sickle cell anemia

In the first episode of Bringing Sickle Cell Disease to Life, Kyle Smith, an individual living with sickle cell disease and a leader in community advocacy, will share his story with us. Our host Dr. Wally Smith interviews a legend in the field Dr. Clarice Reid on the history of sickle cell disease. She describes two events that helped launch sickle cell disease into public awareness. Dr. Marilyn Hughes Gaston shares surprises she experienced when starting her career in sickle cell advocacy. For present day care, Dr. Russell Ware advocates for preventative medicine for  individuals living with sickle cell disease. Dr. Betty Pace sheds light on research that correlates genomics with clinical outcomes and hints at the possibility of using combination therapy in the future. Lastly, an individual living with sickle cell disease  and clinician Dr. Titilope Fasipe encourages listeners to join the mission of improving outcomes and equity for people living with sickle cell disease.
Learn more about ASH's Sickle Cell Disease initiative by visiting https://www.hematology.org/advocacy/sickle-cell-disease-initiative.
Music: "Envision" Kevin MacLeod (incompetech.com) Licensed under Creative Commons: By Attribution 4.0 License http://creativecommons.org/licenses/by/4.0/

Coming soon: This podcast, hosted by Dr. Wally Smith of Virginia Commonwealth University, features interviews of diverse leading experts including researchers, physicians, and individuals living with the disease, exploring the history of the disease, the global impact and need for additional providers, disparity and bias in sickle cell disease, and promising news regarding the management and treatment of sickle cell disease. Learn about the past, present and future of sickle cell, and join us in the fight for sickle cell disease survival!
Subscribe to receive a notification when Episode 1 is live. Learn more by visiting https://www.hematology.org/about/podcasts-and-apps#SCD.
Music: "Envision" Kevin MacLeod (incompetech.com) Licensed under Creative Commons: By Attribution 4.0 License http://creativecommons.org/licenses/by/4.0/

Most people know that sickle cell has something to do with blood not functioning properly. However, many people don’t know exactly what happens during a sickle cell crisis or who’s at risk for developing one. So, why does sickle cell occur? Who’s more likely to be impacted? What can be done to lessen the discomfort?

Hosts Atoya Burleson and Tia Avril are digging deep on the insideLINES Podcast! 

Atoya and Tia shake things up a bit with a new segment called “Asking For A Friend!” The ladies tackled some questions sent in by listeners via the insideLINES voicemail. If YOU would like to have your questions answered live as well, leave us a voicemail at www.speakpipe.com/insideLINES.

Then, it’s on to Hot Takes we’re the ladies share on rapper and actor Machine Gun Kelly’s interview on the Drew Barrymore Show. Kelly was promoting his new nail polish line when he opened up about being tired of smiling on days when he doesn’t actually feel like smiling. Tia and Atoya share their thoughts on if they think entertainers should have to continue to wear a mask for fans and supporters. 

Lastly, the ladies welcome realtor, philanthropist, and president of The Kwamie Lassiter Foundation, Ericka Lassiter. Ericka, wife of the late NFL defensive Back Kwamie Lassitor, served for 12 years as president of the Off the Field Women’s Association, an organization created to support players’ significant others as they navigated their journey in the NFL. Ericka chats with the ladies about her experience caring for her son who was diagnosed with and then cured of sickle cell anemia. She also discusses what life has been like after the sudden loss of her husband in 2019 and finally stepping back in order for her to grieve properly. Ericka also reveals her plans of writing a book to share her life story. 

If you want to help us out, be sure to follow, rate and review the podcast on the Apple Podcast app. Thanks so much for listening and supporting our show! We really appreciate you.

Guest: Ericka Lassiter
Ericka’s Instagram
The Kwamie Lassiter Foundation 

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Atoya Burleson
Tia Avril

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Website: www.inSIDELINESpodcast.com
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Team
Executive Producer: Scott Riggs
Consultant/Guru: Kibi Anderson

Meet Paul Croswell, a Life-Balance Consultant for young professionals and the creator of VIDA map, the work-life balance manager. Based in central New Jersey, he hosts The Pocket Potential Podcast and a personal development blog. Paul has spent almost a decade learning to tap into the power of Life-Balance and now he teaches young professionals how to use it to reach their most intimidating goals, improve their personal growth, and live a deeply meaningful life.

In this episode, Paul details his journey as a hip hop artist into a self-published author and mental health coach.  Inspired to help young professionals fight against burn out, toxic relationships, and work stressors, he seeks to help his clients discover life balance:  vital tools necessary to reach your goals in a healthy way.

Discover why successful people are more disciplined to say no in this deeply inspirational podcast with Paul and pick up some tips on how to establish your own life balance.

PAUL'S TAKEAWAYS

1. The definition of "life balance" is not one size fits all.
2. Life balance can be broadly defined as equipping yourself with tools to reach your goals in a healthy way.
3. Life balance is also the ability to reach your goal faster and healthier.
4. Life balance can also help you anticipate obstacles.
5. If you don't prioritize your life, someone else will.
6. Really successful people are more disciplined to do less and say no.
7. Everyone's capacity is different for "hustle."
8. Ease overwhelm by offloading some of your stress to a place where your mind is not stressed about it.
9. All of life is connected.

CONNECT WITH PAUL
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If you like this episode, please be sure to subscribe everywhere you listen to podcasts!

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Help support this podcast by buying me a cup of coffee. I need it to stay awake editing!

BUY ME COFFEE

"Don't limit your challenges; challenge your limits." - Jerry Dunn.

On this episode, our guest Tutu Emmanuel shares candidly about how she was able to challenge her limitations despite having sickle cell disease. 

Sickle Cell Disease (SCD) is now one of the most common serious genetic condition in England. SCD is a complex genetic blood disorder which is inherited from both parents.  SCD mainly affects peole of African or African Caribbean origin, however the sickle gene is found in all ethic groups. It is estimated that there are about 15000 people living with SCD in the UK. 

Lastly, kindly Subscribe, Like, Share & Comment! 

Tutu supports the Sickle Cell Society Uk and has a podcast called Disabled But Enabled which is available on all podcast platforms. 
Connect with Tutu on her Social media handles:
Instagram: @disabledbutenabled 
Twitter: @AdetutuEmmanuel
Facebook: Adetutu Emmanuel

Thanks for listening!
Follow us on https://youtube.com/@OluAdeaga-hangoutthecafe
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Sickle Cell disease (SCD) affects 1 in 4 people and our guest barista this week is committed to bringing awareness to this disease.

In this episode Emmanuella shares openly about the effect of  Sickle Cell on her. She also discusses about overcoming the stigma attached to having Sickle Cell Disease.

Emmanuella Afolabi is a Radio & TV Presenter, an Interior Designer and Content Creator.
Her journey is both inspiring and encouraging.
Enjoy listening!

Lastly kindly Subscribe, Like, Share & Comment! 

Connect with Emmanuella on her Social media handles:
Instagram: Emmanuella_afolabi
Twitter: Slimtingemma
Facebook: Emmanuella Afolabi

Thanks for listening!
Follow us on https://youtube.com/@OluAdeaga-hangoutthecafe
https://www.instagram.com/hangout_thecafe

If you would like to be a podcast guest, send the host Olu Adeaga a direct message

Members of the Ramsay family describe what life with sickle cell is like, as a means of raising awareness for the disease, as well as shining a spotlight on research progress to date. Sickle cell affects millions the world over, predominantly those of African descent, though it does afflict the Hispanic community as well. The history of sickle cell disease is fraught with tears, fatigue, and even racial oppression -- but hope is on the horizon.

CREDIT: Children's Inn at NIH, childrensinn.org.

Siblings Alana and Aaron Ramsay open up about living with sickle cell disease, hoping to shed light on such an important subject.

Credit: John Ramsay's speech hosted by the Children's Inn at NIH.

Dr. Brown with Eye Specialty Group talks about how Sickle Cell Anemia effects your eyes and possible retina issues. 

Rapper and author Prodigy from the group Mobb Deep discusses his challenges with Sickle Cell and the inspiration behind his cookbook Commissary Kitchen, their beef with 2 Pac, the best advice he got from street hustlers, how his grandma's coffee mug inspired an album, what drove his partner Havoc into production, and how being young and hard-headed effected their career.

Deze aflevering lezen in plaats van luisteren? Klik hier voor het transcript

In deze derde aflevering spreek ik met Chantelle Rodgers. Zij heeft sikkelcelziekte, een ziekte die voornamelijk zwarte mensen treft. We spreken dan ook over medisch racisme en het gebrek aan onderzoeksgeld dat naar deze ziekte gaat, maar ook over Chantelles negenenveertig ziekenhuisopnames, regie nemen over je gezondheid en excelleren in het leven. Later volgt nog een bonusaflevering waarin Chantelle vertelt over stichting IXL waarvan zij de oprichter is, en over werken met een chronische ziekte. Nieuw in deze aflevering zijn de rubrieken #dankjedokter en #dokterdrama, waarin luisteraars vertellen over fijne en minder fijne dokterservaringen.

Meer over sikkelcelziekte vind je op de website van IXL. Hier het artikel over sikkelcelziekte, taaislijmziekte en het grote contrast in onderzoeksgelden die naar deze ziektes gaan (Engelstalig). Chantelle Rodgers tipte ook nog het boek “Dying in the city of the blues: Sickle Cell Anemia and the politics of race and health”.