stroke has no age limit

 Creed is missing the majority of his brain. He essentially only has his brain stem and all of his other brain is missing. Doctors deemed her child deemed incompatible with life, but Creed has defied the odds is now 9 years old. Melanie, Creed's mom, shares their story. What is anticipatory grief? It is the emotions associated with grief before the expected loss actually happens. -- Think of it as
"What will never be."
Creed's Journey: https://www.facebook.com/creedsjourney

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I am excited to introduce our listeners to Ami Waggoner who has graciously come on today to tell us the story of her medically complex child Luke and Kathy Derr, founder and director of family engagement for the absolutely fabulous organization everyone should  know about — A Kid Again created to provide kids with life-threatening conditions and their entire family with the opportunity to forget about the stress that comes with having a child with a medical condition.
A Kid Again: https://akidagain.org/
Follow Luke: Luke's Mom's Page 
Book Or So They Thought:  Order Book

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Happy October to all our listeners. October is Brain AVM Awareness Month. As a reminder, A brain AVM is a tangle of abnormal arteries and veins, that do not have the needed capillaries in between the connections. If you would like more information on Brain AVM’s: AVM Alliance, an official non-profit, now has its own website www.avmalliance.org. On it you will find lots of information as well as personal stories. Last month’s Part two episode started with terms found on radiology tests doctor’s order and dove a bit into epilepsy, EEG’s and stroke in infants. Today’s episode will end the series with questions about stem cells and other therapies and programs for kids who have suffered a stroke. We will end today's podcast with a "Things to Think About” takeaway lesson from a special children’s book.

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On this episode, we continue our interview with the director of the pediatric stroke program with McGovern Medical School at UTHealth Houston as we go over questions parents submitted for our medical professional. Today’s episode continues the discussion, diving a bit into epilepsy, EEG’s and stroke in infants.  Each episode for this season ends with a focus on a special children’s book with a "Things to Think About” takeaway lesson. The focus of this month's "Things to Think About" is based on the Children's Book “The Boy, The Mole the Fox and the Horse” a fabulous book of wisdom written by Charlie Mackesy.

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We are beginning season two with a 3 part “The doctor is In” Series going over questions with Dr. Stuart Fraser, the director of the pediatric stroke program with McGovern Medical School at UTHealth Houston. This month’s Part one episode focuses on medical terms parents read on radiology reports and goes into more detail about the different radiology tests doctor’s order as well as the major blood vessels of the brain. Each episode for this season will end with a focus on a special children’s book with a "Things to Think About” takeaway lesson. This month's book is "Maybe" by Kobi Yamada.
Guest Website Link

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Today is the end of season one, our 15th episode.  We talk about why some parents of children who have suffered a stroke feel like they don't fit in and provide an analogy that hopefully will change that mindset. Our guests today are AVM Brain bleed survivors Kyler Lewis and Ashley Lindsey who talk about what it is like to deal with brain vessel disease. We end the podcast going over our last chapter of our focus book, Suffer strong where Jay talks about "The Unknown" and we learn about the importance of hope when suffering and finding bravery to illuminate the darkness and uncover the  treasures hidden there.  

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This podcast starts with a brief explanation of the genetic condition, Hereditary Hemorrhagic Telangiectasia (HHT) and tells the story of Stephany Zumerling who suffered for years without the correct diagnosis. Her medical journey offers lessons we can all learn from and highlights the importance of finding a doctor who takes the time to listen to their patient and investigate symptoms that don't make sense. The podcast ends with lessons learned from Chapter 9 of our current focus book Suffer Strong: written by Katherine and Jay Wolf.

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This morning we are starting with a Brain News medical study. A study with the University of Cincinnati will examine the effectiveness of a stroke treatment for patients with a pre-stroke disability, one of the first studies to focus on this population.  Our guest today is a spokesman from the sweetest non-profit I know, Icing Smiles, an organization who is baking a difference for children dealing with a difficult medical diagnosis. We will end the podcast with a discussion on the need to redefine beauty from Ch 7, of our focus book, Suffer Strong.
New Stroke Study
Icing Smiles: Baking a Difference

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In Brain News we go over two published studies from Stanford University involving Stem Cell treatment for Stroke survivors. Our guest today is Jonathan Slifka who was born with spina bifida who discusses the importance of working together to make positive changes in what you want to see happen in life.  We end with a discussion on redefining failure in Ch. 6 of our focus book, Suffer Strong, where Jay points out how great people are at projecting an image to the public that is often completely different from how they actually feel.
Research Study 1
Research Study 2
Guest: Jonathan Slifka
Twitter: @JonathanSlifka 
Insta: Inspireujs 
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In Brain News: Survivor, Malori Rodgers, just released her book “A Stroke a Heaven” which talks about her personal journey after a traumatic brain injury.  Our guest today is Heather Golladay, who talks about the importance for looking  at the bright side of things. Her husband suffered an ischemic stroke and she is the graphic arts designer for AVM Alliance and the creator of our butterfly pig and each week's art work. We end today with Chapter 5 of our focus book Suffer Strong with a discussion on redefining loss and opening our hands to the future.
Information: KCBD News Article on Malori Rodgers
Book: A Stroke of Heaven

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Today we are going to be talking about the UCSF Pediatric Stroke Research Center and three of their current research projects headed by Dr. Heather Fullerton.  We will visit with guest Jennifer Odell whose beautiful son Brayden gained his wings just days after his AVM rupture and learn what is important to families during this difficult time.  We will end with a short discussion on part one of Chapter 2 of our current focus book “Suffer Strong” by Katherine and Jay Wolf focusing on the importance of  redefining the past to allow peace and eventually healing on the inside.
Brayden's Story: https://www.cbc.ca/news/canada/montreal/brayden-odell-avm-sainte-justine-foundation-1.6496942
The Family's Website: https://teambrayden.org/

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