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    organ_donation

    Explore "organ_donation" with insightful episodes like "Phyllis Renfrow and Amy’s House", "Beyond CHDs: Dealing with Autism & Epilepsy", "Getting to Know Keith Flynn: A Heart Transplant Hopeful!", "From Tragedy to Blessing" and "And the Beat Goes On: The Shaun Miller Story" from podcasts like ""Bereaved But Still Me", "Heart to Heart with Anna", "Heart to Heart with Anna", "Bereaved But Still Me" and "Bereaved But Still Me"" and more!

    Episodes (6)

    Phyllis Renfrow and Amy’s House

    Phyllis Renfrow and Amy’s House
    What is Amy’s House? Where can someone needing a place to stay while receiving a transplant in Central Texas? What can you do to help someone receiving a transplant?

    Phyllis Renfrow is the executive director of Amy’s House. Amy's House is a Medical Lodging Facility in Temple Texas, just minutes away from Baylor Scott and White Health Center. Transplant recipients are able to stay at Amy’s House free of charge.

    Phyllis graduated from the University of Central Texas with a graduate degree in Counseling in December of 1997. She has served in many roles over the course of her career to include 17 years as a director at Baylor Scott and White Health, but it was an accident over a July 4th weekend in 2013 that actually led her to discover her passion for the transplant world and the people on both sides of that process. She lost her 13-year-old granddaughter, Monika, in a car accident when a distracted driver ran up on her daughter's vehicle as they were sitting stopped in traffic.

    In thi’s program, we're going to learn more about Phyllis, Amy’s House, and some advice from Phyllis on how to help others dealing with transplant.

    Links related to Amy's House:

    https://www.amyshouse-temple.org/

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    Beyond CHDs: Dealing with Autism & Epilepsy

    Beyond CHDs: Dealing with Autism & Epilepsy

    This is the 3rd of 4 episodes of Heart Dad Sunday -- a mini-series developed for Heart Month, February 2022. Heart Dad Frank Jaworski returns in this episode as the Guest Host. He interviews long-time friend, Michael Liben, about what it was like to raise a daughter with a critical congenital heart defect in Israel. Not only did Michael's daughter have double-outlet right ventricle, but she also had autism and she later developed epilepsy as well.

    Michael is the father of three children: 27-year old Idan, 25-year-old Sapir, and forever 15-year old Liel. Michael and Leora have been married for 34 years and Michael made aliyah to Jerusalem after college.

    Michael was a former filmmaker, high school teacher, adjunct professor of television and radio production, and he now works in security. For almost 6 years Michael has been working with Frank's wife, Anna, as the Host of a bereavement podcast now entitled, “Bereaved But Still Me.”

    Links to Michael's other appearances on "Heart to Heart with Anna"

    Congenital Heart Defects Around the Globe: Israel

    Liel and Her Many Gifts: A Family's Decision to Donate One Girl's Lungs, Kidneys

    Michael and Jamie: An Interview with an Organ Recipient and Donor's Dad

    Link to Michael's podcast -- Bereaved But Still Me

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    Getting to Know Keith Flynn: A Heart Transplant Hopeful!

    Getting to Know Keith Flynn: A Heart Transplant Hopeful!

    Keith Flynn was born in 1975 and shortly after birth, he was diagnosed with Ventricular Septal Defect, Double Inlet Left Ventricle, Pulmonary Atresia, and Hypoplastic Right Ventricle. He had two Blalock-Taussig shunts at age 6 months and 5 years, and a modified Fontan procedure when he was 15. Despite experiencing atrial arrhythmias in early adulthood, Keith received limited cardiac care in his 20s and early 30s. 

    In his 30s, Keith started experiencing syncopal (or fainting) episodes, and on one occasion was rescued by his wife after fainting while swimming. As a result of these episodes, Keith received a pacemaker and recording device and was treated with Sotalol, a beta-blocker. However, Keith had also begun to experience fluid retention related to heart failure, and doctors told him that he would need a heart and liver transplant. He is currently undergoing the required testing to be listed for both organs. 

    Over the years, Keith worked for a variety of retail and restaurant businesses, before working his way up to managing and owning businesses. He also started doing stand up comedy. Most recently, he has worked in the health and disability rights fields and earned his Bachelor’s degree in Accounting. He met his wife in 2003 and currently lives in Baltimore.

    In this episode, Keith will share more about his life -- living with a congenital heart defect -- with Anna. He will also explain how he has come to need to be listed for two different organs. He will also share with Anna what he believes keeps him going, even when the going gets rough.

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    From Tragedy to Blessing

    From Tragedy to Blessing
    For the very first time the Host of our program, Michael Liben, will be on the other side of the microphone as he becomes the Guest and Guest Host C Jay Anderson takes over! Michael shares with C Jay what it was like to lose his daughter at a young age and how her death, although a tragedy for his family, became a blessing to 4 other families. Tune in to hear how Micheal's family chose to make a difference and what it has meant in his life.

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    And the Beat Goes On: The Shaun Miller Story

    And the Beat Goes On: The Shaun Miller Story
    Cameron Miller is our Featured Guest for February 2018. Cameron's son, Shaun, became a YouTube sensation when he made a YouTube video called "My Final Goodbye" and he has inspired people all over the world with his story and his philosophy of life. On today's program Cameron shares with Michael how he continues to celebrate Shaun's life, the projects he has in the works to help others understand who Shaun was and as a lasting legacy to Shaun.

    For more information about Shaun, you can buy his book here: https://smile.amazon.com/Awesome-Ride-Shaun-Miller-ebook/dp/B00AIEU4FE/ref=sr_1_1?ie=UTF8&qid=1515449821&sr=8-1&keywords=shaun+miller or check out the website for the foundation his father started in his memory, the Shaun Miller Foundation at https://www.theshaunmillerfoundation.org/

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    Encore Presentation of "Organ Donation and Transplantation"

    Encore Presentation of "Organ Donation and Transplantation"
    What kind of heart defects result in needing a heart transplant? How do survivors and parents of survivors feel about heart transplants? What is one wish many heart parents hold in their hearts when thinking their children may need another transplant?Support the show

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    Baby Blue Sound Collective

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