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    Podcast Summary

    • Technology and Parkinson's: Varying ExperiencesSome people with Parkinson's use technology extensively, while others don't find it helpful. Experiences include using websites, apps, Oura rings, and forgetting to use technology consistently.

      Technology plays a significant role in managing Parkinson's symptoms for some individuals, while others find it less helpful. During a podcast episode of Movers and Shakers, several guests shared their experiences with using tech for monitoring and treating their Parkinson's. Some, like Mark, have set up websites or use apps to aid in their daily lives. Others, like Judge, don't use technology at all. Nicholas, on the other hand, uses an Oura ring to monitor his sleep, which is his primary symptom. Paul, however, considers himself a "walking cyborg" but struggles with remembering to take his pills or use technology consistently due to his condition. Overall, technology can be a valuable tool for managing Parkinson's symptoms, but its effectiveness varies from person to person.

    • Using Technology to Manage Daily Life for Individuals with Health ConditionsTechnology can improve daily life for those with health conditions, but it's crucial to ensure accessibility and user-friendliness for all. Examples include medication reminders and brain-computer interfaces, while advancements like AI-assisted diagnosis tools hold great promise.

      Technology plays a crucial role in managing daily life for some individuals, particularly those with health conditions. For instance, one person mentioned using an app to remind them to take their medication, while another relies on a brain-computer interface to function. However, not all technology is accessible or user-friendly for everyone. Some people, like the speaker in the conversation, find technology challenging due to factors like disorganization or lack of understanding. On the other hand, advancements in technology, such as AI-assisted diagnosis tools, hold great promise for improving healthcare and making life easier for those with conditions like Parkinson's disease. Yet, the integration of these technologies into everyday care remains limited. Overall, technology can significantly enhance quality of life, but it's essential to ensure it's accessible and user-friendly for all.

    • Assessing Movement Disorders with a Smart Pen and TabletA smart pen and tablet technology can objectively measure and analyze fine motor impairments in movement disorders, providing valuable insights for clinicians through digital biomarkers.

      A new technology using a smart pen and tablet can help assess and differentiate various movement disorders, such as those found in Parkinson's disease, by quantifying and interpreting fine motor movements with high precision. This pen uses unique sensors to gather kinematic data and tremor information, which are then translated into digital biomarkers that provide valuable insights for clinicians. The complex skill of drawing or writing engages the extraparamidal system, which can be impaired in movement disorders, and this technology allows for objective measurement and analysis of these impairments. The demo involved tracing a circle multiple times, with the pen's data being used to assess the participant's performance and identify potential symptoms. This technology not only aids in diagnosis but also in monitoring disease progression and response to treatment.

    • New AI technology for diagnosing movement disordersAI device offers objective, accurate, and detailed info for diagnosing movement disorders, distinguishes between essential tremor and Parkinson's disease, leads to earlier diagnoses, and assists non-specialists with time-saving analysis, but requires multiple repetitions.

      A new device, which records and analyzes movement symptoms using AI technology, can provide more objective, accurate, and detailed information for diagnosing movement disorders compared to traditional methods. This device can help differentiate between various movement disorders, including essential tremor and Parkinson's disease, and can lead to earlier diagnoses, reducing the number of visits to specialists and improving the overall quality of life for patients. The FDA has recognized this technology with a breakthrough device designation, and it is gaining interest from healthcare systems like the NHS, despite some challenges in adoption. While trained professionals can make accurate diagnoses, this device can assist those without specialized training and can save time in the diagnosis process. However, it requires more than two repetitions of tasks for comprehensive analysis.

    • Handwriting Analysis Test for Parkinson's DiseaseA 6-minute handwriting analysis test for Parkinson's disease generates valuable data for doctors, potentially identifies undiagnosed cases, and could lead to a standardized diagnosis process and research into causes and treatments.

      The team is developing a handwriting analysis test for Parkinson's disease that can be completed in just 6 minutes. This quick test generates valuable data for doctors to make more accurate diagnoses and could potentially identify undiagnosed cases in primary care settings. The test is complementary to other diagnostic methods and could lead to a standardized diagnosis process and a wealth of data for research into Parkinson's causes and treatments. The idea for the test came from the team's research into the neuromuscular processes involved in handwriting and the potential to monitor and diagnose conditions using engineering principles. The development of the test has been a 10-year journey of R&D, clinical trials, and fundraising, making companies like theirs heroic for their dedication to improving healthcare despite the long odds and challenges.

    • Revolutionizing Parkinson's care with smartphone appsSmartphone apps like Manus and NeuHealth gather data for remote monitoring of Parkinson's patients, enabling continuous assessment, early intervention, and improved management through self-reported symptoms and exercises.

      Technology is revolutionizing healthcare, specifically for those with Parkinson's disease, through remote monitoring using smartphone apps. Manus, a company with promising funding, clinical trial results, and FDA approvals, is developing a platform that gathers data from users to assess their condition and predict risks. NeuHealth, led by CEO Caroline Cake, is one such example. Their app, which includes exercises for motor and cognitive measures, sends data to doctors for analysis. The app, which can be used on a standard smartphone, aims to make monitoring simple and accessible. The data collected includes not only motor symptoms but also self-reported symptoms, such as sleep issues. Users are actively engaged in the process and can receive feedback from their clinical team. The app even includes reminders for users to complete the tests. This technology not only makes monitoring more convenient but also allows for continuous assessment, enabling early intervention and better management of the condition.

    • Technology's Role in Chronic Disease ManagementWearable devices and continuous monitoring enable personalized, data-driven interventions for chronic disease management, leading to fewer hospital visits and improved patient outcomes.

      Technology is playing an increasingly important role in chronic disease management by providing continuous data and objective information to both patients and healthcare professionals. This real-time data can help monitor medication adherence, adjust therapies, and identify potential health issues before they become serious. For instance, wearable devices like Oura rings can record health data 24/7, which can then be analyzed from a Parkinson's disease perspective to assess a person's condition and progression. This continuous monitoring can lead to fewer hospital visits, as doctors can make more informed decisions based on up-to-date information. The ultimate goal is to improve patient care and outcomes by providing personalized, data-driven interventions. By combining passive data from wearables and other devices with active testing, healthcare professionals can build a comprehensive picture of a patient's health and adjust their care plan accordingly. This approach empowers patients to take an active role in managing their condition while enabling doctors to make more informed, timely decisions.

    • Revolutionizing Neurology with TechnologyRemote monitoring systems and AI in neurology can detect patient deterioration earlier and confirm effective condition management, enhancing healthcare efficiency and improving patient care.

      Technology is revolutionizing the way healthcare is delivered, particularly in the field of neurology. This discussion highlighted the potential of remote monitoring systems and AI to analyze data and make decisions, improving medication adherence and adjustment. The University of Oxford's spin-up, Spin-up from the University of Oxford, is leading this innovation with their system, which has already been implemented in the NHS and is showing promising results. This technology can detect deterioration in patients earlier than traditional methods and also confirm when patients are managing their conditions effectively. The ultimate goal is to enhance the efficiency of healthcare resources and provide better patient care. The system is currently in the process of expanding to other trusts in the UK and even abroad, with the US being a potential market. The technology is not intended to replace neurologists but to support them in making informed decisions and optimizing resources.

    • Implementation of tech in NHS holds potential but faces challengesThe NHS recognizes the need for tech in healthcare, but the process of implementation faces challenges, including lengthy trials and financial commitments.

      The implementation of technology in the UK's National Health Service (NHS) holds great potential for improving healthcare, making it more efficient, and ultimately, more cost-effective. However, the process is not without challenges. Companies have expressed frustration with the UK market due to the NHS's tendency to request trials and express support, but not follow through with financial commitments. In contrast, the US market has proven more successful in this regard. The NHS is recognizing the need for technological advancements, but the implementation is a decision-by-decision process, with various trusts requiring separate sales and the accumulation of standardized electronic data for research purposes. The potential benefits include real-time monitoring of patient progress, improved drug treatments, and valuable research data. The use of wearable technology, such as rings or watches, for continuous monitoring is a game changer. Despite these advancements, there is a concern that the UK is not adopting these technologies fast enough, which could hinder progress and innovation in healthcare.

    • British Innovations Struggling to Reach Full PotentialDespite world-class universities and thriving start-ups, UK inventions often lack investment and support, leaving many groundbreaking ideas untapped.

      Key takeaway from this episode of Movers and Shakers is the unfortunate trend of brilliant innovations in the UK not being rolled out effectively. Despite having world-class universities and thriving start-up companies, there seems to be a lack of investment and support for these inventions to reach their full potential. It's a tragic situation that leaves many groundbreaking ideas untapped. Let's hope that this situation changes soon, and more people and organizations recognize the value of these inventions and invest in bringing them to market. This episode featured two inventions that came out of British universities, highlighting the immense potential for innovation in the UK. As always, the show is sponsored by Judge Nick Mostyn's Old Chambers and private donors. To learn more about each episode and get in touch, visit www.moversandshakerspodcast.com and email feedback@moversandshakerspodcast.com. Stay tuned for more insightful conversations on Movers and Shakers.

    Recent Episodes from Movers and Shakers: a podcast about life with Parkinson's

    Parky Profiles: Paul Sinha

    Parky Profiles: Paul Sinha

    In the pub this week, for the latest instalment of our Parky Profiles series, is none other than Paul Sinha: qualified doctor, award-winning comedian, professional Chaser. Paul's journey through Parkinson's hasn't been without its difficulties – to compound things, he had a heart attack at the Edinburgh festival – but over a Diet Coke in the Notting Hill pub, Paul shares his wit and wisdom on living, and thriving, with Parkinson's.


    Presented by Rory Cellan-Jones, Gillian Lacey-Solymar, Mark Mardell, Paul Mayhew-Archer, Sir Nicholas Mostyn and Jeremy Paxman.

    Produced and edited by Nick Hilton for Podot.

    Additional production by Ewan Cameron.

    Music by Alex Stobbs.

    Artwork by Till Lukat.

    PR by Sally Jones.


    For more additional information about the show, as well as extra resources and exclusive content, please visit MOVERSANDSHAKERSPODCAST.COM



    Hosted on Acast. See acast.com/privacy for more information.


    BONUS: Parky Politics (Not) in the Pub – Victoria Atkins

    BONUS: Parky Politics (Not) in the Pub – Victoria Atkins

    On this bonus election episode of the podcast (don't worry, the politics is over and our Parky Profile series will resume on Saturday!) we're speaking to Victoria Atkins, the current Secretary of State for Health and Social Care. We discuss the impact that the Conservatives are having on the backlog in the health service, the future for neurological provision, and what she can – and can't – promise when it comes to the Parky Charter.


    Presented by Rory Cellan-Jones, Gillian Lacey-Solymar, Mark Mardell, Paul Mayhew-Archer, Sir Nicholas Mostyn and Jeremy Paxman.

    Produced and edited by Nick Hilton for Podot.

    Additional production by Ewan Cameron.

    Music by Alex Stobbs.

    Artwork by Till Lukat.

    PR by Sally Jones.


    For more additional information about the show, as well as extra resources and exclusive content, please visit MOVERSANDSHAKERSPODCAST.COM



    Hosted on Acast. See acast.com/privacy for more information.


    Parky Politics in the Pub – with Wes Streeting

    Parky Politics in the Pub – with Wes Streeting

    In just a couple of weeks, Wes Streeting may find himself the Secretary of State for Health and Social Care. If that wasn't a sufficiently daunting proposition, this week he finds himself at the Notting Hill pub surrounded by our group of militant Parkies! What does Streeting make of the Parky Charter? Will he promise an influx of new neurologists? And how will he prevent the NHS succumbing to sclerosis? On this special election edition of Movers and Shakers, the gang put the prospective Health Secretary through his paces!


    Presented by Rory Cellan-Jones, Gillian Lacey-Solymar, Mark Mardell, Paul Mayhew-Archer, Sir Nicholas Mostyn and Jeremy Paxman.

    Produced and edited by Nick Hilton for Podot.

    Additional production by Ewan Cameron.

    Music by Alex Stobbs.

    Artwork by Till Lukat.

    PR by Sally Jones.


    For more additional information about the show, as well as extra resources and exclusive content, please visit MOVERSANDSHAKERSPODCAST.COM



    Hosted on Acast. See acast.com/privacy for more information.


    Parky Profiles: Susie Sainsbury

    Parky Profiles: Susie Sainsbury

    For the second instalment of our summer series profiling extraordinary people with Parkinson's, the gang are joined in the Notting Hill pub by Dame Susie Sainsbury. A note philanthropist and patron of the arts, Susie has spent decades living with PD. But what caused her to spend 3 years keeping the diagnosis totally secret, even from her husband, former Science Minister David Sainsbury? And how does she now find herself involved with an experimental programme building bridges between the Netherlands and, er, Bristol?


    Presented by Rory Cellan-Jones, Gillian Lacey-Solymar, Mark Mardell, Paul Mayhew-Archer, Sir Nicholas Mostyn and Jeremy Paxman.

    Produced and edited by Nick Hilton for Podot.

    Additional production by Ewan Cameron.

    Music by Alex Stobbs.

    Artwork by Till Lukat.

    PR by Sally Jones.


    For more additional information about the show, as well as extra resources and exclusive content, please visit MOVERSANDSHAKERSPODCAST.COM



    Hosted on Acast. See acast.com/privacy for more information.


    Parky Profiles: Guy Deacon

    Parky Profiles: Guy Deacon

    This week, we're kicking off our summer mini-series, profiling top Parkies who are leading extraordinary lives despite – or because of – the condition. First up: Guy Deacon. Guy has driven from Morocco to South Africa in a VW Camper Van since his diagnoses, which makes him a perfect person to pontificate on how to take big, adventurous risks when living with the illness.


    Presented by Rory Cellan-Jones, Gillian Lacey-Solymar, Mark Mardell, Paul Mayhew-Archer, Sir Nicholas Mostyn and Jeremy Paxman.

    Produced and edited by Nick Hilton for Podot.

    Additional production by Ewan Cameron.

    Music by Alex Stobbs.

    Artwork by Till Lukat.

    PR by Sally Jones.


    For more additional information about the show, as well as extra resources and exclusive content, please visit MOVERSANDSHAKERSPODCAST.COM



    Hosted on Acast. See acast.com/privacy for more information.


    Mailbag #3

    Mailbag #3

    It's the season finale of Movers and Shakers, which means that it's time to answer some of your letters. From discussion about the Charter to playing walking football at the Emirates, this is a diverse mailbag that captures the wit and wisdom of the Movers and Shakers community. And then, at the end of the episode, we have a little treat: music extracted from Parky tremors!


    Presented by Rory Cellan-Jones, Gillian Lacey-Solymar, Mark Mardell, Paul Mayhew-Archer, Sir Nicholas Mostyn and Jeremy Paxman.

    Produced and edited by Nick Hilton for Podot.

    Additional production by Ewan Cameron.

    Music by Alex Stobbs.

    Artwork by Till Lukat.

    PR by Sally Jones.


    For more additional information about the show, as well as extra resources and exclusive content, please visit MOVERSANDSHAKERSPODCAST.COM



    Hosted on Acast. See acast.com/privacy for more information.


    Cell Therapy

    Cell Therapy

    From levodopa to Deep Brain Stimulation (DBS) we're all pretty familiar with the treatments for Parkinson's. But could there be something, just around the corner, that could change the whole game, not just stalling but reversing the tide of symptoms? That's the subject the Movers and Shakers are discussing today as they gather in the Notting Hill pub with special guest Professor Roger Barker, a world-leading expert on the application of stem cells as a potentially revolutionary treatment for Parkinson's.


    Presented by Rory Cellan-Jones, Gillian Lacey-Solymar, Mark Mardell, Paul Mayhew-Archer, Sir Nicholas Mostyn and Jeremy Paxman.

    Produced and edited by Nick Hilton for Podot.

    Additional production by Ewan Cameron.

    Music by Alex Stobbs.

    Artwork by Till Lukat.

    PR by Sally Jones.


    For more additional information about the show, as well as extra resources and exclusive content, please visit MOVERSANDSHAKERSPODCAST.COM



    Hosted on Acast. See acast.com/privacy for more information.


    What Causes Parkinson's?

    What Causes Parkinson's?

    What causes Parkinson's? This is one of the trickiest questions facing researchers and doctors – not to mention patients – and it's the topic being tackled by the Movers and Shakers as they take to the Notting Hill pub today. Is there something atmospheric? Or does the club lie in our DNA? Our guide through this topic is Professor Matt Farrer, one of the leading lights of this research area.


    Presented by Rory Cellan-Jones, Gillian Lacey-Solymar, Mark Mardell, Paul Mayhew-Archer, Sir Nicholas Mostyn and Jeremy Paxman.

    Produced and edited by Nick Hilton for Podot.

    Additional production by Ewan Cameron.

    Music by Alex Stobbs.

    Artwork by Till Lukat.

    PR by Sally Jones.


    For more additional information about the show, as well as extra resources and exclusive content, please visit MOVERSANDSHAKERSPODCAST.COM



    Hosted on Acast. See acast.com/privacy for more information.


    The Movers & Shakers Take Downing Street!

    The Movers & Shakers Take Downing Street!

    This week we have a very special episode of Movers and Shakers: live from Downing Street! On World Parkinson's Day, the Movers and Shakers, along with representatives from Parkinson's UK, Cure Parkinson's and Spotlight YOPD took to the streets of Westminster to hand over the #ParkyCharter, a list of 5 demands (well, polite requests) to government. Join Rory, Gillian, Mark, Paul, Nick and Jeremy in that experience, and listen to the testimonies of the many listeners to the show who made the trip down to SW1A to show their support.


    Presented by Rory Cellan-Jones, Gillian Lacey-Solymar, Mark Mardell, Paul Mayhew-Archer, Sir Nicholas Mostyn and Jeremy Paxman.

    Produced and edited by Nick Hilton for Podot.

    Additional production by Ewan Cameron.

    Music by Alex Stobbs.

    Artwork by Till Lukat.

    PR by Sally Jones.


    For more additional information about the show, as well as extra resources and exclusive content, please visit MOVERSANDSHAKERSPODCAST.COM



    Hosted on Acast. See acast.com/privacy for more information.


    Parkinson's on the Screen

    Parkinson's on the Screen

    From Love and Other Drugs to Shrinking, Curb Your Enthusiasm to Emmerdale, Parkinson's only occasionally makes it to screens (big or small). On today's Movers and Shakers, the gang gather in the Notting Hill pub to discuss the representation of Parkinson's across film and TV. Is there enough Parkinson's? Is it done well? And how could it be improved – both in quantity and quality?


    Presented by Rory Cellan-Jones, Gillian Lacey-Solymar, Mark Mardell, Paul Mayhew-Archer, Sir Nicholas Mostyn and Jeremy Paxman.

    Produced and edited by Nick Hilton for Podot.

    Additional production by Ewan Cameron.

    Music by Alex Stobbs.

    Artwork by Till Lukat.

    PR by Sally Jones.


    For more additional information about the show, as well as extra resources and exclusive content, please visit MOVERSANDSHAKERSPODCAST.COM



    Hosted on Acast. See acast.com/privacy for more information.


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