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    tof

    Explore " tof" with insightful episodes like "CHD Spotlight #2: Holes in the Heart", "Gamescom 2022 bequatscht mit Mizu und Haven", "Juggling Tetralogy of Fallot and Epilepsy", "Heart Warrior Psychologist and Author" and "Educating Twin Heart Warrior Toddlers" from podcasts like ""Heart to Heart with Anna", "Games Happen - Der Videospiele-Podcast von und mit Knopey", "Heart to Heart with Anna", "Heart to Heart with Anna" and "Heart to Heart with Anna"" and more!

    Episodes (7)

    CHD Spotlight #2: Holes in the Heart

    CHD Spotlight #2: Holes in the Heart

    In our second CHD Spotlight episode, we'll discuss holes in the heart—atrial septal defects (ASDs), ventricular septal defects (VSDs) and more!

    Today's CHD Spotlight is on the most common type of heart defect commonly referred to as "holes in the heart." This episode features Dr. William Novick—an internationally-known cardiothoracic surgeon and the head of the Novick Cardiac Alliance, a nonprofit organization providing life-saving heart surgeries to children around the world.

    In this episode, Dr. Novick shares the names of some specific congenital heart defects (they are commonly referred to as "holes in the heart") and the treatment used to help people born with these heart defects survive and thrive.  He also discusses some heart defects which commonly have a hole in their heart, as well.

    Former appearances by Dr. Novick on "Heart to Heart with Anna”

    Healing the Hearts of Croatia, Libya, Ecuador and Beyond: https://www.buzzsprout.com/62761/902730-healing-the-hearts-of-croatia-libya-ecuador-and-beyond

    Doctor Burnout in the CHD Community: https://www.buzzsprout.com/62761/2486885-doctor-burnout-in-the-congenital-heart-defect-community

    Support the show

    Anna's Buzzsprout Affiliate Link

    Baby Blue Sound Collective

    Social Media Pages:

    Apple Podcasts
    Facebook
    Instagram
    MeWe
    Twitter
    YouTube
    Website

    Gamescom 2022 bequatscht mit Mizu und Haven

    Gamescom 2022 bequatscht mit Mizu und Haven

    Die Gamescom 2022 ist vorüber und auch wenn sie von recht vielen Ausstellern vernachlässigt wurde, hatte sie eine Menge zu bieten. Für ein Nachgespräch der Gamescom haben sich PsychoMizu und nightlightHaven kürzlich einem Livestream angeschlossen, in dem es so manchen Loot von der Gamescom zu bestaunen gab.

    ACHTUNG: Bei Zeitmarke 4:54 bis 5:00 bitte die Lautstärke herunterdrehen!!

    🔗 Knopey: http://www.twitch.tv/knopey
    🔗 Mizu: http://www.twitch.tv/psychomizu
    🔗 Haven: http://www.twitch.tv/nightlighthaven

    Die erwähnten (und das eine vergessene) Indie-Games, über die wir in der Episode sprachen:

    • Endling - Extinction is Forever (im Juli erschienen)
    • Fall of Porcupine (erscheint 2023)
    • The Time I Have Left (erscheint Ende 2023)
    • Jasper and the City of Lights (erscheint Ende 2023)



    Support the show

    Erwische Knopey auf Youtube (http://youtube.de/knopey) und Twitch (http://twitch.tv/knopey).
    Abonniere und folge, um immer dabei zu sein!

    Per E-Mail erreicht ihr den Podcast unter: info@gameshappen.de

    Schneller geht es aber vielleicht via Twitter und zwar unter @Knopey1.

    Juggling Tetralogy of Fallot and Epilepsy

    Juggling Tetralogy of Fallot and Epilepsy

    What is it like to be the mom of not one but two children with CHD? 

    How can you manage epilepsy in a child with CHD?

    Melanie Letzer is a geriatric nurse practitioner. She lives in Maryland with her husband Jack and their three children. Her older son, Freddy, now 16, was born with Tetralogy of Fallot with Pulmonary Atresia with Multiple Aortopulmonary Collateral Arteries (MAPCAS). Her younger son, Nicholas, now 5, was also born with TOF and later developed epilepsy. Melanie and John also have a heart-healthy daughter, Alexandra, who is 13.

    In this episode of "Heart to Heart with Anna," Melanie talks with Anna about finding out her sons would be born with heart defects, their surgical treatments, and what it was like for Melanie to have a heart-healthy daughter. She also talks a bit about their family dynamic and their philosophy in living with chronic illness.

    Links to 'Heart to Heart with Anna' Social Media and Podcast Pages:

    Apple Podcasts: https://itunes.apple.com/us/podcast/heart-to-heart-with-anna/id1132261435?mt=2

    Facebook: https://www.facebook.com/HearttoHeartwithAnna/

    Instagram: https://www.instagram.com/hearttoheartwithanna/

    MeWe: https://mewe.com/i/annajaworski

    Twitter: https://twitter.com/AnnaJaworski

    YouTube: https://www.youtube.com/channel/UCGPKwIU5M_YOxvtWepFR5Zw

    Website: https://www.hug-podcastnetwork.com/

    Support the show

    Anna's Buzzsprout Affiliate Link

    Baby Blue Sound Collective

    Social Media Pages:

    Apple Podcasts
    Facebook
    Instagram
    MeWe
    Twitter
    YouTube
    Website

    Heart Warrior Psychologist and Author

    Heart Warrior Psychologist and Author

    What was it like to grow up with tetralogy of Fallot in the 1980s? How can having a heart defect influence your career choice as an adult? What psychological challenges do Heart Warriors face?

    Joy Ogawa was born in Hawaii with tetralogy of Fallot in 1979  and had an open-heart surgery at 22 months of age. She considers herself lucky to have only experienced one surgery in her lifetime.

    Despite other health issues affecting her eyes, ears, abdomen, and her emotional wellbeing, Joy was able to participate in physical activities and complete her education and is now a psychologist working in Corrections/Public Safety. 

    Joy highlights her experience of living with CHD in her newly released self-published, illustrated children’s book “I am a Heart Warrior.”

    In this episode of “Heart to Heart with Anna,” Joy shares with Anna some of the medical challenges she has faced over her 40+ years of living with a congenital heart defect and why she considers herself to be as fortunate as she is.


    Links mentioned in the show:

    Friends, to donate to Hearts Unite the Globe through the AmazonSmile Program, go here: http://smile.amazon.com/ch/46-4352863. Thank you for your support!

    Joy's book on Amazon: https://tinyurl.com/djvvvudf

    Anna's Buzzsprout Affiliate Link (if you'd like to try Buzzsprout for your podcast and get a bonus gift card -- and Anna will, too!) use this link: https://www.buzzsprout.com/?referrer_id=16817
     

    Links to 'Heart to Heart with Anna' Social Media and Podcast Pages:

    Apple Podcasts: https://itunes.apple.com/us/podcast/heart-to-heart-with-anna/id1132261435?mt=2

    MeWe: https://mewe.com/i/annajaworski

    Facebook: https://www.facebook.com/HearttoHeartwithAnna/

    Instagram: https://www.instagram.com/hearttoheartwithanna/

    Twitter: https://twitter.com/AnnaJaworski

    YouTube: https://www.youtube.com/channel/UCGPKwIU5M_YOxvtWepFR5Zw

    Website: https://www.hug-podcastnetwork.com/


    Support the show

    Anna's Buzzsprout Affiliate Link

    Baby Blue Sound Collective

    Social Media Pages:

    Apple Podcasts
    Facebook
    Instagram
    MeWe
    Twitter
    YouTube
    Website

    Educating Twin Heart Warrior Toddlers

    Educating Twin Heart Warrior Toddlers
    The importance of early childhood education (ECI) cannot be denied. At-risk children who are given ECI tend to do better and many can even start kindergarden with their peers. Today's program features Roxanne Montalvo-Tsai, a heart mom to a healthy little boy and twin girls who were both born with tetralogy of Fallot. Enjoy today's program as Roxanne shares with Anna how she worked to provide little Jasmine and Selena with all of the assistance she could while they were infants and into early childhood and how, now that they are toddlers and 3 years of age, she is enrolling them in her public school's ECI program. Discover some of the strengths and weaknesses the twins already have and what Roxanne believes they need in order to start kindergarten with their peers, and without any outside assistance!Support the show

    Anna's Buzzsprout Affiliate Link

    Baby Blue Sound Collective

    Social Media Pages:

    Apple Podcasts
    Facebook
    Instagram
    MeWe
    Twitter
    YouTube
    Website

    A Nurse’s Perspective: Changes in Care over the last 30 Years: Part 2

    A Nurse’s Perspective: Changes in Care over the last 30 Years: Part 2
    Deena Barber has been a nurse for over 30 years. Over that time she has seen many changes in care for those born with congenital heart defects (CHDs). Tune in today to hear her discuss some of the most impactful advancements that have led to a change in the CHD population from being mostly comprised of babies to now having the greater percentage of the population being adult survivors. In Part 2 we'll be discussing the changes that have occurred regarding specific heart defects, namely tetralogy of Fallot, transposition of the great arteries, valve problems, rhythm problems and hypoplastic left heart syndrome.Support the show

    Anna's Buzzsprout Affiliate Link

    Baby Blue Sound Collective

    Social Media Pages:

    Apple Podcasts
    Facebook
    Instagram
    MeWe
    Twitter
    YouTube
    Website

    Transitioning from Teen to Adult

    Transitioning from Teen to Adult
    How does a teen with congenital heart defect transition to being an adult with a congenital heart defect? What can go wrong? What kinds of things can parents do to help the transition go more smoothly? What makes transitioning so difficult? Two adults born with congenital heart defects, Sarah Clark and Nicole Vickery, share their life experiences with Anna and offer advice to listeners.Support the show

    Anna's Buzzsprout Affiliate Link

    Baby Blue Sound Collective

    Social Media Pages:

    Apple Podcasts
    Facebook
    Instagram
    MeWe
    Twitter
    YouTube
    Website

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