supporting families

Welcome to The Ryan Frank Podcast! In this episode, Ryan Frank engages in a thought-provoking conversation with Stephen "Doc" Hunsley, exploring the fascinating world of Special Needs Ministry. Together, they tackle the unique challenges faced by families impacted by special needs and provide practical strategies for starting a special needs ministry. Tune in to gain valuable insights and be inspired by success stories that highlight the transformative power of inclusive ministry. Whether you're a seasoned leader or just starting out, this episode offers invaluable advice and resources for making a lasting impact in the lives of individuals and families affected by special needs. Don't miss out on this empowering episode!

Welcome to the Ryan Frank podcast
Ryan is a family man, first and foremost, but he’s also a pastor, publisher, and serial entrepreneur. This podcast will help you think, work, and create like never before.
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Support this Show: https://alzheimersspeaks.com/donate-now/

See omnystudio.com/listener for privacy information.

Do you feel moral panic about the digital well-being of young people? Are you swamped by the effects of the ‘data deluge’? This digitally nutritious conversation will leave you with a sense of competence and control, ready to better support young people’s (and perhaps even your own) digital well-being.

Listen in to this episode of A Conversation About Digital Well-being and Young People’s Mental Health as Dr. Lyn O’Grady, Community Psychologist, and Jocelyn Brewer, Psychologist explore the role technology plays in our lives and how we can support young people to use it in safe and savvy ways. 

Jocelyn's professional journey, from teacher to psychologist and mother, gives her a unique perspective into the definition of digital well-being. She shares her insights on supporting young people’s well-being, including how to involve them in the conversation around their own digital well-being.

Lyn and Jocelyn share how they have evolved professionally to work in this space supporting families, discussing how technology has changed across generations, and how to ‘get curious, not furious’, with young people in order to help them navigate and stay safe online.

Liked this episode? Stay tuned for future episodes of A Conversation About by following MHPN Presents.

Visit the MHPN website for episode host and guest bios, recommended resources and a self-directed CPD form.

Share your comments, questions and feedback about A Conversation About Digital Well-being and Young People’s Mental Health or any of MHPN’s podcast series here: https://bit.ly/3d6nFea.

How can we improve our societies?  By strengthening the foundation, families.  In this episode, my husband of 48 years, David, and I talk about the many challenges families face today and how we can support them in our communities.

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“There must be somebody else just like me. I really need to find another mom. I really need to find another six-year-old boy who's going through this.”—Andi Callaway

We’re always inspired by real-life stories of those who turn THEIR challenges into blessings for others. Here Jon, Bryan, and Andi expose the hard truths of navigating kidney disease.

Andi recounts how she had to become an expert on nephrotic syndrome when her son was diagnosed at the young age of six. She and her husband eventually founded NSF, the Nephrotic Syndrome Foundation, with the intent to improve the journey for others, one family at a time.

(2:50) Andi shares the childhood experiences that inevitably shaped who she is as a Mom.

(7:12) Running, and transferable life lessons…

(10:28) A good work ethic and track…

(13:54) “...finance is such an important background to have. And if you have it, you can do whatever you want…” Andi shares many of her jobs as an adult.

(17:55) High-speed DSL, start-ups, and 70 hours a week…

(24:24) A new journey begins…pulling back to raise a family.

(27:48) “I can get behind anything. I love everything...I love anything. I just think there's so much good out there. I can really find passion and interest in pretty much anything.” Andi shares about getting involved in local charities.

(29:35) Wilson’s symptoms begin to show up.

(33:53) What steroids do to a six-year-old…

(37:04) Desperately in need of connection… and the origins for NSF.

(40:07) “I kind of realized that what moved me so much... was really serving that mom and that dad and that patient, the family and the child and the siblings…”

(43:34) What is nephrotic syndrome, exactly?

(47:11) Relapses, triggers, and regimens—what works for Wilson?

(49:56) “I think that this is a marathon, not a sprint. And you know, we started that journey with a lot of grace for ourselves.”

(52:07) Starting with the Backpacks of Hope program…

(56:54) How COVID 19 has impacted NSF and bringing hope through connections.

(1:01:41) It’s the tip of the iceberg… how the healthcare system handles kidney disease.

(1:04:35) The power in parent communities…

(1:06:37) When the insurance company won’t cover a medication…

(1:09:27) How’s Wilson doing today?

(1:10:50) What does Go Be More mean to you?

If you liked this episode, check out our interviews with kidney disease survivors Jeremy Bedig or listen to Jon's Kidney Disease Story.

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Recorded September 9, 2020.

References:

Nephrotic Syndrome Foundation - website

Guest:

Andi Callaway - @nephroticsyndromefoundation

Hosts:

Bryan Green - @sendaibry, Go Be More Blog

Jon Rankin - @chasejonrankin, Go Be More

Links:

Go Be More website

Go Be More YouTube Channel

Feedback

Production and Editing

Creatives Collective Marketing