On episode 95 of Beyond Labels & Limitations, JOHN GRAYBILL shares his new job, what is going on with him physically and how trusting that everything is unfolding as it should has changed him.
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"Desire to Inspire" TKG
On Episode 94 of Beyond Labels & Limitations, John shares a statistic that we have 60-80 thousand thoughts a day, 95% of the thoughts are repetitive, and 80% are negative.
One morning, John woke up and noticed thoughts flooding his head. Instead of just believing the thoughts, which is what he usually did, John just watched them. What he noticed was that he had a choice in either purchasing the thought, by thinking more about the thought, or discarding it by simply watching it and letting it go. In watching the thoughts, John was able to feel lighter and more energized mentally. This was how he discovered how to get his mental power back.
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On episode 93 of Beyond Labels & Limitations, John Graybill shares an insight he had while writing. The insight is into being vulnerable and how that vulnerability led to avoidance. It was from avoidance that he discovered he wasn't accepting his diagnosis.
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"Desire to Inspire" TKG
On episode 92 of Beyond Labels & Limitations, JOHN GRAYBILL shares where he's been all summer, what "accident" he had and how he is moving forward with it.
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On episode 91 of Beyond Labels & Limitations, John Graybill shares the battle that takes place within his mind after a fall and how that battle determines his actions going forward. John also shares what he got from volunteering at his daughters elementary school.
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"Desire to Inspire" TKG
On episode 90 of Beyond Labels & Limitations, John Graybill wishes some very important people in his life a happy birthday and shares a fall he had while getting up from the toilet.
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"Desire to Inspire" TKG
On episode 89 of Beyond Labels & Limitations, John Graybill shares how he physically just got over his last fall, in terms of bumps and bruises, only to have another fall today. John shares the importance of not allowing the situations in life to bring you down but rather to keep going no matter how small a step you take, don't give up.
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"Desire to Inspire" TKG
On episode 88 of Beyond Labels & Limitations, John Graybill shares what his day looks like. John is ambulatory, 44 years old, been living with the diagnosis for 27 years but the first signs of weakness showed up 33 years ago at the age of 12, and he hasn't worked since 2006 (16 years ago). This podcast is to show what your life could look like, if you have LGMD, but your life could also be better in terms of strength, depending on what type of LGMD you have and the mutations. So, use this podcast as a rough outline of what your life could be like if you were diagnosed at 17 with LGMD2A/R1.
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"Desire to Inspire" TKG
On episode 87 of Beyond Labels & Limitations, John Graybill shares the body changes he is currently experiencing, his daughter skiing for the first time and how he was alone for 13 hours.
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"Desire to Inspire" TKG
On episode 86 of Beyond Labels & Limitations, John Graybill shares how fatigue comes on for him and how he handles it now. John also looks at how the mind adds meaning to everything that happens and that by not adding meaning to events you can free yourself from suffering.
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"Desire to Inspire" TKG
On episode 85 of Beyond Labels & Limitations, John Graybill asks the question, "Am I living life or being lived by the stories in life?" This question should be asked daily when dealing with events taking place in life. John has found that an event takes place, then there's an interpretation/story/meaning given to that event and then finally the person lives their life from the meaning they gave to the event. Living life this way gives rise to not truly living life but being lived from the stories. These stories can and usually are false but we don't know that until we look into them. John has become tired of living his life from the perspective/stories/meanings he gave himself when he was in 7th grade. And he is having a "Midlife Realization" that life doesn't need to continue on this way.
Basically the things that happen in life don't mean anything, they're just events taking place. It's when meaning is given to the event that they impact a person.
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"Desire to Inspire" TKG
On episode 84 of Beyond Labels & Limitations, John Graybill shares how his cat tried to kill him with a Karate Kid style move of sweeping the leg. John shares how he felt during and after the fall and how the world can seem to be coming down on you. But, all was not lost as a little boy rollerskating showed him one important lesson.
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"Desire to Inspire" TKG
On episode 83 of Beyond Labels & Limitations, John Graybill talks about how tired he was this past week, a five year old pushed him down and how his daughter predicted the fall 2 days prior.
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"Desire to Inspire" TKG
On episode 82 of Beyond Labels & Limitations, John Graybill shared how just when he thought he was mature, at 44, his button pusher showed up, sending him back to his 12 year old self. It's hard to see the lessons the button pusher show us when it's happening. The important part however is not what they say but rather how it effects you and why are you effected by it. John gives examples from his life, and within the past week, where situations came up and he reacted. What John discovered was how important it was to look at the thoughts that had arisen and questioned them. By not giving in to the power of reaction, through questioning and observing, he saw that the reaction had less power over him.
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"Desire to Inspire" TKG
On episode 81 of Beyond Labels & Limitations, John Graybill shares an online meditation retreat he attended and how aspects of himself came out. Also, John shares how the saying "Time heals all wounds" is not true.
The name of the retreat John briefly spoke about in the beginning of the podcast is Goenka. Here is the link: Goenka Meditation Retreat Website
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"Desire to Inspire" TKG
On episode 80 of Beyond Labels & Limitations, John Graybill shares his daughters 6th birthday and what his daughter's friend shared with him that move him, how John's mind works in the morning, and a dream John had.
The YouTube channel where John talked about Shane and SMA is Squirmy and Grubs: Squirmy and Grubs
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"Desire to Inspire" TKG
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"Desire to Inspire" TKG
On episode 78 of Beyond Labels & Limitations, John Graybill shares his experience with Covid. He breaks down the first week of his symptoms. After a week John was starting to feel like his old self. One important part for John was to take care of his immune system by taking Vitamin D3, Vitamin C, Zine, Quercitin, NAC. After a few days of taking these supplements John felt better. Now, could the supplements have helped him faster? It's hard to say whether they did or if it was something else. In any case, taking care of your body before/and especially when your sick is important. This was merely John's experience with Covid and it may not be yours.
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"Desire to Inspire" TKG
On this final episode of season 2 of Beyond Labels & Limitations, John Graybill shares what he has learned from himself over the past year while living with Limb Girdle Muscular Dystrophy. All was not bad. In fact, when John can create some distance from his "sufferings" is when he learns the most from muscular dystrophy.
Merry Christmas and Happy Holidays!
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"Desire to Inspire" TKG
On episode 76 of Beyond Labels & Limitations, John Graybill shares what having a mobility scooter has done for him, what beliefs he had about having the scooter, and a play he went to with his family. There are lessons in everything and it's up to us to find them.
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