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    Losing a Child: Always Andy's Mom

    When pediatrician mom of three, Marcy Larson's 14 yo son, Andy, was killed in a car accident in 2018, she felt like her life was over. In many ways, that life was over, and a new one forced to begin in its place. Come alongside her as she works through this journey of healing. She discusses grief and child loss with other grieving parents and those who work to help them in their grief. This podcast is for grieving parents and well as those who support them.
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    Episodes (232)

    Episode 234: Chad's Mom

    Episode 234: Chad's Mom
    When Susan's 19-year-old son, Chad, died in September 2020 during the pandemic, it was an extremely isolating time, but she and her family were also completely exposed. Chad was a healthy, young athlete who died from an extremely rare neurological disease called Weston-Hurst syndrome. This horrific disease is rapidly progressive and most often fatal as it attacks the central nervous system. Its specific cause remains unknown, but it is triggered by a viral infection. In this case, Chad contracted COVID while at college.
     
    Now, this family was not only mourning the death of their beloved son, but they also had to deal with the fact that their son's death was a news story. If you Google Chad's full name, you will find multiple national news articles. In Time magazine, Chad became the face of North Carolina when they had an article about 'The Fifty Faces of COVID' which highlighted a person from each state who had died of COVID or its complications.
     
    You might think that this publicity would have brought Susan love and support from others, but that was far from the case. As Susan mourned her son, others would talk to her about mask mandates. How would anyone find this comforting? Susan found herself turning inward to her family and isolating herself even more. Fortunately, the tremendous love between Susan and her husband has helped them work through the pain, but it is heartbreaking that others have not been there for them.
     
    When Susan wrote to me about sharing Chad's story, she said she wanted me to think about if I really wanted to have her on because Chad had COVID. Susan wrote, 'If it is too much of a hot topic, I understand.' I assured her that her son's death was not something to be avoided. There are not some stories that are ok to tell and others that are not. These are the stories of our precious children and the manners of their deaths do not change anything. Chad was a smart, amazing kid who always had a basketball in his hand. He was the best friend to many young people and every member of his immediate family. That is the story of Chad that everyone should know and one we are honored to tell.

    Episode 233: Daniel's Mom

    Episode 233: Daniel's Mom

    From the first minutes of listening to this week's podcast, you will feel an overwhelming sense of caring and compassion. While in middle school, Marisol's son, Daniel, went on a church trip to Niagra Falls and fell in love. Now, you might think that he fell in love with the beautiful waterfall, but it was the people who impacted Daniel. He saw that beyond tourism, there were people who were truly in need. Daniel felt a strong desire to help.

    While in high school, Daniel knew he wanted to leave his home state of Maryland and move to western New York to become a doctor. He found a program at Canisius College that offered a program for college and early acceptance to medical school. He was thriving in school until tragedy hit. Daniel was found to have a large cancerous mass in his chest. As soon as Marisol and her husband got off the plane and arrived at that hospital in Buffalo, they were welcomed. They were offered food as well as places to stay. They even had someone offer his apartment for a shower. The caring people of Buffalo simply blew them away.

    After his diagnosis, Daniel decided to stay and undergo treatment in his new western New York community. He told his family that he wanted to stay there because someday these same doctors would be his teachers in medical school. The care from these people was unlike anything Marisol ever experienced. They never left their side. After Daniel died, Canisius College planned a mass for Daniel. Marisol was asked by the priest, "How many people do you think will come?" Marisol quickly answered, "No more than twenty." Marisol again underestimated this loving community. The church was packed with hundreds of people.

    I was so struck by the tremendous love and compassion in Marisol's voice as I spoke with her. She said that she wanted to do this episode to honor not only Daniel, but also the people of Canisius College, Roswell Cancer Center, and all of the people of Buffalo, New York. I am sure that if you asked each one of those people about what they did, however, they would be quick to point back to the amazing loving spirit of young Daniel himself.

    Episode 232: Luella's Mom

    Episode 232: Luella's Mom
    Today's guest, Carrie, and her husband Ben attended their first retreat for bereaved parents only two months after their toddler, Luella, died from bacterial pneumonia. They drove 10 hours from their home in central Illinois to Faith's Lodge in northern Wisconsin. Carrie said that it was the first time they had felt seen and held since Luella had died. The support they received was amazing and on that 10-hour drive home, Carrie and Ben decided they wanted to make their own retreats locally for people in their community.
     
    Their home was a large, beautiful cabin on 10 acres surrounded by trails and nature. Carrie said that she was immediately ready to give up this space as their family home and instead create a haven for bereaved parents. That was in November of 2018. They were ready to start hosting retreats in 2020, but the pandemic forced them to do their first groups virtually. By 2022, however, their dream had become a reality and they began hosting retreats at Luella's Lodge.
     
    As I talked with Carrie, I was struck by the significance of all of this happening in their family home. When they originally moved in, Ben and Carrie planned for this to be their forever home. It would be filled with children and laughter. They have happy memories of walking along trails with young Luella, watching her wave to neighboring cows. After Luella died, however, that same home would feel big and empty. Memories of Luella were everywhere, but sorrow, not joy, would be the overwhelming emotion.
     
    The birth of Luella's Lodge, however, changed everything. Certainly, there are still tears in this building, but they are tears of both sorrow and healing. Laughter has returned to this space, and people feel free to be their authentic selves while they are here. Bereaved parents find support here. They find hope and healing. They meet others here who will become their lifelong friends. That's why I am so excited to partner with Carrie to co-host an upcoming retreat sometime in the fall of this year. I cannot wait to experience the sacred space of Luella's Lodge myself and hope many will join me.
     

    Episode 231: Ruben's Mum

    Episode 231: Ruben's Mum

    Rituals. Different cultures have rituals for various life events. There are beautiful, lavish rituals associated with marriage and births. In Latin American culture, a girl's 15th birthday, her quinceañera, is celebrated as her social debut as a young woman. Rituals abound in many aspects of life, but some of the most powerful rituals are those surrounding death.

    I have heard many stories of funerals and celebrations of life after the deaths of children all over the world. Some are small and private and others are big and public. We do what feels right to us in the moment following our culture. For our family, we had a funeral only 5 days after Andy's death. I wanted a funeral service that honored Andy, one that showed what an amazing kid he was. I wanted it to be full of music which was such a huge part of Andy's life, and (in a request only Andy would understand) if there was going to be cake, it needed to be lemon.

    Today's guest, Geeti, has experienced some amazing rituals after her son's death. Geeti's son, Ruben, was truly a global citizen, identifying with many cultures in his 21 years. He was born to a Swedish mother and lived his first 8 years in New Zealand before the family moved to Australia. After he was killed just over two years ago in a motorbike accident, Ruben's friends all came and surrounded the family with rituals.

    He had friends of the New Zealand native Māori culture who showed their cultural norms. The family took Ruben's body home, danced in the rain, tore their clothes, and cried out in lament. They covered a cardboard coffin in artwork, placed his body there, and took him to the beach before he went to the crematorium. A few months later, to honor Ruben's 22nd birthday, Ruben's family and friends went out to the Australian bush and performed amazing rituals in Ruben's memory according to the native Australian culture. (You will find the story of the white feather especially powerful.) Even more recently, the family went back to Geeti's native Sweden and had a gathering to honor Ruben there as well. Each one of these ceremonies has brought Geeti just a little bit of peace and shows us just how healing rituals can be.

    Episode 230: Grieving in Community

    Episode 230: Grieving in Community

    As the new year began, I was asked a question. 'What is your goal for the podcast this year?' I thought for a minute and then answered, 'I want to help create more of a community of grievers.' I know that many people tune in to listen to me each week, but I want more than that. I want people to feel that they are an essential part of the Always Andy's Mom community. I want people to feel less alone in their grief. On this week's Livestream podcast, Gwen and I discuss the blessings of finding a community of grievers to support you during grief.

    We posed questions to listeners to think about before tuning in this week. How did you find your community? How does your community of grievers help you? What do you look for in a grieving community? I love the responses that listeners gave. Some people turned to family. Others found other grieving parents in their local communities. It actually surprised me just how many people listed that this podcast helped them feel a sense of community. (It gave me a little encouragement that perhaps I am already doing a little better in this area than I previously thought.) There was some sadness in the responses as well. Some felt as if they were not part of a grieving community at all.

    Grieving the loss of your child, no matter what the age or circumstances, is an extremely isolating and horrible experience. I have learned over these last 5 years, however, that when I surround myself with a loving community of other grieving parents, I feel less isolated and that makes the journey a little less horrible as well. My hope for this podcast episode is that you can feel encouraged that there is a community out there for you. You may not have found it yet, but it is there. There are loving people whose calling is to support the bereaved. If you can't find anything in your local community, know that you can start right here with me on the Always Andy's Mom podcast (andysmom.com) or with Gwen (grief-guide.com). Let us give you the love and support you need and deserve. 

    Episode 229: Blake's Mom

    Episode 229: Blake's Mom

    Grief first entered Danielle's life when her dad was killed in a car accident when she was home from college for Easter. She had never experienced grief and said she felt paralyzed. Danielle went on and met and married her husband. When they decided to start a family, grief entered Danielle's life again when she suffered numerous miscarriages. She said it was a horrible and tumultuous time, but then Danielle and her husband had their daughter, Emily, followed 15 months later by their son, Blake.

    Grief seemed to have retreated for Danielle until Blake was 17 months old. Danielle remembers holding Blake as she was about to lay him down for his nap. She looked at herself in the mirror and thought, 'I am the luckiest mom in the world.' She laid Blake down for his nap and he never woke up. His heart simply stopped beating. His cause of death was listed as Sudden Unexplained Death in Childhood. This time, the grief did not just feel paralyzing. It felt like the grief broke her completely, but Danielle did what she had always done and kept going. She was pregnant with her third child by then and even went on to have a fourth.

    Then, four years after Blake's death, something happened. Danielle realized that even though all of her adult life had been spent in grief, she did not really know how to grieve. She had never mourned her dad, her lost babies, or even Blake. She had tried to tuck the grief away and live with the pain in isolation, but she then realized that she had to actively experience the grief. She had to learn to love herself again.

    It was then that Danielle started journaling. Although difficult at first, Danielle began using journal prompts and eventually grew comfortable pouring her feelings out on paper. She sought out others on social media who had lost children so they could help support each other. She learned how precious it is to grieve with others in community. Now, eight years after Blake's death, Danielle has written her own grief journal, entitled, 'Gratitude Through Grief' (available on Amazon), and works to bring grieving parents together through her Instagram account @danielleduffeyy. 

    *Be sure to tune into this week's upcoming Livestream on Facebook and Instagram as Gwen and I discuss the importance of community in grief. Write to me about how you found your community of grievers and how they have helped you along your grief journey at marcy@andysmom.com or on social media.

    Episode 228: Regina: A Sister's Grief

    Episode 228: Regina: A Sister's Grief

    As you know, I primarily speak with bereaved parents on this podcast, but occasionally, a story touches me and I feel nudged to share it with you. This is most certainly the case with today's guest, Regina. My regular listeners will also notice that this week's podcast is titled differently than others. We do not list by name the sibling that Regina lost because Regina actually lost FOUR siblings at four different times, two as infants and two as young adults. She lived the grief and watched her parents grieve four different times.

    Regina had been listening to the podcast for quite some time before deciding to write. She ultimately decided to share her family's story on the podcast to honor her sweet parents as well as her sister and three brothers. Their family's grief journey started just before Regina's 6th birthday and has continued for almost 50 years. She says that the grief has shaped her family. As horrific as the grief has been, Regina also knows that they have a deeper love for each other after having lived through this pain together.

    You might guess that this is a podcast episode that is filled with sadness, but that would not be the case. This is an episode filled with hope and love. It is a story of a family who faced obstacle after obstacle and kept showing resilience even as more and more spaces filled in the family cemetery plot. As Regina's mom was in the final days of her life at the age of 81 this past year, she kept folding and refolding a towel, holding it close to her face. She murmured something that Regina could not hear until she drew close. Her mom was saying, "Mommy's here" over and over again. Regina knew that in her last days, her bereaved mama was again holding her lost children. Now, she is buried with her husband and four of her twelve beloved children, and Regina is comforted with the knowledge that although her parents no longer live with her here on this earth, they are with her four siblings for eternity.

    ***Also, listen for the most amazing moment in the history of this podcast near the end! I promise it will bring happy tears to your eyes.

    Episode 227: Chelsea's Mom

    Episode 227: Chelsea's Mom

    When Melissa's youngest daughter, Chelsea, died of an accidental prescription drug overdose, Melissa was devastated. In an instant, her baby was gone and she did not know what to do with her life. She had never faced anything like this and felt overwhelmed. Then, only a week after Chelsea died, Melissa became the full-time caretaker of her younger brother in the end stages of liver failure.

    I wondered what was going through her family's mind when Melissa took her brother in. What came to my mind was the phrase, 'time heals all wounds.' I think that Melissa and her family thought that it would be likely good for her to keep busy. Caring for her brother full-time would do just that. By keeping busy, time would go by, and Melissa would miss Chelsea less and less. Given enough time, Melissa would simply heal.

    Unfortunately, that was completely wrong. Time did not heal Melissa at all. In fact, 3 1/2 years after Chelsea's death, Melissa found herself in her doctor's office explaining that she thought she was worse in her grief now than she had ever been in the early days. She ignored her grief and stuffed it in a box, and instead of shrinking in size, it had grown.

    The phrase, 'time heals all wounds' is one that has irritated me over these last 5 years so I decided to look up the origin of this much-hated phrase. It turns out, however, that I (and most other people) have been misinterpreting it completely. I thought that the saying meant that "only time is needed to heal wounds" which is, of course, completely untrue. Melissa experienced this first-hand. What is meant by 'time heals all wounds' is that 'it takes time for all wounds, mental or physical, to heal and it is important to remember that recovery is a process.'

    I have spent years complaining about the use of this phrase, when, in fact, I just had the wrong definition. Time is not the only thing needed to heal wounds. Hard work brings healing. A supportive community brings healing. Therapy and spirituality bring healing. There is no quick fix to grief. It is a long, painful journey. Many things are required to heal, but time is one thing that is a necessity.

    Episode 226: Kole's Mom

    Episode 226: Kole's Mom

    As parents, it is natural to want to know what our kids are experiencing. That is probably why at the beginning of every new school year, schools will have an open house where the parents can go to their child's classrooms, meet the teachers, and see where their child will be spending each day. I know the open house is an event that I look forward to each year and have never missed.

    That is one of the many horrible things about Andy dying. I no longer 'know' where Andy is. In my heart, I know he is in heaven, but what is heaven really like? Can he see us? Does he want to see us? Is time the same or different? I have to admit that I truly do not know. I was not given a chance to visit like I could visit his school classroom in years past or even like I could visit my daughter's college dorm. Sometimes, though, I allow myself to imagine what it might be like, and in today's interview with Tootie, we imagined together just what our boys might be doing.

    To take a step back, Tootie's son, Kole, was an amazing kid growing up, never really giving her any trouble. As an only child of divorced parents, he adjusted well and truly lived life to the fullest each day. Tootie says that Kole never met a stranger and was always ready for the next event or celebration. Everyone just loved Kole and gravitated to his positive outlook on life. It was crushing to Tootie and so many others, when 21-year-old Kole was suddenly killed in a car accident.

    As we talked, I told Tootie, that I could imagine Andy running through heaven shouting, 'Kole, Kole, Kole, Kole! Come quick! I'm so excited! My mom is going to talk to your mama! It's going to be great! Come, let's listen together!' Tootie said, that in typical Kole fashion, he would be eager to come along with this younger teen and not miss out on the excitement. We could both imagine their big grins smiling down as they watched us share.

    Admittedly, I really don't know if heaven is like that or not, but it sure is amazing to imagine that it might be. Even more, it warms my grieving heart to think of Andy running through heaven each week, excitedly bringing others like Kole to listen.

    Episode 225: Theo's Mom

    Episode 225: Theo's Mom

    When you go to Karla's website, karlahelbert.com, you will see these words - 'We all need a little help sometimes. You are not alone.' You might look and think, "Karla, I need more than a little help. My child died. I am a mess." However, Karla understands. Karla knows the mess because she lives the mess. Karla has lived with grief every day for almost 18 years when her son, Theo, died at 9 months from a brain tumor.

    You may notice this interview is longer than most. I honestly think I could have talked to Karla for 3 hours and not even batted an eye. Her outlook is refreshingly honest, and talking to her just made me feel better about my grief and life. When talking to Karla about her journey, she openly says that for the first three years, she would find herself on the floor crying every single day. She said that she would think, "How is this not killing me?" And then, after no more tears would come, she would get up. "It's amazing," Karla says, "that somehow we do not die from the grief."

    I have to say I've never really thought of grief like that, but Karla is right. It is 'amazing' that it does not kill us. In those first days, months, and even years of grief, I often felt like the pain was too much to bear. I couldn't even begin to count the number of times I thought to myself, 'I can't do this anymore.' Then, somehow, I would get through another day, then another month, and eventually, another year. It is amazing.

    If you keep yourself open, even more amazing things can happen as well. After Theo died, Karla never would have guessed what she would become. Karla went back to her job counseling kids with autism at school, but small opportunities kept coming and ever so slowly her life changed to what it is today. Now, Karla is a therapist working almost exclusively with people who have experienced traumatic grief, has published multiple books, and even has a  new virtual workshop for bereaved parents starting next week. Amazing.

    Thank you, Karla, for all you do and for reminding me that a little help can make us feel less alone on this excruciating, messy, but nonetheless amazing, grief journey.

    Episode 224: Tattoos, Trips, & Toys

    Episode 224: Tattoos, Trips, & Toys

    When I saw that December 28th was a podcast release day, I immediately thought of my mom and of the 'Be Still' tattoo that I got last year in honor of Andy on the anniversary of my mom's death. I knew that I wanted to do a Livestream the week between Christmas and New Year's as I usually do, but I worried about the logistics as we were going to be traveling and would be in Florida at the condo of my in-laws.

    This combination of circumstances got me thinking. What about doing an episode honoring my tattoo and our trip to Florida? Over the past 5 years, I have seen so many beautiful, meaningful tattoos on parents. What if I allowed listeners to tell the stories behind their tattoos and send in pictures? What about letting them talk about trips they have taken in memory of their children? What about adding a third 'T' to the podcast and bringing in 'toys' or items that we have to honor our children as well? For me, my 'Be Still' bracelets have become an important part of my grief journey by helping me spread hope and healing to others. What 'toys' have brought healing to others?

    So that is exactly what we did in our Tattoos, Trips, and Toys Livestream. If you normally just listen to the podcast, you may want to change things up a bit and watch the video on the Always Andy's Mom pages on Facebook, Instagram, or YouTube so you can see the pictures of tattoos. You can also look at recent posts on social media to see some amazing pictures and stories from listeners. 

    The true takeaway from this episode, however, is not just about cool pictures. It is about the importance of taking care of yourself. It is hard to focus on self-care during grief, but it is key to healing. That does not mean that everyone needs to run out and get a tattoo, take a long trip, or buy a new truck, but if getting a tattoo brings you a bit of comfort in your grief, do it. If a walk along the beach gives you a moment of peace, take that walk. And if handing out bracelets makes me think of Andy and helps remind someone else to 'Be Still,' I will continue to do it as well.

    .

    Episode 223: Manny's Mom

    Episode 223: Manny's Mom

    For those unfamiliar with the popular Christian poem, 'Footprints,' it relates the story of a person who is at the end of life. They are looking back through their entire life's journey as a walk along a beach. Most of the time, there are two sets of footprints in the sand. The first are their footprints and the second represents the footprints of God. This person notices that when they are going through their deepest struggles there is only one set of footprints. The person questions God, 'Why when I needed you most, would you leave me?' God then answers, 'My precious, precious child. I love you and would never leave you. During those times of trial and suffering, it was then that I carried you.'

    Today's guest, Lavinia, started dating Manny's dad when she was 17 and he was 20. The first gift that he gave her was a plaque of the 'Footprints' poem. At the time, it may have seemed like an odd gift, but honestly, it was perfect. In their marriage, they had many times when there was only 'one set of footprints' and God carried them. At the age of 3, young Manny was diagnosed with leukemia. His treatment was filled with complication after complication. Even after he was cancer-free, Manny suffered cognitive struggles from the treatments. Right around the time of his 15th birthday, the family was dealt another blow when Manny was diagnosed with a brain tumor.

    Lavinia learned then that Manny, too, had a relationship with God that allowed him to be carried through his struggles. In October 2020, Manny said in a very matter-of-fact manner, "Mom, I asked God for more time." What strikes me here is that Manny did not beg God to cure him. He did not bargain with God to make some deal. It is almost like as Manny was being carried by God, he leaned in and whispered, 'Hey, can I have a little more time?' Manny almost seemed a bit excited when he shared that with his mom because he already knew God's answer. God gave him 4 more months, enough for one last Christmas with his family - just a little more time. Even now, as Lavinia lives in her pain after Manny's death, it comforts her to know that Manny had that kind of relationship with God and that she too, can be carried by the same arms that carried Manny.

    Episode 222: Jimmy & Chrissy's Mom

    Episode 222: Jimmy & Chrissy's Mom

    Legacy is defined as the long-lasting impact of particular events or actions taking place in the past or in a person’s life. I have been thinking a lot about that word recently. On December 5th, we had the first Andy Larson Memorial Concert. Our featured artist, Will Liverman, along with his accompanist, Jonathan King, gave us an amazing night that will never be forgotten. A tradition has been started that will honor not only Andy's legacy but that of so many children whose lives were cut short.

    Today's guest, Jackie, thinks a lot about her family's legacy as well. Before she was born, her family suffered from epilepsy. Although many members of Jackie's family had seizures, no one had ever died from them and I doubt Jackie even thought that was possible until the day she lost her oldest son, Jimmy. She worried then, that the doctors were missing something and that Chrissy might die as well. 3 years later, Chrissy did die, only 8 months after giving birth to her second daughter.

    In a sad twist of fate, 10 months after Chrissy died, Jackie's 75-year-old mother was rushed into the ICU with a heart condition. Doctors explained to Jackie and her family that her mother had long QT syndrome, an electrical abnormality in the heart that can result in fainting, drowning, seizures, or sudden death. A light bulb went off in Jackie's head. Jimmy and Chrissy died from long QT syndrome, not epilepsy. Every member of Jackie's family who had seizures had long QT syndrome as their cause. The discovery was too late for Jimmy and Chrissy, but it has saved so many others in the family.

    After losing both of her children, Jackie knew that she was now living her life for all three of them. She needed to help create their legacy. Over the past 20 years, Jackie has done just that. She works on the podcasts 'Bereaved, but Still Me' and 'Heart to Heart with Anna' and hopes to start her own podcast about long QT syndrome over the next few months spreading education and awareness of this treatable condition. Jackie wants her family's legacy to help prevent others from experiencing her grief and pain.

    Episode 221: Nick's Dad

    Episode 221: Nick's Dad

    When David's son, Nick, was 7 years old, he was having struggles in school causing him to have self-doubt. One night, Nick asked, "Dad, Is there something wrong with me?" Before David laid him down to sleep, David told him, "You're the best 7-year-old boy in the whole wide world, and your daddy loves you." The next morning and every morning afterward before he went to work, David would go into Nick's room and repeat this phrase. Each year the number would go up by one, but the every morning tradition did not change.

    That is, that number did not change until January 2011 because that is when 13-year-old Nick died in an accident at home. Since 2011, the phrase has been the same - 'Nick, you are the best 13-year-old boy in the whole world, and your daddy loves you. Now, however, David does not go into David's room in the morning and kiss the top of his head as he says these familiar words. Instead, this is how he ends every post on his Facebook blog where David has documented his grief journey. It is also repeated throughout the book he wrote about Nick which is entitled, 'Forever 13' available here on Amazon.

    My favorite image from David's book is not that little phrase, however. It is the image of a 'bean counter' in heaven. The bean counter is there putting a bean in a jar each day that our child is in heaven. Initially, that image bothered me. I kept thinking of Andy's jar filling up after days, months, and years, but then David says that this same bean counter has another jar with our names on it. In this jar, a bean is removed each day. Each bean represents the number of days until we will join our children in heaven and each day, our jar has one fewer bean.

    I love the idea that as Andy's jar fills, mine is being emptied. The number of days between Andy's death and mine has been known by God since long before Andy died. That number has never and will never change. The only thing that changes is which jar the beans are in. One day, when my jar is empty, I will see Andy again and be able to say to him, "Andy, you are the best 14-year-old boy in the whole world, and your mommy loves you."

    Episode 220: Lydia's Mom

    Episode 220: Lydia's Mom
    After Daphne's 5-year-old daughter, Lydia, was killed in a car accident 15 years ago, Daphne struggled to find any hope. She dreaded looking at her daughter's closed bedroom door. Her therapist gave her a bit of advice that she still lives out all these years later. Daphne's therapist told her to 'sprinkle a little bit of Lydia' throughout the house so Daphne did. She put Lydia's favorite nail polish on the counter and hung Lydia's feather boa on her curtains. She worked to leave little bits of her precious daughter everywhere.
     
    Now after 15 years and a move to a new house, there are not quite as many of Lydia's possessions around the house, but the spirit still applies. Daphne has written a book about her grief journey, co-authored another book, and been a contributor for a dozen others. She has a blog called 'The Sweeter Side' on her website, grievinggumdrops.com. Through her writing, Daphne sprinkles a little bit of Lydia in order to bring hope and healing to grieving parents everywhere.
     
    Now, Daphne has a new dream. Over the years, Daphne has met many grieving moms, especially through Compassionate Friends and Ellie's Way. She has followed many bereaved moms (including me) on social media and noted how many of us are working to bring little bits of hope to grieving families. This gave Daphne an idea. What if she asked these moms to submit their own little stories to make a collection? This collection would tell the stories of their late children as well as give little messages of hope - little stories that could help to inspire other moms on their own grief journey.
     
    So that is exactly what Daphne is doing. She is collecting 52 stories from 52 different moms to make a book that a grieving mom would read over a full year. Daphne still laments the fact that it took her so long to find any hope in her grief. She wants to provide a bit of hope each week to moms who are feeling hopeless. It is a gift to them as well as a gift to all of us who are contributing, because now we, too, can sprinkle a little bit of our own children out to others in the world.
     
    To contribute, email DaphneBGreer@gmail.com

    Episode 219: Thanksgiving Grief

    Episode 219: Thanksgiving Grief
    ‘What are you doing for Thanksgiving this year?’
     
    This is a question that I have been asked dozens, if not a couple hundred times over the past month. They want to know if we are traveling. They want to know if we are hosting for Thanksgiving. They want to tell me their Thanksgiving plans. It is simply polite conversation during the month of November. 
     
    What’s interesting for me is that no one in my life has thought to ask me, “How are you doing this Thanksgiving?” No one has asked how we might be honoring Andy. No one seems to have thought at all about the empty seat at our table and the fact that Thanksgiving might, in fact, still be a hard day for us, even five years after Andy’s death. 
     
    Certainly, no one is trying to be insensitive at all. I just don’t think it dawns on them, but, the fact is, Thanksgiving is still hard when you are in the midst of grief. Looking at that empty chair today will bring moments of sadness. 
     
    This week’s podcast is a discussion of what it feels like to gather and give thanks during grief. We asked for insights from listeners and we got them! We got true honest answers about feeling thankful and NOT feeling thankful. We got answers about what we might be dreading as well as who we are turning to in order to help us get through this day and others like it. 
     
    So what is the answer to that unasked question? ‘How am I this Thanksgiving?’ The answer - I don’t know yet. Will I be 99% grateful and happy today or will I be 99% miserable? Probably the answer will lie somewhere in the middle. Honestly, the less the miserable aspect is acknowledged, the more miserable I am likely to be. 
     
    So where does this leave us as we go through this Thanksgiving Day and the next month of the Christmas season? These are answers I know. 
    1. Acknowledge that it can be hard, but enjoy the moments that bring joy whether 1% or 99%.
    2. Acknowledge the empty seat at the table while trying to appreciate the chairs that are full.
    3.Allow yourself to feel the whole spectrum of emotions, because only then can healing begin. 

    Episode 218: Devin's Parents

    Episode 218: Devin's Parents

    'What if?'

    This question haunts many bereaved parents long after their child dies. My 'what if' questions tend to be: What if I hadn't let him change before we left for the game? What if I had picked up the ticket so we didn't need or stop at the office? Or even what if we picked him up from soccer practice instead of carpooling home? For others, the 'what if' questions might be: What if I had taken him to the doctor sooner? What if I had listened more? Or what if I had done this one thing differently? All of these questions and more linger on.

    For today's guest, Donna, and her husband, Kent, the 'what if' questions continue as well. In fact, Donna shares 4 very specific 'what if' questions that she relives when thinking about her son, Devin's final bout with ITP. As parents, we do anything and everything possible to protect our children. Knowing what Donna knows now, she would have acted differently that day, but with the information they had at the time, each decision seemed to be the right one.

    The problem, of course, is that there is absolutely no way to predict what will happen in the future. There was no way that I could have known that leaving a few minutes earlier or later might mean that we wouldn't be the car that was hit that night. We traveled that patch of highway hundreds of times and had taken the kids to many baseball games. How could I have known that on this trip Andy would be killed? Given Devin's ALPS diagnosis, he had been through several bouts of ITP. Each episode had been treated with the same protocol resulting in recovery each time. How could Donna, Kent or any member of Kent's medical team have known that this time, instead of recovering, Devin would have a devastating brain bleed?

    The reason that we focus on these 'what if' questions is because we desperately want there to be a different outcome. We replay things in our minds wondering if our child might still be here if we had made even one slight change. Unfortunately, that is impossible. We don't have the ability to turn back time. The challenge is to attempt to let go of the guilt and to let 'what if' questions begin to fade away.

    Episode 217: Dane's Mom

    Episode 217: Dane's Mom

    Some of my favorite interviews are ones where the child whose story we tell reminds me of my Andy. I tend to get a little more emotional during those interviews because I am reminded of stories in my own past. I feel a special connection to these mothers as I see a little of myself in them. This is one of those special interviews, and Jackie is one of those moms who I feel like I already have a deep connection with despite having only an hour long Zoom conversation.

    Dane, like Andy, was a kid who felt big emotions. He could get anxious easily, but would get excited over seemingly little events in life. He was a great friend to other kids and loved spending time with his family, especially Jackie, who he often called 'the best mom ever' (although I did tell her that Andy and Dane would likely argue about who had the best mom). Jackie told stories of how the two of them would go to a Red Box machine and leave a bag of microwave popcorn and money for a movie. Dane would beg his mom to wait in the parking lot to see if if the next customer 'got excited' when finding their surprise.

    After Dane was suddenly killed at the age of 11 while on a snowmobiling trip with his Dad, many people remembered Dane's sweet loving spirit. More than one person said that everyone should learn to 'live like Dane.' The phrase struck a cord with Dane's family and they started a 'Live like Dane' Facebook group. The family even made little cards with Dane's picture and a QR code linking to the Facebook page. The card reads, 'This random act of kindness was done in honor of Dane McCoy. No act of kindness, no matter how small, is ever wasted. Please help continue his legacy by paying it forward.' People are then encouraged to share their random acts of kindness stories on Facebook.

    I love this idea. I love that Dane can be remembered in this way by people he never even met. Today, I urge all of us to 'Live like Dane' by surprising a friend, or even a stranger, with a random act of kindness. I can picture Andy and Dane together looking down from heaven, getting 'so excited' as someone discovers their unexpected gift.

    Episode 216: Artin's Mom

    Episode 216: Artin's Mom

    Vickielly's son, Artin, lived for only 20 hours when he was born last year, but those 20 hours changed her forever. The compassion that she developed for others who are suffering reached new levels. From Vickielly's 20 week ultrasound, she and her husband knew that Artin would not be a 'normal' baby. With hypoplastic left heart syndrome, they expected a long NICU stay and multiple surgeries. Unfortunately, complications developed during birth and Artin suffered severe brain damage. Their long NICU stay suddenly became very, very short.

    As a trained nurse, Vickielly had been ready to take a break working as a charge nurse at a surgery center and spend the next years of her life caring for her own son. After his death, everything changed and nothing changed all at the same time. Even though Artin did not survive, Vickielly still wanted to live for Artin. She wanted him to have a legacy. Immediately after getting home from the hospital, she began pumping breastmilk. This would not be breastmilk for her own infant, but it would be donated as a gift from Vickielly and Artin to other babies in the NICU.

    Once she returned back to work in the operating room, Vickielly found that it was just too difficult. She had flashbacks of the nightmare of her own C-section. Eventually, Vickielly knew that she needed to find a new path, but she still wanted to care for people who were suffering. Vickielly wanted the comfort of being home instead of in a medical setting, and she could do this while being a triage nurse on the phone. Now, Vickielly spends her days offering comfort and assistance to patients with medical concerns. She helps them find the right medical care whether it be home care, a doctor's visit or even calling 911 for them. VIckielly's compassion fueled by her love for Artin, is helping her to be a tremendous blessing to others every single day.

    Episode 215: TT's Mom

    Episode 215: TT's Mom

    If you watch the video of this week's podcast on YouTube or watch clips on the AlwaysAndysMom Instagram account this week, you will see a beautiful picture of Andrea's daughter, Taylor (also known as TT) sitting right behind her. On the picture, are these amazing words, 'You will never be forgotten. I promise.' That is our goal as bereaved parents, isn't it? We want to make sure that however short or long our child's time was on this earth, we want it to have mattered. We want them remembered.

    Andrea and her husband were high school sweethearts. After marrying, the two envisioned having a big family, but that was not in the cards. Early in this week's podcast, Andrea shares that there may have never been a baby born who was more wanted than Taylor. Andrea recounts the long years of infertility that the couple endured. By the time Taylor was born, Andrea had gone through IVF treatments nine times. That 9th time was the charm, and Andrea and her husband were blessed with an amazing baby girl. After Taylor was born, the couple tried IVF three more times before stopping after Andrea had a cancer diagnosis and underwent treatment. Their family of three was small, but it was complete. 

    I have spoken with many mothers over the past 4 years who have had close relationships with their daughters, but likely none have been closer than Andrea and Taylor. Life was not always easy for the family, but they made it through the tough times together. They spoke on the phone multiple times every day. Andrea suspects that the two texted as much as 50 times per day. One of the last texts that Andrea sent to Taylor was a picture with the following words - I hope you know that I've had the time of my life raising you.

    Now after losing TT suddenly at the age of 30, Andrea and her husband are living their days as a couple once again. Their only child is gone, and it is difficult to want to look into the future. There will be no grandchildren. They feel as if their legacy died with Taylor, but they cling to the words on that picture, 'You will never be forgotten. I promise.'

    They remember their TT and we remember ours. We promise.

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