myastheniagravis

Drs. Derek Stitt and Ali A. Habib discuss trends in hospital admissions and in-hospital mortality for adult patients with myasthenia gravis. 

Read the related article in Neurology.

Dr. Derek Stitt talks with Dr. Ali A. Habib about trends in hospital admissions and in-hospital mortality for adult patients with MG.

Read the related article in Neurology.

Disclosures can be found at Neurology.org.

New approvals for alopecia, generalized myasthenia gravis and type 1 diabetes; New colonoscopy prep option; And FDA denies application for pre-chirrotic fibrosis due to NASH.

Imagine going about your day as you regularly do, and experiencing a moment that will change your life forever.

Sarah "Bolty" Bolton works with women to help them own their voice, their impact, and their power. Prior to becoming a coach, Sarah worked in the beauty industry as a licensed cosmetologist and esthetician. She absolutely loved helping people feel beautiful and confident in their own skin. 

In 2017, she found herself in a blow-drying class at the salon and suddenly was unable to pull the brush through the hair. The blow dryer in her other hand felt like she was holding a bag full of cinder blocks. She was later diagnosed with a rare neuromuscular condition that causes sudden episodes of muscle weakness called Myasthenia Gravis, impacting the voluntary muscles in her body, especially her hands. Her life and her career as she knew them were over. She knew she needed to reinvent and move in a new direction. 

Sarah had been working with a coach prior to this, and she saw the impact coaching had had on her own life. She saw something for herself in being a coach and being able to support her clients in an even more profound way. 

She enrolled and graduated from Accomplishment Coaching's Coach Training Program in 2020, and has been building her coaching practice ever since. Her "money makers" (her hands) shifted to her new money makers (her ears). She now works with women and helps them own their voice, their impact, and their power so that they can break free from the "rules" and live their authentic life, full of joy, ease, fulfillment, and delight.

Listen in as we talk about:

• Becoming diagnosed with a rare muscular condition
• How life has changed since her diagnosis
• Shifting her career from being a hairstylist to helping people with invisible illnesses
• Working through the grief and loss of the life she thought she was supposed to have
• Sarah’s relationship with her body now
• Mindset shifts you can make to take steps forward in hard times
• The shame and feelings of burden that came with her diagnosis
  
  

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Couple heals kidney cancer and myasthenia gravis with a plant-based diet. Show notes and links here: https://www.chrisbeatcancer.com/couple-heals-kidney-cancer-and-myasthenia-gravis-with-a-plant-based-diet/

In this episode we will discuss Myasthenia Gravis, an Autoimmune Disease affecting the neuromuscular system of the body with Tasha White.  We spoke with Tasha a few years back and wanted to touch base and see how she is doing in the midst of the pandemic.

Tasha White, Director of a new Non-profit organization called "My Walk with MG" located in St. Louis, MO.  

The CDC has announced authorization of an additional COVID-19 vaccine dose for people with compromised immune systems, including patients with myasthenia gravis (MG) taking immunosuppressive treatment(s). This recommendation is specifically for patients that completed the mRNA vaccines (Moderna and Pfizer).  The recommendation does not apply to the Johnson & Johnson vaccine because available data are insufficient at this time.

Recent data suggests that patients with weakened immune systems, such as those on immune suppressing medication(s), may have a reduced protective immune response to the COVID-19 vaccine. An additional vaccine dose can increase the immune response to the vaccine. Although similar data specifically for patients with MG is lacking, given the currently available information, the widespread increase in the more contagious and severe delta variant, and the good safety profile of available SARS-coV2 vaccines, the potential benefit of the additional vaccine outweigh the risks.  Therefore, the MGFA supports the CDC authorization of SARS-coV2 vaccines for patients with compromised immune systems and recommends that patients with MG taking immunosuppressives discuss getting an additional mRNA vaccine dose with their treating provider.  SARS-coV2 vaccines may not be available in all areas. The MGFA continues to strongly support the use of recommended precautions to reduce the risk of getting a COVID infection (e.g., masking, social distancing, frequent handwashing, avoiding close interactions with non-immunized individuals, etc).

**Regardless of whether you are vaccinated, if you get a COVID infection, it is very important to immediately notify your treating provider(s), including your MG provider, to determine whether there should be changes to your treatment, such as a monoclonal antibody treatment.

We continue to recommend that you reference the CDC site.

https://www.cdc.gov/vaccines/covid-19/clinical-considerations/covid-19-vaccines-us.html

Glad to have you here!

Today my guest is Carla Gasser.  She is a wife, mom and author of "The Beauty of an Uncluttered Soul".  Carla's ministry is all about connecting faith and life.

We have an incredible conversation about Carla hearing her diagnosis of an autoimmune disease, Myasthenia Gravis. She takes us through her journey of her first panic attack and how she leaned into Jesus during that time.  Carla is a beautiful lady who has a beautiful heart and I loved our time together. 

For FULL Show Notes go to: www.wrenrobbins.com/podcast/165

Join Yvonne Brandenburg, RVT, VTS SAIM and Jordan Porter RVT, LVT, VTS SAIM and of course Brittany Laflen RVT, VTS Neuro as we talk about:

The big MG… we are talking Myasthenia Gravis. This is a special disease that can present with different initial complaints, you know, because its… internal medicine. 

Question of the Week

• Have you ever been a part of a Tensilon or Neostigmine test? If so, tell us about  it?
  • Leave a comment at https://imfpp.org/episode64

 Resources We Mentioned in the Show 

• VIN: Myasthenia Gravis in Dogs and Cats, Wendy Brooks DVM, DAVBP.
  • https://veterinarypartner.vin.com/default.aspx?pid=19239&id=4951980
• Dogs with Megaesophagus, Bailey Chair.
  • https://www.k9megaesophagus.com/

Thanks so much for tuning in. Join us again next week for another episode! 

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Thanks for listening! 

– Yvonne and Jordan 

Podcast summary of articles from the February 2020 edition of the Journal of Emergency Medicine from the American Academy of Emergency Medicine.  Topics include thrombectomy for pulmonary embolisms, delayed intracranial bleeding, CT perfusion studies, anticoagulation reversal, TXA vs oxymetazoline for epistaxis and board review on myasthenia gravis.  Guest speaker is Dr. Paul Koscomb.