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    #vacterl

    Explore " #vacterl" with insightful episodes like and "Meet Lily - Advocating through Community" from podcasts like " and "Not So Rare Podcast"" and more!

    Episodes (1)

    Meet Lily - Advocating through Community

    Meet Lily - Advocating through Community

    This week, Taylor and Liz are excited to have Lily join the podcast. Lily is living with VACTERL Association. In this week's episode, Lily discusses more about her disease along with sharing how she has worked to help support her own rare disease community. She also discusses an impactful camping experience that helped her build deeper connections. For more information related to VACTERL Association, please click here. Additionally, for more information related to camping experiences for youth living with bowel and/ or bladder system conditions, please click here.

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