raising a child

Fatherhood can be a challenging journey with high expectations. Fathers are expected to be providers, protectors, role models, and sources of emotional support for their children. However, fathers often struggle to balance these expectations with their personal and professional lives.

One common struggle for fathers is finding the right balance between work and family life. Many fathers feel pressure to provide for their families financially but also want to spend quality time with their children. This can lead to feelings of guilt and stress when they are unable to be present for their family as much as they would like.

Another challenge for fathers is the pressure to be a perfect role model for their children. Fathers want to be seen as strong, dependable, and responsible, but may also feel the need to hide their vulnerabilities and struggles from their children. This can lead to feelings of isolation and loneliness.

Despite these challenges, being a father can also be a rewarding experience. Fathers have the opportunity to create lasting memories with their children and to positively impact their lives. By being present, supportive, and actively engaged in their children’s lives, fathers can help their children grow into confident and successful adults.

Listen to our stories as we share our own struggles and expectations.

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It's 2023, surely now people of color are correctly being diagnosed with cystic fibrosis right?  Nope.  They are still underdiagnosed.  We hear about it happening in low income countries, but it's happening right here in the USA. 

Rachel Alder was diagnosed barely 5 months ago, at age 26.  She was misdiagnosed until January 2023. Rachel was born before newborn screening could detect CF. And, because not all mutations are under represented in testing, her diagnosis would still most likely have been missed. We have to change this.

Rachel Alder today, or Rae as she likes to be called has been an advocate her entire life. Rachel, who is African American. It is still unbelievable to those of us advocating and raising awareness about the disparity in diagnosis in people of color, it is still happening.  As a reminder, anyone, regardless of race can be diagnosis with cystic fibrosis.  The number of people diagnosed with CF is certainly higher than is what currently reported.  Rae is a transracial adoptee, which means she was adopted by parents who are a different race.  Rae identifies as queer, and a full time CF Warrior.

In the beginning of her career, she worked on diversity victim advocacy with survivors of sexual assault, human trafficking, and domestic violence. After her January CF diagnosis, she started focusing on patient advocacy, and specifically on health equity. Rae herself overcame racial bias, health disparity and a decline in her own health until her diagnosis.

National Organization for African American's with cystic fibrosis: https://noaacf.org

Children's Organ Transplant Association: https://cota.org

Bonnell Foundation CF Master Class: https://cfmasterclass.org

Bonnell Foundation website: https://thebonnellfoundation.org

Email: thebonnellfoundation@gmail.com 

Thanks to our sponsors:

Vertex:  https://www.vrtx.com

Genentech: https://www.gene.com

Viatris: https://www.viatris.com/en

Information about Institute for Economic and Clinically Review (ICER): https://www.engagecf.org

Please like, subscribe, and comment on our shows, wherever you get your podcasts.

Please consider making a donation: https://thebonnellfoundation.org/donate/

The Bonnell Foundation website:https://thebonnellfoundation.org

Email us at: thebonnellfoundation@gmail.com 

Thanks to our sponsors:

Vertex: https://www.vrtx.com

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Reid + Cari sit down with Cari's long time friends Eryn and Dayna to discuss what their motherhood journey has been like.  Eryn has a 1 year old daughter names Miko and Dayna has a 5 month old son named Parker.  Each tells stories about their different, yet same journey navigating being a new parent.

Questions or comments to Reid + Cari, email: thehawaiicouplepodcast@gmail.com

Connect with us on:
Instagram: @thehawaiicouple
Facebook:  The Hawaii Couple Podcast
YouTube: https://www.youtube.com/user/caritaira
Blog: www.hawaiifoodandfamily.com

Reid + Cari breakdown an article they read about how to raise a smart baby.  They discuss the points in the article and share the sometimes different opinions  they each have on the topic.  

Article: https://www.babycenter.com/baby/baby-development/5-secrets-to-raising-a-smart-baby_10370985

Questions or comments to Reid + Cari, email: thehawaiicouplepodcast@gmail.com

Connect with us on:
Instagram: @thehawaiicouple
Facebook:  The Hawaii Couple Podcast
YouTube: https://www.youtube.com/user/caritaira
Blog: www.hawaiifoodandfamily.com

On this episode we have answers to a wide range of listener questions from what our favorite dave matthews band song is to what we wish we knew about labor or caring for a newborn all the way to what syndrome Stevie has, Jaana's sewing and how we found Fergus.

A direct, personal, heartfelt sharing of what it is like to parent and raise a child with Autism, with Tricia Wallace M.D. Tricia Wallace is a wife and mother of three beautiful boys, her youngest being diagnosed on the autism spectrum. She is also a board-certified doctor in female pelvic medicine and reconstructive surgery, as well as being a yoga teacher.

Olivia Puccini is originally from the U.S. but currently lives in Tallinn, Estonia with her husband, Nick, and her two beautiful kids, Oliver and Ava. She’s an author, church planter, singer, wife and mother. Oh...she also is Brilliant! On this episode she shares her passion for mental health, raising a strong-willed Child and how to avoid "hustling for your worth".

GIVEAWAY! Olivia is giving away a signed copy of her book "I Am There: Armenia" to one of our awesome listeners!!! We love to see how you all listen. To enter, post a photo of you listening to the podcast and tag us using @ShaileyandKatie and use #shaileyandkatie and #skhowilisten. We will choose a winner and send you a copy!

SHOW NOTES:

Olivias blog: http://www.oliviapuccini.com

Olivia's Book "I Am There: Armenia": https://www.amazon.com/Am-There-Armenia-Olivia-Puccini-ebook/dp/B009B0EYU2#nav-subnav

Focus Church: http://focuschurch.ee