Logo

    Beyond Labels and Limitations

    Welcome to the podcast for Beyond Labels & Limitations. John talks about living a life with Muscular Dystrophy BL&L, started as an organization to raise money dedicated exclusively to Limb-Girdle Muscular Dystrophy 2A (LGMD2A) and to educate on the disease course and associated struggles of LGMD2A, as recounted through my personal experiences.
    en95 Episodes

    People also ask

    What is the main theme of the podcast?
    Who are some of the popular guests the podcast?
    Were there any controversial topics discussed in the podcast?
    Were any current trending topics addressed in the podcast?
    What popular books were mentioned in the podcast?

    Episodes (95)

    Episode 73: Chloe Climbs a Wall, Bathroom Get Up & Thanksgiving

    Episode 73: Chloe Climbs a Wall, Bathroom Get Up & Thanksgiving

    On episode 73 of Beyond Labels & Limitations, John Graybill shares his daughters success climbing a rock wall, how that inspired him to get up from the toilet after a long day sitting in a scooter and what can you be thankful for with having LGMD.

    ___________________________

    Follow John:

    ___________________________

    "Desire to Inspire" TKG

    Episode 72: A Fall from a toilet, Untethered Soul, Letting go and moving on with Limb Girdle Muscular Dystrophy

    Episode 72: A Fall from a toilet, Untethered Soul, Letting go and moving on with Limb Girdle Muscular Dystrophy

    On episode 72 of Beyond Labels & Limitations, John Graybill shares a fall he had while getting up from the toilet, a book he is re-reading called, "Untethered Soul", and finally, letting go and moving on. 

    _________________________

    Connect with John:

    __________________________

    "Desire to Inspire" TKG

    Episode 68: Desires to get up, Repetition is key and a Trusting Mindset

    Episode 68: Desires to get up, Repetition is key and a Trusting Mindset

    On episode 68 of Beyond Labels & Limitations, John Graybill shares his desire to just get up and move-similar to how Forest Gump broke free from his leg braces, a talk he had with his friend Scott about how people in the CrossFit arena get better and lastly the trusting mindset one needs to achieve in this life. 

    ______________________

    Connect with John:

    _______________________

    "Desire to Inspire" TKG

    Episode 66: Dream, Estes Park & Insight into self

    Episode 66: Dream, Estes Park & Insight into self

    On episode 66 of Beyond Labels & Limitations, John Graybill shares his recent trip to Estes Park with his family, what struggles he encountered there and how a frustrated man who honked at him revealed something.  Lastly, John shares a dream he had at the end.

    _____________________________

    Connect with John:

    ______________________________

    "Desire to Inspire" TKG

    Episode 65: LGMD Awareness Day, Physical Struggles and Blood Work

    Episode 65: LGMD Awareness Day, Physical Struggles and Blood Work

    On episode 65 of Beyond Labels & Limitations, John Graybill talks about the LGMD Awareness Day which is every September 30th. This day is important in spreading awareness about LGMD. Go to

    LGMD Awareness Foundation

    to learn more about LGMD. John also shares some physical struggles he's had over the past week and his upcoming blood work. There are 3 tests he asks for and they are: CPK, Vit D., cCRP or CRP.

    _______________________________

    Connect with John:

    ________________________________

    "Desire to Inspire" TKG

     

    Beyond Labels and Limitations
    enSeptember 29, 2021

    Episode 64: 2021 LGMD International Conference take away, Garden of Life supplement, and Neck Stiffness Tip

    Episode 64: 2021 LGMD International Conference take away, Garden of Life supplement, and Neck Stiffness Tip

    On episode 64 of Beyond Labels & Limitations, John Graybill shares his take away from the 2021 International LGMD Conference, which was put on by the Speak Foundation. If you missed the conference you can view all 4 days at this link:

    2021 LGMD International Conference

    John also shares his latest supplement, Garden of Life Company. Do your own research to see if this supplement will be of benefit to you. Lastly, John shares a tip for neck stiffness.

    _________________________

    Connect with John:

    __________________________

    "Desire to Inspire" TKG

    Beyond Labels and Limitations
    enSeptember 22, 2021

    Episode 63: 2021 LGMD International Conference, Pinched Nerve, Mind Chatter and LGMD is like the game Jenga

    Episode 63: 2021 LGMD International Conference, Pinched Nerve, Mind Chatter and LGMD is like the game Jenga

    On episode 63 of Beyond Labels & Limitations, John Graybill talks about a few things. First of all, the upcoming 2021 LGMD International Conference. This is huge and is put on by The Speak Foundation. If you would like to attend please go to:

    The Speak Foundation

    National LGMD Conference

    The conference starts Friday, September 17 2021 and ends Monday, September 20, 2021. 

    John also shares about a pinched nerve, how his mind goes back into judgment and comparing. Lastly, John shares how he feels LGMD is like the game Jenga.

    _____________________________

    Connect with John:

    ______________________________

    "Desire to Inspire" TKG

    Beyond Labels and Limitations
    enSeptember 15, 2021

    Episode 62: Physical Health Review

    Episode 62: Physical Health Review

    On episode 62 of Beyond Labels & Limitations, John Graybill looks back on his health from March 16, 2020 to now and what has changed. John has done a podcast on changes to his health that you can hear on episodes 5, 19 and 37. In each of these episodes, John shares what struggles he has going on and then looks back to see how long he has dealt with them. The reason he does this is to track the disease progression. 

    _____________________________

    Connect with John:

    ______________________________

    "Desire to Inspire" TKG

    Beyond Labels and Limitations
    enSeptember 08, 2021

    Episode 61: When is the time to stop driving when you have limb girdle muscular dystrophy

    Episode 61: When is the time to stop driving when you have limb girdle muscular dystrophy

    On episode 61 of Beyond Labels & Limitations, John Graybill shares an almost accident he had while driving in a parking lot. This got John to thinking about is it time to stop driving. John looks at the first signs of driving becoming too difficult to do. He also shares how the meaning he gives to things/events in his life is what he really reacts to. By giving up the meaning, or at least examining it, you begin to see your relationship with these things/events in your life more clearly.

    ___________________________

    Connect with John:

    ____________________________

    "Desire to Inspire" TKG 

    Beyond Labels and Limitations
    enSeptember 01, 2021

    Episode 60: Why do I struggle with Muscular Dystrophy

    Episode 60: Why do I struggle with Muscular Dystrophy

    On episode 60 of Beyond Labels & Limitations, John Graybill shares how he struggles with limb girdle muscular dystrophy. The struggle wasn't always the same over 26 years. When John was younger he believed himself to be the physical John. Naturally, whenever he lost an ability, he took it hard, and he tried to get that physical ability back.  It wasn't until John heard Wayne Dyer speak of an idea that "we are all spiritual beings having a human experience" did John start the shift. Now, John sees that whenever he gets down and the struggles of muscular dystrophy are heavy, it's because he has gone back into the belief that he is a physical being.

    This self inquiry is a life-long one but one we need to make if we are to go beyond muscular dystrophy. Keep asking yourself, "Who am I" and you'll find out who you really are.

    _________________________________

    Connect with John:

    __________________________________

    "Desire to Inspire" TKG

    Episode 59: Struggling with Negative Thinking

    Episode 59: Struggling with Negative Thinking

    On episode 59 of Beyond Labels & Limitations, John Graybill shares how a negative thought spiraled into more negative thoughts about how his life is terrible. This isn't something new to John's life but rather a constant battle he has endured for close to 26 years. Everybody has these days but how do you get out of them? 

    _____________________________

    Connect with John:

    ______________________________

    "Desire to Inspire" TKG

    Episode 58: Going somewhere, why it can be stressful when you have Limb Girdle Muscular Dystrophy

    Episode 58: Going somewhere, why it can be stressful when you have Limb Girdle Muscular Dystrophy

    On episode 58 of Beyond Labels & Limitations, John Graybill shares how traveling to his parents house brought up challenges he hadn't encountered on previous trips there. Why your friend, child or partner doesn't want to go new places or even places visited before is probably due to it's getting more challenging for them to be independent. John didn't like having to have his dad help him with going up stairs, going down the stairs, lifting him off the toilet, helping him get to the toilet, sitting in a chair. All of these activities John could somewhat do before but since the disease is weakening him John has to rely on others for a lot.

    Here are the 4 part stretching videos:

    LGMD Stretching Video Part 1

    LGMD Stretching Video Part 2

    LGMD Stretching Video Part 3

    LGMD Stretching Video Part 4

    ____________________________

    Connect with John:

    _____________________________

    "Desire to Inspire" TKG

    Episode 57: How I see Limb Girdle Muscular Dystrophy in my life

    Episode 57: How I see Limb Girdle Muscular Dystrophy in my life

    On episode 57 of Beyond Labels & Limitations, John Graybill talks about how he sees his life with LGMD. John was diagnosed in 1995 at the age of 17. He thought his life was over when the doctors told him he had muscular dystrophy. John gave up on life. When John met Wayne Dyer, his perspective on life changed. He attended college, where he studied psychology, and started to look at how he saw himself with this disease. Ultimately, over time John began to see that this disease was here to teach him and that it was up to him to see the lessons if he wanted to live a happy life.

    _________________________

    Connect with John: 

    __________________________

    "Desire to Inspire" TKG

    Episode 56: What sucks about having Limb Girdle Muscular Dystrophy

    Episode 56: What sucks about having Limb Girdle Muscular Dystrophy

    On episode 56 of Beyond Labels & Limitations, John Graybill shares some of the things that suck and have sucked regarding being diagnosed with a physical disability such as Limb Girdle Muscular Dystrophy. John looks at areas of dating, walking, getting up from a chair, climbing stairs, rolling over in bed, being dependent on others to help you and what the future holds for you. John gives examples in these areas where he got stuck and solutions on how to get out of them. What John learned was that looking at what sucks in your life is not the way to live an enjoyable one. Yes life can suck but don't get stuck there, tomorrow is another day.

    ______________________________

    Connect with John:

    ______________________________

    "Desire to Inspire" TKG 

    Logo

    © 2024 Podcastworld. All rights reserved

    Stay up to date

    For any inquiries, please email us at hello@podcastworld.io