Axis Advocacy Podcast

We're joined by Super Advocate Nita Thompson. Nita has dedicated her life to correcting incorrect perceptions about Sickle Cell Disease. We're talking about World Sickle Cell Day, Juneteenth and the current challenges facing those living with the disease.

We have a very inspirational conversation with Amy Mason. Amy is the director of the Sickle Cell Freedom Cruise, a nanny and someone living with Sickle Cell Disease.

We're honored to be joined by Dr. Thomas Coates, a pediatric hematologist-oncologist in Los Angeles, California and is affiliated with multiple hospitals in the area, including Children's Hospital Los Angeles.

Axis Advocacy co-founders Adrienne Shapiro and Nancy Rene recall some of their favorite podcasts, the huge strides our organization has made in the past year and what the future holds for people living with Sickle Cell Disease.

Today we’re speaking with many of the presenters and attendees of the recent HD-Care symposium on Huntington’s Disease at UCI. Dr. Neal Hermanowicz, Stem Cell Ambassadors from Americans For Cures, Allen Fernandez of I’m Curable, Frances Saldañia, the President of HD-Care and Dr. Sarah Hernandez.

We're joined by Jennifer Braswell, PhD, Executive Director of the Sanford Stem Cell Clinical Center at U.C. San Diego. We'll be discussing various trials and successes in Stem Cell Research.

Links mentioned: Clinical Trials,
CIRM

Axis Advocacy celebrates Black History Month with Rev. Gordon Clay Bailey of Unitarian Universalist Church of the Verdugo Hills and Gerald C. Rivers, who will perform his rendition of the words of Martin Luther King Jr. For more than three decades Rivers has enacted the speeches of the late Dr. King.

We're joined by members of Children's Hospital Los Angeles' Passages Program. Their purpose is to help patients and families transition from pediatric to adult care for their chronic illnesses.

Our guests today are C. Randal Mills, President and Chief Executive Officer of California Institute for Regenerative Medicine (CIRM), Kevin McCormack, Sr. Director Public Communications & Patient Advocate Outreach of CIRM and Bob Harman, Chairman & CEO of VetStem. All three guests have some fascinating things to tell us about how stem cells are curing both people and your pets.

Today we're speaking with many of our fellow Americans For Cures Ambassadors. We were together at The World Stem Cell Summit in West Palm Beach, Florida that took place December 5-9, 2016, and we talked about all the great things that we were experiencing thanks to Americans For Cures.

Today we’ll be speaking with 2 distinguished guests about taking advantage of mental health counseling in dealing with living with this disease, and life in general. We have a conversation with Kimberly Medendorp, a founder of The Peace And Justice Academy, and Jewel Darbone co-founder of Bold Lips For Sickle Cell.

We have a very enlightening conversation with Reverend Gordon Clay Bailey of the Unitarian Universalist Church of the Verdugo Hills.

Our guest today is Dr. Ted Love, CEO of Global Blood Therapeutics. GBT is developing the promising GBT440, as an oral, once-daily therapy for sickle cell disease. http://www.globalbloodtx.com/

We're celebrating the 12th Anniversary of the passage of Proposition 71, which is also known as the California Stem Cell Research and Cures Initiative.
Today’s program is dedicated to Bob Klein,the architect of Prop 71. We’ll be speaking with Kevin McCormack of CIRM… Jason Stewart of Americans For Cures and we’ll have a reading from Don C. Reed’s book “Stem Cell Battles, Proposition 71 and Beyond – How Ordinary People Can Fight Back Against The Crushing Burden of Chronic Disease.”

Our guest is American Society of Hematology Vice President: Alexis A. Thompson, MD, MPH.
She discusses the many resources available from ASH for patients, caregivers and medical professionals dealing with Sickle Cell Disease.

We are honored to have a very informative conversation with Pat Corley. She is an RN, and served as Nurse Coordinator at USC's Comprehensive Sickle Cell Center, Health Care Network, LA County, and University of Southern California.

On this episode, we speak with many of the presenters and attendees of the recent 2 day Sickle Cell Educational Seminar that Axis Advocacy presented with Dr. Carolyn Rowley & Cayenne Wellness Center along with the nursing program of Charles Drew University.

Today's guest is Dr. Yutaka Niihara, M.D. MPH, Emmaus Life Sciences' co-founder and Chairman. He'll be speaking about their promising L-glutamine treatment which just completed its Phase 3 trial for the management of sickle cell disease.
www.emmausmedical.com/Article.aspx?seo=129&l=EN&g=30

Marc Shulman of the National Center on Life Planning joins us today to discuss the importance for families who have a member with a disability, the need for Special Needs Trusts, Conservatorships, Living Trusts and Wills.

We have a very informative conversation with Liz Helms, the President & CEO of The California Chronic Care Coalition, a resource for California health care consumers who are denied coverage, experience delays or are dissatisfied with the decisions made by their health plan.