Hosts Interventional Cardiologist Dr. John Phillips and Emmy Award-winning journalist Kym McNicholas are talking about innovation around ALS. Most are familiar with ALS now more than ever because o the famous internet ice bucket challenge involving the pouring of a bucket of ice water over a person's head, either by another person or self-administered, to promote awareness of Amyotrophic lateral sclerosis , or ALS. ALS is a progressive nervous system disease that affects nerve cells in the brain and spinal cord, causing loss of muscle. Most people with this disease begin with muscle stiffness or weakness. But they eventually lose the ability to walk, dress, write, speak, swallow, and ultimately breathe on their own when the muscle paralysis spreads to vital organs such as the lungs. We are talking about it here on the Heart of Innovation for three reasons: First, although it's not considered a vascular disease, some researchers believe that an ALS-linked gene mutation could cause disruptions in the blood-spinal cord barrier, causing the neurovascular inflammatory response, which is ALS; Second, due to the lack of mobility as ALS progresses, many people with ALS end up with circulation issues in the legs (Circulation issues in the legs is known as peripheral vascular disease. We've talked about that at length on this show where arteries start hardening and the flaps that help usher blood flow back to the heart start malfunctioning.); Third, innovation around treatment and disease management has led to a longer, better quality of life for people with ALS due to organizations such as the Gleason Foundation, founded by former New Orleans Saints NFL great Steve Gleason. Kearney Gray, Director of development for the Gleason Foundation talks about how patient-driven innovation with communication and mobility are helping patients to live a longer, better quality of life. The Gleason foundation has played an integral role in raising the patient voice to create change in care, empowering companies to create new, novel approaches to improving communication for people with ALS, and not only educating lawmakers on ALS, but inspiring them to take action to help elevate care. Dietitian Melissa Hooper also joins the discussion to talk about the importance of nutrition in slowing the progression of disease and improving the quality of life of people with ALS. Since people with ALS maintain their cognitive ability throughout disease progression, knowing what's to come and what's happening can impact mental well-being. So, Kathryn Walker, CEO, MSN-Anesthesia, MSN-Psychiatry, at mental wellness treatment centers, Rivatalist, adds to the conversation with available options to improve mental health.
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