On this page
wjr
Explore " wjr" with insightful episodes like "First Thing with Mike Parsons and Renee Vitale ~ Dec. 20, 2023", "Welcome to the Let's Go Michigan Show!", "Being heard: CF and diagnosis when your African American", "Michael Lee on WJR: Lear Corp's future," and "Michael Lee on WJR: Great Lakes cruises get big | $100 million in state money for UM project | What's in the state budget" from podcasts like ""First Thing with Mike Parsons and Renee Vitale", "Let's Go Michigan!", "Living With Cystic Fibrosis", "Crain's Conversations" and "Crain's Conversations"" and more!
Episodes (27)
Welcome to the Let's Go Michigan Show!
Being heard: CF and diagnosis when your African American
It's 2023, surely now people of color are correctly being diagnosed with cystic fibrosis right? Nope. They are still underdiagnosed. We hear about it happening in low income countries, but it's happening right here in the USA.
Rachel Alder was diagnosed barely 5 months ago, at age 26. She was misdiagnosed until January 2023. Rachel was born before newborn screening could detect CF. And, because not all mutations are under represented in testing, her diagnosis would still most likely have been missed. We have to change this.
Rachel Alder today, or Rae as she likes to be called has been an advocate her entire life. Rachel, who is African American. It is still unbelievable to those of us advocating and raising awareness about the disparity in diagnosis in people of color, it is still happening. As a reminder, anyone, regardless of race can be diagnosis with cystic fibrosis. The number of people diagnosed with CF is certainly higher than is what currently reported. Rae is a transracial adoptee, which means she was adopted by parents who are a different race. Rae identifies as queer, and a full time CF Warrior.
In the beginning of her career, she worked on diversity victim advocacy with survivors of sexual assault, human trafficking, and domestic violence. After her January CF diagnosis, she started focusing on patient advocacy, and specifically on health equity. Rae herself overcame racial bias, health disparity and a decline in her own health until her diagnosis.
National Organization for African American's with cystic fibrosis: https://noaacf.org
Children's Organ Transplant Association: https://cota.org
Bonnell Foundation CF Master Class: https://cfmasterclass.org
Bonnell Foundation website: https://thebonnellfoundation.org
Email: thebonnellfoundation@gmail.com
Thanks to our sponsors:
Vertex: https://www.vrtx.com
Genentech: https://www.gene.com
Viatris: https://www.viatris.com/en
Information about Institute for Economic and Clinically Review (ICER): https://www.engagecf.org
Please like, subscribe, and comment on our shows, wherever you get your podcasts.
Please consider making a donation: https://thebonnellfoundation.org/donate/
The Bonnell Foundation website:https://thebonnellfoundation.org
Email us at: thebonnellfoundation@gmail.com
Thanks to our sponsors:
Vertex: https://www.vrtx.com
Viatris: https://www.viatris.com/en
Michael Lee on WJR: Lear Corp's future,
Stories mentioned on air
Lear CEO Ray Scott looks to make production more local — including in Michigan: https://www.crainsdetroit.com/manufacturing/lear-ceo-ray-scott-looks-make-production-more-local
Detroit sees record-breaking cruise ship season: https://www.crainsdetroit.com/hospitality-tourism/detroit-sees-record-breaking-cruise-ship-season
Carvana sues Michigan to reverse loss of license: https://www.crainsdetroit.com/retail/carvana-sues-michigan-reverse-loss-license
Michael Lee on WJR: Great Lakes cruises get big | $100 million in state money for UM project | What's in the state budget
Kelley Root on WJR: EV shift may hurt small manufacturers | New hotel for Hudson's tower site
Michael Lee on WJR: Historic sale in Detroit | Back to the office? | New theater in works in Marine City
Michael Lee on WJR: Museums to seek millage | Hospital pipeline backs up | Train station progress
Kelley Root on WJR: Lassiter is Newsmaker of Year | Bosch rides e-bikes | Hospitals' staffing struggle
Kelley Root on WJR: Big pot of money to lure businesses | What's next for Detroit City Council | 10 things to watch
Kelley Root on WJR: The EV gold rush | When customers attack | Crypto charity
Michael Lee on WJR: Staffing shortages make patients wait | Biggest cannabis towns
Kelley Root on WJR: All about Ann Arbor | Green rush on weed deals | Office design evolves
Pod Suey ~ July 31, 2021
FULL INTERVIEWS FEATURED IN THIS WEEK'S EPISODE
~Dr. Jason Novetsky with Steve Courtney and Ken Brown on Mitch Albom
https://the-mitch-albom-show.simplecast.com/episodes/dr-jason-novetsky-the-mitch-albom-show
~Candice Miller with Chris Renwick on Guy Gordon
https://the-guy-gordon-show.simplecast.com/episodes/candice-miller-the-guy-gordon-show-wj-tremk
~Dr. Matthew Sims on Guy Gordon
https://the-guy-gordon-show.simplecast.com/episodes/dr-matthew-sims-the-guy-gordon-show-yw1zh1ee
~Janice Winfrey with Kevin Dietz on WJR Late Mornings
https://wjr-late-mornings.simplecast.com/episodes/janice-winfrey-wjr-late-mornings
~Rocky Raczkowski with Chris Renwick on Guy Gordon
https://the-guy-gordon-show.simplecast.com/episodes/rocky-raczkowski-the-guy-gordon-show-c1cverhh
~Marie Osborne and Paul W Smith
https://the-paul-w-smith-show.simplecast.com/episodes/marie-osborne-the-paul-w-smith-show-sh9agdim
Michael Lee on WJR: Decade of decline for recycling | Home care caps
Crain's Detroit Business Managing Editor Michael Lee talks with WJR's Paul W. Smith about the top stories from the current issue of Crain's.
Michael Lee on WJR: StockX, OneStream score | Hospitals confront different wave | How the food economy has changed
Kelley Root on WJR: Vaccine rollout revs up | New Black business group | Hot housing market
Crain's Detroit Business Executive Editor Kelley Root and WJR's Paul W. Smith discuss the top stories from this week's issue of Crain's.
Grouchy Grocer & WJR’s Mike Parsons
Today, host Ryan Wrecker went grocery shopping and came away with an opening segment. Hear why he is (jokingly) calling out a nice elderly woman! Next, he provides updates on a bill that would create new protections for police and increased penalties for Missouri protesters. Later, WJR Radio producer Mike Parsons tells the saga of the lost dog in the Detroit River. Finally, hear what most Americans voted as the best years of their lives.
If you like what you hear, we're live weeknights on KMOX 1120AM. We welcome your calls at 800-925-1120.
Like and follow on Facebook: www.facebook.com/RyanWreckerRadio/
Michael Lee on WJR: Auto show move has nonprofits regrouping | Online betting to launch | Mortgage company No. 3
Michael Lee on WJR: New private equity fund focuses on Michigan | Pivots that paid off | Art Van fund's spend-down goal
Michael Lee talks with Guy Gordon on WJR about this week's issue of Crain's Detroit Business.