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    • Deep Brain Stimulation: A Tool to Manage Symptoms of Parkinson's DiseaseDeep Brain Stimulation is a medical procedure that involves implanting electrodes into specific brain areas to stimulate targeted areas and alleviate symptoms of conditions like Parkinson's disease. It's not a cure but a tool to manage symptoms. Consult healthcare professionals for accurate information.

      Deep brain stimulation (DBS), a medical procedure supported by the European networking community for software CEOs, Boardwave, involves the implantation of electrodes into specific areas of the brain to stimulate targeted areas and improve symptoms of conditions like Parkinson's disease. The procedure includes extensive background checks and involves drilling holes into the skull, inserting electrodes, and connecting them to a battery pack in the chest. The procedure aims to enliven certain areas of the brain, increasing their activity and alleviating symptoms. Paul Mayhew Archer, a podcast guest who underwent the procedure, shared his experience and advice for listeners considering DBS. However, it's important to note that DBS is not a cure for Parkinson's disease or any other condition, but rather a tool to manage symptoms. It's essential to consult with healthcare professionals for accurate information and guidance.

    • Deep Brain Stimulation: A Life-Changing Procedure for Parkinson's PatientsDeep Brain Stimulation (DBS) improves quality of life for Parkinson's patients by regulating abnormal brain activity, reducing symptoms like tremors and dyskinesia, and enhancing facial features, balance, and movements. However, it's not a cure and requires careful consideration and ongoing management.

      Deep Brain Stimulation (DBS), a neurosurgical procedure, has significantly improved the quality of life for individuals with Parkinson's disease. The procedure involves implanting electrodes in specific areas of the brain to regulate abnormal electrical activity, reducing symptoms such as tremors, dyskinesia, and facial masking. DBS does not promise a cure but can help manage symptoms and improve overall functionality. The discussion also touched upon the history of using electricity to treat the brain, with Electroconvulsive Therapy (ECT) being a notable example. While both procedures use electricity, their purposes and effects differ greatly. DBS is a more targeted approach, whereas ECT is a more global intervention. One personal account shared in the conversation was about a children's poet named John Foster, who had DBS to control his tremors. The discussion also highlighted the importance of being informed about the potential risks and benefits before deciding to undergo the procedure. Overall, DBS has brought about noticeable improvements for individuals with Parkinson's disease, enhancing their facial features, improving balance, and enabling smoother movements. However, it is essential to remember that it is not a cure and requires careful consideration and ongoing management.

    • Experience of Deep Brain Stimulation for Parkinson's disease: A mix of excitement and apprehension for patients, worry and anxiety for loved onesDeep Brain Stimulation for Parkinson's disease is a lengthy process involving a recovery period, initial results may not be immediately noticeable, and fine-tuning can be time-consuming and frustrating. Loved ones play a crucial role in providing support during this process.

      Undergoing Deep Brain Stimulation (DBS) for Parkinson's disease can be a concerning experience for both the patient and their loved ones. The patient may feel a mix of excitement and apprehension before the procedure, but the worry and anxiety can be more pronounced for family members. The procedure itself can be lengthy and involve a recovery period, leaving the patient feeling helpless and impatient. The initial results may not be immediately noticeable, and the fine-tuning process can be time-consuming and frustrating. The goal of DBS is to smooth out the rigidity caused by Parkinson's disease, allowing for more natural movements. However, the process can be complex, involving adjustments to the electrical pulses and extensive testing. The patient's loved ones play a crucial role in providing support during this process, as they often bear the brunt of the worry and uncertainty.

    • Paul's Improved Health with Pulsed Electromagnetic Field TherapyPEMT improved Paul's health, allowing him to take medication again, sleep better, feel more confident, and notice improvements in appearance and energy levels, despite initial cramps.

      The use of pulsed electromagnetic field therapy (PEMT) can significantly improve health conditions, as evidenced by Paul's experience. During a session with Gillian, Paul felt a gentle guidance on his arm, which led to smoother muscles and the ability to take medication again. The therapy, which is on all the time, helped Paul sleep better, feel more confident, and experience overall improvement in his health. However, initial side effects included severe cramps, but these subsided quickly. The therapy has continued to benefit Paul, with noticeable improvements in his appearance and energy levels. Overall, PEMT offers a non-invasive and continuous solution for managing various health conditions.

    • Deep Brain Stimulation's Impact on EmotionsDeep Brain Stimulation (DBS) not only helps manage motor symptoms of Parkinson's disease but also affects mood and emotions. Advancements in technology offer more control, and some individuals report positive outcomes, despite initial fears of brain surgery.

      Deep Brain Stimulation (DBS), while primarily used to manage motor symptoms of Parkinson's disease, also significantly impacts mood and emotions. For some individuals, like Jillian, focusing too much on the emotional aspect can lead to negative experiences. However, advancements in technology, such as the ability to direct the beam away from the limbic area, may offer more control and potentially positive outcomes. The battery pack for DBS lasts for several decades, and the latest technology involves placing it directly into the brain rather than under the skin. Despite the initial fear of brain surgery, Jillian was not deterred by the process, especially since she was not awake during the operation. It's important to note that everyone's experience with DBS is unique, and the emotional impact can vary greatly from person to person.

    • Deep Brain Stimulation: A Procedure to Improve Symptoms with Electrical ImpulsesDeep Brain Stimulation (DBS) is a neurosurgical procedure that delivers electrical impulses to specific areas of the brain to improve symptoms in certain conditions, potentially reducing or replacing medication.

      Deep Brain Stimulation (DBS), a neurosurgical procedure, can help improve symptoms in certain conditions, such as Parkinson's disease, by delivering electrical impulses to specific areas of the brain. These impulses can potentially replace or reduce the need for medication. The procedure involves placing electrodes in the brain while the patient is awake, and adjusting their position to find the optimal spot for symptom relief. While the patient's medication may not change immediately, there's a possibility that they might require fewer drugs or less frequent adjustments in the future. DBS has also given some comedic writers new material due to the electrifying nature of everyday life. However, for some individuals, the procedure can worsen their voice, which can be a significant concern. The waiting list for DBS can vary in length, but the procedure itself usually goes quickly. For those dealing with the psychologically afflicting aspect of diminishing voice, DBS may not offer a solution.

    • Exploring Deep Brain Stimulation for Parkinson's DiseaseSpeakers shared personal experiences and perspectives on DBS, a therapy using electrical impulses to stimulate specific brain areas for Parkinson's treatment. Benefits and uncertainties were discussed, including potential side effects and ongoing research.

      Exploration of Deep Brain Stimulation (DBS) as a potential treatment for Parkinson's disease and its impact on individuals' lives. The speakers shared their personal experiences and perspectives, highlighting the benefits and uncertainties of this innovative therapy. DBS involves the use of electrical impulses to stimulate specific areas of the brain, partially replacing the role of dopamine. However, the exact mechanism of how it works and how it interacts with medication is still not fully understood. Some speakers were skeptical and hesitant, expressing concerns about potential side effects, such as worsening voice afflictions. Others, like Paul and Gillian, shared their positive experiences and improvements in symptoms since undergoing the procedure. The discussion also touched upon the ongoing research and evolution of DBS as a treatment option. Some expressed a desire for a better understanding of the science behind it, while others were more inclined to consider it as a viable alternative to traditional medication. In conclusion, the speakers' open and honest dialogue provided valuable insights into the complexities and implications of DBS as a treatment for Parkinson's disease. It underscored the importance of ongoing research, individual considerations, and the need for a more comprehensive understanding of this groundbreaking therapy.

    • A Life-Changing Treatment for Parkinson's Disease: Deep Brain StimulationDeep brain stimulation (DBS) significantly reduces pain and improves mobility for some individuals with Parkinson's disease, enabling them to resume activities and live a better quality of life. Consult medical professionals to determine if it's an option.

      Deep brain stimulation (DBS) has been a life-changing treatment for some individuals with Parkinson's disease. The interviewee shared his personal experience of undergoing the procedure and how it significantly reduced his pain and improved his mobility. He was able to resume activities he thought he would never be able to do again, such as playing walking football and even emptying the bins. DBS also gave him the energy to engage in new experiences and spend more time with his loved ones. While it doesn't cure the illness, it masks the symptoms effectively, allowing people to live a better quality of life. If you or someone you know is diagnosed with Parkinson's disease, it's worth researching DBS and considering it as an option. It may not work the same way for everyone, but the potential benefits could be substantial. As always, it's essential to consult with medical professionals to determine the best course of action for your specific situation.

    Recent Episodes from Movers and Shakers: a podcast about life with Parkinson's

    Parky Profiles: Paul Sinha

    Parky Profiles: Paul Sinha

    In the pub this week, for the latest instalment of our Parky Profiles series, is none other than Paul Sinha: qualified doctor, award-winning comedian, professional Chaser. Paul's journey through Parkinson's hasn't been without its difficulties – to compound things, he had a heart attack at the Edinburgh festival – but over a Diet Coke in the Notting Hill pub, Paul shares his wit and wisdom on living, and thriving, with Parkinson's.


    Presented by Rory Cellan-Jones, Gillian Lacey-Solymar, Mark Mardell, Paul Mayhew-Archer, Sir Nicholas Mostyn and Jeremy Paxman.

    Produced and edited by Nick Hilton for Podot.

    Additional production by Ewan Cameron.

    Music by Alex Stobbs.

    Artwork by Till Lukat.

    PR by Sally Jones.


    For more additional information about the show, as well as extra resources and exclusive content, please visit MOVERSANDSHAKERSPODCAST.COM



    Hosted on Acast. See acast.com/privacy for more information.


    BONUS: Parky Politics (Not) in the Pub – Victoria Atkins

    BONUS: Parky Politics (Not) in the Pub – Victoria Atkins

    On this bonus election episode of the podcast (don't worry, the politics is over and our Parky Profile series will resume on Saturday!) we're speaking to Victoria Atkins, the current Secretary of State for Health and Social Care. We discuss the impact that the Conservatives are having on the backlog in the health service, the future for neurological provision, and what she can – and can't – promise when it comes to the Parky Charter.


    Presented by Rory Cellan-Jones, Gillian Lacey-Solymar, Mark Mardell, Paul Mayhew-Archer, Sir Nicholas Mostyn and Jeremy Paxman.

    Produced and edited by Nick Hilton for Podot.

    Additional production by Ewan Cameron.

    Music by Alex Stobbs.

    Artwork by Till Lukat.

    PR by Sally Jones.


    For more additional information about the show, as well as extra resources and exclusive content, please visit MOVERSANDSHAKERSPODCAST.COM



    Hosted on Acast. See acast.com/privacy for more information.


    Parky Politics in the Pub – with Wes Streeting

    Parky Politics in the Pub – with Wes Streeting

    In just a couple of weeks, Wes Streeting may find himself the Secretary of State for Health and Social Care. If that wasn't a sufficiently daunting proposition, this week he finds himself at the Notting Hill pub surrounded by our group of militant Parkies! What does Streeting make of the Parky Charter? Will he promise an influx of new neurologists? And how will he prevent the NHS succumbing to sclerosis? On this special election edition of Movers and Shakers, the gang put the prospective Health Secretary through his paces!


    Presented by Rory Cellan-Jones, Gillian Lacey-Solymar, Mark Mardell, Paul Mayhew-Archer, Sir Nicholas Mostyn and Jeremy Paxman.

    Produced and edited by Nick Hilton for Podot.

    Additional production by Ewan Cameron.

    Music by Alex Stobbs.

    Artwork by Till Lukat.

    PR by Sally Jones.


    For more additional information about the show, as well as extra resources and exclusive content, please visit MOVERSANDSHAKERSPODCAST.COM



    Hosted on Acast. See acast.com/privacy for more information.


    Parky Profiles: Susie Sainsbury

    Parky Profiles: Susie Sainsbury

    For the second instalment of our summer series profiling extraordinary people with Parkinson's, the gang are joined in the Notting Hill pub by Dame Susie Sainsbury. A note philanthropist and patron of the arts, Susie has spent decades living with PD. But what caused her to spend 3 years keeping the diagnosis totally secret, even from her husband, former Science Minister David Sainsbury? And how does she now find herself involved with an experimental programme building bridges between the Netherlands and, er, Bristol?


    Presented by Rory Cellan-Jones, Gillian Lacey-Solymar, Mark Mardell, Paul Mayhew-Archer, Sir Nicholas Mostyn and Jeremy Paxman.

    Produced and edited by Nick Hilton for Podot.

    Additional production by Ewan Cameron.

    Music by Alex Stobbs.

    Artwork by Till Lukat.

    PR by Sally Jones.


    For more additional information about the show, as well as extra resources and exclusive content, please visit MOVERSANDSHAKERSPODCAST.COM



    Hosted on Acast. See acast.com/privacy for more information.


    Parky Profiles: Guy Deacon

    Parky Profiles: Guy Deacon

    This week, we're kicking off our summer mini-series, profiling top Parkies who are leading extraordinary lives despite – or because of – the condition. First up: Guy Deacon. Guy has driven from Morocco to South Africa in a VW Camper Van since his diagnoses, which makes him a perfect person to pontificate on how to take big, adventurous risks when living with the illness.


    Presented by Rory Cellan-Jones, Gillian Lacey-Solymar, Mark Mardell, Paul Mayhew-Archer, Sir Nicholas Mostyn and Jeremy Paxman.

    Produced and edited by Nick Hilton for Podot.

    Additional production by Ewan Cameron.

    Music by Alex Stobbs.

    Artwork by Till Lukat.

    PR by Sally Jones.


    For more additional information about the show, as well as extra resources and exclusive content, please visit MOVERSANDSHAKERSPODCAST.COM



    Hosted on Acast. See acast.com/privacy for more information.


    Mailbag #3

    Mailbag #3

    It's the season finale of Movers and Shakers, which means that it's time to answer some of your letters. From discussion about the Charter to playing walking football at the Emirates, this is a diverse mailbag that captures the wit and wisdom of the Movers and Shakers community. And then, at the end of the episode, we have a little treat: music extracted from Parky tremors!


    Presented by Rory Cellan-Jones, Gillian Lacey-Solymar, Mark Mardell, Paul Mayhew-Archer, Sir Nicholas Mostyn and Jeremy Paxman.

    Produced and edited by Nick Hilton for Podot.

    Additional production by Ewan Cameron.

    Music by Alex Stobbs.

    Artwork by Till Lukat.

    PR by Sally Jones.


    For more additional information about the show, as well as extra resources and exclusive content, please visit MOVERSANDSHAKERSPODCAST.COM



    Hosted on Acast. See acast.com/privacy for more information.


    Cell Therapy

    Cell Therapy

    From levodopa to Deep Brain Stimulation (DBS) we're all pretty familiar with the treatments for Parkinson's. But could there be something, just around the corner, that could change the whole game, not just stalling but reversing the tide of symptoms? That's the subject the Movers and Shakers are discussing today as they gather in the Notting Hill pub with special guest Professor Roger Barker, a world-leading expert on the application of stem cells as a potentially revolutionary treatment for Parkinson's.


    Presented by Rory Cellan-Jones, Gillian Lacey-Solymar, Mark Mardell, Paul Mayhew-Archer, Sir Nicholas Mostyn and Jeremy Paxman.

    Produced and edited by Nick Hilton for Podot.

    Additional production by Ewan Cameron.

    Music by Alex Stobbs.

    Artwork by Till Lukat.

    PR by Sally Jones.


    For more additional information about the show, as well as extra resources and exclusive content, please visit MOVERSANDSHAKERSPODCAST.COM



    Hosted on Acast. See acast.com/privacy for more information.


    What Causes Parkinson's?

    What Causes Parkinson's?

    What causes Parkinson's? This is one of the trickiest questions facing researchers and doctors – not to mention patients – and it's the topic being tackled by the Movers and Shakers as they take to the Notting Hill pub today. Is there something atmospheric? Or does the club lie in our DNA? Our guide through this topic is Professor Matt Farrer, one of the leading lights of this research area.


    Presented by Rory Cellan-Jones, Gillian Lacey-Solymar, Mark Mardell, Paul Mayhew-Archer, Sir Nicholas Mostyn and Jeremy Paxman.

    Produced and edited by Nick Hilton for Podot.

    Additional production by Ewan Cameron.

    Music by Alex Stobbs.

    Artwork by Till Lukat.

    PR by Sally Jones.


    For more additional information about the show, as well as extra resources and exclusive content, please visit MOVERSANDSHAKERSPODCAST.COM



    Hosted on Acast. See acast.com/privacy for more information.


    The Movers & Shakers Take Downing Street!

    The Movers & Shakers Take Downing Street!

    This week we have a very special episode of Movers and Shakers: live from Downing Street! On World Parkinson's Day, the Movers and Shakers, along with representatives from Parkinson's UK, Cure Parkinson's and Spotlight YOPD took to the streets of Westminster to hand over the #ParkyCharter, a list of 5 demands (well, polite requests) to government. Join Rory, Gillian, Mark, Paul, Nick and Jeremy in that experience, and listen to the testimonies of the many listeners to the show who made the trip down to SW1A to show their support.


    Presented by Rory Cellan-Jones, Gillian Lacey-Solymar, Mark Mardell, Paul Mayhew-Archer, Sir Nicholas Mostyn and Jeremy Paxman.

    Produced and edited by Nick Hilton for Podot.

    Additional production by Ewan Cameron.

    Music by Alex Stobbs.

    Artwork by Till Lukat.

    PR by Sally Jones.


    For more additional information about the show, as well as extra resources and exclusive content, please visit MOVERSANDSHAKERSPODCAST.COM



    Hosted on Acast. See acast.com/privacy for more information.


    Parkinson's on the Screen

    Parkinson's on the Screen

    From Love and Other Drugs to Shrinking, Curb Your Enthusiasm to Emmerdale, Parkinson's only occasionally makes it to screens (big or small). On today's Movers and Shakers, the gang gather in the Notting Hill pub to discuss the representation of Parkinson's across film and TV. Is there enough Parkinson's? Is it done well? And how could it be improved – both in quantity and quality?


    Presented by Rory Cellan-Jones, Gillian Lacey-Solymar, Mark Mardell, Paul Mayhew-Archer, Sir Nicholas Mostyn and Jeremy Paxman.

    Produced and edited by Nick Hilton for Podot.

    Additional production by Ewan Cameron.

    Music by Alex Stobbs.

    Artwork by Till Lukat.

    PR by Sally Jones.


    For more additional information about the show, as well as extra resources and exclusive content, please visit MOVERSANDSHAKERSPODCAST.COM



    Hosted on Acast. See acast.com/privacy for more information.


    Related Episodes

    Ep 131 Parkinson’s Disease: Dopamine & discoveries

    Ep 131 Parkinson’s Disease: Dopamine & discoveries
    Parkinson’s is a disease of many dimensions. On the shelves of any bookstore or library you’ll find at least a handful of titles exploring the topic from a myriad of perspectives, and extending that search to the internet will turn up dozens upon dozens more options: how-to guides for the recently diagnosed, in-depth textbooks exploring the neurophysiology of disease development, memoirs about caregiving for people with Parkinson’s, books offering a tour through the history of research advancements. The choices seem limitless and maybe a tad overwhelming. But that’s where we come in. In this episode, we take you through many of the dimensions of Parkinson’s disease, from its complicated biology, still shrouded in mystery, to its history, peppered with transformative moments like the introduction of dopamine. We round out the episode by exploring the tremendous amount of promising research on the horizon, leaving us feeling like we’re *this* close to yet another revolution in Parkinson’s disease treatment. If you’ve ever wondered what dopamine does, who Parkinson was, and what might be next for this disease, this episode is for you. Learn more about your ad choices. Visit megaphone.fm/adchoices

    Should You Hide Parkinson's Diagnosis? - Conversation with Ian Robertson Part 3

    Should You Hide Parkinson's Diagnosis?  - Conversation with Ian Robertson Part 3

    Several weeks ago I sat down with friend of the channel Ian Robertson, who is a person with PD diagnosed for the last 11 years. In part 3, we discuss more about freezing, whether or not one should disclose their PD diagnosis to others, and the "4 Ps" of practice/movement/exercise. The video version is here: https://youtu.be/4hTQM2j6pIs

    Please be sure to look Ian up with this contact information:

    Website: https://parkinsonsmysuperpower.ca/

    Facebook: https://www.facebook.com/ParkinsonsMySuperPower/

    Parkinsons-My Super Power

    Po Box 400 522 McKenzie st.

    City, Outlook, Saskatchewan S0L 2N0 Canada

    ian@parkinsonsmysuperpower.ca

    306-867-3007 

    For access to the full, raw, unedited version be sure to joint any of our channel memberships with this link: https://www.youtube.com/channel/UC0g3abv8hkaqZbGD8y1dfYQ/join

    #parkinson #parkinsonsawareness #parkinsonsdisease #parkinsons #yopd #interview #podcast #offtime #parkinsonsexercise #exercise #balance #walking #freezing #fog

    How to Improve Turns and Freezing of Gait (FoG) in PD - Conversation with Ian Robertson Part 2

    How to Improve Turns and Freezing of Gait (FoG) in PD  - Conversation with Ian Robertson Part 2

    Several weeks ago I sat down with friend of the channel Ian Robertson, who is a person with PD diagnosed for the last 11 years. In part 2, we discuss how to improve turns while walking and performing activities of daily living (ADLs) and how Ian breaks out of freezing episodes (and what might trigger them for him). The video version is here: https://youtu.be/5dmFaQc_nKY

    For access to the full, raw, unedited version be sure to joint any of our channel memberships with this link: https://www.youtube.com/channel/UC0g3abv8hkaqZbGD8y1dfYQ/join

    #parkinson #parkinsonsawareness #parkinsonsdisease #parkinsons #yopd #interview #podcast #offtime #parkinsonsexercise #exercise #balance #walking #freezing #fog

    Deep Brain Stimulation (DBS)

    Deep Brain Stimulation (DBS)

    The Movers and Shakers are back in the Notting Hill pub, and this week they're joined by an illustrious guest. Professor Ludvic Zrinzo is a world renowned specialist in Deep Brain Stimulation (DBS) and, in her own words, the "only man to have been been inside [Gillian's] brain". DBS is an exciting but often misunderstood treatment in the world of Parkinson's care, and the gang are going to put Prof Zrinzo under the microscope. Who is right for DBS? Are there symptoms it won't help? And why are waiting lists so bloody long?


    Presented by Rory Cellan-Jones, Gillian Lacey-Solymar, Mark Mardell, Paul Mayhew-Archer, Sir Nicholas Mostyn, and Jeremy Paxman.

    With Professor Ludvic Zrinzo.

    Produced and edited by Nick Hilton for Podot.

    Additional editing by Ewan Cameron.

    Additional production by Adrian Lacey.

    Music by Alex Stobbs.

    Artwork by Till Lukat.

    PR by Sally Jones.


    Movers and Shakers is generously sponsored by Boardwave, high powered Executive networking programme for European Software CEO, Non-Exec Directors, Chairs and their Investors. They are keen supporters of Cure Parkinson's. To find out more, visit https://cureparkinsons.org.uk/



    Hosted on Acast. See acast.com/privacy for more information.


    Is Exercise During Parkinson's "Off" Times Safe? - Conversation with Ian Robertson Part 1

    Is Exercise During Parkinson's "Off" Times Safe? - Conversation with Ian Robertson Part 1

    In this episode I sat down with friend of the channel Ian Robertson. He is a person with PD and has been on the channel in the last few months. In part 1, we discuss off times and whether or not it is a good idea to exercise when wearing off and also in training both sides of the body to move at their best.

    For access to the full, raw, unedited version be sure to joint any of our channel memberships with this link: https://www.youtube.com/channel/UC0g3abv8hkaqZbGD8y1dfYQ/join

     Medical Disclaimer: All information, content, and material of this video is for informational purposes only and not intended to serve as a substitute for the consultation, diagnosis, and/or medical treatment of a qualified physician or healthcare provider.

    Affiliate disclaimer: Keep in mind that links used for recommended products may earn me a commission when you make purchases. However, this does not impact what products I recommend. If I recommend a specific product it is because it has been vetted by myself or based on personal use

    #parkinson #parkinsonsawareness #parkinsonsdisease #parkinsons #yopd #interview #podcast #offtime #parkinsonsexercise #exercise #balance #walking