special_needs

We are proud to present this very special edition of the Special Fathers Network Dad to Dad Podcast. Host David Hirsch talks to special father Miguel Cervantes. Miguel performed the lead role of Alexander Hamilton for the entire 171 week Chicago run of “Hamilton: An American Musical.” Miguel and his wife, Kelly, son Jackson and Newborn Adelaide, moved to Chicago so Miguel could take on the role of a lifetime. But soon after, Adelaide started having seizures due to a severe form of pediatric epilepsy. Tragically Adelaide passed away at age three. In this Dad to Dad Podcast, Miguel talks to host David Hirsch about the highs and the lows of this difficult phase of his life.

Show Links:

Check out Miguel Cervantes’ website: https://www.migcervantes.com

Read Kelly Cervantes’ blog and listen to her podcast: https://www.kellycervantes.com

Find out about CURE, Citizens united for research in Epilepsy Epihttps://www.cureepilepsy.org/adelaide/

Watch the video for Miguel’s song. “’Til The Calm Comes” https://www.youtube.com/watch?v=mqESJUipg98

And learn more about The Special Fathers Network: https://21stcenturydads.org/about-the-special-fathers-network/

On this Dad to Dad podcast, host David Hirsch talks to special father, Cory Estby, the pastor at Zion Lutheran Church in Grant Park, Illinois. Cory and his wife Christena have four children including two adopted brothers who both have Duchenne Muscular Dystrophy. Hear the fascinating story of how these two young boys became a part of the Estby family on this Dad to Dad podcast. Visit Giftofadoption.org to find out more, also check out parentprojectmd.org to find out about Duchenne Muscular Dystrophy. To learn about the Special Fathers Network, go to 21stcenturydads.org.

Today's program features Emily Perl Kingsley, the mother of a child born with Down Syndrome. Because of this experience, she wrote an essay, "Welcome to Holland" which has been made famous thanks to how beautifully it helps people understand a parent's journey when raising a child with special needs. Emily, a personal family friend of our Host, Michael Liben, shares her experiences with Michael about having a child with Down Syndrome, what path she chose to take to save her son and how she has helped him deal with loss. As Emily ages, and has lost two spouses, she has become aware of the need to prepare her son Jason for life without her. Today she tells Michael about the extraordinary efforts she has taken to help her son life when she is gone.

Become a supporter of this podcast: https://www.spreaker.com/podcast/bereaved-but-still-me--2108929/support.

Tune in to hear a CHD Adult Survivor, a parent and a special education teacher discuss what it means to send a child with a CHD to public school. What laws are there to help our CHD Survivors? How can parents work to make schools safer?Support the show

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Baby Blue Sound Collective

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Those who have been through the trauma of having open-heart surgeries and dealing with all of the situations that accompany them have many choices. They can choose to be positive and to see the bright side, even when things get difficult or they can choose to feel negative and like what is happening to them is unfair. Survivors can choose to let their heart defects define them or they can choose to live a quality life despite their difficulties.Sometimes a person used her personal trauma to empathetically reach out to others. That's what this show is all about. Tune in to hear how a CHD Survivor has used her experiences to reach out to others -- specifically to children with learning and medical disabilities. Discover the miracles she has witnessed over the years and the good that can come of living a challenging life.Today's show, "The Miracle of Giving Back" features CHD Survivor and special education teacher Catherine Scavone.***Thanks to Stuart Miles of FreeDigitalPhotos.net for the illustration***Support the show

Anna's Buzzsprout Affiliate Link

Baby Blue Sound Collective

Social Media Pages:

Apple Podcasts
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MeWe
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It is not uncommon for children who have undergone open-heart surgery to have some developmental delays. Are these delays severe enough for them to qualify for special services? What happens when our children with congenital heart defects have developmental issues, but they aren't delayed enough to qualify for Early Childhood or Special Education programs? What recourse do parents have? Will insurance cover the cost if the school district will not? Listen to today's show for answers to these questions and more.(Thanks to potowizard of FreeDigitalPhotos.net for the image!)Support the show

Anna's Buzzsprout Affiliate Link

Baby Blue Sound Collective

Social Media Pages:

Apple Podcasts
Facebook
Instagram
MeWe
Twitter
YouTube
Website