Axis Advocacy Podcast

Some of our board members traveled to the UCSF Benioff Children's Hospital in Oakland, California. They were one of the first sickle cell clinics in the U.S. and are celebrating their 50th anniversary. 
Clinical trials are an essential part of their mission and provide opportunities for patients to benefit from the latest research. And that’s what we’re talking about today. 
We spoke with doctors Mark Walters and Marsha Treadwell, nurses, social workers, support staff, and transplant patients and donors, including siblings Christelle & Karl Salomon. Karl provided his sister Christelle, who was born with SCD, life changing bone marrow. 

We are joined by Teonna Woolford, the Co-Founder + Chief Executive Officer of Sickle Cell Reproductive Education Directive (SC RED). https://sicklecellred.org/

We are joined by Liz Helms, President and CEO of the California Chronic Care Coalition, an alliance of non-profit, social consumer and provider organizations united to improve the health of Californians with chronic conditions or diseases.

We're joined by Reverend Gordon Clay Bailey of the Unitarian Universalist Church of the Verdugo Hills. We're talking about how music plays such an important part of our lives.

Sickle Cell Advocactes Shamonica Wiggins and Jewel Darbone of Bold Lips For Sickle Cell join us to discuss their organization and what brought them together. 

Today we’re speaking with many of the presenters and attendees of the recent HD-Care symposium on Huntington’s Disease at UCI. Dr. Neal Hermanowicz, Stem Cell Ambassadors from Americans For Cures, Allen Fernandez of I’m Curable, Frances Saldañia, the President of HD-Care and Dr. Sarah Hernandez