’t show these links, you’ll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com

Download the RealTalk MS App for iOS

Download the RealTalk MS App for Android

Video: "Seeing MS from the Inside Out"

ECTRIMS 2018

Give RealTalk MS a Rating & Review

___________

Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com.

RealTalk MS Episode 59
Hosted By: Jon Strum

Tags: MS, MultipleSclerosis, ECTRIMS2018, Shiftms, MSInsideOut, RealTalkMS

RealTalk MS