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    Episode 35 - The importance of support, friendship and laughter throughout your autism parenting journey

    en-usJune 17, 2020

    About this Episode

    Meet the Disorderly Blondes... Brenda & Kristi!  These two dynamic, South Florida autism moms (and fellow podcasters) are very candid when discussing motherhood, autism... & enjoying a cocktail or two!  Kristi has two sons, her oldest, JR is on the spectrum, and in 2009 founded a non-profit called Puzzle Peace Now.  Brenda also has two sons, her oldest, Dylan is on the spectrum and in all her spare time (HA!) she writes a blog entitled The Whet Palette where she discusses her passion for food, wine and travel.  Everything is "super" in their world and they are amazing ladies I'm proud to now call my friends.

    You can follow them on social media and listen to their Disorderly Blonds podcast through the links embedded here: https://linktr.ee/disorderlyblondes

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    Please stay connected with Living the Sky Life via these formats:

    FB: https://www.facebook.com/livingtheskylifeautismjourney

    IG:  https://www.instagram.com/living_the_skylife_autismtrip

    Email:  livingtheskylife.autismjourney@gmail.com

    I'd love to hear what you think, so if listening on the Apple platform, please leave a written review and rating of the podcast!  If you are interested in being a guest on an episode of Living the Sky Life, please contact me!

    Recent Episodes from Living the Sky Life - Our Autism Journey

    S5: Episode 178 - Turning those labeled as "low functioning" into higher functioning individuals through a successful life & job skills training program

    S5: Episode 178 - Turning those labeled as "low functioning" into higher functioning individuals through a successful life & job skills training program
    Mike Stuart is a 74 year old retired educator who lives in Sioux Falls, South Dakota. He and his wife Harriet and their 32 year old autistic son, Aaron, moved from Florida 16 months ago to be closer to their daughter and her family.
     
    In 2015, Mike created a life and job skills program for the more significantly-challenged autistic and other developmentally-disabled individuals called Operation Meaningful Life. It has been incredibly successful in turning Aaron into a skilled higher-functioning individual from his formerly designated "low-functioning" label.
     
    Through the FB group for Operation Meaningful Life, Mike shares programming and behavioral insights with his 12,000 followers. Mike and Harriet are now formulating the next major phase of Aaron's life: a permanent, secure, life-fulfilling, and compassionate residential model for Aaron and others who are considered more-heavily or severely challenged. 
     
    You can connect with Mike via his FB page: @Operation Meaningful Life or his website:

    S5: Episode 177 - The importance of improving GI health to eliminate additional neurological effects caused by IBD/Crohn's/ Colitis

    S5: Episode 177 - The importance of improving GI health to eliminate additional neurological effects caused by IBD/Crohn's/ Colitis

    Josh Dech is an ex-paramedic and Holistic Nutritionist, specializing in Crohn’s and Colitis, and other related gut issues. It was the successes his clients have had with complex digestive
    diseases, previously thought to be impossible to fix, that got
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    doctors.

    Since then, he’s been recruited to the Priority Health
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    You can connect with Josh on FB & IG @Josh Dech and find his podcast ReversABLE on all platforms.

    S5: Episode 176 - Diving deep into the methods of toilet training

    S5: Episode 176 - Diving deep into the methods of toilet training

    Dr. Mary Barbera “fell” into the autism world in 1999 when her first-born son, Lucas was diagnosed with autism. Since then, Mary transformed from a confused and overwhelmed parent to a Board-Certified Behavior Analyst and best-selling author.  After earning a PhD, Mary launched her first online course in early 2015 and later built additional courses and a membership program to help both parents and autism professionals. 

    In her vlogs, podcasts, books, webinars, and online courses, Mary teaches her unique step-by-step system and method to help children with autism (or signs of autism) talk more while reducing tantrums and other problem behaviors. 

    Mary’s latest book Turn Autism Around was published in 2021 by Hay House and is helping parents and professionals start turning things around for young children with early signs of autism and older children with an autism diagnosis who are still struggling with talking, tantrums, eating, sleeping and potty training.   

    For more information go to marybarbera.com to access her FB, IG & YouTube pages.  

    S5: Episode 175 - Chatting with an OG of the Spelling Method for Communication and why it's important to always presume competence

    S5: Episode 175 - Chatting with an OG of the Spelling Method for Communication and why it's important to always presume competence

    Dawnmarie Gaivin is the Founder & Executive Director at Spellers Center San Diego, located in Oceanside, CA. Before her career moved into the world of nonspeaking autism, Dawnmarie worked for over 11 years as a trauma & transplant RN.  In 2005 her first son regressed and was diagnosed with autism. A year later, her second son followed the same path. Today her eldest, Evan (20) is a nonspeaker and fluent letterboard communicator.  Her younger son, Trey (18) is a minimal speaker who uses multiple modalities for effective communication.  

    Dawnmarie is a former DIR/Floortime® provider, cofounder of the Spellers Method, and an Assistive Technology Specialist (AT-ACP). 

    In March 2021, Jamison Handley, a fluent speller, and his dad JB wrote a book entitled “Underestimated" about their journey learning how to spell for communication with her.  In 2023 their award-winning documentary SPELLERS was released, showcasing how spelling and typing as a method of communication has liberated many nonspeakers from a lifetime of silence.  Dawnmarie also currently serves as the interim co-director of Spellers Freedom Foundation, a nonprofit run by a board made up mostly of nonspeakers, who give scholarships and help create community for other spellers.

    Dawnmarie's children inspired her specific passion to support all nonspeakers in the development of purposeful motor skills and a reliable form of communication.  You can learn more about her and the programs offered through her team at www.spellers.com.

    You can connect with her via various social media accounts:
    IG = spellers__
    IG = spellers center_sandiego
    FB Group = Spellers Community

    S5: Episode 174 - Sharing a love of the outdoors & spending quality time with each other has created an unbreakable bond between these sisters

    S5: Episode 174 - Sharing a love of the outdoors & spending quality time with each other has created an unbreakable bond between these sisters

    Claire Thomas is 15-years-old and has a 12-year-old sister named Leah, who was diagnosed with autism as a toddler. 

    Claire enjoys spending time outside whether it's hunting with her dad or fulfilling her passion for photography by capturing the beauty around her. When she's not doing either of those hobbies, Claire is quite busy in high school as a member of the swim team.

    According to her mom, Claire is a great helper and wonderful sister, often taking Leah on walks to explore the woods and nature together. 

    S5: Episode 173 - Appreciating her brother for his authenticity, ability to find enjoyment in the little things and naivety to negativity in the world

    S5: Episode 173 - Appreciating her brother for his authenticity, ability to find enjoyment in the little things and naivety to negativity in the world

    Chelsea Waxler lives in Columbus, Indiana with her fiancé, Chris. She is the older sister to brother, Braxton who is 20-years-old and on the autism spectrum. After being able to witness firsthand the success her brother has had with his therapies, she found herself being drawn to autism therapy and wanted to provide high quality services to families in her own community.

    As a Board Certified Behavior Analyst (BCBA) and
    the Owner/Founder of Kindred Ties Therapy in Columbus, she has proudly supported some truly amazing kiddos and their families.

    Personally, Chelsea is an avid IU Hoosiers basketball fan, proud cat mama, and lover of all things fall. 

    You can learn more about Braxton’s story, her sibling support group, and more about the services her company offers at www.kindredtiestherapy.com or through their Facebook page!

    Facebook: Kindred Ties Therapy 
    Facebook: Chelsea Waxler 
    LinkedIn: Chelsea Waxler 

    S5: Episode 172 - Declaring that her brother is amazing, this little sister loves that he constantly tries to make everyone laugh

    S5: Episode 172 - Declaring that her brother is amazing, this little sister loves that he constantly tries to make everyone laugh

    Lee is 13 years old and in the 7th grade. She lives at home with her mom, dad, brother, grandmother and two beloved cats, Leo and Max. Her older brother Jack (age 16) has autism, cerebral palsy and developmental delay. Lee enjoys creating video animation, writing, gaming and playing Dungeons and Dragons with her friends. She wants to be a videographer when she grows up.

    You can follow their family on FB: @Loving Jack or on their blog: loving-jack.com

    S5: Episode 171 - A tremendous bond between brothers within a loving and supportive large family

    S5: Episode 171 - A tremendous bond between brothers within a loving and supportive large family

    Charlie Cariello is a senior at Bedford High School in New Hampshire. He resides with his parents, three brothers, one sister, and a dog named Wolfie.

    An avid sports aficionado, Charlie is captain of the varsity baseball team, as well as the Christian Youth Organization’s basketball team. He performs leadership duties for Student Council and works part-time in an Italian restaurant. In his spare time, Charlie enjoys rooting for his beloved Buffalo Bills, visiting his grandfather, and fishing with his friends.

    He plans to attend Bates College in the fall of 2024 with a major of Economics and Psychology.

    S5: Episode 170 - Now an adult, this younger sister reflects on the many ways her relationship with her autistic brother has grown and become stronger

    S5: Episode 170 - Now an adult, this younger sister reflects on the many ways her relationship with her autistic brother has grown and become stronger
    Madison Urquiola is 25-years-old and currently works as the assistant athletics director for external operations/ sports communications at her alma matter Young Harris College. Her brother, Jordan Urquiola is 27-year-old brother and has autism.
     
    Madison loves spending time with her family, boyfriend, and dog. She enjoys the peace of the North Georgia Mountains and every year looks forward to the fall season. 
     
    You can connect with Maddie via Twitter @maddieUrq or FB: @Madison Urquiola

    S5: Episode 169 - Today's guest takes her role as big sister & protector seriously as she shares with me all the ways she appreciates her autistic brother

    S5: Episode 169 - Today's guest takes her role as big sister & protector seriously as she shares with me all the ways she appreciates her autistic brother

    Natalie is in the 8th grade and loves the theater. She has been in several performances at her school and in local community theater. She loves animals, especially her cat, Willie and dog, Yogi. Natalie attends numerous Special Olympics events to support her little brother, Quinn, who has autism. Natalie is kind, loving and loyal. She is a fierce protector of her brother!